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Erythema Nodosum
Has anyone experienced erythema nodosum? I developed 2 red tender lumps on my shin then added 2 more this week. It took a couple of doctors to figure it out but they have no idea why I got it. They have advised it will go away in 4 to 6 weeks. It's making me anxious as they have no explanation why I got it. Two weeks into…
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Exemestane (Aromasin)
My MO recommended I leave letrozole because of SE and start exemestane. Can you please share your experience with this medication? Tips? Good news: Exemestane, a synthetic steroid drug widely prescribed to fight breast cancers that thrive on estrogens, not only inhibits the production of the hormone, but also appears to…
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Podcast: Fezolinetant: A Non-Hormonal Treatment for Hot Flashes
Fezolinetant: A Non-Hormonal Treatment for Hot Flashes July 22, 2022 Genevieve Neal-Perry, MD, PhD, discusses her research on fezolinetant as a treatment for hot flashes. If you've been diagnosed with breast cancer before menopause, some of your treatments, including chemotherapy and hormonal therapy, can bring on…
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Fatigue- Tamoxifen?
I have pretty decent energy until around 3 every afternoon. Meaningful interactions with people after 7 pm seems impossible. I'm skipping social activities scheduled in the evening because of it. Copious amounts of strong coffee helps some, but then I wake up all night. To me, checking out of humanity at 6 is better than…
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Letrozole side effects: numb hands?
I started Letrozole (after 5 yr on Tamoxifen) last Fall, almost a year ago. First few months side effects were much like on Tamoxifen, hot flashes, tiredness, nothing too bad. Then, in March, about 6 months in, hand joints started acting up, and progressively now my fingers are stiff and painful, also feet and knees are…
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Cancer Survivors Have Higher Risk of Cardiovascular Disease
Cancer Survivors Have Higher Risk of Cardiovascular Disease July 11, 2022 Cancer survivors have a higher risk of developing cardiovascular disease, including heart failure and stroke, than people with no history of cancer. Read more...
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I would love your input!!
I am a former cancer caregiver for my mom and going through the breast cancer care journey with her gave me a passion to work with the breast cancer care community! I am finishing my doctoral degree in occupational therapy, and I have committed my final project to address the unmet needs of women with breast cancer to…
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Hormone-Free Medicine for Hot Flashes Shows Promise
Hormone-Free Medicine for Hot Flashes Shows Promise June 21, 2022 Fezolinetant, an experimental medicine that doesn't contain hormones, has successfully treated hot flashes. Read more...
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My toenail just came off!
I had AC followed by weekly Taxol but finished in December 2020. I was just rubbing nail polish remover on my big toenail and the nail peeled most of the way off. I’ve admittedly been wearing polish for way to long without giving my toenails a breather. Has anyone heard of this happening 1.5 years after finishing Taxol? I…
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BC Treatment Linked to Increased Risk of Diabetes and High BP
Breast Cancer Treatment Linked to Increased Risk of Diabetes and High Blood Pressure May 25, 2022 Women with a history of invasive breast cancer had a higher risk of developing high blood pressure and diabetes than women without a history of breast cancer. Read more...
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Chemo induced Neuropathy
After my last treatment of chemo I ended up getting chemo induced neuropathy. After a while it went away. Now I think it is back again. Is this normal? My last treatment was on August 11th. Also, can it be just in part of you foot/feet? Mine are just in a few of my toes. Thanks
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Anastrazole
I have extreme stiffness and pain in my hands. I have very little strength in them. Is this Anastrazole or arthritis? It is getting worse every day.
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Light Therapy May Ease Fatigue and Improve Sleep for Survivors
Light Therapy May Ease Fatigue and Improve Sleep for Breast Cancer Survivors Mar 31, 2022 Wearing a light therapy visor cap at home improved sleep and eased fatigue in women who completed treatment for early-stage breast cancer. Read more...
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Tool May Help Predict Fatigue After Breast Cancer Treatment
Tool May Help Predict Fatigue After Breast Cancer Treatment Mar 23, 2022 Researchers have developed a tool that may help doctors figure out who has the highest risk of fatigue after breast cancer treatment. Read more...
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Women More Likely To Have Severe Side Effects From Treatment
Women More Likely To Have Severe Side Effects From Cancer Treatment Mar 22, 2022 Women are 34% more likely to have severe side effects during and after cancer treatment than men. Read more...
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Anemia - after chemo, before rads?
