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Topic: Exchange City

Forum: Breast Reconstruction — Is it right for you? Discuss timing and various procedures and techniques.

Posted on: Jan 30, 2009 07:41PM - edited Mar 29, 2019 07:40AM by Mykidsmom

Mykidsmom wrote:

We love to include everyone's surgery dates - Please PM me and I will update the list to include you! The list keeps changing since we try to move forward as the dates move forward. Thanks. - Jean

Useful web sites:

Mentor: http://www.justbreastimplants.com/implants/mentor_specs.htm

http://www.mentorcorp.com/breastsurgery/reconstruction/breast-implants.htm

Mentor ultra high profile implants: http://www.mentorcorp.com/global/physician-information/silicon-gel-breast-implants.htm

Allergan: http://www.allergan.com/assets/pdf/natrelle_catalog.pdf

9/8 - CarlaEM - Revision, switching implants, possible fat grafting (completed)

9/8 - NervousGal - Exchange Surgery (completed)

9/20 - Buffyjc - Exchange and Fat Grafting (completed)

9/22 - Noodlesmom - Exchange Surgery (completed)

10/9 - MotherofTwins - Exchange and Fat Grafting (completed)

11/1 - Lynae23 - Exchange Surgery (complted)

11/3 - MinuteAtATime - Exchange Surgery (completed)

11/3 - T-Sue - Exchange Surgery (completed)

11/15 - LettyF - Exchange Surgery with lipo/fat grafting (completed)

11/28 - Maui-Jen - Exchange Surgery (completed)

11/29 - Shoregirl- Revision Surgery - downsize implants, tighten pocket and skin, and fat graft (completed)

12/8 - Dafne - Exchange Surgery (completed)

12/20 - Bringon2017 - Exchange Surgery (completed)

1/24 - jbrmdr - Exchange surgery (completed)

1/29 - Mooney - Exchange Surgery (completed)

4/25 - lmkopy2 - Nip recon put on hold! Swapping implants and fat grafting. (completed)

5/22 - Mariettamom - Exchange Surgery (completed)

6/19 - Maggiebutterfly - Exchange Surgery (completed)

7/10 - Rascalsmom - Exchange Surgery to Sientra smooth round high profile (completed)

8/31 - Mastectomysister - Bilateral mastectomy 8/31 with TE's. No date set yet for exchange.

9/13 - Rachelcarter35 - Exchange Surgery (completed)

9/20 - Gramto4 - Exchange Surgery/Revision (completed)

9/25 - LInnyG - L mastectomy with TE and SNB (completed)

11/13 - Mastectomysister - Exchange Surgery (completed)

11/30 - Jsbells - Exchange Surgery (completed)

12/27 - Gramto4 - Nipple reconstruction and fat grafting (completed)

12/28 - Lolarg - Exchange Surgery (completed)

1/3/2019 - Crossh - Exchange Surgery (completed)

3/25 - Allebasi - Exchange Surgery left side and a lift and small implant on right side for symmetry (completed)

AnnieAlso - Revision Sister in Waiting!

Prophylactic Bilateral Mastectomy w/ Tissue Expanders - 12/08 Exchange 04/09 Dx 8/25/2008, LCIS, Stage 0
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Page 1374 of 1,378 (41,318 results)

Posts 41191 - 41220 (41,318 total)

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Feb 4, 2019 11:02AM TrmTab wrote:

7 weeks post-op today...while the Dr said I didn't have to wear a bra 24/7, I still am too ShoreGirl. BUT I have moved away from the post-op mild compression bras, back to coobie bras to sleep in and normal bras during the day.

I went from TCX800 to SRX700 but am still the same bra size from what I can see, just softer and not sitting so high...a 38D "look" wearing a 38G Wacoal due to wideness of implant and importance of not having wire touch implant. TT

Dx 9/2015, DCIS, Left, 1cm, Stage 0, Grade 2, ER+/PR+ Surgery 12/21/2015 Lumpectomy: Left Surgery 1/11/2016 Lumpectomy: Left Hormonal Therapy 2/5/2016 Arimidex (anastrozole) Surgery 6/3/2016 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 1/1/2017 Arimidex (anastrozole) Surgery 9/8/2017 Reconstruction (left): Silicone implant Surgery 12/17/2018 Reconstruction (left): Silicone implant Hormonal Therapy 5/12/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 9, 2019 07:58PM borogirl wrote:

Had my exchange surgery yesterday morning and I have no pain at all. Haven't even taken Tylenol! Not only no pain from surgery, but the uncomfortable aspect of the TE's is gone since they are gone. Haven't been able to see the results yet as I am wrapped in an ace bandage that PS will remove on Tuesday at post op visit. My TEs were filled up to 400 cc each side, and the implants he put in were Natrelle Inspira SSX-495. Can't wait to see them! Still can't believe I had surgery yesterday and feel so great today.

