Im bitchy, I moan, I groan.....anyway.
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ok... someone asked me if my trip to Cocoa beach was this weekend... yes, it is! We are leaving on Friday, early in the a.m., and will return on Monday.
Otter,
Glad that your situation with the LE sleeve and gauntlet is getting worked out.
Traci,
I'm glad to hear that your sister's scan was all clear!! YIPPEE!!
Today, I have to clean up a bit, since we have a friend stopping by to check on the cats while we are away. But, I am so very tired! Well, doing laundry, too, so I gotta go!!
Harley
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This is an SOI of the best kind! I ordered some new jeans online because I lost so much weight I didn't realize they were too big. I got my pants today and put them on, they look great!!!! I can even wear these stupid binders they are making me wear to keep my pain pump from moving with them on. I have to admit over the last 6 years I had picked up quite a bit of weight. Almost 3 years ago I decided enough was enough and started walking and changing eating patterns to lose weight. Well I have officially dropped 3 pants sizes since I started this!!! WOOHOO!!!! Look out Vegas I am coming and looking damn good if I do say so myself! LOL
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You go girl!!
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Chicken Poop for the BC Survivor...I like it.
Thanks for the good wishes for me and mine. Went to the onc yesterday - I really, really liked her. Very collaborative in her approach. She's concerned because of how the LCIS presented - not as an incidental finding, rather as a nodule. She is requesting the slides be sent to her & she will have path done on them. It could very easily be a fibroadenoma with LCIS in it
or something else 
. In any case, her rec is to get it out. So, the visit to the surgeon is on for tomorrow. (that's the IOS).The SOI: The onc doesn't think anything that is in my health history contra-indicates tamoxifen, but she doesn't want to get ahead of herself & says we'll talk more after surgery. Unlike Dr Doom-and-Gloom, she believes that you give it a go, and if there are problems you stop. Common sense prevails.
My husband is looking forward to the visit to the surgeon so that he can ask "hypothetical" questions about recovery and care of a mid-70's woman getting colon resection at the same time her 80 yo husband has a compound fracture in his back. Same surgeon is operating on MIL on Saturday morning. Nothing like keeping all the suckiness in the family.
Bleh. Anyway, I will go and consider my good fortune while helping out at the school district clothing bank this evening.
take care all
Pam
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Sounds like things are turning around for so many today! Trips to fun places, I'm envious! Have fun for me too, please? Take a lot of pictures, b/c we'll be living vicariously through them when you return!
LuAnn, especially nice to hear your ds is excited to be coming home (although I'm sorry he'll be doing a turn in afgan,
So sorry)Harley, you go girl! And it was me asking if it was this weekend! Surely have a riot!
For and OIS/IOS combo...I got a job. Small one, starting at a banquet hall that does sorority/frat parties, weddings/receptions and other catered parties. Sounds like fun and a good way to get back into work slowly. Kind of a push to see what I am wanting to do. Maybe do some networking while I'm at it
Part X to start, so that's exciting. Don't start till the 10th, so have time to get a new boob before that! What a fear....Lose a boob at frat party! OH MY! LOLAnyway...have a great evening ladies! Dh came home early this week, so that's been a nice SOI for the week too! Whooohooo!
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Yes, popping in to mark my spot! Its late, read all of the posts - laughed really hard at some of them, a big that sucks to others. Hi to all the new people, this is the place to come cause ya can talk about just anything.
Nicki - Hope to catch up in the morning.
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Wish,
Glad that you got a job!! Great news!I quit the dress shop, and went to sign up at the temp. agency today. I'll be starting around the 10th also!!
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Marking my spot, Bonnie and I both get taxol tomorrow, but I get herceptin also. Only 4 more after tomorrow... Then PAH TEE time...!!!!!!!
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Hi there. Marking my spot, busy getting ready to spread my wings and fly on Sunday......SOI... but I liked the poopsicle tooo....
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Hi Y'all,
I will be getting Taxol tomorrow too...well if my blood counts are up enough. I'm a little nervous about Taxol. I made it through A/C, so I can do this right? LuAnn I have my dark nail polish and I'm not afraid to use it. So glad to hear your son is coming home - even if he has to leave again - it will be great for you to see him.
