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HELP. I am so scared.
Just had 6 yr post diagnosis mammo and wound up having a biopsy that same day due to pleomorphic calcifications found near original site. Rad strongly suspects DCIS again. I am not doing well mentally. I am terrified of having a recurrence. It means that the original treatment didn't work. So how can I stop it now? Had…
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DCIS Recurrence diagnosed today
Here I go again - back on the research and reading train. Just re-diagnosed with DCIS Grade 3 ER- this time (last time was ER+). Nurse navigator seemed confused because it was different. Are recurrences usually the same? (2.5 years since first DCIS) Stinks to get it again - but I'm thankful it's just DCIS, at least for…
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test results know but waiting to see doctor
I had a PET yesterday because of back pain i had been having. Bone scan only indicated an area of concern in my sacrum. PET says multiple mets. Area with most uptake was sacrum, and L3,4,5 Also femurs, both humerus, sternum and possible node/cyst on liver. The mind is a powerful thing I guess. I felt relatively normal…
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Yale or MSK for recurrence
I am having a hard time making a decision. I met with a surgeon at Yale and am scheduled to meet with one at MSK. Has anyone had any experience with a Dr Zanieski at Yale or a Dr Barrio at MSK? I was also considering Dana Farber but am having some insurance issues with them. MSK of course has an outstanding reputation and…
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Core needle biopsy report
Hey, So I got my biopsy report back and it says under final diagnosis: Metastatic breast carcinoma, ductal, grade 3/3. Does this mean stage lV ?
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Bone scan shows uptakes at ribs
My mother was just diagnosed with ILC. Biopsied tumor is on the left side. Skin and chest wall are involved so the oncologist is trying to determine metastases now. He ordered a bone scan and chest/abdomen/pelvis CT. Bone scan shows 2 focal mild to moderate uptakes on 2 of the right ribs. Without CT correlate. Impression…
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Recently Diagnosed IDC , Stage 4, Bone Mets
Hi, I am age 34. I had multiple lumps in my left breast since childhood and was continuing a yearly scan since 2017 which shown them stable and benign, tbe lumps were non painful. Married in 2011 I have total of 3 kids. In March 2019 I was blessed with a baby girl (my 3rd kid). In January 2020 During feeding my kid, i felt…
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14 years after TNBC Im facing possible liver mets
14 years ago I had triple negative medullary carcinoma, you can see from my signature everything I had. Last week we thought I had gallbladder issues or kidney stones, had a CT and the radiology report was horrifying when I read it. They found a very large mass on my liver with suspected lymph node involvement and a few…
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On a roller coaster - An incidental finding
I guess most can relate to the roller coaster effect between suspicion of recurrence/metastasis and diagnosis/treatment plan. After 9 years remission......... I have had hip pain for almost a year, from what is believably a pressure injury. Recently switched to new pain Dr for different/better? approach to pain. Pelvic MRI…
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Shadow in chest is recurrence
Hi I am due to have a CT scan biopsy of a 29mm shadow in chest tomorrow. Having been told 50/50 chance, they have said this morning that it is highly likely to be Mets and not operable. I have 3 teenagers and a fully supportive family. Positives: small mass and no evidence yet of other mets although I haven't had a full…
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Second diagnosis--over this
I already posted on the worried about recurrence forum, but unfortunately here I am. I'm over this. New tumor in the old surgical area from last time. I'm planning to get UMX, but they are sending me through the scanning pipeline because I feel icky a lot of the time and want to make sure there's nothing else wrong. I'm…
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Wow, I *really* don't want to be in this group
I hate being back on this board. I had DCIS 10 years ago, and had really moved on with my life. Married, two kids, pandemic puppy, doing life and not thinking about cancer *at all*. I was sure, in fact, that the lump I found a month ago was going to be nothing.... but it wasn't nothing. It was 6mm of IDC, ER+/PR+ HER2-.…
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Recurrence close to tumor site?
I had a skin sparing/nipple sparing double mastectomy last January. I also had ALND on right, radiation to chest wall, axilla, and supraclavicular nodes. About a month ago I found a red spot on my breast. A few weeks ago, I felt a thick ridge under the red spot, which has not gone away. This is about 1 o’clock position, 2…
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Need help - recurrence after six months?
Hi everyone My wife was diagnosed with Stage 1A IDC in September 2020. She had a single mx. Largest tumor was 2mm, 5 nodes checked, all negative. Er, Pr positive. Oncotype score of 11. The other day she noticed a lump in the same breast (tissue area above the implants)with the mx—lump is about 2cm. Biopsy yesterday and…
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2nd local Recurrence - Risks/Benefits WBR?