Surgery 3/13/2018 Lumpectomy: Left Surgery 11/12/2018 Mastectomy: Left, Right; Prophylactic mastectomy: Left, Right; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement
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Feb 9, 2019 08:19PM Mominator wrote:

Wonderful to hear the good reports from TrmTab and borogirl. 

Hoping that you continue to heal well. 

Best wishes,

Madelyn 

Mominator, BRCA2+, STK-11 VUS, wife, mom to 3 children of various special needs, musician, volunteer. My Mom dx DCIS age 62, ILC stage IIIA age 79; Mom just passed 2/28/18. My Grandmother died of ovarian cancer age 48. Friend to Lori M, died 5/25/16. Surgery 11/11/2015 Prophylactic mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/18/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 6/30/2017 Reconstruction (left): Silicone implant
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Feb 9, 2019 09:24PM FelineMum wrote:

Hi. I had my implant swap on Monday (2/4). Just getting to surgery was a headache. My PS's RN, a nice young women but still learning her job, insisted I have more blood work done because she didn't like my WBC from lab work a couple weeks before that and she was certain it meant I had a UTI. She ordered the labs, I went and fed the vampires and gave a urine sample. (Wow! Still not pregnant!) WBC was in the middle of the normal range. But she forgot to order followup tests with the urinalysis to test and culture any bacteria, if found. She was then off for 7 days and then back for one work day before my scheduled surgery.

If I have a UTI, no surgery. So the PS needs to know if I do. One of her co-workers was supposed to send in additional lab orders. Fax busy; didn't resend. An order is finally sent on the Thursday before my Monday surgery. I go to the lab ASAP. RN is off on Fridays. A co-worker is supposed to call me first thing Friday morning. PS has decided that even if I have a UTI, he'll operate if I've taken antibiotics for 3 days, but he only wants me on antibiotics if I actually have an infection. I agree.

Friday morning ... waiting for the phone to ring. Run some errands. It's now noon and nothing. Start calling PS' office. No one knows what I'm talking about. Ask to speak to an RN, to someone on my PS' team; to anyone who might be able to help me. "Is Courteny available?" 'Which Courtney?' "Is Jillian available?" 'Which Jillian?' Um, maybe start hiring people with different first names, have employees wear name tags or maybe give out old school business cards?

I finally reach someone around 3 p.m. (antibiotic was supposed to be started no later than 1 p.m., if needed). She informs me that Jillian left me a vm almost 30 minutes ago. Since I apparently don't listen, my test was negative and I don't need to do anything.

No one left me a vm.

Jillian was supposed to call me first thing in the morning.

I got a letter from my health insurance company yesterday saying they were denying coverage of the surgery. As I read the details, I started laughing. The new girl who's doing billing because the old girl "just quit," asked for urgent medical coverage for the wrong procedure on the wrong date without getting anything from my physician's office. Today, I got an approval letter based on info sent by my physician's office. I saw her Wednesday for something completely unrelated, but mentioned the chaos at the PS office.

So, surgery done. I has TEs put in during my bmx and I've had them since July 2017. The road's been bumpy. I'm surprised at how large my implants are. We had talked about large B/small C. I'm at least a D. My expanders had 710 ccs in them. I thought that seemed like a lot, but PS said better too much room than not enough.

I'm supposed to wear a surgical bra 24/7 and until today, I did. It's so tight that it pulls my shoulder blades back several inches, aggravating back probs I have. So, for sitting and sleeping (today/tonight at least), it's a camisole with a built-in bra.

Severe pain didn't last long. I took Norco for 48 hours. I'm still icing the swelling. Steri-strips are starting to peel and bandages came off Wednesday, as instructed. Post-op appointment on Tuesday.

I'd like some boredom, please.

Dx 2/28/2017, IDC, Left, 6cm+, Stage IIIB, metastasized to liver, Grade 3, 1/3 nodes, ER-/PR-, HER2- Chemotherapy 3/2/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 7/26/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement Chemotherapy 8/27/2017 Xeloda (capecitabine) Radiation Therapy 3/10/2018 Whole-breast: Lymph nodes, Chest wall Dx 4/2018, IDC, Left, Stage IV, metastasized to liver, ER-/PR-, HER2- Chemotherapy 10/8/2018 Doxil (doxorubicin)
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Feb 11, 2019 12:24PM robinblessed54 wrote:

Be careful! Just because you can, doesn't mean you should. It can sneak up on you. Sounds like you have the textured ultra cohesive implants. Keep them tight and follow your doctors instructions to a "T". Do Not Overdue. Keep on feeling good and enjoy being TE free. Robin

