Im bitchy, I moan, I groan.....anyway.
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Could not find Lisa's "Me Too" thread....
I have been put on Ritalen to wake me up. Goodness there is somethig to learn every day in the medical world.
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I thought maybe this week was going to be better than last week, but I guess not.
Lisa, noooooooo! No no no no. I'm coming in way late on this, for which I'm sorry. When I told you to go to the ER last week without passing go and collecting the $200, I never seriously thought you might be dealing with mets this early. Like all the rest of your cyber sisters, I'm stunned. I agree, one is better than multiples, although brain mets is an area I've not done much reading on. Can you feel all the energy we're sending your way? Might cause a quake, so watch out.
My IOS of last week has shifted into familiar territory. My dad seems to be doing fine. He was originally thought to have had a stroke, and then was thought to have passed out because of a low heart rate. After tossing that dx around for awhile, the ER doc decided it must have been a "transient ischemic attack" (TIA = "mini-stroke"), since there was no sign of continuing heart problems. But, there was no sign of neurologic damage from a stroke, either...so finally they decided he must have had a seizure. That dx came partly because of more details my mom gave about the incident. I'm not convinced of any of it right now. He has follow-up appts. but not until December. In the meantime, I guess a mild seizure (probably secondary to the Alzheimer's) is better than a stroke. So, the current IOS is just my family's inability to come to grips with any of this and make decisions about long-term care and living conditions for my parents.
Mets. That sucks totally. Huge hugs, Lisa. And more hugs to anyone else needing some because of their own IOS.
otter
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{{Otter}} so sorry you're having difficulty with family issues. Getting everyone on the same page for treatment or placement in that situation is so difficult where there are more than One persons input. Prayers you can all come to terms and get on frame of mine with it.
{{Lisa}} keeping you in prayers. Was glad to read it was ONLY one (gosh that just sounds so wrong to write or think) mass. So many good thoughts go with you and {{hugs}} and as always, prayers for you daily.
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Whewww!!!! I was out all day and just finally catching up on the boards. I was worried how long this thread might have gotten and if I could keep up with it.
Whoopsie - sounds typical for a man LOL
Lisa - I told you in mets forum and here also, I'm praying for you and really think it sucks you joined our sorority
Otter - sorry to hear about your dad, hope all gets worked out soon. It usually does just so much going on sometimes it's hard to do.
Although Lisa you take the IOS award I have a minor won but it sure did inconvenience my day! I had an onc apt this am which should take about 20 or 30 minutes and then I needed a blood draw and faslodex shot. I saw the onc and went back to the chemo room. Mind you it is freezing in there because someone turned the heat off in the building over the weekend and we had some pretty colds temps in Ohio over the weekend. So even with my coat and a blanket I am sitting there shivering. I get the blood draw, port even worked flawlessly for a change and I thought man going to be a good day.....boy was I wrong. The nurse walks out with my injection but said the RX with the ins was out and I needed a new one. I had to wait for the approval to come through and shouldn't take long. After about 45 minutes I asked if it was ok if I left and come back later in the day for the shot because I had alot of other things to do today. they said no problem. I called at 3 to find out if it was approved, they said yes come on in. I get to the onc office and they tell me it took from 10:45 to 1:45 to approve my shot. I couldn't believe it!!!! I am so glad I didn't wait, I would have been furious.
Oh well, minor cookies compared to Lisa but just needed to vent!
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Lisa,
I am so glad you got to have good news! What a crazy jerk radiologist! Looks like you're gonna be having a busy November. I'll be thinking of you and praying.
DIane,
I am still thinking of you and that ahole nurse and your jerky dh. That whole situation just infuriates me. Hope you get that taken care of..... I would not hesitate to call her superiors and report her, either.
Otter,
My Mom has Alzheimer's and I took care of her at home for several years before I placed her in a facility. I think these kind of decisions are some of the most difficult ones. The incapacitated elderly don't want to be a burden to anyone, but they don't want to live in a nursing home, either. Hopefully, your family will have a meeting of the minds soon and you'll be able to move forward with a plan of action.
Miss S
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Shouting out a big that sucks to everyone who needs it today. Throwing in some hugs too.
Nicki
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Hugs and Blessings and THAT SUCKS for those who need it. Nothing much going on here, for which I am very grateful. I had my pity party and am doing ok - ish - waiting for the sun to come up so I can put the flag out for Veteran's Day.
