Im bitchy, I moan, I groan.....anyway.
Comments
-
Lisa, I wish i could take care of your pups but don't let the funds stop you, go to the ER! You need to be seen and dx, especially if you have pressure on your brain. It could cost you far more in the long run if you don't go to the ER! I know I sound like ms moneybags which I'm not but heck I'll help with your co pay to get your but into the ER!
0 -
Oh, Lisa! How scary for you! I can tell you that my verbal ability declined markedly when I started tx--and at first it was only hormonals and ZOMETA. Now that I'm on chemo, it's getting even worse. My brain is clear of mets, so that's not it. I've had oncs tell me that it's stress, hormones, etc--but no one really has a clear answer.
Big ((((HUGS))) and prayers that the scans come back clear!
Diane
0 -
Lisa, I agree with LuAnn You need to get your butt to the ER ASAP!
0 -
Wow! Yes, make sure you get that out and now! I had one do that, it was popcorn or peanut shell thingy, we're not sure and it caused the whole sideo of the tooth (below the gum to decay or degenerate or what ever you call it. Probably more like the perio disgust that Lisa mentioned. Do NOT let it go, it doens't take long to break down that tooth dear heart!
LuAnn, it's been several months since chemo...I think I'm out of chances to blame that, just plain old CRS
But today...welll...today I can't remember even how to brush my teeth....long story, but it's been one very interesting morning and afternoon thus far.....learning all sorts of new things today...old things again i should say.0 -
((((((((((((((((((((Lisa)))))))))))))))))))))))))
I thought when I first started reading this that it was going to be a joke......
Why can't your freaking onc help you get an MRI today?????? It's Friday for crying out loud!!!
OMG..................I hate this f*ing disease!!!!!!!!!!!
0 -
Sorry, I was responding to an older post.
Lisa, who will look after your pups if you get worse from not getting this looked at now? You need to be seen, these don't sound like things that will go away on their own, but perhaps it's something more simple we aren't realizing. Only an MRI can probably say, but get it looked it!
Can't ear problems cause speech problems or is that just during the learning stage?
Please be seen Lisa!
0 -
I'm considering going, thanks to you guys' encouragement. I have to take my paycheck to the bank (it was only one day this week, still only working temp.) and I have to see if my daughter can get here this weekend if necessary. I really dont look forward to the with and without contrast part of it - my veins are not available But that's going to be the same on any other day. If I dont talk, I am okay. Vows of silence! LOL!
Lisa
0 -
(((((Lisa)))))
If I were closer I'd take your dogs. My pugs would love company. Well, maybe not, but they'd live with it.
Hoping and praying that you get to the ER and everything is ok.
Pam (and her pugs Enzo and Bacio)
0 -
pardon my skipping...and a big that sux to all...
Know what sux? No sooner finishing chemo and you fall and bust your ankle!
THIS SUCKS!
0 -
Hi Ladies,
What is worse than the anticipation of your first chemo? Having it canceled twice due to a breast infection. I've been sobbing all day long. The following is my http://www.caringbridge.org/ journal entry.
You are cordially invited to my very first public, online pity party!!!!
Forgive me today for being a bit pissy but I was unable to start my chemo AGAIN due to the breast infection I still have after 2 different antibiotics. So here goes....no more mister nice gal......
I'm now an avid believer that if you work in a cancer center it should be a prerequisite that you learn how to at least smile and be halfway courteous to everyone that walks in the door in support of a family member or friend or patient that asks you a simple question about rescheduling an appointment next week. There are people that pass through those doors every day and they may only have weeks and maybe months if they're lucky or they may have simply had the life scared right out of them by someone saying "You have cancer." How difficult is it to smile and take you eyes off your damn computer long enough to at least say "I'll be with you in a moment"?
I'm pissed that I've been there 3 times and not one person has told me that there's a patient advocate on staff. It wasn't even in the book they gave me and even if it was, your HEALTH CARE STAFF should take your hand (with a comforting smile) and walk you through everything that may or may not have the likely hood of scaring the shit out of you. Apparently if you have a captive audience you can get away with it. I would never consider operating our business this way. I'm probably spoiled because if any of our support staff at Re/Max behaved that way it would be their last day. Kevin, kudos to you!!
I want everyone to know that I love my Oncologist , his nurse, my Radiation Oncologist, her nurse and for the first time today (because I asked to see it) I met my new best friends in the chemo room. The staff there is great. I'm somewhat apprehensive about them because they didn't laugh when I said I wanted to sign up for the Prostate Cancer Support Group. Oh, well. I have 6 months to show them that I'm not a total freak.
I know that I'm not dying and I'm not just saying that to sound like I'm trying to be strong. When my full treatment of Chemo, Radiation, and Hormone therapy is over I have an 85% chance of survival and that's probably better than my odds riding in the car with our oldest daughter. One of the reasons I'm terrified about not getting started with the chemo is that my odds without treatment, only surgery, is 63%. Now, would you be a bit nervous to giving cancer one more day in your body?