Still feeling crappy and nauseous. I'll be glad to get over this bump in the road.
All you "Vegas gals" have a wonderful time for yourselves and all of us who wish we were with you.
A hearty THAT SUCKS! to all who need it.
~Bliss
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WhaSux?!?
Pam - We'll continue to hope for good news for you.
For me, still the Neupogen pain, but my SOI is that tomorrow is my LAST CHEMO!!!! WHOOOOHOOOO!!!!! Done, nada, zip, no mo'!!!!
Hope everybody has fun in Vegas!!
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morning ladies!!
My IOS--worked 10 hours yesterday and then had to finish paperwork when I got home for almost 2 hours and I didn't even get to turn my computer on!
I have my bone scans today, and have to stop by work on my way, so not much time to do more than say hey and THAT SUCKS to all with pain, fatigue, pending surgeries and ill MIL's and FIL's! Good luck to all getting chemo today.....may it all go smoothly with minimal se's.....and special WOOOHOOOO to Cristine--last chemo!! Great news LuAnn (ds and wt loss) and Traci (sis' scan) and Wish (new job)!
Wishing everyone a SOI filled day!
Sherri
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Ditto on the hoping for SOI's for today!
Good thoughts for those going for treatments and ......
Count down for those getting away this weekend with hubbies and without!
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UGH...
THAT SUCKS! to all who need it.
I've spent the last several days in bed. I don't know why, but the last TAXOL/AVASTIN has knocked me on my a$$. I'm in a lot of pain and just feel so week. I slept at least 20 hours yesterday. Anybody have any nutritional advice to help me gain back some energy? I've tried to make sure I get plenty of protein, but am afraid I've negated any benefit from that by drinking copious amounts of the orange juice I have been craving.This really makes no sense to me...I had hardly any s/e's with the first 2 and now it seems I've been hit with them all.
My hair can't decide if it's letting loose or hanging on. I had planned to just whack it off this afternoon (if I can work up the energy), but I'm losing my nerve. OH, and lucky me....the frickin' constipation monster hit again this time--even with the preventative stuff I'd been doing. Ain't nothin' like a butthole on fire to make a girl feel special...
It's a gorgeous, breezy, lovely autumn day outside...sure hope I can get my $HI#@(#8 together and manage to enjoy some of it.
(((HUGS)))
Diane0 -
Hey, Diane...so sorry the Taxol is starting to catch up with you. Like most chemos, its effects are cumulative. I found it much easier than A/C, but still, as treatments progressed, it did make me more weak and there was a longer period to get back on my feet. Are you getting neulasta? That could also be what your bone pain is from. I would get bone pain after Taxol, however, but it usually only lasted half a day and Advil took care of it. Have they given you any pain meds? I don't have any suggestions regarding regaining your strength. My docs kept telling me try to exercise, but I found that difficult. I guess some people are able to keep going...I wasn't one of them. I, like you, slept. I ate like a horse and that didn't seem to provide added energy.
With regard to the constipation, what finally worked for me was drinking a couple tablespoons of molasses in a small glass of warm water before bedtime. It tastes terrible, and I would dry-heave to get it down sometimes, but it worked.
Good luck to you as you trudge through this.
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Diane, At least I know why you haven't been answering your phone. I would have posted this on the mets board but haven't been there yet and don't know if you posted this. Anyway, sounds like you are getting tx once every three weeks. The weekly dose is supposed to be alot easier to tolerate for us long termers because it is less poision at one time. I do take B6 every day, I had stopped it for awhile because I thought it was causing another problem and I drug to the ground so try some B6 or super B complex. Both will give you energy and the B complex will help ease stress. As far as the hair don't chop it til you have to. If your energy gets too low just remember the steroids will bring you back up. Also, could you be having a steriod crash with the steroids from tx. Anyway, I would ask on the mets board which is easier or every 3 weeks and then talk to the onc.
