TIME TO CIRCLE THE WAGONS GIRLS
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Good morning....
I am ready for the magic carpet to surround Cy with our love. Good luck today,Cy.
Vickie, here in NJ, 20 degrees with windchill of 10!! Got a light snow last night. Normal is 45 they say....brrrr it's cold outside.
ok, off to start a new day....hugs to all
Friend of our family passed away yesterday...38 years old..had a massive heart attack...beautiful woman..mother of 3 under 11 yrs.
I can't imagine how her husband and family are doing. What a shocker! I just don't understand these things.
Have a great day.
Hugs and prayers,
Candie
Slonedeb, are you ok?
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i'm continuing to feel fine post surgery. As a matter of fact we did buy some cheese cake and ate some of it last night - a medly from the Cheese Cake Factory. The drains are doing their thing and I don't need any pain meds. The scar is scarey but I haven't passed out yet.
HOWEVER, I did get a call from the bs last night on his cell phone. The reception was very bad but what I think I heard was that there was nothing in the good breast but something in other quadrants of the cancerous breast which he removed. I couldn't hear what that was and why it didn't show up on the MRI. More alarming than that was that he removed 19 lymph nodes, all of which had "traces of the tumor" in them. All 19! I am at a very low point here since after all of this treatment and surgery. He may have said that radiation will clean things up. Maybe they were dead cells but I'm worried that it's spread. What about all of the other nodes? How does this change the treatment plan, my staging, etc? My plan is to call him back today to make sure I heard right and to call the onc and radiologist. I will let you know what's going on when I do. I so much appreciate your "being there."
Marian
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Has anyone heard from Amy? I don't remember seeing a post this week....
YooHoo...AMY! Phone home from Blackberry land....we miss you
Hugs
Deb C
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Shrink -- chemo and radiation will help to clean things up. Have you had ct scans and bone scan? There are ladies who have had positive nodes that are doing well. Hang on to hope.
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Shrink, I think you have done amazingly well post surgery and to even go to Costco. I complained about my drain. Jasmine is right, lots of the gals have had lots of positive nodes and they are doing well. We will be here for you. Will check back this evening to see what they said when you called today.
Vickie, hope you have a better day at the new job. It is much warmer here today and is supposed to be REALLY warm by the weekend. I think in the 60's but then the weather guys haven't gotten anything right all week here so that could change again 10 times or more by the weekend.
Deb, no we haven't heard from Amy; getting kind of worried.
OK, woke up with an absolutely horrible throbbing headache; I hope it isn't related to this rash on my neck that is starting to itch. Gonna go take something, not sure what, and see if I can get some relief.
Cy, you have a big day. We'll be thinking of you.
Catch everyone later, Brenda
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Cy- Sending blessings your way today. I'm praying all goes well and you zap that beast bye, bye. Be strong and picture those pesky cells vanishing. God's be with you and your family today. We love you!
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Hi Shrink,
Geez, more waiting today. I hate cellphones and never use mine! Can you find some more of those chocolates with an Ativan chaser until you hear from your doctor on a good phone line today? IF you heard him right and he said TRACES in the nodes, that might mean MICRO traces of cells. Beesie and Tender from other threads know more about that than I do. It sounds like you also heard something about rads.
I'm sitting there with you all day today. We can wait together until you have a chance to talk to your doctor. Coffee would go nicely with the cheesecake, Dove chocolates and Ativan, while we're waiting.
Love you,
Bren
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Marian-
OK...I wrote you a post just a few minutes after YOU posted...I don't know WHERE I posted it....because it's not here!
Sheesh...I miss my mind...I'll try again...
I just wanted to send yo a hug and let you know I understand the kick in the gut that positive nodes are...I had 27 out of 32 positive. That was almost 2 years ago and here I am, still kickin' and NED. I know how hard it is to let go of those numbers, but try. They might change your fields a bit for Rads to make sure they clean up any left-over cells...but that is what the radiation is for.
Don't even get me started on bad cell phone connections...
Sending more hugs....
Deb C
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good morning my dear family.... boss finally left... ok first hugs and prayers A to Z, and of course Specila hugs Cy Amy , and all who need them...