Dx 9/2/2014, ILC, Left, 1cm, Stage IB, Grade 1, 0/5 nodes, ER+/PR+, HER2- Surgery 9/25/2014 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 10/15/2014 Arimidex (anastrozole) Hormonal Therapy 12/30/2014 Aromasin (exemestane) Surgery 3/5/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 3/14/2015 Femara (letrozole) Surgery 12/21/2016 Reconstruction (left): Nipple tattoo; Reconstruction (right): Nipple tattoo
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Feb 12, 2019 07:55PM borogirl wrote:

Had my exchange on Friday, 2/8, and follow up with PS today. I am so happy with how they look and feel! I've got Natrelle SSX495, round smooth, and they feel just like the originals to the touch (although of course I can't feel the touch myself) and although they are a little misshapen after being bound in Ace wrap since Friday, they are symmetric and as of right now, little bruising. I am now released to drive, shower, wear whatever bras feel comfortable, light lifting (less than 10 lbs) and starting back into working out. Still supposed to sleep on back for 3-4 more weeks, not because pocket could shift, but so I don't fold the lateral incisions on them selves for healing. He doesn't think I'll need fat grafting as I had good thickness of skin flaps, but he says he will reassess that in 6 months or so. After I left his office I met a friend for lunch, bought two new pretty bras, and 2 pink champagne cupcakes. Late this afternoon I culled through my 2" thick 3 ring binder and got rid of so much collected information I no longer need. Very cleansing.

I really want to thank everyone on this board! I joined late spring of 2018 and the information and support have been invaluable as I prepared myself physically, mentally, and emotionally to do this prophylactic surgery. I am a huge researcher, but medical reports and dr.s offices only give you a certain amount of information. It also takes having someone who's gone through it to talk with. I also give great praise to God, as my faith in Him, and knowing He had a plan for me and would be with me through all of this, helped bring me peace when the anxiety flared up. I had a great contemporary Christian music playlist I listened to and daily devotionals often gave me unexpected strength. Through this process I began making mastectomy comfort care bags for all MX patients at our local hospital, which include under arm pillows, seat belt pillows, drain bag pockets, and collection of tervis cups, hand sanitzer, chapstick, thank-you cards, face wipes, and lanyard to hold drain pockets. I have also expanded into making fidget quilts for dementia patients now. It brings me joy to "pay it forward", and serves as a way for me to express my gratitude for the blessings I have been given.

Hugs to each and every one of you as you continue through your individual journeys. I pray for all women fighting this battle every day!

Surgery 3/13/2018 Lumpectomy: Left Surgery 11/12/2018 Mastectomy: Left, Right; Prophylactic mastectomy: Left, Right; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement
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Feb 15, 2019 07:08AM FelineMum wrote:

Hi. It will be two weeks since my swap on Monday. I'm still having pain in my rib cage, especially on the right side. My PS said that the right side was more swollen after surgery. And it finally occurred to me to wonder if a "quirk" that sometimes made my fills unpleasant or painful could be responsible. I retained most of my nerve "sensations." I have a numb spot in my left underarm and that's it. The rest of my chest area never stopped having feeling. I got so tired of being told about how our minds can play tricks on us or maybe there was active nerve tissue deep under my expanders I could feel during fills, blah blah blah; that I challenged my PS's nurse to a game of "Can Feline tell where my finger is?" With my eyes closed, I knew every time, including when she wasn't touching me. I went from being a head case to an anomaly.

But I'm wondering now if the general assumption that we have little to no feeling in this area has contributed to pain in my still very active nerves? It seems like the mantra of cancer is that no two patients are alike. Until they're assumed to be alike at the worst possible time.

Dx 2/28/2017, IDC, Left, 6cm+, Stage IIIB, metastasized to liver, Grade 3, 1/3 nodes, ER-/PR-, HER2- Chemotherapy 3/2/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 7/26/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement Chemotherapy 8/27/2017 Xeloda (capecitabine) Radiation Therapy 3/10/2018 Whole-breast: Lymph nodes, Chest wall Dx 4/2018, IDC, Left, Stage IV, metastasized to liver, ER-/PR-, HER2- Chemotherapy 10/8/2018 Doxil (doxorubicin)
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Mar 2, 2019 09:08AM GAWarrior wrote:

Hi All. I had my exchange surgery yesterday. Surgery started at 7:30 am and I was home around 12:30 pm. I didn't have much pain, thankfully - just took one pain pill on time, then forgot to take one until bedtime. Haven't needed one today - yay! I was SUPER lightheaded and nauseous, though, and my mouth was so dry I could hardly eat (couldn't swallow). I needed DH to hold onto me whenever I walked and am still a little lightheaded this morning. The nausea was awful. I was given Zofran and really could have used it earlier than the 8 hour doses. Still somewhat nauseous this morning. But, if that's the worst, I'm happy. So far, this is much easier than the BMX was.

