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De Novo Stage IV
I'm wondering if there is a topic just for de novo Stage IV. I'd like to know how people found out. Did you have symptoms that led you to the doctor for an answer? Was it found out of the blue when you had another issue and how was it found? Are there others like me who have never shown it in your breast but only where it…
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Zoom Meet-up for Those With MBC: Place to keep chatting
This is a space held for our Zoom Meetup members to gather in between meetings for updates and support. Join our Virtual Meet-ups! For those with a diagnosis of metastatic breast cancer (MBC; also called stage IV) Register: Mondays at 2:00 PM EST, Tuesdays at 8:30 PM EST, and Wednesdays at 4:00 PM EST Young (45 and under)…
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Embracing What Matters Most After a Metastatic Breast Cancer Diagnosis
Embracing What Matters Most After a Metastatic Breast Cancer Diagnosis Mar 1, 2024 Grief counselor Kelly Grosklags helps Melissa Jenkins moderate a special Virtual Community Meetup on embracing what matters after being diagnosed with metastatic breast cancer. Living with metastatic breast cancer can bring many changes,…
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Lobular Stage IV Imaging Issues - I Know I’m Not Alone
Hi, everyone. I was thinking about starting a Facebook group for those of us who have so many issues with imaging. I got some feedback from others that they did not want me to start a separate group, so I am starting a group here. Below is my post on Facebook so that you can get a sense of the imaging issues I've had.…
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Experimental Inavolisib Seems Promising for Certain Metastatic Breast Cancers
Experimental Inavolisib Seems Promising for Certain Metastatic Breast Cancers Dec 7, 2023 If approved, the medicine may be an alternative to Piqray for treating certain cancers with a PIK3CA mutation. Read more…
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MBC and lowered immunity
My white blood cell count is down, neutrophils are down… not that I am sure what that even means, but I do know that my immune system isn't doing so great. Three head colds since December, and they linger and get harder to shake. I now mask up everywhere I go where I'm going to be in crowds. I take public transit to get…
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I am lost and scared that my next option is chemo. Emotional Yo-Yo and I have chemo PTSD
Hi there i just need to vent my fears. Not even 2 years with MBC and i am about to quit all treatments. Emotional Yo-Yo takes tall. Back in 2016 chemos were rough but i was going for the win. But this time around is different. There is no end of treatment and there is no win per se. I am lost and scared that my next option…
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Starting my Fifth Year of Metastatic Breast Cancer, taking Taxol and Sleeping A LOT!
I just finished Taxol #4, this was with a 10% reduced dose. Lots and lots of naps needed. Not used to being so dependent on naps. Slight fever in the 99s, just wondering if this is my new regimine. I was told I will stay on Taxol until it stops working. Estrogen inhibitors like Ibrance, Verzinio, and Faslodex did NOT work…
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Anyone Stage IV Doing Complementary Therapies or Holistic along with Medical Therapies?
Has anyone looked into any other therapies specifically Jane Mclelland or Thomas Seyfried or the metabolism of cancer? Would love to connect.
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Her2 2+ Fish test
Hello ladies. I have a question. My mother is almost 76 years old and she has breast cancer with bone metastases almost everywhere, at least this is what the pet ct showed. Her biopsy says Er+ 95%+++ 5%+ Pr+ 60%+++ 10%+ Her2 +2 Her tumor is only 8mm. I read that her2 +2 is "equivocal". This means that the HER2 status needs…
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The Benefits of Exercise for People Living With Metastatic Disease
The Benefits of Exercise for People Living With Metastatic Disease Dec 8, 2023 Dr. Anne May explains how exercise helps ease metastatic breast cancer side effects. In 2022, the American Society of Clinical Oncology released guidelines on exercise for people being treated for early-stage cancer. But when those guidelines…
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Being in a Metastatic Breast Cancer Clinical Trial
Being in a Metastatic Breast Cancer Clinical Trial Dec 7, 2023 Metastatic breast cancer advocate Dr. Kelly Shanahan shares what it’s like to be part of a clinical trial. Dr. Kelly Shanahan, trained as an OB/GYN, has been living with metastatic breast cancer for 10 years. For many years, she tried to join a clinical trial.…
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Tukysa Plus Kadcyla Better Than Kadcyla Alone for Metastatic Breast Cancer
Tukysa Plus Kadcyla Better Than Kadcyla Alone for Metastatic Breast Cancer Dec 7, 2023 Adding Tukysa to Kadcyla improved outcomes for metastatic HER2-positive disease. Read more…
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The Losses We Feel After a Metastatic Breast Cancer Diagnosis
The Losses We Feel After a Metastatic Breast Cancer Diagnosis Dec 1, 2023 Grief counselor Kelly Grosklags helps Melissa Jenkins moderate a special Virtual Community Meetup on the losses people feel after being diagnosed with metastatic breast cancer. Living with metastatic breast cancer can bring many losses: not being…
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Immerman Angels looking for someone with MBC and peripheral nerve sheath tumor
Hello everyone, Immerman Angels is looking for someone with MBC and peripheral nerve sheath tumor. For anyone interested, please reach out to us via private message or by e-mailing us at community@breastcancer.org.