I finished chemo (4 AC, 12 Taxol) on 4/14, and I start rads later today. Adriamycin gave me some cardiotoxicity, and I take a beta blocker to slow my heart. I've consistently felt worse since completing chemo than while I was going through treatment, but when I last saw the MO he wanted to wait about six weeks to see if…
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Heart Transplant after Chemo induced Heart Failure
Hello, I don't know where to post my story, so please let me know if I should move it. Here goes! I was 49 years old, in great shape and without a family history of any cancer. 11/2020 found lump in right breast 12/2020 diagnosed with triple positive, multi focal IDC and at least two nodes 1/2021 began chemo - AC THP…
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HELP! Heartburn is intolerable!!
Hello, I am desperate and in need of ANY tips to help. I rarely had heartburn before getting chemo (and after the first round it took me a bit to even realize that most of the symptoms were even heartburn that I was experiencing) and this is as bad as it can get. After every chemo session I lose 10-15 lbs before I can…
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Pneumonitis, groundglass, consolidative opacities
Hello all. I had a CT yesterday to evaluate a blood clot that I got from my port-a-cath. It is my3rd CT since December. They noted a non-cardiac finding: "new multifocal peribronchial groundglass and consolidative opacities in the upper left lobe which may represent multifocal infection or drug related pneumonitis." My…
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Hair loss from Head
My 52 yr. old daughter has recently been diagnosed with stage 2 breast cancer. She will be starting Chemo in the next week or 2. No one in our family has ever had this kind of cancer and when the family did it was lung cancer back in 88'. My hope is someone can help me on how to respond or help my daughter. Her hair on her…
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Tamoxifen - bruising - diabetes
since mid 2019 started tamoxifen. Bruising on lower legs started. And am type 2 diabetic now. If I take long walks bruising increases Planning for keto diet
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Hair regrowth
My hair regrowth after chemo has been slow and the hair is very very thin and fragile. What have others found really helps increase their hair strength and growth? Are there over the counter products that work?
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Taxotere/Carboplatin/Herceptin and Permanent Partial Alopecia
Would anyone here have been through the TCH regimen for HER2+ and also not had their hair come back normally? Any feedback on what you have tried, if so, and how it did or didn't help? I knew going in that a tiny percentage of women never get any hair back after Taxotere. And a small but more significant percentage end up…
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Ocular migraines
I've had some migraines in the past, but not too often. Since starting tamoxifen I've had more, one lasting ten days in December. Oncologist is aware I've had them, plus cognitive issues and some dizziness. In the last month, I’ve had 6 episodes of seeing dark flashing, along with dizziness, and a headache three of those…
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Ive lost it... anyone else panic before surgery?
I ran out of xanax last Friday and figured I was doing great. Last night I started losing it. I called the dr. today and the secretary gave me a hard time. and they did NOT call me back. so here I sit, totally shocked and in a complete panic about my surgery on Wed. This is the first I've lost it since the diagnosis. I…
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Biozorb And Other Issues
Hi everyone I am new here. Been thru a lot. Went thru breast cancer 9 years ago. Stage 0 DCIS. I had some other areas as well that were questionable, so I opted to do a nipple sparring double mastectomy with reconstruction. Even though I did the genetic test and it was negative my Mom went thru breast cancer, my Dads mom…
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Cardiotoxicity from Adriamycin
Hi everyone. This is my first post ever so bear with me. For some context I am 36, have Stage 3 IDC and was diagnosed at 18 weeks pregnant. I was just wondering if there are any other people in this community who have experienced a significant drop in left ventricular ejection fraction post chemotherapy. Prior to chemo…
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Stamina and fatigue four months after treatment?
I feel like I went through a year that has certainly taken it's toll. Chemo, radiation and then Herceptin. It has been four months since I did the last Herceptin but as I look back I felt like I dealt with each modality better with more energy last year when I was going through treatment. Before all this (and I am older) I…
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Heat sensitivity
I'm not sure I can even explain this well, but I'm wondering if I'm the only one. Ever since treatment (taxol, adriamycin, mastectomy, cisplatin/radiation, Xeloda) I cannot regulate my body temperature appropriately. It's 29 degrees outside, my heat is set at 64 inside, and I'm sitting here in a camisole tank top. I put my…
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Seroma following mastectomy
hi, I had a mastectomy just over 2 weeks ago. Unable to have lumpectomy as had one same breast 20 years ago. This time its a invasive lobular cancer with low positive oestrogen. Stared on exemestane a few days ago. Since the drain was removed have developed a seroma, first aspiration 200mls, then 400mls yesterday 160mls.…