As for all those getting chemo today a Big THAT SUCKS! I have herceptin tomorrow but I just consider that a blip and inconvience in my day that is keeping me alive.
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((((((((((((Diane)))))))))))))) Girl, you brought back vivid memories for me....I can remember sleeping 20 hours in a day like it was yesterday. So, so sorry. It does suck. I gotta tell you though, aside from the pain I was having from that beast Taxotere which was almost debilitating....at times, I enjoyed the sleeping and being lazy part.
Before cancer, I was self employeed and worked my *ss off. For 10 years, the longest break I had was for 10 days and that was when I went to stay with my 'lil sis when her chemo was getting bad and she needed help!! Other than that, I would steal away for a long weekend once a year. I can remember laying in bed for the 20th hour thinking....why did I have to get cancer in order to get rest??? I'm convinced that the stress from those 10 years of working 60 - 70 hour weeks contributed to my cancer.
Sleep on sister!!!
Regarding the constipation...let me introduce you to what my other sis who had cervical cancer calls...."diahrea (sp?) cocktail". She was so constipated after her hyst...it was really bad...my Onc told me to drink Milk of Magnesia and Prune Juice over ice and sip it like a cocktail. Well let me tell you....that works. And, it works fast and...it doesn't taste that bad! I gave my sis some and she was relieved within about 20 minutes. Honest. She was so happy. Constipation sucks.
Love ya girl. Sorry you are going through this.
Hugs, Traci
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Big Hardy, THAT SUX Diane. Many {{gentle hugs}} dear lady. Hope you find some comfort and more energy soon, so you can energy the beautiful autumn day as you'd like
It's raining here, but we need it, so I'm not complaining. Bur the cold is reminding what's to follow down the road...not like that thought
Hope your Thursdays pick up you with treatments and aches and pains, worries and what nots! Remember you are in prayers and thoughts today!
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Milk of Magnesia and Prune Juice? sounds like somethinng you give someone you don't like! Ucky poo! don't know which I dislike more. But if it works in that condition, I'd be drinking it too! Much as I hate them both!
Try it, you'll like it! HATE that comment too! LOL
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LOL@ "diarrhea cocktail! Not sure I could stomach it, but if I get desperate...
I'm getting weekly TAXOL, AVASTIN every two weeks..then one week off. This is my week off. Considering that I had the allergic reaction to the last TAXOL and how badly I feel right now as compared to the first two tx, I'm really wondering if there was some sort of dosage mixup. (I've had just enough medical mistakes in my hx that it does seem like a real possibility to me). I only get the steroids in the IV right before the infusion--seems like that crash was happening within a day or two of the infusion before. My counts haven't been a problem up to this point, so no NEULASTA or NEUPOGEN for me yet. Next week, I'll be starting ABRAXANE in place of the TAXOL--not sure if I'll have any pre-meds with that?? Maybe my body just got worn out fighting the allergic reaction.
I've been sitting here for the last hour, debating whether or not I should just chop my hair off. I've had it in a ponytail since yesterday (slept that way too) and haven't checked to see how much is falling today. That's me...big scaredy-cat! My dh is on deck, ready to buzz it after I take most of the length off with scissors. His resistance to the idea isn't helping.
I think I'll go see if I can find some paper umbrellas for my poop coctail!
)(((HUGS)))
Diane0 -
oh Diane......((((((((((((((((((((((((((((((((((hugs)))))))))))))))))))))))))))))))))) I hated that part....I never cut mine. I was hoping that it all wouldn't fall out.......gawd that sucks.......0
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Diane, don't cut it if you are going on abraxane, I don't think you lose your hair on that one so maybe you will just get a good thinning and luck out and still have hair. Your hubby is so supportive, that is so nice you make me so JEALOUS! All I have is this house full of monsters for support. They will run around again and call me names like Stone Cold, he was a bald wrestler at the time I was bald. LOL
I hope everyone is having a good day, so far so good for me. I'm still having pain sitting but I have another pain pump adjustment tomorrow, hopefully that will be enough to make me comfortable sitting. If not I pity the person that is going to be sitting next to me on the airplane this weekend LOL
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Diane--that just so SUCKS. I've not been on Taxol or Abraxane so don't have any input as far as that goes, but will pray for you that your se's are resolved ASAP!!
