Canadian health care, clinical trials, and life in general in the north.
Posted on: Sep 21, 2011 06:07PM
Posts 1141 - 1162 (1,162 total)
Jun 30, 2017 10:28AM beebs2704 wrote:
Hey here Ottawa ladies!
So nice to hear from a few familiar voices again. JoJo such a drag you had that fatigue but you know somehow it catches us in treatment or post treatment. Nasty stuff this cancer business. I'm glad that you are felling more like yourself again! Cristalle, how did you feel about passing the one year mark? Mine was uneventful but still haven't got my mammogram since it wasn't properly ordered. Some days I'm still tired..you would think 6 months after rads it would stop?
I took an epic trip in May to Africa for 5 weeks with my daughter and it was exactly what I needed..the holiday was incredible and full of lasting memories. Now I am no longer worried about recurrence. I'm thankful for that.
Them hot flashes keep coming though...!
Jun 30, 2017 12:39PM Fiddler wrote:
JoJo, sorry about the fatigue. Hope it's better now. Beth, I'm reassured (for me) to hear you sometimes have it too. When I mentioned it to the doctor, he said, "It's called getting old," but I think it's still a residue from all the nasty treatment. Like you, I just have days once in a while when I am tired. Glad you had your trip to Africa. We went to S. Africa about six years ago and it was so wonderful.
My diagnosis anniversary was June 24, I still continue with the Herceptin every three weeks till the end of Sept. Thankfully not too many side effects from that (maybe the fatigue is from the Herceptin?) No hot flashes for me (well just natural ones), thank God, I am not on anti-hormone med!
Things are looking up for us as my husband just (finally) found a job and his lawsuit is a sure win. No more worrying about money. That was getting old. So hopefully we will have a better year this year!
Happy Canada Day!
Jul 3, 2017 04:30PM chantalbe wrote:
Nice to hear from everyone! My mammogram is scheduled for Wednesday, July 5. I'm feeling a bit nervous about it.
Jul 5, 2017 03:41PM Ciaci wrote:
Not in Ottawa, just wanted to poke my head in and let redninrah (and anyone else) know that it's spelled "ribociclib" - it's hard not to type these names in wrong - and there's quite a bit of info if you search the name.
Hope your friend gets some answers!!
Jul 7, 2017 12:53PM JoJo_1964 wrote:
Wow Beth! Good for you! Bonus you got to share it with your daughter. We should start a facebook private group so we can share pics as I would love to see your vacation.
Alana, that's great news for you too! How did your radiation go?
Hospital called to schedule my MRI of brain to keep tabs on the tumour they found. I'm told its a very common one that usually does nothing and lots of people walk around with one not knowing they have it. Hospital realized they forgot to send me for bloodwork first, so they couldn't book the appt until they receive the blood results. Somehow that didn't bother me as I'm in no rush for another brain MRI.
Have a great weekend!
Aug 24, 2017 07:15PM Cristalle wrote:
Hi I've been out of touch. Yesterday was my one-year anniversary of the end of treatment!! Plus no adjuvant therapy do I am blessed. First followup mammo was in May and I'm fine, down to one a year from now on.
We had 12 ladies last Wednesday at BCA support group. Fitness classes are resuming soon, make sure to renew your BCA membership. Still promoting the Knitted Knockers when I can.
Aug 26, 2017 04:08PM chantalbe wrote:
Nice to hear from you.
I'm happy to report that my mammogram was clear. One less thing to worry about.
Sep 15, 2017 08:38PM OttawaGal wrote:
Hi Tunegirl. I hope you are well. I start my 4 shots of TC on Friday, September 22 (at the General) with Paxman (from Cold Comfort Canada). How did it go for you? How long did you continue cooling for once thmo session was over? Any other tips would be very welcome. Thanks so so much.
Sep 23, 2017 02:21PM Oats21 wrote:
I'm in the Ottawa area and was actually scheduled for a prophylactic mastectomy (I'm BRCA1 +) and needed screening beforehand to make sure there were no surprises - and surprise you weren't quick enough. I was just diagnosed, through a biopsy, with IDC/DCIS with apocrine features last week and as I was already in the system for surgery I think I might be missing some info. Can you please explain to the potential order of things after a breast cancer diagnosis in Ottawa? At this stage all I know is it is small 0.5 mm, ER- and it's unlikely it is in the lymph nodes (no evidence on ultrasound).
Sep 24, 2017 01:25AM JoJo_1964 wrote:
Hi Oats21, welcome to Ottawa Ladies. This group helped me alot during my journey through treatment in 2016. Been awhile since I posted. Sorry to hear you were diagnosed with BC. Personally for me, the time between diagnosis & surgery was 2.5 wks but was told 4 wks is average time. Week prior to surgery I was booked with all the pre-op tests. I was supposed to attend a preoperative education session re the surgery & post-op care but that session happened to conflict with the MRI. In lieu, I was given a great handout book about diagnosis, surgery, & treatment options. I contacted various cancer centres/groups in Ottawa before the surgery. Ottawa Regional Cancer Foundation & Breast Cancer Action Ottawa have great programs & support. Best of luck on your surgery!
