Im bitchy, I moan, I groan.....anyway.
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I was going to complain about the gas and kerosene prices here in NC but I don't think I will now. regular gas is 3.25 a gallon and K-1 which is what I use in my monitor heater is around 3.00 a gallon delivered. When I bought my house 18 yrs ago I could heat with 100 gal a year at 1.10 a gallon. But Isabella has me beat for complaining about oil prices.
Sheila
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I have a little bitch ... my hips are hurting like hell and I'm not sure who to call ... my RA who sees me for my chronic pain (disc problems and fibromyalgia) or my Onc??? I had ocassional hip pain before cancer but nothing like this. It's scary.
I also seem to have a real short circuit in my brain. When I go to type certain words, suddenly I type the wrong spelling of it or a different word altogether which changes the meaning of the sentence! In my mind I'm saying it right but when I type it comes out wrong! ( I just had to back space and retype "right" because I typed "write"). This was Never a problem before bc! Examples that I often screw up:
Fill/Feel
Right/Write
Here/Hear
Okay, I'm too tired and fuzzy brained to think of anymore but it's a constant problem and makes me double check all my writings and spend much more time on them then I have! Does anyone else have this problem? How do I fix this?? This is on top of the stopping in mid sentence because the word I was going to say has suddenly disappeared from the brain cell I was using!
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Isabella, I feel your pain ... I thought it was bad when the oil cost us $300/month and now it's over $500/month and climbing! But $1200 x 8??? I can't even fathom it! That Sucks!
Deb, that really sucks about the dry mouth and bloody taste problems!
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Isabella--we used to get hit with prices like those when we lived in Italy. We were renting a very large house at one point, and it cost us more than 1500 dollars for gas for the two months that we were there. I used to run out every morning and check the gauge (it was in the ground) to see if it had moved. And that was in 2004; prices have skyrocketed since then. We left our house in Maine when oil hit $3.50 a gallon--very high ceilings with some 18 radiators in the house. Can't imagine what it would have cost us if we had stayed. We're planning to return in May when we hope we won't need oil beyond heating the water.
If it's any comfort--I'm sure it's not--we're moving closer to you guys over there. But I would think if oil were to go any higher the government would lower the taxes. We have low taxes on gas in this country, which is why it's lower than yours. Like England, we import most of our oil.
Angel--I have the same problem with words, frequently writing a differnt word than I'm thinking. I've also lost much of my spelling ability. I spend more time in a day in the dictionary now than I spent in years earlier. I did, however, notice this change before I was diagnosed and before I had chemo. It's just worse since chemo. I'm not sure if it's a result of aging (you look very young in your picture), but I have read that chemo brain is not only a fact, but that it can last as long as five years. A group in Canada published some research on this last year. Did you do chemo? That may be part of the problem.
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angel, I don't know about the hips but I can relate to the typing. I find similar words to yours give me trouble too. For me, I will type fell for feel, and plenty of others. That's why my posts usually show an edit! I read back what I wrote and just can't accept that I typed the word wrong.
I wouldn't worry about it. I don't know why except I think when we type here, we are sort of "streaming" with our thinking and it results in typing glitches. Like I just typed thinging for thinking just now!
Had to backup and redo....again! Frustrating isn't it?
Hanna
ps - my shoulder has been bugging me, maybe it's just the change in weather for the joints.
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AnneShirley: I'm 43 and didn't do chemo. I had bilateral mastectomies, reconstruction and oopherectomy all in the last year since March 29th. I'm on tamoxifen, neurotin and cymbalta. Stress I believe has played a big role (ptsd).. and now the sudden loss of estrogen from the oopherectomy. It's also a known scientific fact now that no estrogen causes memory problems that can start to show up dramatically within 4 weeks of an oopherectomy. It's like chemo brain but there's no name for it like that .. but similar problems!