Oh, one more thing. I told everyone that it was okay to say anything you like to me but I changed my mind. This statement is likely to put me over the edge and some unsuspecting, kind hearted person maybe coming with me.......Don't ever say to anyone that has breast cancer that "it's the good kind of cancer to have'.... I don't care if it's precancerous or full-on, fight for your life, stage 4 cancer.... the next @&#%ing person that says that to me is going to get the most invasive species of a weed I can find strategically planted in their yard so that by the time my hair grows long enough that I don't look like my brother......breath.......they will have a beautiful garden of, weed killer resistant, horse tail they have ever seen and they can fight it....and stress about it.....and worst of all worry about passing it along to their children and grandchildren.
Wow that felt good.0 -
Lisa, just checking in on you! Let us know how you do!
0 -
Sheesh. No point asking, WhaSux??? It's pretty obvious this has been a really sucky day.
Lisa: Go to the ER. Do not pass "GO", do not collect $200 (is it still only $200?)...just get yourself in there. Even your onco told you to go. You know this could be serious. So, go. Please.
Diane: Call your dentist. From what Lisa said, it sounds like it would take no time at all for a skilled dental person to snag that popcorn hull and whisk it right out of there. So, call (assuming you aren't in the Eastern Time Zone).
Renee, welcome. Guaranteed, if they put any 6 of us together on a committee, we could design and staff a better cancer center than the ones most of us have been visiting. The day of my very first chemo, the waiting-room receptionist put me in tears (which is difficult), because I asked her a serious question and she laughed at me. When she realized I was serious, she said, "Oh, I'm sorry...I'm sorry... I'm so sorry." All I could think of (but did not say) was, "Too late, b*tch. You had your chance to be nice."
Bonnie (flyrzfan), you did WHAT? A broken ankle??? Sorry, but that's one of the things we don't allow immediately after chemo. Are you clumping around in a cast? (Heck, I don't even know what they do for broken ankles these days.) HEAL!
I do have some IOS of my own, I'm afraid. The first IOS is that the tingly feeling I've had in the fingers of my right hand for the past week is, indeed, carpal tunnel syndrome. Thank you, Arimidex! It's really early, though, and the nifty black velcro-strapped (gawdawful ugly) wrist brace my PCP scripted for me is doing wonders.
The second IOS is more serious. I got one of "those calls" today, saying that my dad was in an ambulance on the way to the hospital. At first, my mom thought he'd had a full-blown stroke. Then the docs at the ER said it was not a stroke--his heart rate was too slow, and he probably just blacked out temporarily.
Now, they do think it was a stroke--a "transient ischemic attack" (TIA), or "mini-stroke". There's nothing on the CT scan of his head, or on any of the X-rays, and when he arrived there were no signs of neurological deficits. Still, they think it might have been a TIA; and there's nothing they can do. He's in mid-stage Alzheimer's but can still recognize everybody and talk and dress himself etc. etc. I sure didn't want that process speeded up by something else. My dh and I are leaving tomorrow to drive up there (2-day drive).
A sucky day for sure.
otter
0 -
Otter - I'm so sorry to read about your father. How awful. A BIG SUX goes out to you.
My IOS of the day pales in comparison to all of yours....back on my chemo schedule, AC #3. Whopping headache that won't go away. Still tired despite Decadron.
Renee - I can empathize with your breast infection. I had my MRM on 9/8. Thanks to a negligent dentist, I spent October 20-27 in the hospital on three different antibiotics with cellulitis of the chest wall. I had already had 2 AC treatments, but chemo was put on hold until the infection cleared up some.
But on the SOI side - no more visiting nurse, dressing changes down to once a day and I can go back to work on Wednesday.
0 -
DAng it all!
BIG THAT SUX to you all that need and deserrve it!
SO sorry everyone! Don't have time to comment on each, but did want to say, Jane? Did you take some motrin? It helped with my headaches. I seriusly thougth the the H/A were from the kytril, but not sure yet. Good Luck and hope that's the only SE.0 -
here is something cute hopefully brighten your day
0 -
I've taken Excedrin twice (2 each time). This usually clears up a headache for me, but the ones I get on chemo just don't respond. I just took 2 Tylenol PM, so maybe it will ease up enough for me to get some sleep (unless the decadron kicks in).
LuAnn- somebody e-mailed me that pic a few days ago, too. I love it!
0 -
is excedrin an asprin? I know tylenol didn't touch mine, but two motrin did. HOpe you find relief soon, those headaches were horrible. My eyes hurt with them.
0 -
Wish,
EXCEDRIN is ASPIRIN with CAFFEINE added to it. My mom was truly addicted to it when I was a kid. (with my 3 older brothers and me, who could blame her!?!). I used to associate the sound of the tablets rattling in the bottle with waking up in the morning.
Jane--if it's a migraine type headache, I wonder if you could take the herb, FEVERFEW? I used to get migraines years ago and it really worked. I think that it was added to one of the drugs' migraine formulas for a while--maybe it was even EXCEDRIN MIGRAINE? I was also told that headache is a side effect of the ZOFRAN and steroids that I got as premeds. I sure hope you get some relief soon. Headaches SUCK!
