We are 213,240 members in 82 forums discussing 152,212 topics.

Help with Abbreviations

Topic: African American Women & Triple Negative Status

Forum: Black Women with Breast Cancer —

Black Women with Breast Cancer who want to connect.


Posted on: Dec 2, 2007 04:19PM - edited Dec 2, 2007 04:19PM by TripleNeg

TripleNeg wrote:

Wow, I've been away from the boards for a while and had to create a new user account and was pleasantly surprised to find this link. I'm stage 4 with triple negative breast cancer. I don't know if anyone has started a discussion about that here or not. 

Just to introduce myself and how I ended up here. I had a breast reduction in 2005 and right before discharge, the doctor told me they found breast cancer in the tissue they removed. The Oncologist that I went to told me that I didn't need chemo only a mastectomy. So I belived him and 10 months later, I researched triple negative breast cancer and found out that I should have had chemo but it was too late. Insurance said no. I requested a CT scan and low and behold, there was the breast cancer in my lungs. I did high dose chemo in October of 2006 and went into remission for 10 months and it came back again. I did chemo in November 2007, resigned my job, signed up for disability and now I'm stable. I share all of this just so you would know a little about me and where I am now in this battle for my life.

I've had several friends who've recently passed away; 2 in one week and now 2 in hospice. It's not what I envisioned for my life at age 42 but, God is able to turn this around and keep me here for many years to come. Stephanie

p.s. Here'a link I wanted to share with you regarding Triple Negative Breast Cancer. Knowledge is power; spread the word!

http://www.wusa9.com/news/columnist/blogs/2007/10/breast-cancer-triple-negative-factor.html

"The girl who became emotionally distraught, and wavered at each new set of circumstances is now grown up, a woman who has learned to rely on God's sovereignty" Joni Eareckson Tada
Log in to post a reply

Page 24 of 25 (724 results)

Posts 691 - 720 (724 total)

Log in to post a reply

Jan 31, 2017 10:52PM lLinda wrote:

Hello Valstim52, Welcome to the thread. I am Lil getting back on here, but hope to do better about checking in. Hope all goes well for you , a lot of us traveling this journey, you are not alone. I had my chemo Herceptin today, it is maintenance to keep Lil ca

at bay. Keep your head up, stay in faith. Til next time.

Llinda

LINDA C Dx 11/17/1998, DCIS, 1cm, Stage IIIA, ER-/PR-, HER2+
Log in to post a reply

Feb 12, 2017 07:48PM patoo wrote:

Hi Valstim52 (and all of you). Haven't been on these boards in several weeks. Life does get in the way but Valstim52 you will note that we all began where you are. I'm 8 years out and still going strong so hang in there. We may not come on often but if you need to reach out please do not hesitate to PM (click on our name to send a private message). I and these wonderful ladies will help as much as possible with prayer, advice, resources.

Phyllis

"for we live by faith, not by sight" - 2 Corinthians 5:7 Dx 10/24/2008, ILC, 1cm, Stage IB, Grade 1, 0/5 nodes, ER+/PR+, HER2- Hormonal Therapy 2/11/2009 Arimidex (anastrozole) Radiation Therapy 4/1/2009 Breast Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel
Log in to post a reply

Feb 28, 2017 12:59AM - edited Feb 28, 2017 01:01AM by lLinda

Hello Friends,

I do hope all is well in your lives, as well as can be expected.

I am good and Thankful to have had my 70th Birthday, I feel "Blessed!

Hope you all will " Weigh in," I'm a little better with this tablet, so I'll be lurking.

Till next time, Be Blessed!


LINDA C Dx 11/17/1998, DCIS, 1cm, Stage IIIA, ER-/PR-, HER2+
Log in to post a reply

May 8, 2017 06:46PM patoo wrote:

Hello iLinda, and a very belated Happy Birthday. 70 - YAY!!!

This is my first time on in a few months but hope to start checking in again a little more often, or at least once or twice a week. Glad you are doing okay.

Hello to all. Trust your silence, like mine, is just that "life" has gotten in the way and all is relatively well for you all.

"for we live by faith, not by sight" - 2 Corinthians 5:7 Dx 10/24/2008, ILC, 1cm, Stage IB, Grade 1, 0/5 nodes, ER+/PR+, HER2- Hormonal Therapy 2/11/2009 Arimidex (anastrozole) Radiation Therapy 4/1/2009 Breast Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel
Log in to post a reply

May 9, 2017 12:43AM lLinda wrote:

Hello patoo, sooo glad to hear from you. I was just checking in and saw you posted.