On a weird note, the PS said he put a different size implant in each breast because he took more tissue from the cancer side. It makes sense, but I haven't seen anyone mention that on these threads. Also, I have no compression bra or Ace bandage wrapping - just lots of gauze over my chest and abdomen. The foobs don't look too much different under the gauze than the TEs did, which is disappointing. I know I need to wait until they settle, but right now it looks like they are full on the top but don't stick out very far. We'll see...

“Sometimes you don’t realize your own strength until you come face to face with your greatest weakness.” —Susan Gale Dx 3/22/2018, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 4/20/2018 AC Chemotherapy 6/20/2018 Taxol (paclitaxel) Surgery 10/19/2018 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 3/1/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Mar 2, 2019 09:57AM HikingLady wrote:

GAWarrior what a good report! Keep resting, and drink a lot of water. Helps with healing, and helps move that anesthesia through you to get over the residual nausea. Extra protein helps w/ cell repair after surgery, so say my surgeons.

I'm now 2 months past exchange. Recovery went really well. At this point, I feel really comfortable. I was cleared to do all exercises at about 6 weeks, and am regaining upper body strength at a reasonable pace. In a bra and clothes, the Foobs look just fine.

I have some flatness right above the round implants. If I wanted them to look better, I'd probably look into fat grafting. But, in a bra they look fine, and in clothes really fine. I didn't have much size choice. At a certain point, stretching became REALLY uncomfortable on the right side, which had radiation in 2003, so I stopped with saline fills. I have B cups, and they look fine.

Dx 3/2003, IDC, Right, <1cm, Stage IA, 0/2 nodes, ER+, HER2- Surgery 4/9/2003 Lumpectomy Radiation Therapy 6/10/2003 3DCRT: Breast Hormonal Therapy 8/8/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 4/25/2018, IDC, Right, <1cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 5/22/2018 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/25/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 11/7/2018 Arimidex (anastrozole) Surgery 1/2/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Mar 2, 2019 10:06AM - edited Mar 2, 2019 10:07AM by CBK

GAwarrior

Yay!! Congrats on your exchange. I have two very different sized implants due to a lat flap on one side so it makes lots of sense you do with how the surgeon explained.

I was never told to wear acompression bra... only a breast strap...that may be the ace bandage you mention. In fact my PS hates them and says never to wear them. I have to ask her why she does not favor them

Takes a long time for the implants to drop in my case ...I'm over 4 months out from exchange and I think they are still dropping and shaping.

Did they give you any pain meds in recovery? Dilaudid does what you are describing to me. Makes me so sick and dizzy. I also insist on that patch they put behind your ear to help with nausea. Works very well.

I hope you have an easeful recovery!!!

Dx 3/26/2017, IDC, Left, 2cm, Stage IIA, Grade 3, ER+/PR+, HER2- Surgery 5/11/2017 Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/22/2017 AC + T (Taxol) Surgery 1/25/2018 Prophylactic ovary removal Hormonal Therapy 2/18/2018 Arimidex (anastrozole) Surgery 4/9/2018 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 9/28/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 4/3/2019 Reconstruction (left): Nipple reconstruction, Silicone implant; Reconstruction (right): Nipple reconstruction, Silicone implant
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Mar 2, 2019 01:41PM GAWarrior wrote:

Thanks, HikingLady and CBK. It's good to know that 6 weeks is a good time frame for exercising. I'll see the PS on Wed for a follow up, so I'm sure he'll give me guidelines then. I was lifting light weights before this, and running, so I want to get back to them when I can.

HikingLady, I think I'm surprised that they don't look better right now, because I have an "augmentation" image in my mind rather than a 'reconstruction"image, if that makes sense. I thought they would look like "real" boobs, where these don't poke out as far as a real one. The PS wanted to do textured implants but I declined based on the lymphoma thing. I'm sure these will be fine in 3-6 months. Thanks for the protein suggestion.

CBK, a nausea patch would have been nice. They gave me hydrocodone for pain, but I only took 2, although that may have been what did it. I didn't have this problem with the BMX, but I was admitted over night so they were probably pumping anti-nausea drugs through my IV. Super glad I had Zofran left over from chemo. I'm glad to know you have two different sized implants, too. From what I can see, mine look even/symmetrical. We'll see when they finish healing. It's funny how the surgeons are all different - some wanting compression, others not. You'd think they'd all be the same.

