Join Us

We are 222,315 members in 83 forums discussing 162,452 topics.

Help with Abbreviations

Topic: Stage V MBC Fitness

Forum: Stage IV/Metastatic Breast Cancer ONLY —

Please respect that this forum is for members with stage IV/metastatic breast cancer only. There is a separate forum for caregivers and friends: Caring for Someone with Stage 4 or Mets.

Posted on: Jan 2, 2017 07:46PM - edited Apr 7, 2018 10:31PM by zarovka

zarovka wrote:

Hello! Welcome! We are done with Stage IV, moving on and planning to staying healthy for a long time. We're Stage V (Which is not dead. We're doing fine, ready to live with this beast.)

This is the American Cancer Society/NCI consensus on exercise for cancer patients.

  • 150 minutes/week moderate-intense aerobic exercise or 75 minutes/week of vigorous exercise
  • Strength training 2-3 times/week, 8-10 exercises of 10-15 repetitions/set, with at least one set per session
  • Return to normal daily activities as quickly as possible
  • Continue normal daily activities and exercise as much as possible during and after non-surgical treatments
  • Avoid Inactivity!!!

OMG. The PhD's who wrote these guidelines obviously do not have MBC, but we get the point.

I find the advice in the book The First 20 Minutes more relevant and achievable than the ACS guidelines. The point of the book is that 20 minutes of daily, consistent exercise, any kind, has a huge effect on our health. I've seen studies that show that 15 minutes of moderate exercise (a brisk walk, moving yoga) two or three times a day is better for recovery then a single tough workout.

However, the ACS/NCI guidelines can motivate us. They remove any doubts about the benefits of exercise for MBC. This thread is about showing up and doing your best despite the fatigue, pain and dark clouds that plague us all. If your goal is a trip to Walmart or a marathon you will find support here.

The article Lifestyle modifications for patients with breast cancer to improve prognosis and optimize overall health summarizes the data on lifestyle changes on survival outcomes. It is worth reading in its entirety, but here is a summary of key points.

Exercise and maintaining your ideal body weight are the most important lifestyle interventions you can do if you want to decrease your risk of breast cancer recurrence and death. Physical activity (150 minutes per week, moderate intensity) can reduce the chance of death from breast cancer by up to 40%.

Two analyses showed a substantial inverse dose–response effect between hours per week engaged in physical activity and breast cancer mortality.26,27 Similar beneficial metabolic effects have been shown for both aerobic and resistance exercise, but optimal results are achieved with a combination of the two.22

A population-based study in the United States involving 856 women found that only 13% of breast cancer survivors attained the recommended 150 minutes of exercise each week, and with increasing time after diagnosis, only about 10% comply with the recommendation. 28 Patients who have undergone chemotherapy or radiation have significantly greater decreases in physical activity, by 50% and 24% respectively, compared with patients who have not experienced these therapies.22

As noted in the article, a combination of aerobic and resistance training is optimal. Resistance exercise has more durable effects than aerobic exercise and improves your aerobic workout. You don't need weights or a gym membership. Gather a door knob, a cheap Theraband and a little time and commitment and you'll be quite sore. Bodyweight exercises are equally effective and require no toys at all.

You are all welcome to buy a Fitbit, join the Stage V Fitbit Group and challenge us to keep moving through the year. You will need to PM me with a personal email to get an invitation from the Fitbit community that I run. The Fitbit is just a fun side thing to motivate anyone interested. It's not for everyone and it's not the point of this thread.

One theme that keeps coming up in this thread is the challenge of working out in bad weather or if you are tied to oxygen or just unable to get out of the house. We often need a 10-20 minute indoor routine that is a motivating and provides an easy way to get back into working out. Leslie Sansone videos are excellent. I personally like the Fitbit exercise plans that you can get through their app and the Nike+ Fitness programs on my phone or my Xbox/Kinect system. These videos are all great at providing a short, effective medicinal dose of exercise.

