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List of all of the Side Effects I deal with that wreak my QOL
Some other thread here is taking about regrets over treatment causing loss of Quality of Life. Heres my list of all the thing that are wrong with me since the bc industry destroyed my health. * Radiation Fibrosis of my L arm. Tightness that never completely goes away. * Lymphedema of my L arm/axilla and back ( intermittent…
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Port Removal - What's it like?
Hi, Anybody out there who will share what having your port removed was like? The onc. says it will be easy, not the bruising and such when it went in. But it's still freaking me out that there's a tube that goes into a hole in a vein that goes directly to my heart and I've got no idea how they're going to plug that up…
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Cold Cap Before and After Photos
Hi Ladies-- I'd like to start a thread for PHOTOS ONLY. This will be a great reference for newbies or those who are considering cold capping. Discussions and questions about cold caps can be found in the forum: Cold Cap Users Past and Present, To Save Hair under Managing Side Effects of Breast cancer and It's Treatments.…
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Tamoxifen and Anxiety/Anti depressants - Help!
I am having issues getting medications to help me with all of this BC crap. I have always been completely type A and a worrier so getting BC really didn't help my cause! I have been on tamoxifen since last June and of course have the hot flashes. I have been taking xanax at night since last March to help calm me down so I…
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Chemo Brain Lawsuit - Neurotoxicity
I have permanent chemo brain since starting treatment 2013 from taxotere and Cytoxan - I am pissed because there is no warning label for this - I would have made other choices if I knew this. It is diagnosed as neurotoxicity. I hired an attorney and filing the first lawsuit against the pharmaceutical companies. My lawyer…
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TCHP Chemo Side Effects - Weight Loss (3rd Cycle Completed)
Hi All, My Sweet mother who is 49, has completed the 3rd Cycle of TCHP about 9 days back. We see that she is unable to eat, even though her overall side effects (including vomiting and nausea) is controlled but still has a severe loss of appetite and has literally eaten very very little. She has also about 24lbs since…
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CMF Question
I thought it was better to post this under this forum rather than the starting chemo one, so hope you ladies can answer a question for me. A co-worker is now going through CMF and having a really difficult time. I gather she is on a 14 day regimen of pills; she gets something like 6 Kytril pills for nausea, so she saves…
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Thin hair? I just tried something new
I've had thin, fine hair my whole life. Cancer treatments have made it worse. I keep a constant supply of Drano on hand because my hair loss clogs up the bathtub. I have a new girlfriend who owns a hair salon and after admiring her hair she told me that she wears a halo. This isn't what some chemo patients use, which is a…
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Worst Thing Someone Said To You?
I have finished my four treatments of AC and have two more of four of Taxol to go--I can not wait for this part of the treatment to end. I don't know if its me, but when people feel compeled to say something to me about my cancer, I'm amazed at how insensative they can be. Lately, it has been people telling me "you know,…
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nipple and breast pain swelling after lumpectomy
I did okay the first week after lumpectomy and sentinel node biopsy. I was very saddened though as I looked like a deflated balloon - I am very small breasted. I also had incision from just under areola to bottom of breast and it looked like my nipple was pulling down which greatly upset me as a lumpectomy is not just a…
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Suroma
I developed a Suroma a couple of weeks after a lumpectomy eight months ago. It has reduced in size a little. But still feeling pain. Went in for an aspiration. They now tell me that the blood has thickened and was not able to remove much. Now what I need is surgery to cut and remove it. Or live with the pain. Has anyone…
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Anyone had a cold during chemo?
I caught my children's cold. I was so careful, made everyone wash their hands, washed mine a lot, made them not get in my face, no kissing or hugging for a few days. Yet I still caught it. I am halfway through my chemo, had my 4th dose of Taxol on Tuesday. I don't want to delay my treatments, I want to go straight through…
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3 weeks after last Taxol, Hair Loss
Hi, I managed to make it through the 12 weekly taxol treatements. I still wonder if I did the right thing? But, too late for that now. I say that because my BC was not lymphnode involved and it was completely taken out with the Mastectomy. So I keep wondering was losing my hair and gaining 20 lbs. necessary. Not to mention…
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Ibrance side effects/can I return to work
I'm starting Ibrance tomorrow and I am wondering what everyone's experience is with it? Thank you Tara
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Peeling & Tender scalp from cold caps
Someone else out there must have had their scalp peel through their hair after using the cold caps. No hair loss on the top of my head where the scalp peeled. A pretty good amount of thinning on the sides though. That was two days before second infusion of TC. Now, after the second infusion/ use of the Penguin cold caps,…
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Gray hair after chemo
I understand this is down there with the list of worries I have now, but anyone else turn out much more gray after surgery, chemo no hair? I can't believe how gray I am. Thanks, Joanne
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Has anyone getting chemo been using Botox for Migraines?
I'm on taxotere, herceptin, and perjeta every 3 weeks. I've been on Botox injections for migraine headaches for almost a year now...just started chemo in August. Oncologist thought it would be ok to continue. Pain specialist who is in charge of migraine is supposed to be checking with manufacturer. It has pretty much…
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Tamoxifen/Effexor
I started Tamoxifen in early January and would like to take Effexor to help with the night sweats. I was concerned about weight gain on Tamoxifen and assuming I would have noticed by now, I have not gained any weight on it. I also hear Effexor could cause weight gain but again, this could not be the case. Is anyone out…
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Please tell me -- does Avastin cause hair loss?
I really, really need some input and advice. My medical team wants me to continue taking Avastin until the end of February, 2009 (I actually had a dose this morning). However, I'm now reading that Avastin causes hair loss, water retention, and mouth sores -- exactly those things that I found the most distressing about…