“Sometimes you don’t realize your own strength until you come face to face with your greatest weakness.” —Susan Gale Dx 3/22/2018, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 4/20/2018 AC Chemotherapy 6/20/2018 Taxol (paclitaxel) Surgery 10/19/2018 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 3/1/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Mar 2, 2019 03:56PM HikingLady wrote:

GAWarrior RE - the type of implants--I chose smooth not textured for same reason you mention--I wanted to minimize lymphoma risk. I think your comment about considering this 'reconstruction' not 'augmentation' is a good way to think about it.

The girls do not match....My PS knew that my right side (15 years ago radiation) would not look the same as the left side. Scarring, although not visible, is a fact throughout pecs and skin. He warned me "they'll be sisters, not twins." Even though the implants are the same size as each other, the right side looks smaller. Once I'm in a bra and clothes, it's not noticeable, and even real breasts are never exactly the same size on most people.

Comfort: The 'settling' that everyone describes is subtle, but certainly true. I feel very comfortable in the new foobs at this point. Which was NOT the case until 8 weeks after surgery. I think it's probably a combination of healing making the tissue feel comfortable, PLUS my brain getting used to the feel of them.

Dx 3/2003, IDC, Right, <1cm, Stage IA, 0/2 nodes, ER+, HER2- Surgery 4/9/2003 Lumpectomy Radiation Therapy 6/10/2003 3DCRT: Breast Hormonal Therapy 8/8/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 4/25/2018, IDC, Right, <1cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 5/22/2018 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/25/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 11/7/2018 Arimidex (anastrozole) Surgery 1/2/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Mar 2, 2019 07:47PM GaGrandma wrote:

My exchange surgery was a month ago. I am 5'5" and 125 pounds/ small-framed with a narrow chest and repeatedly told my plastic surgeon I wanted to be a C cup. I know doctors don't like to talk "cups" and it is difficult to gauge exact size outcomes. I don't understand "cc's" very well. And therein lies the problem.

Every time I was "filled", I would remind my doctor that I wanted to be a C cup (which is what I was before the mastectomy) and he kept saying I should go bigger with the fills. So, I ended up with 700 cc's of saline in my expander. My expander did not look that big to me...I guess because there wasn't much in the way of cleavage. But, boy oh boy, my implants seem VERY large.

When I went for my post-op visit, the doctor estimated that I was a DDD. I was floored! I went to the nearest department store and he was right. I could wear 32DDD and 34DD bras. After talking to the doctor and explaining that I just couldn't walk around with that large of a breast, he agreed to do a revision. I am meeting with the him next week to discuss implant size for this time. He thinks he can go down 200cc but maybe more. He is going to look at me and decide at this appointment.

I presently have ultra high profile Mentor implants. One is 750cc and the other is 700cc. Do you think going down 200 cc will give me the size I desire? (Of course, I will take what I can get at this point.) I just don't know what to expect.

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Mar 2, 2019 08:31PM VegGal wrote:

Are you sure you want to give him another crack at it?  Have you thought about seeking another opinion before going through another surgery?

Dx 1/12/2016, DCIS, Left, <1cm, Stage 0, Grade 2, 0/3 nodes, ER+/PR-, HER2- Surgery 3/11/2016 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 6/10/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 9/8/2017 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
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Mar 2, 2019 09:05PM crossh wrote:

GaGrandma, I am about the same body size as you 125 5’3”, small shoulder area originally C cup, 58 years old. I also asked for a C after double mastectomy with TE. He put in Mentor high profile 400cc because they fit the best. They made me a B cup. I felt flat chested under clothes. After 7 weeks swapped out for 500cc. Much better and now a C cup. The swap was nothing. Tylenol for a day. No real pain to speak of. 45 min surgery. I am two 1/2 weeks out and fully functional. They are still tight at this point but will loosen up in time. Going down should even be easier as you are already stretched. Good luck!

Dx 9/1/2016, DCIS/IDC, Right, 5cm, Stage IA, Grade 1, 0/1 nodes, ER+, HER2+ Surgery 9/30/2016 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 11/1/2016 Lumpectomy: Right Surgery 5/1/2017 Lumpectomy: Right; Lymph node removal: Right Surgery 1/3/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Mar 2, 2019 09:13PM Moderators wrote:

GaGrandma, sorry to hear that you need to go through that again. Thanks crossh for sharing your experience. VegGal does bring up a good point, on whether you may want to consult with another surgeon, as your other had not listened well to your original request. It's a hard call.

Keep us posted!

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Mar 2, 2019 10:16PM Mominator wrote:

GaGrandma, so very sorry that your PS did not listen to you. Going from C to DDD is unbelievable.

Have you visited the Breast Implant Sizing thread by Whippetmom? She is the Guru of implant sizing. Read through the original post ans answer all the questions. She will make suggestions for implant sizes. She also has lots of links to articles that will help you work with your PS for sizing. 

https://community.breastcancer.org/forum/44/topics/746448

She was spot on for my implant sizes. I went from DD native breasts to C implants. I am very happy. 

