Bottle o Tamoxifen
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Thanks Tink! I had asked my cancer navigator about when i was about to go for surgery but she said that we would cross that bridge when we got there if necessary adn that mos do not need it. I have a radiologist appointment end of March...how long does it take to get fit and have one made?
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You guys! I have not taken Tamoxifen for 2 days now. And I can hear a little out of my "good" ear!!!!!!!!!!!!!!!!!!!!!!!!! They are both popping. EVERYone told me nerve damage would not come back....But, maybe it is!!!!!!!!!!!!! I am promptly writing a letter, and sending all my "team" copies of the Deafness from Tamoxifen, AND telling them that I am NOT going to start Tamoxifen again.
Maybe by April, when I see the Oncologist, who left me a message, to keep taking Tamoxifen, I will be switched to Femara. She is getting a letter too! Why won't anyone believe me? The Doc at the Otolaryngology office, the Audiologist that fitted me with hearing aids, (which I did not buy yet) my Oncologist, nor my Primary Care Doc!
Oh well...maybe by tomorrow, I can hear even a little more.....Thanks Joan & you other gals...
xoxoxoxoxoxoox
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Good Grief! I have not been gone that long and you ladies have been busy. Very fast moving train today.
Tink - I do hope you were good and cleaned your plate. Per your request, pie and ice cream coming up.
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Chevyboy!!! Excellent news!! Since you can hear now, you can hear me saying "WHOOHOHOHOOOoowWWOoo!!!!"
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JanetinVirginia - I won't be home tomorrow night so I spent a little extra time in the kitchen. Hope this satisfies your strawberry craving.
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Thanks Tink and Chabba, I figured SOMEONE would maybe know.......or have a better idea of it than I did!
Well, I am off here for now.......friends of mine are in a band and they have jam sessions on Tuesday evenings, so since I haven't gotten to go the last two weeks, I am gonna go listen to them tonight for a bit
Have a great evening!! HUGS!
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Sandee.. I went to the PT and she measured me and said she would check to see if it was covered by insurance and if it wasnt I could order it myself on line . They are not as expenseive as I thought it would be under 100 for the arm part and the hand part, she recomenned both. The websites she gave me are...
Lymphedemaproducts.com and Brightlifedirect.com
she said it usually only takes about a week when you order it directly on line yourself. I havent checked with my ins comp yet, since I still have awhile to travel. Hope this helps
Chevyboy...so glad you are stating on the upswing with the hearing. I cant believe they are so stubborn about believing this especially since you are seeing improvement after stopping it!!! yikes... keep us posted. Hope you are hearing even more tomorrow....hugs!!!!
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JO I did eat my dinner tonight almost all of it...hehehe... but enough to have some of that yummy pie! Thank you thank you... strawberries look petty good too!!!
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Tink - You are so very welcome.0
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Jo - what a treat!! I can almost taste it
Sunangel - yes it takes a long time and then one day you realize - "Hey, I didn't have any zingers today!" Maybe a new prince charming will waltz in tonight!
Chevy - that's amazing about starting to hear. I'd hold off on the aids!
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Thanks Tink!!! I will check out the sites tonight...can always have my trainer measure my arm for me while she is measuring the rest!
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Wonderful Chevy.
Jo - I too have been enjoying your culinary productions. I've b een dreaming about lobster with a salad and garlic bread. Maybe creme brulee for dessert.
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June - around here those flip flops are called 'Switch Flops'. I love them, the bottoms are not real cheap but the covers are about $12. They are the only flops I wear anymore.
Jo - love your desserts! On our cruise there was a chocolate bar open for a few hours. I had the best chocolate chessecake I have ever had. You have to try it on your cruise in a few months!
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Morning girls..okay, now I'm bummed. It went away again.
Yesterday afternoon I could hear a little better in my "good" ear... The left ear is still "awol"....maybe it just will take some time...maybe today it will come back...But I don't go until Monday to be fitted...MAYbe by then I will know more...
just maybe...........Been three days now off of Tamoxifen, & they said nerve damage is permanent...I just might prove them wrong. Cross your fingers kids....xoxoxoxo
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Chevyboy - Will be thinking about you and hope you do prove the doctors wrong.