HannaB: I Know, I'm a Virgo and anal about my typing .. I guess I need to get over myself lol You'll find a lot of my posts edited and it's for the very same reason as you .. fixing a word! their/there, no/know ... ugh ... yes it's frustrating! I wonder if there's a good type of brain exercise to help with this particular issue?!
Perhaps the change in weather is the culprit with my hips .. it has always affected me and now that I have no estrogen it may be why it's worse .. blah! (edited to type in "with my hips" in the above sentence which (witch) didn't look right (write) without it!)
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I'm glad you didn't go through chemo. It was a killer for me but some women do very well with it. I think just using your brain--cross word puzzles I read recently keep our brains young. I'm sure in time they'll come up with a name for it--estrogen depletion, problably, but it is frustrating; I edit all my posts when I spot a typing or grammatical error. I think that's better than just letting it sit there and is also good exercise. Yes, you do look very young, even younger than 43.
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I'll start doing crosswords and sudoku might be good too. I would have done chemo had I thought I needed it but being stage one and 100% ER/PR+ I felt that anti-hormonal was my best adjuvant therapy, as chemo is sometimes just standard of care .. but this is another issue because it's really right for a lot of women .. just not all and I researched the hell out of it before coming to my decision to opt out due to QOL issues and pre-existing conditions as well as having a baby to raise. My onc wanted me to do chemo but stood behind me completely once I decided not to! Well you're right, I had just turned 40 in the pic in my avatar. Little did I know I'd be pregnant the following year and have bc the year after! My daughter is a blessing but I feel like I've aged 20 years since then! I want to get back to looking like I did in that image but know that won't ever happen now!
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WTF??? I can't read page 13 of this thread!!!!!!!
Charlene, was that your first baby? Go ahead...you can tell me....I've had my xanax today!!
Traci0 -
Traci - do you have an extra xanax????? I just called the radiation center to see if the F***ing machine will be fixed for tomorrow (called at 4:15, they close at 4:30) and she goes "oh, it was fixed at 1pm - we called you". I said "please don't lie to me - no one called, I would have run back there" So now I'm a day behind and I have just started this week. Wait until I unload on my rad onc when I see him on Monday!!!!!!!!!!!!!!!
Someone asked what the woman must have said to have gotten punched in the nose - I think it is the gal at my radiation center lying to the patients.
UGH
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WTF? How come everytime I come to this thread, the opening post by Tracie always shows up? Is that how the forum works now? And why don't they bring me automatically to the lastest posts, instead of me having to skip to the last? Jesus, Mary, and Joseph in a rowboat, I'm already computer illiterate, I don't need more glicthes, or however the fuck you spell it? Can I say fuck? Ooops, just did!
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Laura:
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Angel.
Sorry about your hip pain, it is VERY scarey, I had this about 6 weeks ago, and of course I was shaking in my boots, the pain was quite bad. I eventually got me to my GP, got an Xray, had 3 weeks to wait, and was told it was Osteopenia....wow, was I pleased!
I also have Fibromyalgia, I have had it about 12-15 years, so sometimes I can't quite tell where all this pain is coming from, my Fibro, my Arimidex, or now Osteopenia. I blame Arimidex, as everything got considerably worse as soon as I started to take it.
Have you noticed the number of women who have bc also have Fibro? I quite often notice someone mention this on these boards.
I also had bilat and no chemo, but haven't done recon. like you. I was also on Neurontin, but I find Lyrica eases my joints better than Neurontin did.
My mind...well, its away with the fairies a lot of the time, my worst thing is suddenly being unable to remember what I am talking about, mid sentence, Sooo embarrasing. I won't go into new situations where I might appear a complete idiot by not being able to hold a conversation. I type much more slowly than I did, as I am having to try and remember how to spell even simple words.
annshirley.
We Brits HAVE got plenty of oil, its in the North Sea, we have been drilling 15 years now, lots of oil refineries in Scotland, and on our east coast. When it was first brought ashore we were told 'no need for us to worry ever again about oil, we have unlimited supplies'
Then what does out government do?? f*****g well sell it, so now we are at the mercy of the Middle East, and the way the are acting out we'll all be going up in a big bang soon, so we won't need to bother about keeping warm then!! Off my soapbox now !!
