New Want To Play A Word Game
Comments
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I feel the same way Maddy! I wonder if the sugar in candy really makes people "wired" or if that is a myth?0 -
Wahine, have heard weird stories from both sides of this question. Maybe what works (or doesn't work) for someone has the opposite effect on someone else? I dunno, but don't want anyone taking away my sugar (or candy, especially chocolate).0 -
Oh dear, now we are mired in controversy. Good thing we don't take this thread very seriously! I did find a non-sugar alternative for our Halloween Trick or Treaters though. I got glow bracelets, the kind that you crack and they shine brightly for a few hours. Hope they will be just as happy with that, and I don't have to face all the leftovers...boy I miss those emoticons! :-)0 -
Love the way our word game goes in so many different directions!!! Good idea about giving out glow bracelets, Jane! I am really bad about buying the halloween candy I like,so just in case there are leftovers...
I just booked 4 trips for us....pretty soon I could be called the "plane rider"!0 -
Wahine, with that many rides on a plane, you really ARE a frequent flier!! Do tell where your adventures will be.0 -
As long as I don't think someone spied on me, I will divulge my destinations! lol. I will be going to Dallas, to Vegas, to Iceland via JFK (2 diff reservations), and then to Dallas in Feb. Saw an unbelievable fare, round trip to Dallas today, which is SO much lower than the one I purchased for my DD and myself. Aarrggghhh....but now that allows my DH to go with me for another trip in Feb!
Hope Sheila is enjoying her visit to see her DD in Hawaii!0 -
Hmmm......now that the information got pried out of me, no one is posting!!! LOL, jest kidding, but where is everyone? Sure hope you are all ok. Not sure if Sheila is still in HI, but where is everyone else???? Hope it will be a good Sunday for you all... HUGS!!!0 -
Looks like posts on this thread dried up temporarily. But the thread has been around an impressively long time.0 -
Maybe we could bring a droid here, just to keep things going! (Hi Stride!)0 -
sorry I haven't been keeping up. Been so very busy lately, haven't had lots of time for this thread - it takes me a while to come up with a word, even longer to form it into a sensible story. I'm also trying to wean myself off BCO: time to get off my behind (an instant 'roids cure), get my house in order and get myself a job! And speaking of droids, my cell phone started having a mind of its own, doing strange things so I've been researching new ones - haven't looked for a new phone myself in almost 10 years and have no clue about the latest technology.
Wahine, with all your travels, have you ever been a travel agent? How are family members (particularly DD's) doing?0 -
Hi Maddy! LOL on the travel agent (I was a tour guide in HI for awhile, many moons ago)....my DH tells me I should do that, but I tell him its TOO MUCH WORK!!!! Takes me forever to get the lowest fares, hotels, etc., and have it all mesh. You are right....the 'roids do get worse with sitting a lot! But we need you here too...put your laptop on a counter and stand up while using it, ok? My DH just went up to see his brother who is dying, from brain cancer, very sad, probably won't be long now,but he lives over 5 hrs drive from us.
Hope everyone is having a good Monday! We are supposed to get rain Tues and Wed, and since we have not decided on gutters, there may be a lot of drips coming off our roof. (Best word I could come up with, girls!)0 -
Oh dear, I see it has been almost a month since the last time I made a word. Just at that time my sister in law called--my younger brother, who had had colon cancer stage IV for ten years, was going into hospice. My mom & I had just gotten plane tickets to go back east, we were originally going to leave this coming Friday, but changed our plans and went right away, so we were able to visit him before he died on Oct 2. Right before that, I got my most recent scan results and they were not what I hoped, so at the same time as this sad news about my brother I was trying to come to grips with learning that the second AI also failed, and trying to make up my mind whether to do chemo, as suggested by my oncologist, or try fulvestrant. I really dread chemo but that's probably what I need to do.0 -
Oh no, Curve. Such horrible news. So sorry about losing your brother, sounds like he fought for a long time. I hate it when this disease takes another good person. Very, very sad for you all. My BIL is close to losing the battle too; my DH (his brother) went to Knoxville to see him last weekend. And then YOU also are facing difficult news for yourself. I really am very, very saddened about all of this. Is there anything we can do? If anything, I can be a good listener. I do not know about chemo or fulvestrant. Are you on the Stage lV thread? Wonder if anyone there might have some info on that? Sounds like your onco wants you to do chemo though. A couple of wks ago I was watching one of the DoctorsTV shows that I had taped, and someone had something that they are using a lot in the UK (I think thats what they said), and it helps people keep their hair.I believe it was some sort of cooling cap that they wore while getting chemo? I didn't pay a lot of attention to it, but maybe you could do a search for it (or I would be happy to), to see if that might be of help if you decide to have chemo? It seemed to really help a lot. (((Curve))). Please vent if you want to, you are going through an awful lot.
