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New Jersey/NYC/CT/Eastern Pennsylvania ladies
I've seen a lot of postings from women who live not so far from where I live in Central New Jersey. Since I know that many women travel for treatment, I've been thinking it might be helpful to have a thread of our own to share resources - not only doctors but support groups, locations for Reach to Recovery, retail sources…
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Poll: Experiencing sex and intimacy issues after a diagnosis?
Sex and intimacy can be challenging and long-standing after a breast cancer diagnosis for a variety of reasons — both physical and emotional. Please select the most significant issue you’ve experienced, and share as many details you would like in the topic below.
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Lymph Node Removal, Excess Weight Linked to Long-Term Arm Problems After Breast Cancer Treatment
Lymph Node Removal, Excess Weight Linked to Long-Term Arm Problems After Breast Cancer Treatment Jan 11, 2024 Having underarm lymph nodes removed and having obesity seem to be the top two risk factors for arm issues that can last for years after breast cancer treatment is completed. Read more…
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What is Genitourinary Syndrome of Menopause (GSM) and how to manage it?
Genitourinary Syndrome of Menopause Dec 22, 2023 Dr. Kristin Rojas explains the collection of symptoms that genitourinary syndrome of menopause encompasses, as well as treatments. Genitourinary syndrome of menopause (GSM) is the preferred term for many of the symptoms that menopause can cause, including vaginal dryness and…
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Poll: How do you manage brain fog?
Many people who are receiving breast cancer treatment say they have issues remembering, thinking, and concentrating during and after treatment. People commonly call these issues chemo brain or chemo fog, while doctors call these issues cognitive impairment or cognitive problems. It’s important to note that people who…
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Anyone have an anaphylaxis issue
Hey all, I wasn't sure where to put this, but I am two years out from chemo this month and this past Friday night landed me in the ER with a reaction to shrimp and potatoes. For reference, I've had issues with an intolerance to potatoes before treatment. Upset tummy, etc. During chemo, I craved bland foods and tried them…
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Starting Tamoxifen: What are the Side Effects
Hello, I will be starting Tamoxifen in about a month's time. My doctor advised to take aspirin everyday as there is a risk of developing blood clots. Have you been taking aspirin with Tamoxifen? What are the usual side effects that you've experienced?
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Now diagnosed with rheumatoid arthritis, but Im not convinced.
I've been having severe joint pain and assumed it was from the Femara. I had switched PCPs, and the new PCP did lots of blood work. My rheumatoid factor was very high, so she went me to a rheumatologist. He also did blood work; again, my rheumatoid factor was very high. He did x-rays on my hands and hip. Now he has…
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Liver damage with Tamoxifen?
Hey, peeps. Context: A little over a year ago, shortly before my BC diagnosis, I had skyrocketing ALT and AST levels and was sent for a liver biopsy. I was diagnosed with liver damage of unknown origin (they theorized I'd been exposed to something chemical somehow), NASH and NAFLD. I had mild scarring on my liver and lots…
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Long term survivors with node positive disease ?
i want to hear some positive stories please.I am 44 years old with 3 small children. I am doing everything possible to reduce my risk of this horrible disease returning, but I am so worried that because of the lymph involvement it’s too late. I am currently on 3 of 4 AC. In September I will start 12 weekly taxol. I had a…
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Letrozole side effects (DRY EYE, Fatigue)
I had no side effects for the first 6 months on Letrozole. I have now been on it for 16 months and feel terrible. My first side effect was joint pain. That is now better that I am taking Glucosamine Chondroiton and omega 3 fish oil. I had some symptoms of dry eye disease previously and have been using over the counter eye…
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Body aches after Chemo
Hello, I have been having leg pains since the last dose of chemo. Never had it during the chemo, it only started during the 3rd week after completing chemo. Not sure if it is muscle pain or bone pain? Anyone had similar experience?
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NAMS Releases Statement on Non-Hormone Therapy for Hot Flashes, Night Sweats
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VIrtual Menopause Talk on managing the sexual, physical and emotional effects of BC
Hi All, Let's Talk Menopause, a national nonprofit organization, is hosting this free virtual event this Friday 6/9 at 12:00pm EST. There will be a Q and A period as well as information on how to treat the sexual side effects (vaginal dryness, painful sex, etc.). Please join if you can and spread to your networks! Thanks,…
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Full Body Cramping and Muscle Spasms
I finished treatment a little over a year ago and recently I've been having terrible muscle cramping. The cramps are all over my body... jaw, chest, back, thighs, etc. If I yawn I get a horrible cramp in my neck and jaw and it's making me nuts. I've tried all the usual remedies but this is miserable. I had muscle cramps…
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Rib cage pain after chemo
Hello, I noticed lower rib pain on my right side after chemo - same side I had surgery/lumpectomy. I only notice it when I touch/press it. It is minor, tolerable but just wanted to know if this is common. I also feel it is getting better now. It lasted about 3-5 days. I started exercising recently so not sure if it is…
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Leg pains after Chemotherapy
Hello, I have been having leg pains since the last dose of chemo. Never had it during the chemo, it only started during the 3rd week after completing chemo. Not sure if it is muscle pain or bone pain? Anyone had similar experience?