Deb.. hmmm. the holiday is coming do the kids want to come ski?... we can sit in the hot tub thinking about them...lol... wishing them holiday snow soon...
ok a little sideways thinking... I drive to work early in the AM...and today, it was a thoughtful drive, last night I chatted on the phone with a sister after her first chemo, I hope I helped......I only wish I had more long distance time to talk all night...
now I don't know about any of you but I talk to myself while driving into work .... I'm the only that really listens anyway so why not...
so I am driving down my country roads off the hills.... and the snow is gently falling, (what the grands and I call snow diamonds) .... tiny shiny sparkly flakes...and the head lights make them sparkle, the trees are covered , the roads are white and so are the roof tops... as I drive I think of each and everyone of you as the sparkly snow flakes shining and being with me as I drive to work... I smile all the way to work..by the way I am chatting to you all on the way, so if you wake up early cuz you thought someone said something it was me...sorry the coffee is on me....
anyway making some hot turkey soup and home made wheat bread for dinner, so come on over....
hugs and back to work for me...
love MBsorry you know copy & paste.....
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Hmmmmm MB...were you driving to work at...Oh...about 7ish this morning your time? If so it was YOU who woke me up! LOLOL...I've been awake since just after 3am. And to top it off you have more SNOW! Whaaaaaa...I want some snow too....LOLOL
There is something truly wrong with not having snow here...in Alaska, in December! It has been bitter cold now for about a week, but only about 3 flakes of snow...
Deb C
Oh, by the way, I talk to myself ALL the time. I wonder what all the people that look in my car think when they see me chatting with noone
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ok, I had this post written and then i went to look at something on another page. as long as i've been around here, you would think I would know better. sheesh.
MB i really enjoyed the verbal picture of you driving along in your car talking to yourself. I could really see it. Of course, if I had to shovel snow off my car before I could leave for work, I would be talking to myself also.
Deb, you are right, No snow in Alaska is downright unconstitutional. They will probably call a presidential commission to investigate any day now.!!
I got a short email from Amy yesterday. She told me she was a bull dog. I'm a chiahaha ( can't spell it) Cheri is a basset hound. It's about an ecard I sent out to people if I had their address in my ecards. You answer questions and it tells you what kind of dog you would be. If anyone is curious let me know.
Shrink, listen to Mamma Deb. You have been through a lot, but there is all kind of reasons for hope. You responded well to chemo, right? Maybe they are all just dead cells. The path report will be very specific about size, type etc. Hang in there. And go get some chocolate!
Brenda hope you are feeling better. I hate migraines.
Margo, sorry we did not connect in FL. It would have been fun. We were on the go the whole time until we just pooped out. then you could not get us to move.
CY hugs and kisses and prayers for you today my friend.
hugs to all
susan
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MB..hot turkey soup and wheat bread sound delicious! It's cold here in Illinois today and more snow is supposed to be on its way this evening.
Hugs Shrink! Hopefully your call to your doctor will help clear up misunderstandings. I think you're doing great...and Cheese Cake from the Cheese Cake Factory....I am certainly envious!!! LOL
Nicki...hope the roads were better for you today. Looks like you might need to leave early again tomorrow! YUCK! Give me warm air and sunshine!!!!
CY...been thinking about you all day and hoping that all is going well. I'll keep checking in for an update from somebody. My prayers are with you, gal!
Deb...if there was any way I could do it, I'd send you the Illinois snow ASAP!!! :-)
Candie..sorry to hear about your friend. I don't understand things like that either. It just doesn't seem fair, does it? How are you doing today? All recovered from that nasty procedure?
Well, I'm on a Christmas mission today so I'd better get back to writing cards and wrapping packages.
Love reading your posts! I'm getting a little better about staying caught up with you!
Rita
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Hello my mom told me to come here and tell you all she is in the hospital this is debslones daughter she lost her voice again and they found a mass in the center of her chest and she also has phenmonia she said to tell you all she ok but she isnt she says this is her lifeline i am asking for you all to say exta=ra prayers for my mom i dont want to loose her ive been taking her the cards youall have sent and she loves them she also took her afgan with her she sleeps with it and her cards thank you ladis for all you have done for her she will be back on here when she comes home so please pray for my mom leighann debslones daughter
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Good Afternoon Everyone. Went to work despite a nagging headache, went for morning report and started shivering. I was sent home - so no Christmas party for me tonight. I have been in bed sleeping since 10:30am. Woke up with the headache and now I have chills again. Seems like Im getting something. Might have to call in tomorrow despite not having anymore sick days.
Candie: Sorry to hear about your friend. 38 years old is way too young. I do agree, sometimes I dont understand how and why these things happen.
Marian: Hearing nodes were positive is a scary thing. My bc was multifocal meaning it was in 3 different areas of my breast. Chemo and rads should clean things up. There is still more information you need. Was the cancer fed by estrogren. Are you er/pr positive or negative? What is your her2 status. Once you get all of this information, you will be given a treatment plan. Probably chemo and rads. I want you to know I have a friend who had 26 out of 26 nodes positive, that was 7 years ago and she is doing great. Make sure to ask for a copy of your path report. Sending big hugs your way.