On a happier note, we went to a Burlesque Festival here....a yearly event I had never heard of before! Some performers even came over from Amsterdam. And it was very tastefully done, they don't totally strip so it wasn't anything embarrasing to see. Made me realize I want to get into better shape though!!! I did start a new "eating plan" on Monday, so far so good, but I have a long way to go!0 -
CB, am so sorry for your loss, and having the AI's not successful. How are you doing with it all?
Wahine, so sorry for your situation too. Hoping all is going well with your BIL and new eating plan. The burlesque festival sounds intriguing, never heard of that.
Sorry I've been away so long, almost forgot about this thread. Have made a couple trips to my parents, my dad is so exhausted and stressed. At least we got to spend some together, just he and I as he's taking mom to the memory center more often. He needed to get his hair cut (only the second time mom hasn't cut his hair in about 40 years, but he can't leave mom alone long enough to even get a hair cut. Last week my mom's youngest brother came to visit them, I was reluctant to be the one to explain her situation to him, he brought his son along (haven't seen them since the mid 80's).0 -
Hi Maddy, I have been wondering how you are doing and meant to send you a message. Sad about your parents, and hard coming to grips with your moms dependancy on your dad. He sounds like a sweetie though, to do so much for her. Well, I am sure they BOTH are sweeties, and so nice to have someone love you and care for you like he is doing with your mom. Glad you were able to visit some and be of some help. We have had a lot of sadness here, a 14 year old girl from our church just lost the battle...she had leukemia for 12 years, and touched thousands, who all loved her. Her class at school (even though she has been in the hospital out of town more than at school), voted her to be in the homecoming court. My DD1 and grandkids were very close to her. This makes the 2nd young person from our church that has died this year, and my gkids were close to both of them. And my BIL passed a week ago, and on another thread I am on, so many are also losing loved ones and loved friends that are just in their 50's. Very sad.
My parents will be in HI for 7 wks, so we will have some trips while they are away.
How is everyone else doing? Curve, I know your world turned upside down, and I do hope you are doing alright. That was so sad.
Big Hugs to all of you on this thread,
Kath
P.S. I just noticed Curve had also used "grips" on this page, but I hadn't remembered as we have not been active on this thread for several days....oops.0 -
I don't have a word yet, but want to tell you Kath how sorry I am for you and your grandkids! You will all be in my prayers.
Don't worry about the "grips" thing, it's been so long (and it's a post anyway). I had all but forgotten about this thread..... Will get back later (hopefully) with a new word. Just checking in this morning0 -
It seems like October has been a "bad news" month all around. In addition to the death of my younger brother earlier this month, my cat died last weekend. For a number of different reasons, I decided to do chemotherapy (weekly taxol) rather than try another hormonal this time around, but what with stress and losses and uncertainty about the new tx (except I'm certain it will make my hair fall out) I am stressed to the max and possibly somewhat depressed as well. I had my first infusion today so now I am "waiting for the shoe to drop" in terms of side effects. This is my first time with a taxane, so who knows what will happen and when. I just hope it isn't tomorrow, because my mom, oIder brother and SIL are coming to see the house. Speaking of which I am finally on the point of ordering the kitchen cabinets and hope to have actual cooking facilities by Christmas. I have huge negative emotions about doing chemo again. The first time, I ended up in the hospital for a week at the end of the regimen, so we are talking about bigtime fear & loathing about chemo, even if it works. And even if it works it's bound to be rougher than AI's because I never had any SE at all from exemestane or anastrozole, and aside from soreness at the injection site, which would happen any time a big old needle is stuck into your butt regardless of what's in the shot, none from octreotide either. Sooo, today while I was over at the clinic to get my infusion I picked up a copy of the questionnaire to check for depression, and then make an appointment to ask my doctor to refer me to/help choose a counselor to talk to.
But that's all I'm going to say about that. This is supposed to be the fun & games forum ,
so it doesn't seem like the right place to vent and gripe
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That's why I always used to hide my signature here. But that feature disappeared a little while ago
and hasn't come back yet.