Hey Ottawa Ladies...hope you are ALL doing good!
Sep 24, 2017 06:15AM bravepoint wrote:
Oats21 - I'm just over a year post surgery. I had a sentinel node biopsy along with a lumpectomy. You said that there were no suspicious nodes in your case but they may do it anyways to err on the side of caution. The procedure is done the day before or early on the day of surgery at Nuclear medicine at OGH. I can go into more detail if you do end up getting it done. Post surgery you will have to wait 10-14 days to get full pathology reports and hormone receptor status. You would then meet with an oncologist. If you are having a BMX and no lymph nodes are involved you probably wouldn't have radiation but possibly chemo depending on the grade of the tumor and whether you are triple negative.
Sep 26, 2017 06:55AM bravepoint wrote:
Oats21- For the SNB, a radioactive blue dye will be injected right at the edge of your nipple. It hurts but just for a second. You will wait 20 minutes then they will look to see how far it has travelled (Xray I think). It will go on like that til the dye makes it your arm pit. Then they mark it with a Sharpie. Make sure if you plan to travel that you get a note as the radioactivity stays in your body for 3 months, I think.
Sep 26, 2017 07:55AM beebs2704 wrote:
It's been ages since I posted however life is good and my mammo and ultrasound came back clear so 15 months later it's all rosy.
Oats, is this the procedure a day or two ahead of your surgery or the day of? I had a radioactive chip placed in my breast 2 days prior and it was then lightly mammogrammed to see its exact location. This marked the tumour for easier removal ( I had a lumpectomy). The procedure was mildly uncomfortable. The chip was then removed during surgery. On the day of surgery, I had dye injected near my nipple (didn't hurt that much) and then it was checked to see where it travelled to. A quick X-ray I think it was. I had to massage my boob to help it travel to the nodes. It took me an hour but it didn't travel properly. Apparently this happens at times. During surgery another dye was injected - I think this was the blue one- which found the nodes. You pee that one out within the first couple of pees. So don't be alarmed if you pee blue after surgery. Best of luck to you!
Nov 25, 2017 11:45PM ToughCookie101 wrote:
Hello! I am in Ottawa and was diagnosed last week at 33 years old. I am waiting on surgery date and got a call back on my MRI. It has only been a week and a half but what a week and a half it has been. I will look into BCA for sure!
Nov 26, 2017 01:33AM Tunegrrl wrote:
Hi OttawaGal! I just read your message from September about scalp cooling. I haven't been to this forum in months, enjoying not having breast cancer on my mind so much since i was down to just Herceptin treatments and feeling well.
I had a great experience with the Paxman machine and kept about 70% of my hair. The regrowth came back curly so i have a curly 80's mullet like a rockstar now. Smoothing creme helps :)
You might be almost done chemo now, but i'd be happy to talk hair sometime if you like. I hope you have had an easy go of it. Certainly a wild ride. I hope you checked in with the scalp-cooling gals here for tips and commiseration. I would do it again for sure but hope i don't ever have to.
Scary sore lymph node recurrance fears rocking my boat right now. Will go for an ultrasound next week if they can fit me in. Fear is the worst part of the breast cancer experience, imo.
Best of luck to everyone
Dec 18, 2017 11:15AM Cristalle wrote:
Hi everyone I've been missing In action. Tunegrrl it would be great to see you and our Fall 2016 gang. I'm still in touch with Beth. She borrowed my Acutouch probe to deal with scar tissue. You're right about recurrence fear, it doesn't matter how minor the treatment was
Dec 19, 2017 09:31AM beebs2704 wrote:
oh ToughCookie ( love that name!) it's hard to be recently diagnosed and I would think doubly hard around Christmastime. Have you received your surgery date? My tumour profile was identical to yours upon diagnosis. My MRI showed it was a bit bigger than they could see on the ultrasound so more was taken out at surgery. I would suggest you read up on Oncotype DX if your lymph nodes come back negative. I had that testing done and it was helpful in informing treatment (chemo or no chemo).
Melodie, I'm sorry to hear about your scare of lymph nodes being sore ...I hope the ultrasound yields nothing. Take good care!
Dec 19, 2017 11:33PM ToughCookie101 wrote:
Thanks beebs! This Christmas will be a tough one for sure. My mom suddenly passed away in June and the boyfriend turned into an asshole after my diagnosis (I guess he always was), so he’s gone. 2018 is looking up! Lol. My mom was a breast cancer survivor of eight years, her death was totally unrelated to BC (and I tested negative on genetics). I have read up n Oncotype and will ask about it for sure. I have been told however that chemo is almost a guarantee due to my age alone. I’m leaning towards mastectomy (nipple sparing) with immediate recon. My surgery is either Jan 3rd or the week after. I should know for sure this Friday.
Did the MRI accurately predict your tumor size or was it smaller? Ultrasound puts mine at 1.5cm and MRI at 1.8cm. I’m hoping it is under 2cm. It sounds strange to say that but it’s funny how perspectives change after a diagnosis.