Rita: More snow tonight and ice storms this week-end. Yes winter in Illinois is so much fun.
Leighann: Sorry to hear that your mom is in the hospital. You send her a big hug from all of us. We will put her in the medic tent (which Im in charge of) and you in the middle of the circle to stay warm and feel some love. Tell your mom she has this silly nurse watching over her. Im so glad she is enjoying her cards. I can see her smile now.
CY: Hoping things are going well today with the gamma knife.
Odalys: Good to see you. If your brought cinnamon buns, no one got them cause I ate them all myself.
Hmmmm! Maybe thats why Im feeling sick.
And speaing of that, I really feel yucky and Im going to go lay down.
Nicki
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Leighann - tell you mom we're all praying for her. She's a wonderful woman. I first met her in the chatroom here. Thanks for letting us know what's going on. Any updates are great! hang in there hon.
I just spoke with Scott CY's hubby. They did another MRI and found 15 spots. She was just put in the machine and they were beginning the gamma knife procedure. They are aiming at getting all 15. I told Scott to tell Cheryl we were with her (it's very crowded) and we love her and are praying for her. I'll post more if I hear more.
Nicki - get thyself to bed girl! Cyber hugs (I don't want to catch anything)
I'm going to go read now.
Hugs
Liz
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Leighann,
Please tell your mom we're all praying for her and love her very much,
Bren
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Leighann - I said Ho on the other thread, but didn't know where you might be checking....give your mom a hug from me and let her know she is in my prayers.
The whole time I was out doing recess duty I was saying prayers for Cy's docs to zap every little cell! Thanks for letting us know what is going on Liz.
Nicki- Hope you feel better soon. I hate being sick around the holidays! How about some warm soup or some toast. I am waving instead of giving you a hug....
Be back later...
Deb C
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Marian,
Have you heard anything yet? I keep looking for you and news of your path report. Just wanted you to know I've been thinking about you.
Love,
Bren
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Thanks, everyone, for the hugs and for thinking of me. Here's what I found out and it sucks!
Well, I finally heard from the onc. Twenty-one of 21 nodes were positive. Everyone was surprised since the tumor shrunk so nicely. The cancer in the nodes was resistant. The hospital tumor board is meeting on Tuesday to discuss treatment options - radiation or radiation and oral chemo (Zeloda I think). There was cancer in 3 of 4 quadrants of my right breast which the MRI did not pick up for some reason but the bs thinks he got all of that. I don't know how they'll monitor for spread to other areas now that those nodes have been active all of this time.
I'm quite discouraged since I though the chemo was shrinking the nodes too. I feel like I did at the beginning of this trip - very frightened. Even worse, I feel like I went through a lot for I'm not sure what? I know I'll settle in to some kind of rationalization eventually but for now I don't even want cheese cake!
I think of you all often and pray that you're doing well.
Marian
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Marian: Of course you feel discouraged. This bc likes to push you down, right when you think your making progress. I didnt realize you got chemo before your surgery.
You are going to be ok! Once you absorb everything you will get right up and get ready to fight. Sending big hugs your way tonight.
Nicki
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Marian,
This just isn't the news we'd hoped for. I don't know about chemo or different types of chemo tx, but if they're talking Xeloda, there will be others who can offer insight into this.
I do know you're really scared and discouraged. Probably in a state of shock as well. Hopefully you can feel all our love and hugs surrounding you.
I know that Nicki will be along tomorrow morning with her pink armor and we'll begin to round up the army. In this girl's army, no solidierette is left behind. No matter what lies in the days ahead, we will be with you.
You're in my heart and prayers tonight.
Love,
Bren
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Marian ...
Nicki's already here! (Slipped in while I was typing) The army is starting to gather. Picture the walls of Jericho. The army will surround the cancer and bring it down!
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Marian - gentle hugs. I'm glad the tumor board is reviewing your path reports. Whatever is to come, know that we will be here for you.
Hugs
Liz
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Sittin here chewing my nails waiting for word on CY...I know it will be a while and most likely, due to the time change, I will be fast asleep when she comes out. Saying many prayers tonight.
(((Marian)))...that is sucky news to hear but not necessarily they worst news. I too had positive nodes but only three and the cancer was contained within the nodes which was a good thing and...they took the OUT...so the bad nodes are no longer in there ready to take aim somewhere else! Thats a good thing. I had chemo first too and was surprised...the nodes seem to be so tiny I truly thought they would be cancer free first. You will be fine...we will be with you.