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Chevy,
Good to see you again. Sorry about the hearling loss. Glad to read that it seems to be reversible.
I took Tamoxifen for 2 years and Femara for one year. After my follow up bone density test showed that I have lost 'significant' bone mass since starting Femara, I am back on the Tamoxi train... I should only have about 21 months left to go with this wretched hormonal treatment...
Good luck!
Harley
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Hi Chevyboy,
I'm praying that your hearing comes back! I'm going to be starting tamox. today and my hearing isn't the greatest, according to my kids
Vikki
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The more I read about the horrible SEs with the AIs, I am so glad they are no longer an option for me. Think I will stick with Tammy for the full 5 years. I don't need to go through hearing loss - my hubby thinks I am losing my hearing as it is. Perhaps it is selective hearing loss?
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I have been on it for 2 years no serious problems other than joint issues and weight issues.
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CHEVYBOY, Will have my fingers and toes crossed for you and my hands in prayer that this gets resolved for you! many hugs to you!
JO That pic is adorable love it!
Can feel that good ol PMS feeling creeping in today.. ugh.. gonna go exercise and try to head some of it off
Have a good day ladies see you later!
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PMS? Let's see if I can remember that one? Nope and don't miss it either.
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Hey there everyone,
Sunangel - I had my surgery on November 18th and am still having the pains you are describing. It will be nice to get full feeling back, and even nicer if the inverted nipple the surgery left me with will decide to come back out!! lol..lol I was told it should, but who knows!
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Hi all,
Chevyboy, I am praying for you!!! I just KNOW you are going to prove them wrong. That hearing is going to come back.
If anyone can prove em wrong, you can!! 
Well, got results back on the toe, NO fungus! Ha, ok, well, that's good because apparently that stuff is a bear to get rid of. But something is going on with it....he thinks I injured the cuticle in some way and got inflamed, etc....it's not growing that I can tell. And now with the doc clipping off the edge to send for testing, it's really short, ha. oh well.
Feeling better today, I really think part of my issue is the anemia I had/have. I pumped up iron foods when it hit me might be low iron (after really heavy period) and took my iron pills and I'm feeling better. Was feeling SO depressed just like in early Jan when that bloodwork showed really low iron. Started feeling so much better after taking iron pills....then I just had that crazy heavy period and the very down feeling came back. I associated it with the Tamox because I'd upped my dose but now realize it must be the iron. Really curious to see what my bloodwork shows I'm getting done tomorrow. I am going to have to see what we should do about these heavy periods...and if they keep being like this last (first one on Tamox) one was.
Oh, and SE for me have not been sooo awful. I do continue to have the mild nausea/weird tummy feeling. Feel fine in the mornings before I take it...and about an hour after the feeling comes and stays with me all day and evening. I also am having more trouble sleeping. Not doing the glycine regularly because didn't notice much help but maybe I should just do it anyway and see. I've been taking xanax more then ussual just to get rest. Also, another fun one that just started (I just upped my dose to 10 recently) are hot flashes! Had a big one the other night in middle of the night. And I continue to have them daily (and nightly), small ones. Quite alot of them actually. Wierd for me because I am always sooo cold. Yesterday our temp was 33 when I left the house (yuck, need spring!!!!) and I was hot...looked at the temp in my car and thought no way I'm not freezing right now, it's got to be at least 45-50. No, it was 33. Wow.
So, overall so far I would say tolerable, but not fun, side effects. Of course, I'm only halfway to full dose. I will continue up more quickly after my surgery next week to get to my full dose...then we will see how it goes.
Hope you all have a wonderful day!
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Jo love the pic's you crack me up.....
Tink I hate the PMS blues......I was never one to really be cranky but lately and I do blame Tamox it is horrible.......hope you are having a good day!
ECG- I am so glad you don't have fungus as it is GROSS.....sorry that this pill is so harsh for you, how horrible. Have you tried milk as Jo said that really worked for her....
I am having horrible headaches today, not sure where that is coming from.....
I miss all you gals, have a wonderful evening!
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Chabba - Dinner is served! Lobster salad and creme brulee
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ECG..Yeah for no fungus!!! I am glad you are feeling a little better. Good luck woth your blood work and your upcoming surgery. I had to take a xanax last night to to get some decen sleep had been doing decent for awhile, I am starting to wonder if everything really inflates with PMS..Hugs!
