Im bitchy, I moan, I groan.....anyway.
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Hey sweet peeps!
I am back from my practice run of gambling in Biloxi b4 we go to vegas.
I am making myself sit down and read everyone's posts while I was gone. I kinda scanned them, but will drink in all the suckiness tomorrow.
Diane, I did see your post about the hair coming out down south! Before any of my head hair started shedding, I was taking a bath and notice weird stuff floating in the water...yep, all the curly ones were coming out like crazy! This was days b4 my head started losing it.
Last week in Biloxi, on my birthday, for heavens sake, I coughed...just a little tickle in the throat kinda cough, and my flippin' rib broke for the....let's see....the FIFTH time in 1 1/2 years. For those of you that don't know, I have a very pesky rib met that won't give up, even after radiating it two different rounds. My BIG IOS right now. I am just resting alot....cause I am getting on that plane next weekend and go to Vegas. So those of you going to vegas, no hard hugging on me...lol. Squeeze the heck out of my neck...avoid the ribs.
Hugs,
Bethie (aus)
Hugs for all that sux!!!
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HI and HUGS for everyone. I have 5 more weekly taxol and herceptin to go, then a surgical decision. And how long can I wait - have it over with before Thanksgiving? and too hard to get away from the commercialism of the upcoming holidays. Christmas cards and decorations are out in the stores - ugh !!
Then the inundation of pink and ribbons with BC awareness month. I dont hate pink, but I do hate the constant reminders.
Also, I cannot remember each individual IOS, and I give a loud THAT SUX for those who need it.
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My OIS is that my friend said that she would give me the contents of her coin jar. The first coin jar was $100 and I spent it on things for the trip. Yesterday she gave the other two jars worth in american funds. And it was twice as much as she said it would be. And other friends gave me money too. I have difficulty with letting people give me money. I have never felt so rich.... All I have to do is pack and go... Wow. And I promised that I would spend it on myself but I do have a list of people to bring thank you gifts to.
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Dream: if these people gave you a gift item, would you feel the same? Some people don't know what to give, so money is the universal gift. It sounds like your friends want you to have a good time and this is their way of helping you do it. It IS hard to accept gifts and money and the best thing is a big Thanks. Go, enjoy, have fun and be grateful for such thoughtful friends.
How I wish I could join you all in Vegas, but with weekly tx, I am afraid to be away from my home base. MY luck, I would end up with some weird reaction and ..... They also took out the non stop flight, so it would mean changing planes and too long to get there. My son and I spent 2 Christmas's in Vegas after my husband died. Neither of us wanted to put up a tree or decorate and Vegas is so glitsy, it all seemed normal and not as hard to deal with the holiday.
Marking my spot and THAT SUCKS as needed. Hugs, Nancy
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Morning! Other than the fact that I seem to have lost all temperature control--I'm either freezing or burning up/sweating like a pig--I am IOS free todoay.
I'm off to see the Rad Onc for the first time this morning (well, not really first--I met him when I met my "team" at the cancer center when I was first dx, lo, those many months ago :-), so I don't have much time, but I have read every post, and a big THAT SUCKS to all in need--from constipated cats, to LE and ill fitting sleeves that they won't give a refund for, to DIL's who won't do what they're supposed to be doing, to waiting for scan results for self or sisters, to anything in between that I may have missed.
Oh, and Wish--I closed a business last fall, and have several keyboards--two for PC's and two for Mac's that are just sitting in my garage--would be happy to send you one! PM me if you'd like one!
Gotta run, God forbid I should be late for sitting and waiting in the waiting room (HMMMMM never thought of that before....guess there's a reason they call it the waiting room.......
Love ya all,
Sherri
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My IOS for the day...
Meeting with an oncologist for the first time since last year. We'll be talking about the latest LCIS dx as well as any risk from having DCIS last year and the adenomyosis hanging out in my uterus. I'm nauseated and out of sorts. Thursday I see the surgeon.
The inlaws are a disaster. MIL will have her colon resection on Saturday morning. The surgeon (same one I see) ordinarily doesn't do surgery on Saturdays, but felt it critical to get this done. She will be in hospital at least 5 days.
