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recovery of hair after chemotherapy
The diagnosis of breast cancer is devastating, it was for me. During your chemotherapy, terrified about your future, feeling horrible during the treatment then. .strand by strand your hair is gone, another horrible experience to deal with. Wigs? chemo hats? I was miserable with both. Three months after chemotherapy my hair…
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Implant removal on one side and DEIP flap on the other
I was diagnosed with DCIS over 20 years ago. Right breast mastectomy with DEIP flap procedure. Silicone implant on the left. In those 20 years my implant is painfully encapsulated and my DEIP procedure has been getting hard over the passing years. I just relocated to Virginia so I don't know anyone to ask for a referral to…
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Anastrazole treatment
My hemoglobin and hematocrit are raising every blood test They are now borderline for blood disease. I’m taking Anastrazole. Has anyone else experienced this?
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Hair thinning
Hi all, I just started my 3rd year of Tamoxifen, and noticed my hair shedding is much more severe, and came on rather suddenly. It’s concerning. Had you experienced the same, and what did you do for it? Any suggestions of products or supplements you can recommend? Thank you in advance!
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Thinning Hair -
Hello Ladies Well after 4 years on Tam and 3 of those on Ovarian Suppression (so menopause since the age of 42) I am really starting to notice hair loss/thinning. I first noticed a lot of hair on my brush but now my front hairline is so thin you can see through it. I started Biotin and going to make an appointment with a…
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Seeking stories about Faslodex and side effects
If anyone is on Faslodex, can you share what your experience has been and if you have joint pain? I have experienced joint pain on letrozole, exemestane, and anastrozole and I'm thinking of trying Faslodex as the next experiment.
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Long-Term SFX Reduce Quality of Life Years After Diagnosis
Long-Term Side Effects Reduce Quality of Life Years After Cancer Diagnosis October 5, 2021 About 4 years after being diagnosed with cancer, 14% of disease-free survivors were dissatisfied with the care they received for ongoing, long-term side effects of cancer treatment. Read more...
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Recurrent Infections
I finished chemo this past February and since then I've had two UTIs and a bad skin abscess. I just finished the antibiotics this past Monday and today I have symptoms of another UTI!! It almost seems like the same infection that isn't going away, although there was about two months between the last UTI and the skin…
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iRestore Hair helmet - treats hair thinning
HI Everyone, I started this thread because a ton of us are having great results on the iRestore helmet and it's all buried in the post called 'thinning hair'. The company is giving us cancer survivors a discount and I wanted everyone to know how successful it's been for me. I'm hoping others who are having similar luck…
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NEW 2021 HER2+ treatments 2021 for early stage breast cancer
I am starting a NEW post for the HER2+ triple positive gals that are truly early stage. I plan to d/c the Triple positive former posts that I had chosen to be on since that thread has gone on for 10 years! Plus the entries are getting lengthy about each other's surgeries, and too much "past" advice from participants which…
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Penguin vs Paxman
Hello! I will be starting chemo about September 28th. I am receiving a second opinion on September 22nd and will need to make a decision within a day regarding which hospital to use AND to use cold caps or not. I am curious if anyone has done carboplatin and Taxol and used cold caps. My first opinion said I would be doing…
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Bioidentical Progesterone helps sleep, hair & lower risks cancer
Lots of people have the wrong idea, that ER/PR positive means that both estrogen and progesterone are cancer causing molecules. If that were true then puberty would cause us ALL rampant breast/uterine and ovarian c. Not true at all. I had exposure to ARTIFICIAL progestins in the birth control I used, like so very many of…
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Fasting benefits
I've been doing different types of fasting. I found it beneficial during chemo. My goal now is to minimize risk of recurrence and to lose weight. I've been trying to find information on how long and how frequently I should fast. I found fasting might also help with improving cognitive function and lessening chronic pain.…
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Need your Tips for Managing Diarrhea
Tips for Managing Diarrhea— What has worked, what hasn't? Any secret tips? Thank you! This will help us with our new content we are writing.
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Sleeping Mask = Improved Sleep
Not sleeping, can't sleep, can't stay asleep, awake all night, exhausted, fatigued, tired.... ya, ya, ya.... I believe that the treatments (chemo, rads, meds etc.) have a way to alter our central nervous system somehow, someway and this residual effect steals our ability to have quality sleep. By total fluke I was asked a…
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What I Wish I Knew At the Beginning of Treatment!