Yoga does wonders for joint pain and increases energy. I can run about twice as far when I have a regular yoga practice (4-5 times per week). I can do this yoga sequence recommended by DGHoff in 15 minutes. It is taken from this study which showed the sequence improved bone density if you practice regularly over an extended period. Generally I mix in some ab work between poses and add a couple of resistance exercises for a 30-40 minute routine. Highly recommended as a component of an exercise routine.

I'm a determined person. I've exercised all my life, but I have many days where it is hard to just get out of bed much less make it to the gym. Thank you for your support it's made a huge difference in my treatment and my life.

Let's kill it in 2018.

>Z<

Ibrance/Letrozol Feb '16 -Sep '17. Adoptive Cell Therapy Oct 2017. Jan 2018 SBRT to sternum met and liver mets. Jan 2018 start Faslodex. Dx 12/28/2015, IDC, Left, 4cm, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 1/17/2016 Femara (letrozole) Targeted Therapy 2/2/2016 Ibrance (palbociclib)
Log in to post a reply

Page 97 of 97 (2,905 results)

Posts 2881 - 2905 (2,905 total)

Log in to post a reply

Apr 27, 2021 12:05PM - edited Apr 27, 2021 12:10PM by Snow-drop

reviewing my notes, I saw around this time last year I could only walk 5 minutes with walker, being in so much pain and fear of falling and my legs were weak and numb. I am actually pleased to record my activities it is one of good things I have done for myself! that notes motivated me to start walking again despite it wasn't easy after 2/5 months discomfort plus mri confirmed sources of pain are benign cysts- another good motivation. I am pleased to report that I am back on track and have started walking twice a day (2x 15-20 minutes) since Saturday and so far there isn’t any complications unlike last month which sent me to bed again. I am exhausted around early evening but I feel good at the same time, I am sure I get use to it in few months.

Mara thanks again for tips and sharing your daily activities, for me it is so motivating. Short-distance wlking twice a day is a smart plan to manage tiredness and gradually reach the goals. I'll stick with this plan for few months then I might be able to increase the course?! We'll see.

Chicagoan, thanks for sharing the link, yoga, I'll follow your thread as well.

Hello Mae, lehrski, Moth, Andy, Momchichi, everyone 👋

De Novo stage IV Dx 9/2019, IDC, Left, 4cm, Stage IV, metastasized to bone/other, Grade 2, ER+/PR+, HER2- (IHC) Hormonal Therapy Zoladex (goserelin) Hormonal Therapy Femara (letrozole) Radiation Therapy External: Bone Targeted Therapy Ibrance (palbociclib)
Log in to post a reply

Apr 27, 2021 03:30PM mara51506 wrote:

Snowdrop, that sounds like a good idea. A little bit of walking a couple of times a day is just as good as a long one, enjoy your progress.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
Log in to post a reply

May 13, 2021 11:25PM Chicagoan wrote:

Here's another yoga class in case anyone wants to try it.

Dx 9/21/2016, IDC, Left, Stage IV, metastasized to bone, Grade 1, ER+/PR+, HER2- Radiation Therapy 9/27/2016 Hormonal Therapy 10/5/2016 Femara (letrozole) Targeted Therapy 10/27/2016 Ibrance (palbociclib)
Log in to post a reply

May 13, 2021 11:31PM mara51506 wrote:

Thank you for the videos Chicagoan, I am always very intimidated with yoga as it is hard for me to get up off the ground but yours looks modified. I'll take a look.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
Log in to post a reply

May 23, 2021 02:37PM illimae wrote:

5,553 steps so far, mostly lifting, walking and stacking to empty a trailer into a storage unit and I am beat but grateful I can still get it done.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/20/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

May 23, 2021 06:20PM mara51506 wrote:

I did manage 10000 today. Walked 3500 this morning while cooler. Did another 3000 with 3 1000 walking on the spot intervals inside where it is cooler and the rest came from grocery shopping with my brother. Big store, I usually walk, pick up one thing and drop it off in the cart and go back for the second thing for more steps.

Good job Mae!

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
Log in to post a reply

May 25, 2021 12:22PM mara51506 wrote:

Just doing my thing at home since it is too hot outside to walk. Walking on the spot for anywhere from 1 to three songs, fitting in housework in between as well as my surveys and little money making sites online. Still aiming for 10000 steps, already at 4500. I walk on the top of my step bench so I don't annoy the neighbour.