FIL was persuaded to see a neurosurgeon about the compression fracture in his back (poop story: he didn't want to see the Dr today because he can't go due to painkillers - he's popping laxatives and doesn't want to um, let 'er rip, while seeing the dr). Turns out that the fall happened last Saturday morning & he went to see the chiropractor who diagnosed a soft tissue injury. Thank god they finally called us and submitted to the ER late Sat. afternoon. We don't know what they'll do in a week as FIL won't be able to take care of MIL as was planned. My husband had his business travel moved up to this Monday, which throws another spanner in the hole. So happy his sister is close by and is dealing with all of it, too.
I hope cat issues are due to easily-cured infection or a change of food. Computer issues are resolved, DILs get their butts in gear, and plenty of fun and winnings happen in Vegas.
Pam
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When I re-read my last post I realized that I forgot to reverse the IOS to SOI. I know a gift when I see one. I feel funny about receiving cash gifts because I am afraid of becoming a charity. These gifts are specific to my trip so dont have that charity feeling about them. And I am grateful.
I do hope the cat issues are resolved. Mine is following me from room to room. She is a radar sensing feline. She will not rest unless she is in same room. I fear she is missing her brother. She is lonely. Daughter is working on getting another cat.
My IOS is that I am sleepy and in pain. I have cut down my pain meds because they were knocking me out. But now I am in pain which is localized. And it is making me nauseaus... perhaps I can fall asleep while on the toilet with a bucket in my arms..... I cannot get sick now it is Vegas on Sunday
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Would you all quit getting sick! My grandson woke up sick, he had puked and had diahreaha while in bed last night. Needless to say his bed has been stripped and lysoled down. He seems fine but last thing I need is a pukey bug. We will be alot of fun in Vegas all pukey walking around with buckets LOL
Pam, you got it tough right now. In the midst of everything I hope your onc appt goes well.
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hi ladies, a big that sux to anyone who needs it...no IOS to report today but rather an SOI
Hearing from an old friend you had lost touch with and just laughing your arse off catching up on all the crap that's happened since you last talked. That's the best.
individual notes to be made at a later date
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Hi Y'all,
I'm reading but not posting. I feel like poo on a stick. My blood counts are still in the basement, and I don't know if I will get to have chemo Thursday or not.
Everyone going to Vegas have a fabulous time.
A big THAT SUCKS to all who need it.
~Bliss
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BIG SUX to all you in the SICK mode! Dang, is winter here already with this flu starting around? Please take care ladies! REst, drink lots and darn it. Take the pills if you have them and need them! That's what they are for ladies!
Prayers, and {{hugs}} to each that you are feeling much, much better by morning!
so sorry you're all feeling bad 0 -
Bliss I have never heard of poo on a stick and the picture in my mind is just worse! LOL I hope you feel better soon.
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Bliss: Going through treatment, low blood counts, wondering if you will get your next chemo or not deserves a big that sucks.
Bonnie: Much happiness for you as laughter is so good for us.
LuAnn: Hoping that stomach bug is the type that only affects children - if there is such a thing.
Dreamer: The gift of friendship. Something to be treasured and it seems like you are surrounded by some wonderful friends. Gifts from their hearts.
Pam: Life is sounding a little stressed? Sounds like your hands are full. Being caregivers for aging parents is hard and even though we love them dearly, it sucks.
Sherri: Hoping that appointment with the Rad Onc went well. Yuck!
No IOS for me today. Hi to those I missed.
Nicki
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Howdy and a hearty "That sucks!" to everyone. Sorry for all the folks who aren't feeling well. Have fun in Vegas to all who are heading out to Sin City...
My IOS is my daggone left (phrophy) boob. I've had this weird burning sensation (no pain, lumps, bumps or discoloration though) since last night. It isn't hot, cold, softer or harder than usual. Looks great in shape, projection and symmetry since the IGAP, unlike its radiated and slightly smaller twin. What the hell could it be a year+ after surgery? My PS is an hour away and I can't just up and drop in (blast that nagging need to eat on a regular basis known as work). I feel kind of stupid even calling to tell him about it, sort of like at the mechanic when you describe the weird noise that is coming from under the hood that nobody but you can hear. I swear to goodness it is always something...