Hello all, I'd really like to hear from older women who have had a 2nd local recurrence or new cancer in a reconstructed breast and what treatments they have had. Also, any relevant studies on the risks and benefits of WBR in a second local recurrence. I'm particularly interested in the correlation between a second local…
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13 years cancer free found out today it’s back need help
at age 37 no family history I was diagnosed with stage2 Er+PR+ her 2 neg breast cancer in the left breast had lumpectomy with 6 lymph nodes removed. followed by a bilateral mastectomy due to margins not being clear . Underwent multiple surgeries to reconstruct with complications. Took tamoxifen for 5 years. Still have…
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3rd dx. help please!
Hello Everyone so glad to have found this group I’m just needing some support and hope I had my original DX in 2005 and Drs performed mastectomy and Arimidex I then had local recurrence In lymph nodes in 2008 and underwent chemo & radiation with aroma tase inhibitors I am now facing a Mets situation and am soooo scared and…
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Recurrence 1 year later
Hi there I have a few questions about my pathology report. The cancer was found in an auxiliary lymph node. What does tumours cells form cords as well as tubular structures mean? Also, there was no cancer found in the breast, however the specimen was described as “florid”. What does that mean? Tests for microorganisms are…
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surviving a recurrence
3 yrs ago in Dec I was diagnosed with a recurrence in 10/14 axilla. Jan of 2016 had surgery for ALND, full hysterectomy followed by 25 rds of full rads, 4 Taxotere. I may never be or feel in the clear, but if I could go back in time and say to myself, you'll have 3 yrs NED ...what encouragement that would have been! Zometa…
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Anyone on AIs when recurrance happened?
Hello everyone: Just doing my own little bit of research. Has anyone in here who's had a reocurrance been on Arimadex or Tamoxifen when it happened? Or has anyone ever taken any of these drugs and finished the five year stint and then had a reocurrance soon after? Thank you all for your replies.
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Local Recurrence
I'm moving over here as my biopsy results showed a local recurrence near the mastectomy scar in my reconstructed breast (DIEP). I was fortunate to catch it early (only 4mm), but I'm still very concerned about the future and risk of mets and potential for shortened survival. I have read several peer reviewed journal…
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Local Recurrence Chime In
Hi Ladies, I have been diagnosed with a local recurrence, after mastectomy. Looking around the site to try to connect with others who have had this happen to them, either after mastectomy or lumpectomy. I see there are some of us out there but we are scattered about the site. I thought I would try to start a current thread…
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Tumor marker ca15-3
I have have been cancer free for seven years. My doctor perform tumor ca 15-3 at my follow up visits. It has been in the 20' s until this week and it was 112. My doctor wants to do a pet scan. I've read that sometimes the tumor marker test aren't always reliable or indicate cancer. I have a high deductible on my insurance…
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recurrence after stage III TNBC?
Not sure if this is the right place for this. I was dx stage III TNBC June 2017 with a 6cm tumor. Had neoadjuvant Taxol, tumor grew to 10cm, was switched to AC in September 2017. Tumor shrunk to about 3cm and I had a double mastectomy end of November 2017. Then had 6 weeks radiation at the beginning of 2018 (was supposed…
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TNBC recurrence in my clavical lymph node
I found a lump under my collarbone. My GP got the radiologist to do an US guided biopsy the next day. Day after (yesterday) pathology comes back. It’s my original cancer which wasn’t in my neck nor my lymph nodes before. Here’s the kicker, I’m TN. I think I’m going to die. I thought it was over. My ONC appt is Monday. Ive…
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Stage 4 de novo Treatment
I am 36 yrs old. I was initially thought to be a stage 2 with lymph node involvement. The plan was neoadjuvant chemo (TCHP) as Im a triple positive to shrink the mass and then surgery. After that, Tamoxifen for 5 to 10 yrs. My pet scan showed a liver lesion which would mean I am de novo stage 4. The doctor initially said…
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Metastasis to bones, so scared.
Hi, It's been a while since I was on BC.org, like many I thought that after 5 years I was done. However I now know I have bone mets (hip, pelvis & spine). I have been reading as much as I can so that I can make informed decisions about my treatment. However I am still in full blown panic mode. Reading through a mountain of…
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Mets to lymph nodes in my neck
Hey everybody - Just one month short of five years from my original Stage III diagnosis, I was diagnosed with mets to lymph nodes in my neck. A CT scan with contrast of chest and abdomen and a bone scan show no disease elsewhere. The onc has staged me at Stage IV because the lymph nodes involved were cervical rather than…
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PET scan shows lit up chest lymph nodes after 4 years NED
I would be 4 years out on 4/28 but rising tumor marker tests made the onc order a PET. So there was one barely lit clavicular node and they decided to biopsy it yesterday since it was very easy to get to. They couldn't find it. So the next step is knock me out and get a lung doctor to go down my airway to biopsy them. This…