My area is still locked down so nowhere to really go for a while and I have no room for more groceries. At least this way, make a little money at home, do some needed housework and still get exercise.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
Log in to post a reply

May 27, 2021 08:54AM mara51506 wrote:

Finished my base 10000 steps early today. I can sit around the rest of the day and do my surveys or do other things. I walk 3 separate walks that give around 3300 steps each. I also prefer to walk on an empty stomach as I feel much more effort when digesting a meal at the same time. Hope everyone else is having a good day.


2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
Log in to post a reply

May 27, 2021 12:56PM moth wrote:

Hi mara, needed to read your post today as it's inspiring to me. I've had some pain & weakness setbacks and the lung pnumonitis has had a negative effect on my cardiovascular fitness but I've been gradually improving. I just need to keep pushing a bit more. I had chemo last Thurs & by today I should be more back to normal so I will schedule more activity.

I've been doing ~5000-6500 steps most days but I feel like I could move that up more. I also want to add again some resistance work. I don't feel strong right now.


I take weekends off

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: https://nevertellmetheodds2017.tumblr.com/

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/8/2020 External Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/2/2021 External: Bone
Log in to post a reply

May 27, 2021 01:16PM mara51506 wrote:

Moth, great job with the 5000 to 6500 steps. Rest as you need to, push when you can, you are doing excellent.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
Log in to post a reply

May 27, 2021 08:13PM Imagine wrote:

Did a 2 mile hike at the Cascades waterfall yesterday am, it was mostly uphill with lots of rock climbing, I was out of breath a couple times but did it anyway. Back to my IV chemo today.

Karen Dx 7/7/2007, IDC, Right, 2cm, Stage IIA, Grade 2, 0/9 nodes, ER+/PR+, HER2- Radiation Therapy 8/7/2007 Chemotherapy 9/7/2007 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 11/1/2019, IDC, Right, Stage IV, metastasized to lungs/other, ER+/PR+, HER2- (IHC) Hormonal Therapy Faslodex (fulvestrant) Surgery Lumpectomy: Right Targeted Therapy Ibrance (palbociclib)
Log in to post a reply

May 27, 2021 10:03PM mara51506 wrote:

beautiful pics of the waterfall and scenery, great job on the hike as well.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
Log in to post a reply

May 27, 2021 10:05PM illimae wrote:

beautiful hike imagine, glad you got to get out and enjoy it.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/20/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jun 4, 2021 09:34AM mara51506 wrote:

Well, the humidity is on its way. Looks overcast today so will stay indoors and get steps walking on the spot. Lifting my legs same amount as outside and picking different cardio music as well. 150 bpm for about 10 minutes gave me a nice sweat. Next music is running music with 175 bpm. I still want my 10 to 15 thousand steps. Not going to be doing as much outdoor walks when it is hot. These cardio songs with the really fast beat will help the step total add up faster and made me sweaty as well. Shorter bursts like 5 to 10 minutes as these are a much faster pace than I am used to.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
Log in to post a reply

Jun 6, 2021 12:40PM mara51506 wrote:

Too stinkin hot for my taste, walking on the spot on my stepbench. Pulled up some youtube music at 130 to 175 beats per minute. Nice fast pace to work me out. Much faster than my normal walking. 10 mins or so each session until I reach at least 10000. It all counts,

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
Log in to post a reply

Jun 7, 2021 03:41PM Snow-drop wrote:

good work Mara! I can't resist in hot weather too, so basically I can't walk or do anything in hot sunny days. If I have energy I walk early morning or evening after dusk.

Beautiful pictures imagine.

Mae how are you?

Moth, agreed this thread and Mara are inspiring to all of us.