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Chemo Sensitivity test
Hi, I’m in NZ - stage 4 lobular snd looking at the tests that tell you what chemo will work. I’ve done Foundation One which my oncologist recommended. I’ve just found out about the Geonostics Exacta Test - snd the Gradient test I’m confused so just wondering if anyone knows what the differences are - or which one is best.…
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FDA Approves Truqap for Certain Metastatic, Hormone Receptor-Positive Breast Cancers
FDA Approves Truqap for Certain Metastatic, Hormone Receptor-Positive Breast Cancers Nov 17, 2023 Truqap is a new targeted therapy option for metastatic, hormone receptor-positive breast cancer with specific genetic mutations that has stopped responding to other hormonal therapy medicines. Read more… q
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Promising New Treatment for Metastatic Breast Cancer
Promising New Treatment for Metastatic Breast Cancer Nov 2, 2023 Dr. Aditya Bardia discusses encouraging results from a study on a new medicine for hormone receptor-positive, HER2-negative breast cancer. At the European Society for Medical Oncology (ESMO) 2023 Congress Aditya Bardia, MD, MPH, presented results from the…
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Dato-DXd Seems Promising As New Treatment for Certain Metastatic Breast Cancers
Dato-DXd Seems Promising As New Treatment for Certain Metastatic Breast Cancers Nov 1, 2023 The experimental medicine Dato-DXd may be a new treatment option for certain metastatic, hormone receptor-positive breast cancers. Read more…
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I am so mad
I hate being here but here I am. Diagnosed stage IV to liver (20+ lesions), lung, spine, pelvis, skull (so I am not long for this world). I have no symptoms. It was caught during a routine MRI for my ongoing bulging disk issues. I have had other radiology over the past 7 months and there was nothing in these places. I had…
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Awaiting MRI for Bone Mets
Hi! Probably a common situation… finished BC treatment a year ago this week. Two months ago hip started aching on and off. Now a little more consistent especially at night. Went to GP thinking he would send me with referral to PT. Instead X-ray ordered and result is “patchy areas of sclerosis with two largest 3.1 cm on…
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Stage IV ER+, PR- and HER2+
Hello, I was wondering if there are others who are also dealing with Stage IV breast cancer that is ER+ (2%), PR-, and HER2+ and has spread to their bones. Recently diagnosed earlier this year and completed six cycles of PACL(W)+PERT+TRAS and am currently receiving PERT+TRAS every three weeks. I'm interested in learning…
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Chemo sensitivity test
Hi, I’m in NZ - stage 4 lobular and looking at the tests that tell you what chemo will work. I’ve done Foundation One which my oncologist recommended. I’ve just found out about the Geonostics Exacta Test - snd the Gradient test I’m confused so just wondering if anyone knows what the differences are - or which one is best.…
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Any success in getting treatment abroad?
I don't know if this would fit into this section or not. For my fellow breast cancer sufferers, was there a non-US country where treatment has been successful? I am planning to go abroad soon and was considering transferring my care permanently to a non-US country.
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How to not be a negative person career-relationship wise?
Hello! Is it possible to resist the urge to punch your boss after he asks "but what about your career aspirations?" when you tell him you are not interested in going up the corporate ladder? Is it possible to dig oneself out of a hole: pushing loved ones away knowing you don't have long to live? Not wanting to meet new…
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Psychological reactions to aromatase inhibitors.
I'm sure this has been discussed on other pages but I want to start a thread specifically for this discussion. For the second time, I have had a severe neurological response to Aromatase inhibitors. The first time I was told there is nothing that would help so I quit taking the meds That was 6.5 years ago. I recently had a…
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Support
My daughter has stage IV breast cancer she was diagnosed De Novo and has been doing well for years I live 22 miles away which takes 46 minutes in normal traffic and over an hour with more traffic Between my autoimmune disease and neck issues and my 2 dogs that need medication for the car ride I find it stressful to make…
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Important Stage IV Topics and Links for Stage IV Newbies
Here are some helpful resources if you've just been diagnosed with stage IV breast cancer, also known as metastatic or MBC. Join our Zoom Meetups for MBC! Anyone with MBC, register here: Mondays 2-3:30 pm ET Tuesdays 8:30 pm ET Wednesdays 4-5:30 pm ET Younger With MBC, register here: Thursdays, bi-weekly at 1:00 PM ET…
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Enhertu side effects
Hello, I am diagnosed with metastatic breast cancer. zi was on Kadcyla, Nerlynx, and Capecitabine and was doing good. However, nasty cancer has come back. I had 3 seizures. I am on Enhertu now. It is my 9th treatment and the side effects are bad. I slept for a few days. I can't get up to do general things. my brain feels…
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Just diagnosed with metastatic breast cancer (MBC), Stage IV? Start here.
Here are some helpful resources if you've just been diagnosed with stage IV breast cancer, also known as metastatic or MBC. Join our Zoom Meetups for MBC! Anyone with MBC, register here: Mondays 2-3:30 pm ET Tuesdays 8:30 pm ET Wednesdays 4-5:30 pm ET Younger With MBC, register here: Thursdays, bi-weekly at 1:00 PM ET…