Two years I’ve been on this board. I’ve read several accounts of women who struggle with a desire to be polite vs speaking up about incompetent medical care, poor bedside manner, asking questions, asking for proof, etc. Have read them, have experienced them myself! The vast majority of this heartache seems to come from a…
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Radiation skin issues
Forthose of you who suffered skin issues from radiation, how bad did it get? I developed blisters with 10 sessions left to go — they started out tiny and only in one spot, but they got bigger and spread pretty quickly. Luckily it’s the weekend now so my skin has a bit of a break, but I’m dreading going back and having them…
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Risk of Second Cancer Goes Up as Weight Increases
For Women First Diagnosed With Breast Cancer, Risk of Second Cancer Goes Up as Weight Increases April 13, 2021 If a woman has been diagnosed with breast cancer, her risk of being diagnosed with a second primary cancer increases as her weight increases. Read more...
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low vitamin D
I really was not sure under which topic to ask put this question. I am now 45 years old, was in great shape and good health prior to diagnosis in June 2017. I have been finished with active treatment for stage 3 TNBC since November 2018. I just recently had my first bone density scan, which showed osteopenia in hip and…
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Immune booster shots and vaccine
Hello, Does anyone happen to know anything about immune booster drug Zarzio/Neupogen (Filgrastim, Pegfilgrastim) and vaccine within 1-2 days of each other? Info specific to covid19 vaccine would be great, otherwise any vaccine is fine. Thanks, Nguyen
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Which is the worse part of cancer treatment?
I know it is something very personal but I'm wondering wich part of the tx was the worse part to you. The chemo, the SE from the surgery, the rads, the fear of recurrence, the antihormonal therapy? Thank you
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Living with extreme neuropathy
thought I was gonna get thru chemo unscathed but neuropathy hit like a brick. I constantly drop things and my feet hurt constantly some times more than others. Gabapenten(sp) helps some. So frustrated. I mentioned to my onc it was starting but no suggestions to change anything during chemo. Now I find out it starts out…
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List of all of the Side Effects I deal with that wreak my QOL
Some other thread here is taking about regrets over treatment causing loss of Quality of Life. Heres my list of all the thing that are wrong with me since the bc industry destroyed my health. * Radiation Fibrosis of my L arm. Tightness that never completely goes away. * Lymphedema of my L arm/axilla and back ( intermittent…
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Port Removal - What's it like?
Hi, Anybody out there who will share what having your port removed was like? The onc. says it will be easy, not the bruising and such when it went in. But it's still freaking me out that there's a tube that goes into a hole in a vein that goes directly to my heart and I've got no idea how they're going to plug that up…
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Cold Cap Before and After Photos
Hi Ladies-- I'd like to start a thread for PHOTOS ONLY. This will be a great reference for newbies or those who are considering cold capping. Discussions and questions about cold caps can be found in the forum: Cold Cap Users Past and Present, To Save Hair under Managing Side Effects of Breast cancer and It's Treatments.…
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Tamoxifen and Anxiety/Anti depressants - Help!
I am having issues getting medications to help me with all of this BC crap. I have always been completely type A and a worrier so getting BC really didn't help my cause! I have been on tamoxifen since last June and of course have the hot flashes. I have been taking xanax at night since last March to help calm me down so I…
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Chemo Brain Lawsuit - Neurotoxicity
I have permanent chemo brain since starting treatment 2013 from taxotere and Cytoxan - I am pissed because there is no warning label for this - I would have made other choices if I knew this. It is diagnosed as neurotoxicity. I hired an attorney and filing the first lawsuit against the pharmaceutical companies. My lawyer…
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TCHP Chemo Side Effects - Weight Loss (3rd Cycle Completed)
Hi All, My Sweet mother who is 49, has completed the 3rd Cycle of TCHP about 9 days back. We see that she is unable to eat, even though her overall side effects (including vomiting and nausea) is controlled but still has a severe loss of appetite and has literally eaten very very little. She has also about 24lbs since…
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CMF Question
I thought it was better to post this under this forum rather than the starting chemo one, so hope you ladies can answer a question for me. A co-worker is now going through CMF and having a really difficult time. I gather she is on a 14 day regimen of pills; she gets something like 6 Kytril pills for nausea, so she saves…
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Thin hair? I just tried something new
I've had thin, fine hair my whole life. Cancer treatments have made it worse. I keep a constant supply of Drano on hand because my hair loss clogs up the bathtub. I have a new girlfriend who owns a hair salon and after admiring her hair she told me that she wears a halo. This isn't what some chemo patients use, which is a…