Nicki...you are NOT getting sick...not now...not this close to the holidays. It is not allowed. Get some airborne and some sleep...see ya in the morning.
Hi Bren...hugs to you
Deb...hahahaha...we have snow...too darn stinkin much of it if you ask me. MB makes it sound all pretty and sparkly...she's a fruitcake remember (LOL)...its NOT pretty...its freakin COLD! Its SLIPPERY! You have to shovel this nasty cold slippery stuff...You can have it all! I'll box it up and send it off LOL. Bugs and fishes to ya.
Leighann...thanks for the update on your mom...will keep her in our prayers...I'm sure she will be fine...sending both of you a hug.
Liz...thanks for keeping us updated...its all I've thought about today. Sheesh.
Rita...what kind of Christmas mission? Sounds interesting!
MB...I'd come over for dinner but you have the same weather we have and I'd prefer to have dinner somewhere in the tropics...Gina is working on that for me LOL.
Brenda...today at work was better than yesterday. We actually got to play with the microscopes! ummm...400,000 dollar microscopes!!! It is a plant research institute so we have greenhouses and plants everywhere and lots of scientists. They do mini seminars explaining their jobs and everyone is invited...it was really fun and interesting...had a pizza lunch afterwards...a really nice perk. Only bad part was getting my parking permit...321.01 dollars!!! OUCH...I can't believe you have to pay to park at your workplace...and that only covers till end of June 2008! Its 500.00 dollars a year. Crazy.
Hi Susan...I think I have that email from Cheri...will have to see what I am LOL.
ok...gotta help Nate with his homework...getting late.
Love and hugs from A to Z
Vickie
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Marian- Well crap....that is not what anyone wants to hear. I'm shaking your hand and welcoming you to the crappy news and lots of nodes club. I really do understand what you are going through...
When I started this journey the docs said....
Oh, small lump, most likely stage one. We will do a lumpectomy and rads and this will be "all better"....Nope.
It was multi focal, in at least 3 places they didn't see before hand once they did the lumpectomy and 27 of 32 nodes were positive. My surgeon later told me he was just sure I was going to have mets because of the amount of cancer in my nodes.....well, guess what? No mets.
I did my chemo, did my rads and I'm NED at 2 years. I know this has been like a sucker punch. I know exactly how you are feeling....take a few days to get the info you need, the tumor board is a great thing, I did that too. Once you catch your breath you will be ready to kick some more cancer butt. We will be here to help.
Big Hugs
Deb C
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Hi
Shrink, hugs to you. I know you must be frightened but try not to be...we are here with you. The chemo and rads will do their thing to get rid of any traces, if any
Brenda, hugs on your headache. They can be so annoying. Drink lots of water, it works sometimes to ease the pain
MB,mmmmm,I just might come up for dinner
Rita, I am fine today,thanks
Leighann,give my love to your mom
Nickie, oh boy,I sure hope this is a quickie no feel good. Get to bed and rest,my friend. LOL on cinnamon buns
Cy, thinking of you and hoping you are ok
Liz,thanks for the update on Cy
Susan,I will pm you my email address--I wonder what kind of dog I am?
Vickie,so glad you enjoyed your day at work. Everything takes time
Gonna go do some Christmas stuff....will check later for update on CY.
Hugs and prayers,
Candie
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Hi girls, just checking in to see if we've heard any updates on CY.
Susan, it would have been fun to meet up. I figured you were on the go like me. Would you believe my girlfriend was in Florida too - didn't know until she sent me pictures this morning!
MB, hot turkey soup yum. It's raining and supposed to storm bad in about another hour.
Candie, what a shock for yuour friend's family.
Rita, did you finish wrapping and writing cards?
Leighann, I'll say an extra prayer for your mom tonight. I sent her a card today. Please keep us posted on how she is doing.
Marian, sending gentle hugs your way. I've got my warrior suit on too, ready to help you fight.
Margaret
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Shrink, you are lobular right?
Well my new cancer is lobular too and I had 4 positive nodes and extranodal extension.
I am on xeloda now so if there is anything I can help you with please ask! either here or in pm if you like.
hang in there- those nodes are not in you anymore- they are in a jar in the lab now.
Hugs,
g
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Good morning,
I couldn't sleep last night..so I feel like a zombie this morning.
Anxious to hear how Cy is. Will check throughout the day.
Have a great Friday.
Margaret,My friend's lil boy's birthday was yesterday...10 yrs old. Imagine losing your Mom the day before your birthday. Unbelievable the whole thing is!!
Hugs and prayers,
Candie
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