Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
Between coughing fits, slept pretty well, not feeling to bad, still hungry for food. Did call in sick for Herceptin and cancelled Paratransit. They wanted me to go to the walk in clinic but told them no due to snowfall and mobile issues. She did not like it but at 54 if there is something I do not want to handle, it is being in a walk in clinic trying to get there myself. Appointments can be moved up. Did not feel like infecting people on the Paratransit.
Mostly dealing with persistent cough, turning to a more dry cough. Treating with honey as I am tired of cough syrup. I am also drinking a boatload of water. Though the cough sucks, I know to allow it to happen to remove icky stuff from chest. Oh well, other than coughing I am feeling alright, still have a healthy appetite. Not sure what I want to have yet, got a ton of food to choose from. I feel like lentils may replace beans for me in the air fryer unless I chop up the beans with cheese and do them in the air fryer, that could be good too. I will see what I wish to do a lot of choices to be had. I do enjoy the frozen burger from Walmart, grease was wiped off and out of air fryer easily.
Today decided on Kraft Dinner, added some sour cream vs butter. Decided to add some riced veggies to it. Added the cheese package and went back and forth stirring the mix, I also added some queso too. I will see how it comes together.
Not sure what to have later. Found older tortillas in the container that holds my instant pot and air fryer, not moldy so figure that they are usable for other purposes or to make crunchy stuff. I will post if I think it is good.
Hope everyone is having a good day, and in pockets for all.
Re: Birads 5 with calcification
Hi @lisat8228
I'm from Austria and had the same classification on 16/07/2025
Startet chemo in Taxol on 08/08
Now on EC (like AC).
With the taxol ist was the same for me 2hour of full energy than so tired that I had to go to couch immediately 😅
Sometimes for just 15min sometimes for 2hours.
The the energy was back.
I'm39 years old.
With taxol its standard to get befor the chemo a stetoide infusion.
So I was high the day after chemo (but no sleep the day before!),
And on the 2nd and sometimes also the 3rd day I was a little bit more tired, but afterwards it was better till the next chemo.
I got 11times taxol (1 treatment I had to skip because of an infect..)
Since Thursday this week I got EC and yesterday my first Neuladta too… premeditated... I'm not happy with it because with Taxol my blood was always in the norm and I would have preferred to wait and see what effects the EC causes. And than, in case of evidence to start a blood treatment....
But I can sooo feel with you - I read all your comments till July and also for me the waitig was horror (my fist tasting the tumor was on 26/05 my ultrasound/mammography on 01/07 and than all of the staging. I was also birads 5. Now I'm between 3/4
MRT showed also supposed tumor in my breastbone but Szinti not... Than the wanted to do PET CT too but I had CT from Abdomen ecc before and my oncologist said that for the treatment it will make no difference…so I denied it.
But now the end is near! 6 weeks (hopefully!) left for me.
On 22/12 I have my next MRI.
Mri befor Ec on tuesday showed a reduction of my tumor from 5 to 2,6cm after taxol and no more lymphnodes infected.
My family prayes a lot for me and about 60 friends - believers - that helps me. Otherwise I don't now how I can survive this...
Knowing that God has everything in control is the best calming for me.
And as you wrote: I was so down after the diagnosis that I didn't do any sport for 3months. With chemo I started with walking and now trying to do every 2nd day some Pilates.
Sry for the long post 😅
Its one of my no-sleep nights…
All the best for you.
Wish you Gods blessings and send you Psalm 46
new diagnosis
I was recently diagnosed with her2 negative metastatic breast cancer stage 4 that is not in breast but now in bronchial, bone , abdomen , pelvis. I have been coughing a full year. Had breast cancer stage 1b in 2020. So recurrence.
Wonderful Pulmonologist was one that finally found what was wrong through lung biopsy ! Went through Multiple tests! Multiple specialists trying to figure out what was causing cough! Had pneumonia too. Even had a normal mammogram! Bloodwork came back normal previous months before and tumor marker bloodwork was 38 in March of this year . Now TM is 75 and recently 100
New Oncologist is starting me on letrazole and kascali (don't know if i spelled correctly) I have a cough that doesn't quit but is changing. I am in pain in multiple places/fatigue . I have been prescribed hydrocodone for pain. I am concerned about my loss of appetite! I weigh 110! I previously was 135 pounds5 ft 6inches tall ! It's been a very difficult time. Does my prognosis not look good or will treatment help me gain weight and have an appetite again and feel better??. I have felt pretty crappy for a full year! Frustrated it took a year for doctors to diagnose. My muscle tone is basically wasting away! I am 64!I have minimal support system on these concerns. Not comfortable joining a big support group locally. Please help……anyone else have input?
apple61
Re: Can we have a forum for "older" people with bc?
hi friends! You’ll get a kick out of this. I DID join the starting chemo in December group. I am the ONLY ONE THERE.
so can y’all sub in for a while on my questions?
carole - I am SO IMPRESSED by your ambition! Cleaning carpets is so far from my mind right now… enjoy your golf! It looks like a beautiful picture postcard here we’re getting an inch or two every day here right now, crisp and crunchy under your feet, darkly in the light, makes the world so sweetly silent. Our snow here is teeny flakes that you could sweep with a sidewalk broom. It’s like powdered sugar. Almost like the beach at siesta key - only way colder and no waves.