LuAnn--hoping and praying your pain pump adjustment works for you....Pain SUCKS!!!
Now for my crap! I had my rib x-rays and bone scan today...and the only thing significant about the bone scan was the tech asking me if I'd done something to my feet (WTF?) and did they hurt....I told her they hurt sometimes after I walk on the treadmill, to which she just respondeed "oh". No explanation of course.
But the thing that is really bothering me is my x-rays...that tech let me see one of them afterward, and the bottom third of my left lung was white!!! She had prefaced my looking at it with "I can let you look at it but I'm not allowed to comment" so I didn't bother asking her anything. I have felt like sh!t since my last tx three weeks ago, and have complained about shortness of breath for at least the last two tx, but the only response I've gotten is "you're not anemic enough to be short of breath". So, I've spent the afternoon online looking at x-rays and imagining the worst--I hate it when I do that but can't help myself.
I plan on calling my onc tomorrow afternoon and seeing if they have a report yet. Surely the radiologist will look at my lung and not just at the ribs, which is what the order was for!! Wouldn't you think?
Cancer just sucks.
Love you all,
Sherri
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Diane - hugs to you, hon! Having to debate over whether or not to cut your hair sucks big time. This whole freaking disesase sucks - but you already know that...
Sherri, sorry you've having post-scanxiety. You think that someone would have figured out by now that waiting - especially when you have access to WebMD - can be hazarous to your health. I hope you get some answers about your lung and your rib from your onc tomorrow...
And a hearty that sucks to everyone I missed. Now listen to my sh*t:
First some background: when my ex idiot(husband) stopped paying child support about five years ago after he became "too injured" to work, it took two years of running to and from family court to get him to pay SOMEthing, which was the whopping $50 per month state minimum. After about six months, SSDI for my child began - not a lot, but it helped, as pre-teen kids grow fast and practically need new wardrobes/shoes every freaking sesason...
About a month ago, he told my son (for some strange reason) that he wouldn't be able to see him for the child's birthday
because he was working. I'm pretty sure he was working under the table for a while, but perhaps this time is on the books. How much do you want to bet that his job has made his SSDI stop? I had to insist on a paper check instead of direct deposit (a little gun-shy after those two years of non-payment; I need to know if/when he defaults) and it is usually here by the first. Still not here today, either. Sigh...I'm so sick of his crap! I divorced his sorry a$$ so I wouldn't have to deal with his irresponsibility and here I am, right back in the middle of it, it seems. I hate court and the idea that I have to spend time drafting violation petitions, running to the county seat to file them, paying someone to serve him, then spend half days in court to FORCE this chucklehead to do the right thing. It is truly pathetic that a 42-yr-old man can act like such a kid all the time. GRRR! I cannot believed I ever thought I loved something so vile. If it were not for my son, I'd wish I never met him...
This is causing me to feel so out of control emotionally - so much so that I am on the verge of tears from all this stuff. I hate feeling like this. Gawd! He makes me sooo daggone SICK! (Insert blood curdling scream here)...
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Felicia, that is terrible. I know alot of people that have troubles like that. One of my friends actually got a check for $0.37 from the child support agency because that was all they were able to collect from her ex's wages during that period. It cost them more to cut the check and mail it, was absolutely ridiculous! I do know she framed that check instead of cashing it and hung it in her kitchen where he would see it pciking up his son. I am so glad I never had that problem in my life.
Sherri, sometimes it irks me when they let you look at pictures of your scans yet won't tell you anything. I have one guy I love it when he does my scans. He goes so far as to explain technical things to me but if anyone ever asks me he doesn't even talk to me during scans! I love it when he is doing scans. Having said that, have you ever hand pneumonia, that could possibly leave a scar and that white spot on the xray. Besides, if it is anything really bad they would call you ASAP. When it is bad news they have to call the doc within 24 hours, usually faster than that so the doc can consult the patient and get further testing or tx started ASAP.