De Novo stage IV Dx 9/2019, IDC, Left, 4cm, Stage IV, metastasized to bone/other, Grade 2, ER+/PR+, HER2- (IHC) Hormonal Therapy Zoladex (goserelin) Hormonal Therapy Femara (letrozole) Radiation Therapy External: Bone Targeted Therapy Ibrance (palbociclib)
Log in to post a reply

Jun 7, 2021 07:40PM illimae wrote:

Snowdrop, I’m good, thanks for asking. I haven’t been very active lately though, it’s been raining so much in Houston, so I’m using this weather to rest. Fortunately, the forecast looks dry enough for neighborhood walks.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/20/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jun 7, 2021 07:44PM moth wrote:

oh mae, you'd hate the pacific northwest lol. Last week we had some real downpours. I walk in rain all the time but every once in a while we get such heavy rain that it's crazy.

I've been more active - less time sitting, more time puttering around in closets, sorting, purging stuff. But it doesn't necessarily add up as steps. Still, sometimes it's exhausting all the lifting and moving etc so I think it's a good workout too.


I take weekends off

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: https://nevertellmetheodds2017.tumblr.com/

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/8/2020 External Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/2/2021 External: Bone
Log in to post a reply

Jun 7, 2021 07:53PM illimae wrote:

You’re right Moth, I was raised in sunny Southern California, rain isn’t my thing. Also, my eyebrows never filled in after chemo, so water just runs down into my eyes, it’s so annoying!

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/20/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jun 7, 2021 10:56PM mara51506 wrote:

Moth, I would take the more reasonable weather in BC than here any day of the week. Right now we are getting highs in the 30's feeling like 40, thanks southern Ontario and if this is an indication of summer, no thank you. I will walk when I must but do the most inside. Morning walks may work as well. I also have a neck fan so when it is not raining, I will try that out.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
Log in to post a reply

Jun 8, 2021 04:14PM Snow-drop wrote:

This little fella was running to pass the pavement, seems very determined! I took this photo few days ago when the weather was cooler, today it is one of those hot days so probably I’ll do pt exercise inside.

De Novo stage IV Dx 9/2019, IDC, Left, 4cm, Stage IV, metastasized to bone/other, Grade 2, ER+/PR+, HER2- (IHC) Hormonal Therapy Zoladex (goserelin) Hormonal Therapy Femara (letrozole) Radiation Therapy External: Bone Targeted Therapy Ibrance (palbociclib)
Log in to post a reply

Jun 10, 2021 01:12PM mara51506 wrote:

Oh so cute snowdrop. Glad to hear about your indoor activity..

It is hot here but not as bad as yesterday. I did try the walk to the hospital which is about 30 mins. Normally is not a problem but was too humid so I wound up walking 3/4 of the way there and catching the bus. Took the bus home yesterday. Still have an almost 10 minute walk from the bus stop but that was doable. This all was yesterday.

Today I did two 20ish minutes of walking, rest is shorter bursts of rapid walking. Hoping to get to 10 to 15 thousand steps as I would like to trim down a bit or at least not keep gaining weight. I did buy clothes like yoga capri pants, bike shorts as well in my current size. Have to look for more flowy shirts to wear with those.


2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
Log in to post a reply

Jun 10, 2021 11:38PM lehrski wrote:

Visiting a friend in North Carolina. I had no idea what a difference humidity makes. At home, 80 F is nice for walking and 100 F is uncomfortable, but tolerable. Yesterday herewas 85 F and 90% humidity. I walked 2 miles with a friend then ran 1/2 a mile and was cooked. How does anyone get outside here when it's really summer?

Dx 7/24/2020, IDC, Left, Stage IV, metastasized to bone/lungs, ER+/PR-, HER2- Targeted Therapy 8/1/2020 Verzenio Hormonal Therapy Arimidex (anastrozole)
Log in to post a reply

Jun 11, 2021 06:42AM mara51506 wrote:

I walk inside when it is that hot and humid and walk in the morning. After lockdown, I may do some mall walking as well just to get out of the heat.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
Log in to post a reply

Jun 12, 2021 01:32PM mara51506 wrote:

I have been more productive with exercise today. Had taken 3 half hour walks outdoors and done a small 5 minute on indoors and reached my 10000 goal by 10 am. Any walking from now will be on the spot in the house


2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+

Page 97 of 97 (2,905 results)