I hope all is well with you. I won't complain.

Hello to everyone else. Will check in again soon, want to hear what is going on in every body's world!

Sincerely,

Llinda




LINDA C Dx 11/17/1998, DCIS, 1cm, Stage IIIA, ER-/PR-, HER2+
Log in to post a reply

May 13, 2017 06:34PM patoo wrote:

Some of my BCo friends are coming to my timeshare in Daytona Beach FL November 5-10. Anyone in the area or wanting to fly in and join us are very welcome (as long as you are flexible on our sleeping arrangements which can involve sharing a bed or sleeping on an air mattress). We've gotten together for 4-6 days every year, this is year 7. PM me if interested.

"for we live by faith, not by sight" - 2 Corinthians 5:7 Dx 10/24/2008, ILC, 1cm, Stage IB, Grade 1, 0/5 nodes, ER+/PR+, HER2- Hormonal Therapy 2/11/2009 Arimidex (anastrozole) Radiation Therapy 4/1/2009 Breast Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel
Log in to post a reply

Jun 7, 2017 07:20PM lLinda wrote:

Hello patoo,

Thanks for the invite! Wishing you all, a Wonderful time!

Sincerely,

LINDA C Dx 11/17/1998, DCIS, 1cm, Stage IIIA, ER-/PR-, HER2+
Log in to post a reply

Sep 11, 2017 10:10PM lLinda wrote:

Hello Everyone! Hope all is well as can be in your world.

I am doing well, think about this group, prayers for "All".

Sincerely,

Llinda

LINDA C Dx 11/17/1998, DCIS, 1cm, Stage IIIA, ER-/PR-, HER2+
Log in to post a reply

Oct 3, 2017 07:58AM patoo wrote:

Just saying hello.

"for we live by faith, not by sight" - 2 Corinthians 5:7 Dx 10/24/2008, ILC, 1cm, Stage IB, Grade 1, 0/5 nodes, ER+/PR+, HER2- Hormonal Therapy 2/11/2009 Arimidex (anastrozole) Radiation Therapy 4/1/2009 Breast Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel
Log in to post a reply

Dec 13, 2017 08:49PM lLinda wrote:

Merry Christmas and Happy New Year to all of you. Happy Holidays to All!

Llinda



LINDA C Dx 11/17/1998, DCIS, 1cm, Stage IIIA, ER-/PR-, HER2+
Log in to post a reply

Dec 14, 2017 01:32PM patoo wrote:

Thanks LInda, same back to you and your family/friends.

Phyllis

"for we live by faith, not by sight" - 2 Corinthians 5:7 Dx 10/24/2008, ILC, 1cm, Stage IB, Grade 1, 0/5 nodes, ER+/PR+, HER2- Hormonal Therapy 2/11/2009 Arimidex (anastrozole) Radiation Therapy 4/1/2009 Breast Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel
Log in to post a reply

Feb 17, 2018 04:50PM - edited Feb 17, 2018 04:50PM by FaithWalker22

Hello ladies! My BC journey began September 29, 2017. I had surgery December 8 and next week I will begin chemotherapy. Although my cancer is hormone positive, it is mildly positive so it has to be treated more like triple negative.

I'll be on for rounds of TC. I'm going to try Dignicap to help with hair loss. I don't know what this part of the journey will be like, but one thing I do know is God is in control. I'll do my part and trust Him for the rest. 😊

Dx 9/29/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/4 nodes, ER+/PR+, HER2- (FISH) Surgery 12/8/2017 Mastectomy: Left; Prophylactic mastectomy: Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 2/23/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Log in to post a reply

Feb 21, 2018 08:20AM patoo wrote:

Hello FaithWalker22, sorry to meet you in this forum but happy you found BCo as it's a wonderful place to find support and understanding. I don't get on nearly as much as in the past but if at any time, I mean any time, you feel alone and need me just PM (click on my screen name) which will send me a message to my personal email.

Hang in there. The beginning is the worst but you can do this, especially with Him leading you.