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How is this for an SOI, my soon to be 18 year old had the nerve to yell at me "shut up mom", it was fortunate for him I had a baby on my lap and was across the room. I think he knows better than to ever say anything like that again in his life now LOL
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Oh, LuAnn. I'm so sorry. I can only imagine how that hurt.
When I think of the hateful, hateful things I shrieked at my mom when I was a teen... lets just say nobody deserves cancer but if anybody did, it would be me based on that alone. I was a sh*thead.
I hand it to Mom, though. She is made of very tough stuff, though I'm sure it took a toll on her. One time in particular, she looked me dead in the eye and said through clenched teeth, "You are my daughter, so I have to love you. But I don't have to like you very much."
**Gulp.**
Moms rock.
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Neulasta sucks!
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eheheheheee....Oh Rock! I too, was that daughter, although MY mother said those words. IT was me, saying them to dd when she told me hated me one day!
We're bestest friends now, but wow...what a long teenhood! 
{{LuAnn}} if that's the worse he's done in his 18 years honey, be thankful, that's all I can say. The stories I could tel you!
I know it hurts, but seriously, he loves you more than anything I'm sure, just had a slip of the mind as boy and girls do time and again. But just for good measures, perhaps he needs one of those 'b*tch' slaps to bring him back into reality! Is it Traci that has the little movie of that? I mean after, he's 18, it wouldn't be considered child abuse at that age Always something good of them turning of age! LOL J/K of course...0 -
{{{JANE}}} BIG THAT SUX hon! So sorry you are hurting
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Holy Suckola To All!
Rock, love your new photo!
Okay, so far, I guess we were ALL awful as teenagers. Actually I hit my peak awfulness at 13 & chilled out in high school. Don't know how my father could stand living in a house with two females at either end of the hormonal spectrum -- one in menopause, one in puberty!! Poor guy.
Does anyone remember exactly what SOI stands for, BTW?
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All right, I'm adding one small, tedious, we've-all-felt-this-way-&-still-do IOS: I am sooooo friggin' tired of feeling friggin' tired!!!! I mean, it's not even 8 o'clock here in RI & I have to sign off now because in about a minute-and-a-half, I'm going to fall over if I don't crawl into bed. THIS SUX!
I do have an SOI, which is that I've managed to walk 2.5 to 3 miles with my dog twice in the last few days, briskly, so that's good.
Do we ever crawl out of this low energy/no energy hole we're in?????
GRRRRRRR!
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Jane
I don't know if I mentioned it on this thread, but if you get Neulasta shots, it helps if you take Claritin every day for 3 or 4 days following the Neulasta shot. I didn't have ANY problems with bone pain after the Neulasta shots. I had TERRIBLE lower back pain after the Neupogen shots and NO ONE told me that Claritin will also help that. After my 1st tx, I got the Neupogen shots and they were just awful! Anyway, it sucks that you are in pain.
Lisa,BC sucks!! So sorry you are going through this! I agree that 'only' one lesion is good news... that still SUCKS!!!
Sending BIG hugs your way!!Harley
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Suckiness otherwise Inverted = SOI
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I finally found something colourful... something like turning the air blue with my spine mets acting up and hurting so bad no matter if I sit, stand, or lie down.
My SOI - My quilt is finally all one large piece of material...... now I have to baste and quilt it which should take forever.
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Awww{{[Dreamy}}} so sorry you are hurting no matter your position. Are you taking any pain killers for it currently?
darn, so sorry...wishiwere there to help somehow..0 -
dream, it won't take forever, you will finish it and use it!
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WhaSux?????Holy crapola! I just read 5 pages & TOO MUCH SUX for too many ppl~I can't poosibly address them all---but.......Lisa---HUGS! I have a friend who had gamma knife sx over 10 years ago!!! She sailed thru it when it was still new & has not lookeed back,but moved forward! Almost NO one remembers her prognosis at the time was "DOUBTFUL" It is even better now than it was then! I will keep you in my prayers--strength for the journey!!LuAnn--hugs for al the family stuff----you have your head on straight, but it's still hard to watch those kids when they can't seek the advise a wise woman like you can offer--you will all be in my prayers!Dream--my friend! Sounds like time for a late nite phone call?? or would AM be better??? hugs-it is hard to be "up" when you are in pain--You Will finish that quilt AND sleep under it for a LONG time!!!Diane--In the last weeks I have had numerous bouts with verbal blanks or substituting odd words! I was trying to say, "Bushel & a peck" the other nite & insteadof 'bushel" I said 'buckle' then 'bundle'...everyone lol, but I keep wondering.....Cancer sux---no doubt! I have been feeling well enough to reclaim my life since I got back from Vegas.......This f'n disease messes so much with my head that I feel guilty about feeling good! WTF??? (that was my IOS last week that I said would sound silly) I KNOW that this ilusion is seductive & deceptive--but I want to enjoy it for as long as it lasts----things have been frightfully good for weeks now! Dh & I have gone back to dance lessons; I am walking my dogs in the woods again!!! Guess my only IOS is that dh bought me a new laptop & I am not used to it yet!!! Maybe Merry Sunshive & I should start our own thread>>??? But I LOVE THIS THREAD!!! Welcome to the cool kids' lunch table y'all!Be well & stay strong!0
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Has anybody heard from (or about) AlaskaDeb lately? I think the last time John posted was the middle of last week, on the Methotrexate thread.