Petite - welp, I’m right there with you I live in a 120 year old home and one of the cabinet doors came unjoined at a trim connection and just fell off the other day, so we are paying a guy to fix in and rip the shag carpet out of the master bedroom (previous owner’s cat pee inspired my cat - not safe for chemo even with carpet shampooing my home will also be a chaos nightmare for a very short while.
Canary - would you like to come visit and fix up my house? I am terribly short of the skills to DIY it, but I am an excellent gardener, I do some watercolor, and I’m a great cook! Labor swap? You’d be really well fed!!
first chemo yesterday - keytruda, carbo, taxol. In at 7am, out at 11:30. Not bad, with labs and all. And the outpatient pharmacy delivers to your chemo suite, which is super nice. Well staffed, efficient, very clean. (I’m a nurse - this is the stuff that tells you a LOT about how care is).
I’m getting my port Thursday. Since I’m at a university cancer center, I keep expecting to be treated by fellows and residents, but so far it’s all clinical professors. My IR doc who’s putting in the port, finished up two fellowships in the 2010s.
No side effects so far. I was burpy last night and took a Zofran before bed just in case.
so far, things are kinda sorta well in hand.
Love to you all.
marti
My daughter in the corn at the pumpkin patch…
Re: Repeat surgeries? Please share your experience -
Hoping more people post in this. I am going in for reconstruction on left implant after recurrence with rads 2nd time around. Right implant looks, feels great. Left side that got roasted is hard as a rock and climbing up my chest towards my shoulder. Hoping to clean out scar tissue, replace and redo with just similar match to right side. I do NOT want to do a flap (from my poor back muscle or God knows where else). Dr is giving this 50 - 80% chance of matching or improvement. Oh hell, and I'm going to be 46 so happy birthday to me...I'm getting a chin / lower face lift to boot. Feel like the last 5 yrs show on my face bad and I'm getting the family jowls. Hell with this...you only live once!
7of9
Re: Afinitor/Aromasin
Hi @norah2024 welcome to this thread. I had 3 weeks of no treatment when I switched from Verzenio & Letrozole to Afinitor & Aromasin. It was due to communication and delivery issues. So 3 weeks no meds. I have been on this now since late Sept and so far so good. Minor improvements. PET this week and bloodwork next. So fingers crossed again that still improving.
Side effects have not been terrible. They took their time appearing. But nothing that cannot be dealt with. Good luck and keep us posted please.
does tumor size increase after biopsy?
I had a biopsy 3 months ago, and did a follow up ultrasound last week to make sure the treatment was working. The US report showed the tumor had grown, and by volume calculations it was 150% larger than the ultrasound done 3 months ago (in August) right before the biopsy. For comparison, the tumor had increased only 60% from the 6 month period of Feb - Aug. If it makes a difference, this is invasive ductal carcinoma, HER2 negative. I didn't have any complications like excessive swelling or infection with the biopsy.
The tumor growing 150% in only 3 months seems like a lot for me, especially since I've been on Arimidix to shrink the tumor for 2 months. Is this normal?
Cambria 1 and 2 clinical trials, Camizestrant
Hi, I would like to know if some one takes part in this trials? Is Camizestrant better medicine than letrozol? Are there people who take it?
truska
Re: My Husband, My Life, My Love, My Family, My Cancer
@mara51506 Sorry to hear of your fall and sickness, glad you are feeling a little better. Agree you have to do what works and you feel comfortable doing! You can always adjust plans etc later after you speak with disability. The important thing is that you feel safe. Hope you feel better with each passing day.
@goldensrbest Awww adorable doggie pic glad she likes the snow! Buster loves the snow too, we"ll see if we get any measurable amount this year.Sounds like you had a fabulous Thanksgiving and bonus with quick travels. In your pocket for MR's this week🤞
@tanya_djamila Fingers crossed that the broken blood vessel is nothing.
@intolight Glad the roads are clear for you to get to your party, how was it? Dotto, God Bless all firefighters. Amazing and valiant people.♥️
All ok here, hoping for a quiet week! Wishing all a peaceful night.
cookie54
How do I move on
I was diagnosed with breast cancer in 2023 I went through treatment and had both breast removed however my life has changed drastically since then and I don’t know how to deal with it
neshia41