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FDA Approves Orserdu for ER+ MBC (oral SERD)
FDA Approves Orserdu for Metastatic, Estrogen Receptor-Positive Breast Cancer Jan 27, 2023 The FDA has approved Orserdu, a new oral medicine to treat metastatic, estrogen receptor-positive, HER2-negative breast cancer with an ESR1 mutation. Read more....
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Stage 4 with bone mets to mandible & T4 spine
Hello, I was diagnosed in December 2022 with what they thought was stage 2. After Pet scan it’s now stage 4. Mets to T4 spine and mandible. I’ve had one round of TCHP chemo and feeling pretty good. My oncologist hasn’t said what his plan for the bone Mets are other than adding Zometa. I’m wondering if the chemo will help…
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Paying for drugs while on medicare
I am retired, age 75, single and on Medicare part D for drug coverage. The copays for Ckd4/6 like Verzinio and Ibrance are between $5,000- $7500 monthly which no one can afford. How do people on Medicare part D for drugs get help with paying for these drugs? I am reading conflicting info as relates to people on Medicare.…
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Another paid survey
Hi, everyone! This time they are looking for people who are ER+, Her2- who have been on hormone therapy but are no longer and are on second line or more. The list you've been on and are no longer includes Ibrance, Verzenio, Kisqali, and the following list. Please private message me if you're interested. If you have already…
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Stage 4- Docetaxol (Taxotere) Treatment
Last week, I started a new-to-me IV Chemo after progression while on Doxil. I have searched the Stage 4 posts but not finding much so wanted to have a thread to post my “story” to allow a place to ask questions as well as posting experiences, hoping to help others if they move to Docetaxel, too.
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Information on GATA 3+ Cancer
Hello Friends, Thank you for accepting me in the group. I am ER+, HER2+ and GATA3 +. I was recently diagnosed (December 12, 2022) with Stage 4 Breast cancer with metastasis to Bones, lymph nodes and spleen. My chemotherapy regimen includes Trastuzumab(once every 3 weeks), Paclitaxel (every week) and Zoledronic acid (every…
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Extensuve bone mets at 36 with a 2 year old toddler...
I am 36 years old with a 2 and a half year old, i was diagnosed with cancer at 34 and was 12 weeks pregnant with our 2nd child. The 1st biopsy the doctors did aborted my baby (7the miscarriage). I had been living with a lump in my breast for 4 years and during pregnancy that the doctors told me was a cyst. My mother passed…
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Under 45 with MBC Zoom Meetup: Place to keep chatting
This is a space held for our Zoom Meetup members to gather in between meetings for updates and support. Please remember to favorite/bookmark this thread for notifications of new posts If you haven't joined the group yet and just found this thread, feel free to join our virtual meet-up! Young (45 and under) with metastatic…
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Has anyone been on Herceptin more than 15 years (or less)?
On and off this forum, I notice that many of you have been on Herceptin for a long time, When I was first diagnosed denovo, I started out with Herceptin, so it's been 15 years for me on the same drug. I receive it now every three weeks, and I've taken arimedex/anastrazole every day all that time, too. At the tine, I was…
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Kisqali Exemestane Xgeva Lupron
I am starting this regiment tomorrow and am hoping there are others out there that are currently on this same protocol or have been and can offer advice and knowledge of side effects, etc. pretty nervous about tomorrow, keeping a positive outlook and want to do anything and everything I can do to manage side effects and…
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Monday MBC Zoom thread place to keep chatting
This is a space held for our Monday MBC Zoom Meetup members to catch up in between meetups. To join the weekly virtual support group, Mondays at 2pm ET, please register here.
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Young Adults with MBC Zoom Thread: Place to keep chatting
This is a space held for our Young With MBC Zoom Meetup members to catch up in between meetups. To join the weekly virtual support group, Thursdays at 1pm EST, please register here. This thread has been discontinued and moved to:
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MBC Approved Treatments, Dealing with Side Effects, and More
Are you facing a treatment change and questioning what drug may be next on the list? Dealing with treatment-related side effects? Or wondering about cutting-edge research? If you answered Yes to any of these and want science-based information at your fingertips, read my book, "The Insider's Guide to Metastatic Breast…
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Digestive side effects from Verzenio
Hi there. I was initially diagnosed with Stage 3a HR+, Her2- breast cancer at the age of 39 (2004). Treatment included a mastectomy with 23 lymphnodes removed (1 positive one), typical AC/T chemo regimen, radiaction, and Tamoxifen for 5 years. I was in remission. Fifteen years later, almost to the day, I started to have…
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Kisqali + Hormonal Tx Better as 1st Tx for Advanced-Stage BC
Kisqali Plus Hormonal Therapy More Effective Than Chemotherapy as First Treatment for Advanced-Stage Breast Cancer Dec 19, 2022 Pre-menopausal women diagnosed with advanced-stage, hormone receptor-positive, HER2-negative breast cancer got more benefits from Kisqali and hormonal therapy than chemotherapy as a first…
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33, TNBC, skin mets, and chest wall recurrence.
Hi All, not really a point to make but at 33 this is an isolated club to be a part of. Just want to share my experience, thoughts and treatment incase anyone is going through what I am. I found a lump in 2020 at 31. Was told it was nothing. 6 months later I was diagnosed with stage 3, TNBC. I did 4 AC, 4 Taxol, 1 failed…
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Newly Diagnosed
I’ve recently been diagnosed with Stage IV and am a nervous wreck. I’m still in the process of getting scans and a biopsy to determine the extent of it. I can’t seem to cope with the anxiety. How have people here dealt with the anxiety? I’m not sure how to reach some level of acceptance so as to carry on and do what I need…
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Metastatic or Terminal
Some posters have pondered what to call it. Many posters to this forum have wondered about this. When I tell people that I have Stage 4 Metastatic Breast Cancer, I get a whole range of reactions. Many do not know what Stage 4 means - to them, either you have cancer or you don't. Metastatic (it's all Greek to me) is usually…