An SOI to report: I was interviewed for an article on reconstruction options and what the average PS doesn't always tell us for the NY Times. A photog is coming to take pics Thursday during karate. To gi or not to gi? That is the question...
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Felicia: You and I went through our original exchange surgeries, so I remember well all that you have been through...so having a burning sensation sucks big time. Hoping its not a big worry and definitely get to the PS office. Makes me realize I should schedule my f/u appointment which I cancelled March!!
Good news on the article. You are the perfect match for it.
Nicki
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Oh Nicki you made me laugh so hard!
~Bliss
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Hello all, sorry I have been remiss in reading and posting--it's fatigue, from the rads, and it is kicking my butt. Started working partial days, I come home and take a nap in the recliner every day. I still have bone pain from the chemo (either it's from the chemo or I need hip and knee replacements at 50!!!!!!!!!!!!)
So much suckiness! Otter, even mild LE and fitting issues suck. Wish, I think I know why your 'D' sticks
!!!! Harley, hope your test results are okay. And Traci's sister's. Waiting SUCKS. Luann, happy dance for your son coming home, thumbs down to your lazy dil. I think the advice about saying nothing was right on, let her deal with the consequences! Dreamer, good luck in vegas and don't get sick! Sounds like you have lots of people who love you.Off to walk, hoping movement and activity will help this bone pain finally resolve. Scans were all clean, but it just holding on worries me a little. And I have rib pain now from the rads, and my lung hurts when I cough or move too fast, I am just a whiny bag tonight!! Sorry!
Love you all for putting up with my whines,
Sue
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Hey! WhaSux??
I have had a fairly good day since it seems my illness is abating--fingers crossed for Vegas cuz I do NOT want to give anyone this virus as a souvenier!!! Took son to doc since he has been down 3 days with it (maybe my prophy acyclovere really IS working!) They said not strep & not mono but a virus & NOTHING to do but rest drink & wait it out----oh joy, Oh rapture!!!!!!!!
Nicki & Bliss- I have often heard "poop on a stick" but never saw it!!!! thanx for the belly laugh!
Everyone facing dx, tx & se's--a BIG that sux! One comforting truth about aches & pains following the end of tx---Unless it is making your head spin due to the stress of thinking of it, any ache or pain that lasts 2 weeks is reason to call the doc---so I ignore anything prior to 14 days & USUALLY whatever it is goes away b4 that magic day....... HUGS
my SOI----old bf was here this weekend & brought me about 5#'s of assorted dark chocolates for my bd (which he routinely misses-it was 7 months ago!) So dd & I had a feeding frenzy after dinner (which could also be considered my IOS of the day!! LOLOL)
Everyone be well & stay strong!
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LuAnn
Thanks for the warm wishes on my u/s results, I'll get them on Tues., but for now, I'm on pins and needles!
Have a great time in Vegas, all who are going!!
Dream,
That is great, having the money for your trip!!
Felicia,Congratulations on the article!! Wow! That is great! We have a celebrity among us!!
Sue,
Thanks! Hope you are feeling better soon!! Fatigue sucks! Bone pain & lung pain sucks!! You are NOT whining! Chemo really does a number on us, and it takes awhile before things start to feel back to normal. I am still wondering what is this NEW normal I keep hearing about...
Harley
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Harley is so right & I might add----THIS IS the place to whine if ya need to!!!!!
No guilt & no apologies allowed or the next one will feel SHE can't complain!!!!
A big THAT SUX & bigger HUGS to all!!!!!!
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Sue? U think the P caused the D to stick I C? I cleaned though, so it should B better, don't U think?
BIG SUX to the Bone and lung pains, waiting for everyone to get off their duffs (dil's, docs' and techs)and so ons....
Good thoughts and hoping you're all heathly for your trips this weekend! Harley, is your trip this weekend too?
Loved poopsicle!
Too funny!Hoping everyone gets a good night sleep and miraculously wake with NO IOS's and feeling chipper! Of course, if you here in michigan, you'll wake to cooler whether and yes, hardwood floors do make one Chipper very quickly! Brrrrrrrrrr lately!