Phyllis

"for we live by faith, not by sight" - 2 Corinthians 5:7 Dx 10/24/2008, ILC, 1cm, Stage IB, Grade 1, 0/5 nodes, ER+/PR+, HER2- Hormonal Therapy 2/11/2009 Arimidex (anastrozole) Radiation Therapy 4/1/2009 Breast Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel
Log in to post a reply

Mar 2, 2018 09:43PM lLinda wrote:

Hello FaithWalker22, Bless you! I like (I am going to call your "email name", already! It speaks volumes! I am not on as much, but do look in to see if folk are here. As patoo said there is support here. Just reading what others have posted, can give some strength. I am older and learned a lot of what the medical treatment" is for today. I am "HER positive" and receive Herceptin every 3 weeks, as maintenance med, I will be 20 yr Survivor in November. Please read some of my past posts. Certainly a journey, keep your "Faith"!!

Llinda

LINDA C Dx 11/17/1998, DCIS, 1cm, Stage IIIA, ER-/PR-, HER2+
Log in to post a reply

Mar 2, 2018 09:50PM lLinda wrote:

Hello patoo, good to see you are on! Hello to everyone! I hope all is going as well as can be in each of your "world's! I am good! Everybody stay Blessed, take good care of yourselves!

Llinda

LINDA C Dx 11/17/1998, DCIS, 1cm, Stage IIIA, ER-/PR-, HER2+
Log in to post a reply

Mar 5, 2018 01:27PM FaithWalker22 wrote:

Hey Patoo and ILinda-- thanks for your welcome. The BC is actually slightly positive but it behaves more like a triple negative. I started 4 rounds of TC 2/23. I feel good and I'm just trusting and believing God to do His part as I do mine. ILinda, so glad you arr 20 years BC free!!

Dx 9/29/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/4 nodes, ER+/PR+, HER2- (FISH) Surgery 12/8/2017 Mastectomy: Left; Prophylactic mastectomy: Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 2/23/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Log in to post a reply

Mar 9, 2018 09:44PM lLinda wrote:

Hello FaithWalker22 , I hope time goes fast for your "treatment times" . Sometimes it can seem forever. I am glad to hear you are doing well. Thank you, yes I feel so Blessed to be able to share in your journey and any one who has to travel this way.

Sincerely,

Llinda



LINDA C Dx 11/17/1998, DCIS, 1cm, Stage IIIA, ER-/PR-, HER2+
Log in to post a reply

Apr 2, 2018 08:37PM lLinda wrote:

Hello FaithWalker22, I just was re-reading your post and my response. I am coming up on 20 years in November. However, with many trials along the way. I just wanted to be clear " not smooth sailing" The Lord has been with me!!! So hang in there, certainly, with your "FaithWalk"!!

Sincerely

Llinda

LINDA C Dx 11/17/1998, DCIS, 1cm, Stage IIIA, ER-/PR-, HER2+
Log in to post a reply

Apr 13, 2018 09:38AM patoo wrote:

Hi everyone. Just checking in. Haven't been on in quite awhile. Life does go on and with the Lord in it, it's all good. FaithWalker22, let us know how you are doing when you get a chance. Prayers up for all.

Phyllis

"for we live by faith, not by sight" - 2 Corinthians 5:7 Dx 10/24/2008, ILC, 1cm, Stage IB, Grade 1, 0/5 nodes, ER+/PR+, HER2- Hormonal Therapy 2/11/2009 Arimidex (anastrozole) Radiation Therapy 4/1/2009 Breast Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel
Log in to post a reply

Apr 25, 2018 06:23AM angelfaith456 wrote:

Hi Everyone!

Just checking in! All is well with me. Some days are wonderful and then I have a bad day. But all in all, the good outnumber the bad as each month go by. I stay positive and keep moving. Hope everyone is doing well too!

Dx 2/18/2014, 1cm, Stage I, Grade 3, ER-/PR-, HER2- Chemotherapy 2/24/2014 Abraxane (albumin-bound or nab-paclitaxel), Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Surgery 8/18/2014 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
Log in to post a reply

Apr 28, 2018 07:06PM patoo wrote:

Hi angelfaith456, glad to see you checking in and letting us know you are coming along. Brings a smile to my face when I log in (infrequently) and see a post on this thread.

Pray everyone else is also doing okay and getting on with life.

Phyllis

"for we live by faith, not by sight" - 2 Corinthians 5:7 Dx 10/24/2008, ILC, 1cm, Stage IB, Grade 1, 0/5 nodes, ER+/PR+, HER2- Hormonal Therapy 2/11/2009 Arimidex (anastrozole) Radiation Therapy 4/1/2009 Breast Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel
Log in to post a reply

May 28, 2018 03:17PM lLinda wrote:

Hello Everyone!

Hope all is "well as can be in each of your worlds".

Good to see folks dropping by, I think about the women on here and prayers for all.