It is girly night in my house, my daughter came home from college again tonight and we (her and my DIL and myself) are dying our hair. We will take turns and do each others. I haven't done my red in so long that my normal dark brown almost black hair is back and I love my red hair! Guess we will do that while the debates are on.
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Girl nights and days are always so much fun! Enjoy them ladies! Miss my girl times...they are too few and far between the older they get!
Felicia, so sorry you are dealing with that. We had the opposite problem as it was dh's ex who dh had money taken out of his check for. Well, we got custody of dd when she was 5 till about 13. Her mother (in talking with dh) wanted dh to continue to make payments which she said she'd put into an account for dd! HA! It never occured to her that we 'could' have asked her to pay child support, but luckily I was making enough to offset anything we had added to expenses from having her. Its simply amazing how few parents make those payment without attaching 'holds' of some sort and causing problems. I gave my brother a hug once when I found out that even though he had 1/2 custody of his kids (every other week) he still paid her 40% of his income. What a guy. Wish you had one like him.
Okay...IOS's...leave our girls be and BRING ON THE OIS!
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Chemo sucks, losing your hair from chemo sucks, and not being sure whether to cut your hair in preparation for losing your hair sucks even worse!
x-rays and scans, being shown them but not given an explanation SUCKS!! I know I'd be on the internet, looking at pics of a healthy lung and a sick lung, just to compare... THAT REALLY SUCKS! My tech who did my u/s of my breast lump last week was very nice, but she wouldn't tell me anything. She talked to me, and I looked at the screen, but I didn't know what I was looking at... I remember thinking, "I don't know if this looks BAD!, or if this looks normal." I go back to see my surgeon on Tuesday, so I'll find out then.
Deadbeat ex-husbands who don't pay child support SUCK!!!
Hope everyone has a suck free day tomorrow and a wonderful weekend! I'll be in Cocoa Beach!!
See ya later, alligator!!
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Well, when I went to take that ponytail out this afternoon, I came back with a handfull of hair. ICK. I decided to put it up into a couple of ponytails and just whack it off before I went to pick the kids up from school...dh finished the job by buzzing it tonight. I am SO glad that, even though my head is GINORMOUS, it isn't particularly square, dented, or weird looking. Here's a pic my son snapped with his cell phone. I tried to lighten it up a little, but it just made it look blurry.
My poor dog couldn't figure out what was going on and the cats are looking at me weird. I'm really feeling much better about it than I expected....I guess those handfulls of hair this afternoon freaked me out more than this!
((((HUGS)))
Diane
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Wow, I don't come online for three days and you guys have lots of SOIs!!!
Diane, big hugs and prayers to feel better soon. And glad the whole hair thing is over, that was the hardest part for me, too. Once it's off, it's so much easier!! LuAnn, hope your pain pump adjustment works and you can sit on the plane and have great fun in Vegas!!! WIIN MONEY!!!!!
Felicia, what a cowardly joke of a man....so sorry you have to deal with that! I can relate to the whole feeling out of control from someone else's shit...it gets old, and frustrating, and heartbreaking when you kids are involved. Hope you get some satisfaction soon. Meanwhile. hugs to you and KEEP FIGHTING!!!
Nicki, I LOVE your pictures.
Harley, hope you have fun in Cocoa Beach....I would love to vacation where you live!!!
Sherri, sorry for your scanxiety--keep us posted. Techs who show you pictures but won't talk to you SUCK!! Why show you if they won't say anything about it--just want you to have something to worry about?!?!? NOBODY who hasn't been there can understand just how terrifying that is. Hugs and prayers that you will get a good answer, and SOON!!!!
No major suckiness for me, just fatigue, and a radiation burn..One of my rad techs is just a little ditzy. Today I told her when I sneeze my ribs and lung hurt on that side. She said, "When that happens to me, I usually have pulled a muscle." I said, "Well, I attributed it to the radiation!"
Only 6 more to go!!!!
Hope everyone has a good rest of the week!!
Love,
Sue
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