OK, I admit it, I am a compulsive planner. I have had some great suggestions and tips not only regarding what to bring to the hospital, but also on how to prepare the house to make the recovery as easy as possible.
I am travelling for surgery so, for me, "packing" includes the first 10 days of post-op care.
I thought I would start a list (in no particular order) that might serve as a reference... PLEASE add your suggestions!!! Anything at all you either found helpful OR wish you'd considered before your surgery.
I am a bit of a MacGyver type and love creative uses for things like the lanyards and fanny packs for drains. I was wondering if a light/loose fly fishing vesy might be handy both for drains and for holding my phone, mp3 player, etc so I didn't have to reach so much... I am SUCH a geek.
Anyway, over-organizing seems to be keeping me occupied as my bi-latteral approaches. I know everything won't be a hit with everyone, but it gives us some things to think about.
******NOTE: MODS TOOK ORIGINAL LIST FROM Panchoandlefty AND COMBINED WITH OTHER MEMBER SUGGESTIONS UP THROUGH END OF MARCH 2015*********** We are happy to keep adding, and please let us know if we missed anything !
Combined list from what others have said in this topic !
Community member tips for Surgery
Tips for the hospital:
Hand sanitizer, antiviral Kleenex, Anti-bacterial adult wipes (in a pretty dispenser), adult "baby wipes" to give yourself sponge baths.
'skin prep wipes'. These help prep the skin for tape and other adhesives
Roll on or Spray Deodorant, NOT a solid stick.
Lozenges or hard candy of your choice.
A lip balm of choice
Face and hand moisturizer
A stool softener, dried prunes, bran cereal and "smooth move" tea, laxatives.
Clipboard, notebook and pen (for documenting when you had pain meds and drain amounts)
Zip up track suits or button up pajamas and shirts.
Slippers, cotton front snap bras
Silky bottoms/PJs to make getting in/out of bed easier
Zip up hoodies/ warm ups, soft flannel shirt is just right for after surgery.
Camisoles/tanks which can be stepped into (as opposed to pulling over-head)
Jog Bras (Natori is recommended) or whatever support is suggested by your surgeon
Pull on, easy pants or shorts, or shirt
iPod, Mp3 / Music player
Cell phone/ have friends' numbers handy!
Hair tie if your hair is long.
Lanyard (like for ID cards) for holding drains
Fanny pack for drains
Nurses can make a necklace from IV tubing to hold drains in shower
Luck trinkets or photos from friends and/or family.
A good eye mask and ear plugs in the hospital.
Take clothes to hospital that can be washed/sanitized at home
If you are going to sleep in bed and not a recliner at home, ask the nursing staff to show you the proper way to get in and out of bed with the least strain on your back and upper body.
If you feel you may not be up for visitors at the hospital, just let the nurses and staff know that you prefer no visitors except DH or immediate family. I knew that I was having a rough time emotionally as it was beforehand. I didn't want to put on a happy face for a friend, cousin or whomever wanted to stop by. I know the visitors mean well, but for me I just wanted peace & quiet.
Tips for the ride home:
Have a pillow and lap blanket for the car-ride home.
Fill scripts before coming home so you won't have to stop on the way
What to organize at home:
Consider getting something like the The Shower Shirt, a patented, post-surgical, water resistant garment designed to protect chest surgery patients, including mastectomy, while showering. Use code BCO for 20% off www.theshowershirt.com
Get a manicure and pedicure before your surgery, and a hair cut.
Before surgery, practice washing your hair, with or without help, with your elbows not moved away from your chest---either over the kitchen sink, using the spray or if your doc will allow, in the shower.
Or, arrange with your hair dresser to do your hair after you get home and cannot stand it any longer -- get someone to drive you.
Move commonly used items, kitchen tools, etc to low shelves before surgery
Find NON child-proof caps for meds.
Arrange all post surgery robes, pj's, button down shirts and hoodies on a rack in one easy to reach place so you can dress myself easily the first couple of weeks without rummaging through my closet.
Paper cups and light weight coffee cups for at home
Extra sheets to keep in rotation
Lots of pillows or a wedge or two!
A travel neck pillow - 'C' shaped - for keeping neck from getting a crick after sleeping in a recliner.
Tiny travel buckwheat pillows, or other small pillows.
Put an egg crate mattress on top of mattress and use a long body pillow.
Medical gloves (latex free or powder free)
Small kitchen garbage bags for dressing disposals
A little plastic waste can for at home
Find NON child-proof caps for meds
Lanyard (like for ID cards) for holding drains, Fanny pack for drains, or a camisole, or nurses can make a necklace from IV tubing to hold drains in shower. An old neck tie to use as a lanyard to hang my drains on while I shower. Works like a charm
A shower chair and a hand held shower nozzle. 3M Nexcare tagaderm transparent bandage over the port where it exited my skin when I showered. Also, have a lanyard to use for your drains in the shower. I just clip the safety pins on the lanyard clip for while I shower. It seems a little heavy on my neck while I shower, but I take it off right after I shower.
Get a humidifier for home if your air is dry.
Grabbers! These are about 23 inches long, have a handle that you sqeeze, and the end clamps on stuff on the floor. GREAT for pulling up your pants when you can't bend over, or picking up stuff that you drop, (like the toilet paper, etc!) I needed two of these, as I dropped the grabber! Great for pulling the wash basket along, too!
Make sure to get safety pins, makes it easier to pin your drain tube to your pjs.
Size 1 baby diapers, sanitary napkins or nursing pads for open breast incisions.
A small step stool has been a great tool to help me get in and out of bed
Make sure there's food premade that you don't need to fuss with (sandwiches/salads in individual servings), and also keep those drinks handy.
Cook some of my favorite foods and even ordered a couple takeouts from my fav restaurants to be on hand when I got hungry.
Purchase smaller sizes of soda/juice/milk.
Stock up on heavy items (laundry soap, dry dog food, bottled water, sodas) for 2-3 months! Remember to fill up smaller containers that are easier to pick up.
Put your shampoo, conditioner, and body soap in trial size bottles so they are easier to manage and lighter.
Stock up on stuff near bed - tissues, water, magazines, lots of pillows of all sizes, medicine, remote control.
Recliner or hospital bed- can be ordered from medical supply companies.
Drain solving problem: Zip-up hoodies or robes with pockets, I cut a slit on the inside material and popped the drains in from the inside. No one even knows they are there. It looks a little bulky, but much better than the drains hanging on my neck from a lanyard.
If you have someone a the house helping you out, when you need them call from your cell phone to the house phone or vice versa. It was so much easier than trying to yell from upstairs.
Get Netflix or rent movies.
Have an insulated cup for drinking and book and lamp by the bed.
Have someone pour milk, juice, etc from big gallon jugs into smaller containers and leave on an easy-to-reach shelf.
If a can of something needed opening, have someone do it before they leave.
This thread started me thinking about what my husband/partner will need. So I am starting a basket of "surprises" for him. A friend is bringing it to the hospital to give to him after I am in surgery.
iTunes gift card - so he can dowload a book on tape, music, movie, whatever
roll of quarters - for the pop machine
deck of cards - surgery is supposed to be 8 - 10 hours. He can play cards with whoever shows up
remote control car -pure silliness but he will think it is fun!
box of Special K meal bars - at least he will have something semi-healthy to snack on
chapstick - hospital environments can be very drying
bottle of special single malt scotch - something he would never buy for himself, but will appreciate very much when he gets home
travel blanket - hospital can get cold
framed picture of the two of us
1/15/2008, IDC, 1cm, Stage IIA, Grade 2, 1/23 nodes, ER+/PR+, HER2-
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