Isabella.
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Traci .. I also have a very active 9 year old daughter. Awww, I know why you had to take your xanax and I'm sorry! I went through 7 years of charts, fertility drugs, temp taking before they decided I needed prometrium because my progesterone level was too low to sustain a pregnancy. In other words a couple of my weird periods which were often off schedule could have been very early miscarriages. I remember how I felt everytime a sister or a stranger got pregnant. It Sucked! But now I have a two year old and 9 year old who are the light of my life but they do take a lot of energy! They're fighting as I type this! lol
guggerty, that REALLY Sucks!
Laura, OMG, that was Hilarious!!!!!
Isabella, I guess it will be best to go to the doctor just to relieve my mind if this pain keeps up. I had a baseline dexascan and was low normal .. just on the edge of osteopenia. That was before my ooph and having had that done could have pushed me over that edge. Tamoxifen is supposed to be better for the bones than AI's so I was hoping it might balance out! I was dx'd with Fibromyalgia 20 years ago, and it's been a long battle of trying to find the right combo of meds/exercise and lifestyle .. getting pregnant was the best thing for making the pain go away! lol I have noticed a lot of women here with Fibro dx'd after chemo .. I think there's something to the poor immune system connection to it. Did that make sense? lol I may have to switch to Lyrica. I'm going to see how I do with the warmer weather coming and getting out to walk more! It's nice to know I'm not the only one whose mind is away with the fairies! It Sucks!!!
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Hi Angel,
I am a grammar and spelling fanatic. I find myself typing the wrong words all the time. If I am thinking ahead, I may type the word I am thinking of instead of the word I need to type.
Worked outside in the garden today. I am supposed to wear gloves but I did not and got into some poison ivy on my Lymph node arm. Great! I don't want to get LE.
I ordered a pretty medic alert bracelet for my left arm (no BP/needlesticks). I ordered from a mastectomy store in Nashville. They told me it would be 1 week for it to arrive. Well Monday was 2 weeks so I called the store. They said now I deal directly with the company. I called the company. It has been two days and no call. I am calling the mastectomy store tomorrow and let them know they have 48 hours to get me the bracelet or a viable answer or I call the credit card company to contest the charge. This was no cheap bracelet. ($79).
Don't get me started about gas prices. My husband drives a diesel and diesel takes less refining that gas so why the hell does it cost 40 cents a gallon more? I lived in Lafayette, LA (1985) when they capped all the oil wells and watched the town dry up. People lost their jobs, homes, everything. So we could buy oil from the Middle East. Hmmm....sounds familiar...watched factory after factory close here in TN so we could buy from China.
Debbie
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Guggerty. DO NOT take this c**p from your radiation centre. I had all this trouble, and more, the lies, more lies, and damned lies I used to get from them....AND the stories about breakdowns...and maintainance, have they tried that with you yet ? believe me , they will !! There were 10 machines , but always 'my' machine seemed to be down for 'maintainance', and no-one ever rang to stop me making the trip.
I was working thru rads, so every second counted. I needed to get back home to work. I was booked in at 12 everyday, I worked round taking 2 hours off, was there at 11.50, ready to go, and even though they had my 'phone no. they would not ring.
I got a very stroppy madam , only a receptionist, who was in charge of all this shambles, and I got so fed up after about a week of this dancing around. I just went up to her, tore a strip off her in front of the other patients, who were also complaining, but not doing anything, and told her in future I would NOT be leaving my house until an hour before they would be ready for me, I did this for the rest of my rads, I would ring in, sometimes 3 times, but wouldn't leave home until I knew I was going to be treated. I also very loudly told anyone and everyone in the waiting room each time I was there that they should ring first before their treatment.