Lisa--I hope you got some answers today.
Renee--welcome! This thread is my absolute favorite. It's nice to have a place to come and just let it all hang out--and have people here who understand! Delaying chemo after you've gotten yourself all psyched up for it SUCKS royally...as do rude and insensitive office staff!
Otter--so sorry to hear about your dad!
Bonnie--broke your ankle? That super-SUCKS!
I'm sure I missed somebody, so please accept my heartfelt "THAT SUCKS" if I didn't address you directly. Y'all know it's not that I don't care!
As for my minor IOS today with the popcorn seed hull...After Lisa's post about the glide floss, I remembered I had some dental picks and tools from when I had braces as a teenager (that's right--I never throw ANYTHING out...I think I need to visit the "can't get my act together" thread for some commiseration). So, I think I either finally got it out or pushed it up in there farther. I didn't actually see any hull, so it's probably the latter. UGH.
Traci--this is for you: http://www.youtube.com/watch?v=JZdUfqZ0grA
(((HUGS)))
Diane0 -
Hey all my friends!
No, I haven't fallen off the face of the earth. I've been reading but by the time I get caught up with all the suckiness, the dog needs to go out, I remember enough to respond accordingly or I fall asleep reading. So here is a hearty "that SUCKS" to everyone. And boy are there some major suckiness going on.
Diane, you probably don't want my opinion on the DH/haggy stalker issue. Remember I am the one who found out TWO years after my marriage was over that my DH had a baby FOUR months BEFORE we separated with a woman in our own neighborhood! I will never trust a man again....yes, I said never!
Lisa, get to the ER. We love you too much to see you not get this seen about...pronto!
Others getting chemo, not getting chemo due to breast infections, and all other IOS's, your issues have been heard! Isn't wonderful to share our crapiness? Somehow it helps.
Not really any IOS's to share here. Traci, I have been in a major 'funk' too. Thanks, for whoever got 'Funkytown' playing over and over in MY head.....lol. I think I am crawling out of my funkhole too.
Hugs to all. I am going to try to be better about reading AND posting.
Bethie
0 -
Shirley
So sorry to read about DD's step MIL's passing. This D*mn disease!! It makes me so mad when bc takes another life!
0 -
HI ya'll,
Sorry I have been mia for awhile... I've been job hunting and that is my IOS, there ARE none to be found!!
Sorry I'll NEVER get all caught up with these posts that I have missed. I'll try, though. So for now, I'll just say THAT SUX!!!
Hope all ya'll have a great non sucky weekend!
Harley
0 -
It is 3:17 AM - Decadron sux - nuf said!
0 -
{{Jane}} so sorry you're dealing with the effects of Deca....
Same here, up all night, but it's hot flashes for me. Been up for 2 up, well, tossing and turning and finally gave it up ! Came up and glad I did, we can complain together as soon as this pot of decaff is done Hate not sleeping, especially when I've got to work tonight It's going to be a very long night 0 -
What time is it there? I tried the tossing and turning thing for a while, too...finally gave up. I'm watching the comedy channel. At least for another 10 minutes. Then all that is on is infomercials and I can't afford to buy anything. Thank God I don't have any credit cards. I can only spend what I've got. Now, I don't always spend that wisely....sometimes e-bay outranks groceries (at least the non-essential ones) lol
Should I try going back to bed and tossing and turning some more or should I just give up and try it again tomorrow night?
0 -
3:55 here
As for giving up...I'm waiting for dh to get up in another hour or so and going to try again, as I may be on my feet from 3pm to 1am tonight! I need sleep! Hate it and me when I dont' get at least 6 hours! UGH! 2 won't cut it!0 -
Sometimes eating something will make you sleepy while on deca, at least it did for me.
Oh, by the way, Diane is right and I meant to say, I had Kytril with the first A/C and horrendous headaches. Switched ot Zophram after the 2nd one and had headaches, but not quite as bad. Motrin (or ibruprophen) did help with the headaches
0 -
I do get Kytril so that might be what is causing the headache. We are in the same time zone. I'm watching Rachel Ray right now, so maybe watching food will put me to sleep. I think I'm going to try it again in a little bit.
0 -
Yes, try motrin then if you have it, it really did help with the kytril headaches.
I couldn't watch tv after my chemo for a day or so, with the headaches and the eye problems. Would not be able to look at that fast movement without getting dizzy or nauseous. UGh!Try to rest...and eat and keep drinking to flush those kidneys on A/C dear!
0 -
I almost forgot to share another IOS that happened today. It's amazing what you remember when you're sleep-deprived.
My phone rang this afternoon and the caller ID came up unknown name/unknown number but I answered it anyway. After two "hello," "helloo?" a live body came on the line and informed me that x number of women are diagnosed with breast cancer every day and there is a great need for donations to help these women, blah..blah...blah. At her first breath, I informed her that I was currently in treatment for breast cancer, and SHE HUNG UP ON ME! So much for her sympathy for breast cancer patients, huh?
0 -
That's another reason I can't sleep. The more I hydrate, the more I have to get out of bed to pee!
0