Best wishes, Madelyn 

Mominator, BRCA2+, STK-11 VUS, wife, mom to 3 children of various special needs, musician, volunteer. My Mom dx DCIS age 62, ILC stage IIIA age 79; Mom just passed 2/28/18. My Grandmother died of ovarian cancer age 48. Friend to Lori M, died 5/25/16. Surgery 11/11/2015 Prophylactic mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/18/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 6/30/2017 Reconstruction (left): Silicone implant
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Mar 3, 2019 07:07AM CBK wrote:

GAWarrior-

I’m telling you that nausea patch is outta this world. My third surgery some young guy used it on me... I was awake and eating within a half an hour. They tried to throw me out of the hospital before I was ready!!🤣. I was like hold on here I may be eating but I just had over a 3 hour surgery and I’ll let YOU know when I’m ready to GO!!

I was able to exercise way before 6 weeks after my exchange! I remember surgeon wanted me to keep it low impact but doing modified weight bearing activity pretty quickly. My PS was always in the camp of “get moving, stagnant energy is very bad for healing”. So I was able to do low impact cardio and modified yoga very early on.

GAWarrior and Hiking Lady- are either of you planning on nipple reconstruction? I’m supposed to have the cherries placed on April 5, among a lot of other revisions. My PS isn’t doing the oragami nipple reconstruction rather taking it from my belly to make them. I wonder why as it’s said, that this is an older technique. Any thoughts here are appreciated. Most of my friends think im nuts to go through another surgery. But hey, they don’t walk in my shoes now do they?

Wishing you a speedy and non- eventful recovery!

Dx 3/26/2017, IDC, Left, 2cm, Stage IIA, Grade 3, ER+/PR+, HER2- Surgery 5/11/2017 Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/22/2017 AC + T (Taxol) Surgery 1/25/2018 Prophylactic ovary removal Hormonal Therapy 2/18/2018 Arimidex (anastrozole) Surgery 4/9/2018 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 9/28/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 4/3/2019 Reconstruction (left): Nipple reconstruction, Silicone implant; Reconstruction (right): Nipple reconstruction, Silicone implant
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Mar 3, 2019 08:54AM HikingLady wrote:

CBK Best wishes on researching and having the nipple reconstruction. I'm 61, and do not want any more surgeries that are non-essential. I might do 3-D nipple tattooing. My husband thinks that's silly--why bother. But, I might do it. He has a silly and healthy sense of humor, so he started thinking of funny tattoos I could choose to put on, rather than 3-D nipples, but I want to look Semi Sort Of Normal again....

Every morning, I go to my city pool and take a shower in the common shower area after exercise. There I am, publicly displaying the huge horizontal scars on nipple-less foobs. I think having tattoos will make me feel a little less self-conscious. I've forced myself to Just Do It since that exercise (deep-water w/ resistance cuffs and foam barbells) is building my strength and fitness, and it feels great. I actually feel very brave, getting naked every day in front of strangers.....

For the tattooing, I'll wait until maybe 5 months, although PS said it's okay to do at 3 months. We're going to Hawaii for a vacation around 4 months (post exchange surgery), and I want to have no complications, and to be able to swim in the ocean every day. My right side had (15 years ago) radiation, so it's compromised on healing. Healing was very slow after BMX, but it went GREAT after swap surgery. This makes me a tiny bit nervous about tattooing, but PS said that I should expect it to be fine.

Dx 3/2003, IDC, Right, <1cm, Stage IA, 0/2 nodes, ER+, HER2- Surgery 4/9/2003 Lumpectomy Radiation Therapy 6/10/2003 3DCRT: Breast Hormonal Therapy 8/8/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 4/25/2018, IDC, Right, <1cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 5/22/2018 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/25/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 11/7/2018 Arimidex (anastrozole) Surgery 1/2/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Mar 3, 2019 09:07AM crossh wrote:

Hi GaWarrior, Im pretty sure I am having the nipples put back on in the fall using the origami technique. My doc says it takes 15 mins and I can drive myself home. He’s really good, showed me a picture of one of his patients outcome. Also will have the area tattooed in his office. I’ll decide in the fall. Barbie boobs look a little strange without them, but it’s also nice to to have the option of not wearing a bra and not have nipples sticking out. As I posted earlier I’m two 1/2 weeks out from exchange of 400cc to 500 cc and feeling great. I was cleared to start walking on my elyptical and did so twice this week. I wear a comfortable lightweight sports bra during the day

Regarding a second opinion, changing physicians midstream is no picnic, I did so between my second and third surgery then again between third and fourth. (Had a total of six). For the third surgery I ended up with another doctor who was awful and had to change again. Fourth thru sixth time I loved both the breast and plastic surgeon. Like I said, for me, the exchange swap was a piece of cake. I also have motion sickness and always make the anesthesiologist aware. Always get the patch and anti nausea meds.