I am usually a calm, get your head down and get on with it, type of person, but the bc experience has taught me to be as rude as a lot of the people who were supposed to be looking after me were. I have had more arguments in the 2 years I was in treatment than in I have ever had in the rest of my life, MAINLY in Rads.
I had one real humdinger with the radiologist who told me I WAS having tattoos, on my chest, (she was a prize cow!!) I just flatly refused, I didn't want permanent marks, end of story. She took a bit of sorting out, but its something you don't need when you're fragile enough with this awful diagnosis.
Don't le 'em win you.
Isabella.
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Bitches aside, this is a hysterical thread.
Laura...lol....I'm sorry you have to look at my face everytime you click on this thread~!!!!! LMAO!!!!!
Mine jumps to the last thread I read so, that doesn't happen to me!
Congrats on the babies Charlene.
Boy, I am thankful I did not have to do rads. (((((((hugs))))))))
Debbie, my boss is a grammer fanatic. When I first got this job he corrected me on a sentence and said something like "you can't do that because that word is a preposition." I had to look up the definition of preposition!
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I am also glad that I didn't have to get rads!!
Angel, I have also been having some pains on and off, but I am too scared to go get them checked out! My last episode was earlier this week, but I remembered that 2 weeks ago, I decided to flip our mattress over... BIG MISTAKE! It fell against me, and I think that is where my last back ache and leg pain came from... Oh, I mean, that is from where it came!!
Traci, that was a preposition!! But, doesn't is sound stupid to say FROM WHERE IT CAME!... WTF?
Harley
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Debbie, I've always been a spelling fanatic too ... I can't even think about grammar now! That's ridiculous about the medic alert bracelet and the poor service you've been getting. Don't you hate how Everything has to be a hassle!!
Isabella, you go girl!
Traci, I agree, what a great idea for a much needed thread!
Harley, oh no, mattresses are quite heavy! I bet that is where your pain came from! LOL about the preposition lesson! I won't remember it as soon as I leave this thread!
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I can't remember what I've read when you write it and I have to keep rolling back up to read it again or I don't know what I'm reading or writing about. GAWD. Plus, how do you do spell check when you are writing here? I actually had to run around to find a dictionary the other day but someone stole it. And that sucks too. So I spelled a word wrong and had to edit which we now know is not a suspicious act with this crowd since we are typomanics.
Hey Issy...you are from York in the U.K. Know how I know? Cause you spell center "centre". Ah Hah! AND you are introducing me to other new Britishly oriented phraseology. Such as...a "stroppy madam" who you tore a "strip" off of. Ah, of which you tore off a strip that is. So, what is that? I want to use it around here.
So, about the rads place....tell them you heard from someone whose rads center had to close for the 4th of July 9 years ago, hence their treatment was missed two days plus the weekend. Then, unfortunately, their cancer did recur 9 years later! Tell them that and see if they won't shape up. Or tear a strip off of somebody stroppy. Humphf.
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HannaB- Just use the ABC with the check mark at the top of the post. Or add google tool bar to your PC, it has spell check. Really helpful for all kinds of forms.
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Maryl Thank You! See, if this complaining thread wasn't here..I'd never have learned this.
...Hanna 0 -
My bitch today is minor compared to what many of your are going through. I had chemo, even though I told people it was doable, it was the worst thing I have ever had to do in my life. 3 years later Im still suffering from the effects of it. Actually I think that alot of my problems are post chemo related. Be it memory, neuropathy, immune system totally out of whack, hair not the same texture or thickness. Geez I could go on and on.
I didnt need RADS cause at the time they felt a bilateral mast would take care of things - so of course that always weighs heavy on my mind now.
Went shopping for a pair of blue jeans yesterday. Hard to find a pair as my stomach is so big, compared to my other proportions. What fit at the waste look baggy everywhere else. After walking almost 2 miles in the mall, I finially found a pair. Of course by then I was sweating from head to foot. My hair looked like I just washed it.