Maybe now that the smileys are back
I should go pester the mods about that signature on/off switch.0 -
(((((Curve))))), So sorry about all that you have been dealing with. Just so much. I cannot even imagine how hard chemo is, and my prayers go out to you that it will be very tolerable, and that it WORKS! I feel lucky that I was able to have mine removed, and it was caught early. If you don't want your info in the signature area, you could prolly change your settings to "private", but then no one would see it, either. And, this is my opinion, even though this is a fun & games forum, it IS a breast cancer thread, and we do make close friends here. I would rather know what you are going through and be able to offer some support, or just have you be able to vent here, than not know at all. So please vent here, and let us know what is happening with you, ok? I am glad that you are ready to order your kitchen cabinets!!!! YAY!!!!! Its funny but we got our new countertops and new fridge and d/w and range, but I haven't done the flooring yet! I just ignore the floor but I should get motivated soon and do that. We still have more windows and repairs to be made, but usually are so busy. Have a lot of trips coming up too, so not sure when we will get around to finishing everything up. We have some green tomatoes on the window sill, as we had a couple of days with frost and my DH was afraid they might not ripen if left on the vine.0 -
@wahine, thanks for the hug. I could turn my signature to private, but then I couldn't include that info when I want it to show. It might even (I don't know) remove it from posts in other forums where I said "see my signature" so I didn't have to write it all out again. Although maybe not...I added my new info today and it doesn't show in my previous comment, even though I edited it after the change to my sig.
Woops, the individual items in the signature also have to be "made public" in order to show. I always forget to do that when I update my info, then I notice my update didn't work and the lightbulb comes on again. And yup, the change is now reflected in an earlier post on another thread that hasn't been edited since the profile change.
Well, the cabinet lady is going to come on Friday and measure the kitchen. She says if ordered right away they should be delivered late in November but if her previous performance is any indication, they won't arrive when promised. Still, with any luck I will have a working kitchen by Christmas. No fruitcake this year unless there is a miracle of on-time-performance, because they need to be made Thanksgiving weekend and then have spirits poured over them at intervals until Christmas, or shipping date anyway. Maybe I can find out online how to steam Christmas Pudding (reasonably similar in content and flavor) in a crockpot. I just hope the chemo doesn't hit until after she leaves, or if not that it's just blahs and not a major intestinal revolt. I took antinausea meds before feeling any actual queasiness, so I hope no problems there. Maybe I should refill my prune jar, but there is a third possibility on the GI side-effects roster and since this is the first time I've ever had taxol I have no idea if that's how it will affect me. But that's all I am going to say about that. There is such a thing as TMI! I only mentioned that second possibility because it gave me my only chance to use the word "prune". No wait, I can use that word to write about my rosebush that I grew from a cutting. But I generally "prune" in that sense during February. Well, this is my last chance to use it before the end of the year, so I'll do it.0 -
Love how you incorporated the word "prune", Curve! No, not TMI for me, and I doubt any of us here would be a prude anyway! (First word I could think of). Hoping you feel good when the cabinet lady is there, and ALSO that they are ready on time!!! Good idea to try some steamed pudding in a crockpot. I have finally dug out my crockpot a month ago and am really doing some yummy dinners. SO easy why haven't I used it for years??? BUT speaking of Christmas fruitcakes that you add spirits too....a friend recently posted that her friends dog got into the area where she had FIVE large cakes that she was pouring the liquor on. The dog ate TWO of them!!!! Surprisingly they said the dog was still ready for its next meal!
Hope you will all have a good day today! BOO!!!!! Enjoy Halloween! Kath0 -
hi ladies! It's been a super-duper long time since I've been here, probably because I got stumped with the last word and nothing came to mind. Even with this, not sure we can go anywhere?
Curveball, hoping November is better for you! Why does it seem the crap comes in bunches (instead if spaced out)? I'm so sorry about your cat - I had to have a favorite put down earlier this yearned I'm still hurting at times (even though we have 2 others, I swear she was also part dog, part human, just a great companion). Hate when people said "it's just a cat". Nope, just a buddy. How's the house coming together, especially around chemo? Pace yourself, just small tasks, they add up.
Wahine, what have you been up to? How are your DD's doing? How about your parents?
Haven't been out to my parents in a couple weeks. Seems like the days and weeks are flying by. We finally got all the water damage repaired, they did an absolutely awful job! Since money is an issue, we're not doing anything else. Had DH move the furniture back and I've been putting the rooms back together.
Big hugs to all that need them!0 -
Well, things are going better this week. Last week on my first infusion, my antinausea meds didn't work, so this week when I saw the oncologist she gave me a prescription for a different one and it did the trick. Because I was getting sick, I canceled the appointment I had made to get my kitchen measured. The lady said she could come this past Monday or Tuesday, told me she would get back to me with an exact time, never followed up and when I finally reached her on Tuesday, said she couldn't come. That was the last straw! I have washed my hands of her and asked my contractor to find someone else I can purchase the cabinets through. That person is coming this next Weds to measure the kitchen and take the order, but at this rate it will be next year before my kitchen is done. Ay-yi-yi!