And someone mentioned the extreme cotton mouth, I found the best thing for this after surgery it to drink as much water as you can. This is also good for clearing the anesthesia meds from your system.

Dx 9/1/2016, DCIS/IDC, Right, 5cm, Stage IA, Grade 1, 0/1 nodes, ER+, HER2+ Surgery 9/30/2016 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 11/1/2016 Lumpectomy: Right Surgery 5/1/2017 Lumpectomy: Right; Lymph node removal: Right Surgery 1/3/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Mar 3, 2019 09:38AM CBK wrote:

Hikinglady-

That is truly a bold and brave story! In time the scars will fade as hopefully some of the painful memories of this process will as well! You sound like you are well on your way to creating a stronger and empowered you. Thank you for sharing that

Nipple tattooing sounds like a nice finishing touch although I can understand why you may be nervous with rads in distant background. Sometimes I’m like maybe I should just do the same. I have other revisions though that need to be done so I really can’t get away with not going under again... so why I am entertaining the nipple reconstruction at the same time. Originally I was going to just be able to do nipple reconstruction under a local. Ugh decisions ... decisions. And the dread of having to be stagnant a bit during the healing process....and start all over again with ROM, strength and healing......

Again thank you for your story!!

Dx 3/26/2017, IDC, Left, 2cm, Stage IIA, Grade 3, ER+/PR+, HER2- Surgery 5/11/2017 Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/22/2017 AC + T (Taxol) Surgery 1/25/2018 Prophylactic ovary removal Hormonal Therapy 2/18/2018 Arimidex (anastrozole) Surgery 4/9/2018 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 9/28/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 4/3/2019 Reconstruction (left): Nipple reconstruction, Silicone implant; Reconstruction (right): Nipple reconstruction, Silicone implant
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Mar 3, 2019 12:37PM GAWarrior wrote:

Wow, GaGrandma, I'm about your height/weight - I can't imagine going to a DDD! Sometimes I think these docs do augmentations as well as reconstructions and they think we all want to be huge. Men! I had 450 cc TEs (not sure yet what size implants were put in), the PS said I would likely be a C or possibly a D cup if he used extra-high profile implants (I told him not to do that). Maybe that "translation" of ccs will help... WhippetMom is definitely the person to look up.ask.

HikingLady, thanks for the info that I'll feel better about them in 2 months or so. You are brave to get naked in front of other women! RE tattoos - I have a friend who went through this 25+ years ago and got a nipple tattoo. She says the tattoo wore off and is long gone, so just know that you would probably have to have it touched up every so often.

CBK, thanks for the exercise info. As for nipples, I was able to have a NS BMX so I can't help you there. I DO think you should do what makes you feel best about yourself. For me, I would want a nipple, but that's me. (And, I'd want the 3D tattoo, but again, that's just me).

Not feeling so great today (Day 3). I'm more sore (to be expected) and tired. Zofran has totally shut down my system. Off to drink some Smooth Move tea...yucky, but effective.

“Sometimes you don’t realize your own strength until you come face to face with your greatest weakness.” —Susan Gale Dx 3/22/2018, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 4/20/2018 AC Chemotherapy 6/20/2018 Taxol (paclitaxel) Surgery 10/19/2018 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 3/1/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Mar 3, 2019 02:36PM GaGrandma wrote:

I had thought about seeing a different Plastic Surgeon about a revision and talked to a friend who works in a PS office. She said that docors would be hesitant to see me since my surgeon has agreed to fix the problem. She said I might be considered just someone who couldn't be made happy. Her thoughts are, since my doctor has agreed to do the revision, I should let him. I think he does good work cosmetically, but I am worried that another size mistake will be made. I was shown no implants sizes, etc before. I have asked to see them this time. I just have no idea what to choose. He definitely is a typical man who "likes them big". But I don't want him to go too much the other way either. You would think that someone could create a method to make sizing easier on us! We are at our most vulnerable and need all the help we can get.

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Mar 3, 2019 03:10PM - edited Mar 3, 2019 03:13PM by MinusTwo

GaGran - I think you absolutely should go consult with another PS. Whether of not they are interested in a re-do, it's in your best interest to get some medical advice. My PS is technically excellent but i wanted to see what another doc thought about the size & style & etc. He was very gracious.

Remember that implants will ALWAYS be wider than natural breasts. That is part of what dictates cup size. That and the lack of projection are reasons it's very difficult to talk about cup size. It would be good to set up an appointment an appointment at Nordstroms with one of their fitters who is trained in breast reconstruction from cancer NOT breast augmentation. You might be surprised.