I had my ovaries out in addition to my chemo. As a result I feel like I have the monster version of chemobrain. Sometimes I just stare into space and cant remember what I was thinking 10 seconds earlier. I cant read a thread without taking notes!
Im working so hard and so many hours now, I hardly have any computer time.
Husband went shopping and forgot my creamer so Im drinking my coffee black - which I know some like it that way, but a girl should be able to enjoy her morning coffee the way she likes it.
Its gonna snow and sleet here in Chicago again. Where is Spring. I think its hiding.
So I guess Im grumpy today? Need to run to the showers and put on a happy face.
Nickster
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Hey
Its good to see everyone is up and running today.
Nicki, Feel the same way. Chemo destroyed my body. MY immune system has never been the same. Hair is someone elses. It took 2 years after chemo for the hair dye to take. What is that about ?????? Joint pain from arimidex so bad . I use to get up 15min earlier just to be able to get out of bed for work. I stopped taking and there is still some hip and knee pain . Now onc saying that will never go away. Thanks !!!!!!!!
I don't give a **** about the spelling errors or grammer errors .
I forget words.
I forget numbers.
I forget what I was going to say all the time.
That scares me more than any thing......
And I'm 4 years out . What's next..........
I'm sorry tto all of you who want to spell correctly and grammer matters but it would take me 2 hours just to write a couple of lines.
Isabella-- I use to be and x-ray tech and rad's dept use to be down the hall from us . Back then people use to get in trouble for not doing there job. What happen to that .. Has everyone lost there compassion in the health care ind. Sorry
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Thank god you guys are here.
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Carlin .. no need to say sorry! I'm going to adopt the "I don't give a shit" adage about spelling and grammar eventually. I just worry about helping my young daughters! If I'm like this now at 43 what will I be like at 53 when my youngest is only 12?! Yes, I think a lot of people in the health care industry have lost their compassion .. if they ever had any to begin with! My sister who is an RN see so many who are in it simply for the money. It's understandable to want a good paying job but there should be some criteria for compassion when hiring for them!
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Just when I received good news yesterday that my latest biopsy was B9, we get a phone call that my sil has been diagnosed with transverse myelitis. She will likely be paralyzed now. Two kids, one in highschool one in grade 8. She was so supportive of me when I was going through surgery, chemo etc... Life just sucks sometimes!!
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Laura,
I'm still laughing at your post from yesterday. That was one of the funniest things I've read in a long time - although it sucks that you aren't being sent to the last post you read...
Today's gripe for me is: STUPID freaking questions! I've gotten some hum-dingers in the last few hours via email - like an author I'm working with asking about a slant for a restaurant review (what?!? it's a freaking review! just tell me what the heck you ate and how it was!). I just stopped answering the emails hoping the folks who sent them will get the message...
Another is: SALES CALLS! I've gotten three this morning already! Don't they think I'd have called them if I needed pens, a new energy provider, more business credit or anything like that?!? Gheesh! Lose my number already...
Kiki, sucks to hear about your sil...
Edited to change all the "I'm sorry's" to "that SUCKS!"
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My bitch today is I have some kind of cold/sinus infection thing going on that has me coughing (often until I puke up anything I've eaten), and blowing my nose constantly.
Got 1 hour of sleep last night, am afraid to eat anything and feel like yuck. Told DH this is really unfair - I already have cancer, should get a pass on this other crap!
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Grrrrr.....OK....I need to bitch or I am going to explode!
My white counts are low, they are still going to do my chemo today, but my doc wants me to think about using Neulasta. HELLO...I have mets in my bone marrow! There is some proof that Neulasta may "feed" bone mets. I don't think we WANT that to happen! Now I don't know what to do. The first time I was on chemo my counts were fine with Taxol, so I don't know if it is the avastin or the fact that my bone marrow is full of cancer and not working right that my white counts are down. I HATE it when you have 2 choices and neither is good....maybe feed my cancer, or have my white counts too low for chemo..
CANCER SUCKS!!!
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