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Hey, y'all, WhaSux?
Wow--cat pee, diarrhea, aching bones, broken ribs... We're a mess, alright.
Actually, I'm posting to confess that today was almost all SOI instead of IOS. (Did I get that right?)
For all my complaining about the ill-fitting LE sleeve and gauntlet, everything is going to be okay I think. I had an appt with my PT/LE therapist today, and she agreed the sleeve was too short. She loaned me a different sleeve that does fit. I will repay the loan by ordering an identical sleeve on-line and giving it to her at my next appt. She also referred me to a different med supply store that handles a brand of gauntlet and glove that are more likely to fit than the gauntlet I'm using now.
Later today I went back to the original med supply place, and the guy who fitted me with the wrong sleeve agreed it was too short and possibly too small. He ordered me a different one, and said to keep the one I had (the too-short one) until my new one comes in. He wants to try the new one on me to be sure it's right; if it isn't, he'll fit me for a custom sleeve. When my new sleeve comes in, I'm supposed to give the gently used (too-short) one to my therapist so she can let other LE patients try it on.
All that, and I didn't even have to threaten anybody!
otter
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Okay this is what REALLY sux - having to use a condom for MONTHS?? What's up with THAT?? And there are NO GOOD ALTERNATIVES???
I start my chemo on Thursday and have to take the first decadron pill tomorrow. BIG BREATH and a BIG THAT SUCKS!!!
Teena
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Marking my spot...THAT SUX!!!
You know what sucks? Neupogen pain.
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Morning everyone! Just popped in to read everyone's posts since yesterday and mark my spot...THAT SUCKS to all in need...will try to post more tonight.
Hope everyone has a IOS-free, SOI-filled day!
Sherri
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a big that sux to all who need it....
know what sux for me? GOING BACK FOR MORE TAXOL!!!!!!!!! uuuuuuugh! I hate it!
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o.k. That poo on a stick pic cracked me up too!!
Sue, Bliss, Cristine, (I wish I had my memory) everybody else in pain....I'm sorry....that really sucks.
Was there a Vegas thread on here or something?? I wanna go to Vegas....
Actually, I really don't right now cuz everything sucks.Well wait, not everything.... there was no malignancy and no new uptake on my sister's neck however, they have yet to give her the results of her ab scan. So, that sux but....great new on the neck!!
Who else was waiting on scan results?
Nikki, I can see your pics when I sign on here but not when the posts go into my email.
Sorry about the Taxol Bonnie.....(((((((((hugs))))))))))
Teena, what's a condom? Just kiddin'....but seriously, I haven't had sex in over a year you know what sux worst about that? It doesn't really bother me.
Otter.....LMAO!
Wish, your first sentence cracked me up!
One of these days I'm going to get everybody's permission to print all the posts and create a book. What kind of a name can we come up with that is opposite from "Chicken Soup for the Breast Cancer Patients Soul" (or whatever the name of that book is....not that I didn't like it....I'm so happy all the people in that book had such great attitudes!!!!)
Gotta get to work.
Hugs, Traci
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This is my first time posting on this thread, but have been reading it for a while.
What sux is Neupogen pain for me too, and sore throat (getting a cold?) with chemo tomorrow and a weekend of feeling crappy ahead of me. Whatsux is wondering if I'll ever feel really good again!
Sending a big THAT SUCKS to all of you with IOS.
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How about Chicken Poop for the breast cancer survivor
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Well my day is starting well, my son called and talked to me for a good 40 minutes. We don't usually get to talk much because his wife is home. He sounded so wonderful and really excited to be coming home. He knows another deployment is in his future for Afghanistan but doesn't care, he wants to be home and see his family and enjoy the creature comforts of the US again! Was really great.
Traci as for Vegas, this was something the girls in chat organized. I just happen to chat with some of them outside of chat and said I wanted to go. It is this weekend, Sun thru Thur if you can get away. All are welcome. On that note, I am almost ready to go to Vegas, just a few more days!!!!! WOOHOO!!!!!
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