Mominator is absolutely right, you should go visit the Breast 101 link she posted, read everything in the header and post all the specs for Whippetmom.

Last but not least, you really won't know what your reconstructed breasts are going to end up looking like for several months - up to as long as a year. They will continue a slow change for some time. One of the hardest things to do is 'step away from the mirror'.

Edited to add - I thought mine turned out too big and was REALLY unhappy. Over time they have mellowed and so have I. I realize that they do fit my frame, I have really nice cleavage and they look great in clothes.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Mar 3, 2019 03:41PM HikingLady wrote:

GaGrandma I agree with MinusTwo-you should absolutely consult another PS. A PS should always listen carefully to the patient. That's baseline! I sense that yours really didn't. You deserve to talk this through, and you deserve another opinion to weigh in on how to move forward. My PS DID show me what the implants would be like, and talked through everything with me. It's very normal to get a second opinion before any surgery. All surgeons should support that and welcome your getting more information. Warm wishes from me to you.

Dx 3/2003, IDC, Right, <1cm, Stage IA, 0/2 nodes, ER+, HER2- Surgery 4/9/2003 Lumpectomy Radiation Therapy 6/10/2003 3DCRT: Breast Hormonal Therapy 8/8/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 4/25/2018, IDC, Right, <1cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 5/22/2018 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/25/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 11/7/2018 Arimidex (anastrozole) Surgery 1/2/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Mar 3, 2019 04:26PM GaGrandma wrote:

I am scheduled for a revision next month. That is only two months from the first implant surgery, but I have been pretty persistent. I know that breasts settle and look different, but these just seem too large for my small shape. I appreciate all your advice and now I am so confused. I really have no one else to talk to about this and I am a nervous wreck. Why did you say I might be surprised after talking to a bra fitter at Nordstrom? I don't think I can ever get comfortable in a DD or DDD. Thank you all for trying to help me!

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Mar 3, 2019 06:35PM MinusTwo wrote:

You can read on WHippetmom's thread that most people were always wearing the wrong bra size. Because of the lack of projection and the width of implants, you will be in a larger bra than you were before even if you are the same size.

Are you in an area where you can go for a consultation with another PS? I think that would be preferable before any more surgery to set your mind at rest. Two months gives you plenty of time. If you don't know anyone, your BS or MO can probably give you a name.

If you decide to stay with the same PS - insist that he shows you the type of implant he's going to and let's you handle it. Read everything you can about that implants Discuss any possible problems with decreasing the existing space that was created the first time. Discuss what will happen with the extra skin. Discuss why he thinks you should reduce to 200 ccs. I can not imagine going from a 700 to a 200, but the Breast 101 site might have more people who have been through this.

I know many men prefer to give us their ideal - big boobs. I was glad I argued for smaller. Try not to worry (easy to say - hard to do). Just do your homework before you go through another surgery.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Mar 3, 2019 06:36PM VegGal wrote:

I respectfully disagree with your friend. There would be no reason for the new opinion PS to even know you are planning a revision. 

I bailed on my first PS. Imagine my surprise when my 3rd opinion PS pulled out a tape measure and measured my ribcage and explained that the implants were wider than my ribs!  Of course I knew that...but he actually measured!

Alas, I sought one more opinion, and that is who I went with ultimately. She knew I had been "PS shopping" and had no problem with it. She also let me handle all of the implant samples so I could make an INFORMED decision. 

Good luck!

Dx 1/12/2016, DCIS, Left, <1cm, Stage 0, Grade 2, 0/3 nodes, ER+/PR-, HER2- Surgery 3/11/2016 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 6/10/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 9/8/2017 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
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Mar 3, 2019 09:36PM crossh wrote:

GaGrandma, so sorry you’re getting so many opinions. All I can tell you is your PS probably put in the size he thought would fit best. But obviously you don’t want that size. After 6 weeks they can be exchanged for a smaller size. The exchange is nothing compared to BMX or even TE to implant. You should be under less than an hour and should not feel any pain the following day. I’m speaking from my experience, but we’re all different.

Dx 9/1/2016, DCIS/IDC, Right, 5cm, Stage IA, Grade 1, 0/1 nodes, ER+, HER2+ Surgery 9/30/2016 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 11/1/2016 Lumpectomy: Right Surgery 5/1/2017 Lumpectomy: Right; Lymph node removal: Right Surgery 1/3/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Mar 3, 2019 10:13PM GaGrandma wrote:

Thanks everyone. I will try to find another plastic surgeon so I can get a second opinion. I am fairly new to the area, so I don't know their reputations. I will be researching. Thank you crossh for the reassuring words to talk me off the cliff! And, MinusTwo, he said he might could go down 200 (to 500)...not down TO 200. :)

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