Sincerely,

Llinda

LINDA C Dx 11/17/1998, DCIS, 1cm, Stage IIIA, ER-/PR-, HER2+
Log in to post a reply

May 30, 2018 04:43PM patoo wrote:

Hi ILinda, good to have you check in. Praying all is well with you and also with all our sisters.

Blessings,

Phyllis

"for we live by faith, not by sight" - 2 Corinthians 5:7 Dx 10/24/2008, ILC, 1cm, Stage IB, Grade 1, 0/5 nodes, ER+/PR+, HER2- Hormonal Therapy 2/11/2009 Arimidex (anastrozole) Radiation Therapy 4/1/2009 Breast Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel
Log in to post a reply

Jun 29, 2018 08:08PM lLinda wrote:

Hello All, I hope all is as well as can be for everyone!

Patoo glad to hear from you.

Besides having edema in my left arm, had to have it wrapped, back in October, Nov. and part of Dec. Oh was I a "case", but I made it! So now I have to have a sleeve and gauntlet. It happened and I wasn't paying attention, I am not a small person and just thought, this arm is looking swollen! I was in 19th year of this journey, but was told, "it can happen"! Okay so much for me!

Everyone Have a Safe 4th of July!!

Sincerely,

Llinda


LINDA C Dx 11/17/1998, DCIS, 1cm, Stage IIIA, ER-/PR-, HER2+
Log in to post a reply

Jun 30, 2018 12:36PM patoo wrote:

ILinda, sorry that happened. Frustrating, when you think you have gotten beyond any (or not too much) worry then something pops up. I was told the same thing that 'it can happen' at any time no matter how long ago. But, we are still alive. I'm doing very well. Hope all of you are also.

Phyllis

"for we live by faith, not by sight" - 2 Corinthians 5:7 Dx 10/24/2008, ILC, 1cm, Stage IB, Grade 1, 0/5 nodes, ER+/PR+, HER2- Hormonal Therapy 2/11/2009 Arimidex (anastrozole) Radiation Therapy 4/1/2009 Breast Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel
Log in to post a reply

Jun 30, 2018 09:31PM lLinda wrote:

Thanks Patoo ! I am right-handed, but have took so much for granted, and I am busy most of the time, to keep sane, I made it " a challenge", to do everything I could. I am sorry you had to go through it too.

Everyone, Stay Blessed!!

Sincerely,

Llinda

LINDA C Dx 11/17/1998, DCIS, 1cm, Stage IIIA, ER-/PR-, HER2+
Log in to post a reply

Aug 8, 2018 09:03PM Insideout2 wrote:

Hello,

I have been on this site for a while, but not to this post. It is comforting to see those diagnosed years back with current posts.

Thank you.


Dx 12/2017, Left, Stage IIA, ER-/PR-, HER2- (FISH) Chemotherapy 1/30/2018 FAC Chemotherapy FAC
Log in to post a reply

Aug 12, 2018 07:25PM patoo wrote:

Hello Insideout2, sorry to meet you on this forum but it is definitely a good place to land on this journey. We just check in occasionally so others know they are not alone. Feel free to PM at any time.

Phyllis

"for we live by faith, not by sight" - 2 Corinthians 5:7 Dx 10/24/2008, ILC, 1cm, Stage IB, Grade 1, 0/5 nodes, ER+/PR+, HER2- Hormonal Therapy 2/11/2009 Arimidex (anastrozole) Radiation Therapy 4/1/2009 Breast Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel
Log in to post a reply

Aug 22, 2018 09:53PM lLinda wrote:

Hello Insideout2, Nice that you check in, and we welcome you.

They changed a lot of the forum and I couldn't find this page and began to feel sad. While not on all the time (like Patoo said) we do drop in.

Take care of yourself till the next time.

Sincerely

Llinda

LINDA C Dx 11/17/1998, DCIS, 1cm, Stage IIIA, ER-/PR-, HER2+
Log in to post a reply

Aug 22, 2018 10:03PM lLinda wrote:

Hi Patoo and everyone, I am on a roll Tonite. My port stopped working after 16 years , that didn't go well , disconnected from the cord, so I have to go in for a Venogram next week, needless to say, Ugh!! Keep me on prayer, they will try to remove that cord and put in a new port. Okay, so much from at this time.

Take care all

Llinda

LINDA C Dx 11/17/1998, DCIS, 1cm, Stage IIIA, ER-/PR-, HER2+

Page 24 of 25 (724 results)