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Onco always disregards side effects
My Onco causing me so much extra stress.She is always blaming anxiety or other things.I have triple positive bc.Had lumpectomy and currently on week 11 of taxol with a side of herceptin.I have started bringing hubby to all meeting with onco as a witness to what she tells me.I complained of severe joint pain after first…
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Unexplained Adverse Effects
I was diagnosed 2/28/22 with IDC & DCIS. I subsequently had a bilateral mastectomy with reconstruction. I received 12 weekly infusions of Taxol & Kanjinti completing in August 2022. Some of the side effects I experienced included chills, fatigue and body aches. I have since been receiving Kanjinti infusions every 3 weeks…
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Treatment Zoom Meetup (Tuesdays) place to keep chatting
Update: Hi all! We apologize -- in thinking about creating these threads, we actually thought it might be more practical to have all groups (Tuesday and Thursday) to post on the same thread. This way, if you attend more than one meeting, you won't have to submit any updates to more than one thread to reach all of your…
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Treatment Zoom Meetup (Thursdays) place to keep chatting
Hi all! We apologize -- in thinking about creating these threads, we actually thought it might be more practical to have all groups (Tuesday and Thursday) to post on the same thread. This way, if you attend more than one meeting, you won't have to submit any updates to more than one thread to reach all of your friends.…
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New Guidelines: Treating High Calcium Levels in People W/ Cancer
New Guidelines on Treating High Calcium Levels in People With Cancer Jan 4, 2023 The Endocrine Society has released the first guidelines on treating high calcium levels in people diagnosed with cancer. Read more...
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Cachexia / extreme weight loss
Wanted to share this recipe/article for anyone having trouble keeping their weight up. I found this for a friend recently who is struggling w stage 4 Lung Cancer and cachexia http://www.anticancerbook.com/post/The-best-way-to... This smoothie is designed to provide nutrition AND address reducing inflammation in the system…
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AIs and blood pressure
Hello, I am taking exemestane for 2.5 years now. And noticed that have elevated blood pressure often: 140/90. Do you, dear all, have this issue? I am not sure it is a side effect at all, but would like to know from others? Also if you do, how it is controlled? thank you!
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Anyone want to commiserate about scar tissue?
For three and a half years after my lumpectomy and radiation I felt like I'd gotten off really easy. My surgeon concealed the scar so well that in certain positions it wasn't obvious anything had happened. Then in May I noticed a small patch of reddened skin at the end of the scar, kind of like a lollipop on a stick. The…
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Anyone try acupuncture for neuropathy?
I’m about at my wits end with this neuropathy. It is throughout my leg; hip to toes. I’ve had scrambler therapy, that worked, just didn’t last. I could do it again but it a bit of a hassle as it is everyday and is not exactly close by where I live. I’ve read acupuncture helps, but wanted to see what your experience was. I…
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Bisphosonates - strange side effects
hello Has anyone suffered strange side effects? I've been on Actonel/ Riseondrate for a couple if months. Suddenly I have irregular heart rate and strange back and hip pains (all to be investigated of course). Angie
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anyone have cherry angiomas??
I've been getting these red dots on my skin..they look like blood moles. I looked them up and found out they can be a sign of "estrogen dominance" and be related to breast or ovarian cancer....they're mostly on my torso. Does anyone else have these?
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Erythema Nodosum
Has anyone experienced erythema nodosum? I developed 2 red tender lumps on my shin then added 2 more this week. It took a couple of doctors to figure it out but they have no idea why I got it. They have advised it will go away in 4 to 6 weeks. It's making me anxious as they have no explanation why I got it. Two weeks into…
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Podcast: Fezolinetant: A Non-Hormonal Treatment for Hot Flashes
Fezolinetant: A Non-Hormonal Treatment for Hot Flashes July 22, 2022 Genevieve Neal-Perry, MD, PhD, discusses her research on fezolinetant as a treatment for hot flashes. If you've been diagnosed with breast cancer before menopause, some of your treatments, including chemotherapy and hormonal therapy, can bring on…