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Dec 20, 2018 02:04PM
VJSL8
wrote:
Minus-- I haven't been around, just caught up with posts since October. 2018 has not been a good year for me. I was diagnosed with Epstein Barr Virus, spent almost 4 months in bed from fatigue during the summer, good news is that I dropped over 50 pounds. First time I've been a "normal" BMI since the first time I had cancer in 1987. Breast cancer screwed up my body both times and EBV gave it back to me.
I'm just now getting my life back. My viral load is still really high and my doctor doesn't know why I'm doing as well as I am. I think it's because I'm doing all the "right" things. My diet is limited now (EBV makes you sensitive to different proteins-- so I can't eat dairy, eggs, gluten and nightshades). so I mostly eat organic fruit and veggies, no processed food. I take a ton of supplements -- my doctor tested and I was low in everything -- even when I was taking 4,000 mg of Vitamin C, I wasn't absorbing it. I'm now taking 20,000 mg a day and I'm in the low normal range. None of which are paid for by my insurance. Because of all this, I look the best I have in probably 20 years, but I've had cancer twice, both times it was localized, and not metastatic, so I'm only speaking from my experience but EVB kicked my butt more than cancer. In some ways it is worse. I don't wish either on anyone but if I had to choose -- I'd choose localized BC over this. The current theory is that EBV may be a cause in MS, lupus and fibromyalgia. It is also linked to a couple of rare cancers.
I see there are some new people here, good luck in your journey to become smoke-free. I wrote a book on how to quit, send me a PM with your email address and I'll send you a free PDF copy.
Wishing everyone a joyful holiday season and a healthy new year.
VJ Sleight, 1st diagnosis: 1987, stage 2, ER+, 0/18 nodes, lympectomy, radiation and chemo. cancer free for 22 years, 10 months and 27 days. www.VJSleight.com
Dx
8/2/2010, IDC, 2cm, Stage II, Grade 3, 0/0 nodes, ER+/PR-, HER2-