This week the side effects were muscle aches & fatigue and an odd fuzzy-headed feeling, which might have been due to a slight temperature. I didn't do anything Thursday and little on Friday, but yesterday I pried myself out of bed and went on a bus trip to the next closest branch library, which included walking several blocks. Tomorrow I need to walk to the grocery (about a mile each way), and maybe do a bit more in my garden. I am expecting my hair to start falling out any minute now, but so far it still seems pretty firmly stuck. I already have a couple of caps finished and enough yarn for several more, but I need to get busy with the knitting needles and crochet hook. This time of the year it's too chilly to go out with nothing on the head.0 -
Hi Girls, Been in Tunica (casinos) since Friday, returning home tomorrow. Then 2 days later, will take my DD1 and fly to Texas to see DD2 who had surgery on her neck on Thurs. Had her disc replaced with an artificial one, and did well. After I get back from Texas (there for 4 days) I have 1 day till we leave for Vegas. Was trying to get some Christmas stuff down from the attic before leaving, as I don't know when I will have time to decorate! Too busy.
Curve, You are making the best of things, good for you! AND knitting caps to keep your head warm this winter, great idea! Shoot,my skin gets so dried out during winter, but I usually even forget to wear gloves.I did not go thru chemo, and can only imagine how hard it is. Sorry about that kitchen cabinet lady, but maybe the next person will do the best job!
And Maddy, I am so sorry they did awful work on your repairs. That usually happens to us too, EVERY time. Really sucks.
Well, I think my DH is finally getting up from his nap, so we can go back downstairs into the casino. We are on the 30th floor, but MS is so flat here, can see the casinos next door (pretty at night) and the MS River, but the rest is farmland.
HUGS!!!!!
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wahine, my hands are dry all the time. I get so tired of having rough thickened skin, but that doesn't make me remember to use lotion to improve matters. Maybe I should make a goal to form a habit of putting lotion on my hands. I think I will also make a goal of gaining 3 lbs by Christmas. I was down to 114-1/2, which is really too thin for my height. I saw a nutritionist and have put some of her suggestions into operation, and last week when I saw the oncologist I was just over 115, so it is working! She said I should try to gain a pound a week (!!) but I don't think I can comfortably take in enough calories to do that, even with the supplemental drinks. But I think I will have to take an exercise class (yuk) or it will all be fat instead of muscles.
I hope your travel goes well and DD2 has an uneventful recovery from her neck surgery.0 -
OMG Curve, I am sure you hear this a gazillion times, but I really wish I could give you some of my extra weight! I have the opposite problem...trying NOT to gain a pound a week! Esp because we were at the casinos since Fri, and ALL that good food....well I have no will power there! I need a lot of coffee this morning,need to get wired as I have so much to do before leaving Thurs am, and not enough time or energy! Thanks for the wishes for DD2, she seems to be doing very well, and friends have been bringing over food..she does so much for everyone else ALWAYS, that I am glad they are helping her out now.0 -
Hurray! The cabinet man was here this morning and hopefully things will start rolling now. He was late because he and contractor got their wires crossed about where the meeting was supposed to be, but fortunately the wrong place he went to is very close to my house, so it was no big deal.
Taxol #3 is this afternoon. I keep expecting my hair to start falling out, but so far it still seems to be pretty firmly attached.0 -
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Hi CCFW! That is a great word! I swear winter comes sooooo quickly these days!
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I just got a phone call from the cabinet man, saying there is a quote for the cabinets in my email. I'm going to take a look at it after dinner. I could have my order on the books by tomorrow. Yay!
I asked the nurse about hair today. She said the "two weeks from first treatment" hair loss time-frame is for taxol every 3 weeks, and that people getting it weekly tend to go longer into tx before their hair starts falling out. I said "so I could still have hair for Thanksgiving, but probably not for Christmas" and she said that sounded about right. So that gives me time to make more hats. I got another one almost finished yesterday plus while getting my infusion today.
I agree with wahine. "Wrens" is a great word, and a cute bird, too. Even though I bought the house more than a year ago, this is my first winter actually living here, so I don't know what kind of birds I will see. Mostly what I've seen so far is just crows! I never grow weary of watching birds. Maybe I will get one of those feeders that sticks to the outside of your window with suction cups.0 -
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