June..Thanks.. ugh! one of those days again, could cry at the drop of a hat and so irritable, Just plain ol blah blah!!!! I really tink the Tam for me too, makes this time so intense I cant stand it. Two days ago I was upbeat happy, positive outlook, feeling pretty good, today it was like doom and gloom set in. oh my leg hurts what if...blah blah blah lol.... I gues the silver lining is that this too shall pass and I know it doesnt stay around forever... Hope you day was good and your head is feeling better! hugs!
JO I know you said you werent going ot be home tonight!!! miss you
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June, I can't drink milk, it has bothered me for years so just stopped with it. I do take the Tamox with food though and usually drink my almond milk with it. (LOVE this stuff, it's the unsweetened almond milk by Silk, just started drinking it) So sorry you are dealing with headaches.
I have some a bit, it's sort of an achy head feeling for me some days. I have had migraines since I was 22 but this is different. Haven't noticed an increase in the migraines tho, thank goodness. Now, something I have noticed, are these quick sharp little pains in the left side of my head (same side I get migraines) since starting Tamox. Never had that before and have been having off and on since starting...about the second week in or so. Weird. I plan to tell my Onc about all of these things next week. But I wonder, does anyone else have this? They are just quick little pains and then gone. My husband gets them and has for years but I never have until starting T.
Jo, love the food! YUM
Now I just need someone to make me all of that in real life. Tink, so sorry you are having an off day! I read your post and said YEP, I know exactly how she feels! I am the exact same way, one day up and the next downnnn. Crazy. Not used to such a rollar coaster of emotions. Hope tomorrow is better ! HUGS!
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hello sweetie, i was on Tamoxifen for 5 yrs and I did gain a few pounds but they left when I was finished the tamox,, it was worth the weight gain because it came off and I am still cancer free(Praise GOD), IDC,stage 2, L mast, with reconstruction(didnt take, body rejected it, very painful(It hardned, wear prothesis now, chemo, rads, (17 years cancer free)had a choice for Lumpectomy, but I chose mast(was afraid it would come back if I got only lumpectomy. Beside that I was in process of making wedding plans, my husband said he wanted me alive, didn,t care I needed breast removed (what Love). God Bless msphil
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Tinkertude- boy...I do remember pms and am happy to say I no longer have it o rthe period to go along with it...that being said, some days on Tamoxifen, I feel pmsy...same overwhelmed , doom and gloom feeling....I try to go to the gym too when I feel lik ethat or call someone to go to a movie or I sit and cry and just get it over with...my goodness...!
I am just so tired lately....someone on a school trip on the weekend said I am a "young 48"..my response was "what the hell does that really mean?"...guess what she meant is at 48 I have more energy than she does at 28....true enough but my battery feels like it is almost out of juice and nothing I am doign seems to recharge it. Is this what they were referring to as radiation fatigue that you feel onc eit is all over? I refuse to give in to it but I wake up tired despite the zopliclone, which knocks me out....I also had a hot flash last night..yowsers!!!! I have had 'warm flushes' every night since starting this regimen but the 'holy dinah hot flashes'?...not so much...I too was ALWAYS cold....no more. Now I wear layers and strip at the drop of the hat. No pride here!
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Janet.........I'll be glad when that day comes!! Today didn't have any.......weird... but it helps to know that they are "normal" to have......
And nope, no prince charming came in last night......heheeee
ch..... same here!!!!!
I had to have an emergency hystorectomy when I was 27. Had so many cysts that covered my womb and overies....a FEW busted and I had horrible infection. I could hardly stand sit or breathe!! Went to a friend's dr. and then another dr. then decided I had better get another opinion!! And all three said the same thing, so after going to the emergency room again......I decided to call the one dr. and tell him ok........ thank goodness I did!!! But I still have the pms without the period!
And now.........with tammy.......I think it is even way worse!! That was one reason I didnt' want to get back on it, but the alternative is so way worse!
So, here I am on my second day back on the tammy train. and today has been one of them days................ maybe it is the tammy, maybe not, but it sucked today! 0