otter
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last update I saw she was still improving and things were looking up.
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A big THAT SUCKS to everyone.
I am one of 5 sisters. My poor dad. We'd laugh that's why he died young. My next up sister & I hated each other with a passion. I don't know how my parents handled it. I have two daughters - both teens - and one or the other will be on my last nerve at any given time. #1 daughter will be headed to college next year if I don't do away with her first. Trying to get her to understand the connection between attending the college she really wants to go to and filling out scholarship apps is not going well.
Don't know if it is an IOS or an SOI - met with the oncologist today & got the prescription for tamoxifen. I'll have to switch from Zoloft to something else. My husband may have to schedule a business trip while that's going on. If he's really lucky I'll have PMS at the same time
Lisa - kick the cancer's butt. And that goes for the rest of you, too.
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That sux PS-Going thru the same here with my son so I empathize! Here is how I am dealing with it: I told him (without getting cranked) how disappointed he's goping to be if he allows his procrastianting nature to sabotage his plans BUT, I am not going to hold his hand on this one. If he's old enough to make life choices then he has to be responsible for the follow thru or pay for it (quite literaslly) in the future.....DH agreed that if he can't do this much then he isn't READY to go away & take care of himself. The best part is--he seems to actually be listening to us----I hope----why did it take me so long to learn this one??? HUGS
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No IOS worthy enough to type and certainly not for y'all to read....lol.
SOI (or whatever the opposite of IOS is) for the day....I am keeping up with reading here!
A huge 'that sucks' for all who need it. Lisa, you are in my thoughts and prayers everyday!
Big ole hugs,
Bethie (aus)
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This is a pop in and marking my spot. Sending lots of love and shouting out a big that sux to everyone who needs it today.
My IOS is minor. Working 12 hours/day sux. I'm getting to old for this.
Nicki
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Just sticking my head in to say "Hi" and a big THAT SUX to anyone who needs it...lots to do and not time to do it in
Starting my 3 week Herceptin schedule tomorrow and hoping I do NOT get the steroid buzz again this week ~ has anyone experienced the symptoms of chemo AFTER you stop? Darndest thing feeling the same things but not having chemo anymore! The steroids hanging on sux, especially for anyone near me when it's the rage...Oh my!
Nancy, hope you're doing ok ~ call me if you need anything!
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Hi everyone and a big that reeks to you all.
Here is my IOS. I went to the hospital to get my CT scan this morning at 8AM. When I arrived, I was told we had to wait for my doctor to send over orders. Since the appointment was made a month ago, I don't know why the orders were not there. Of course, I don't have much of a clue about the behind the scenes stuff. I should add that I had an allergic reaction to the contrast last time, so I prepared this time with two five pill doses of steroids yesterday, one this morning and two benedryl after I got to the hospital.
Anyway, I had a mammogram scheduled for after the scan, so I had to call and make arrangements to be late. That all went pretty well.
I finally get called back for the scan. When the girl stuck me with the needle for the IV, I said, "Not finding a vein, huh? because I could tell by the way it hurt. She said she had one and I told her the IV hurt.
Then it's time to get injected with the radioactive stuff. I tell the girl, "This is burning and it hurts."
She rubs my arm and says, "It's not swelling up."
I was like, "Okay then."
So they do my scan twice and then come back with three extra people all looking at my arm. "The contrast didn't go in. It infiltrated your arm. We have to call a doctor to come and look at you."
All I could think of was that I had told them from the beginning that it was not IN. I held my piece. The girl says, "You didn't get warm at all, did you?" I told her no and she said she knew because there was no contrast for the scan. SHe did tell me she was sorry and I could tell they were all sorry. With the crowd gathered around me looking all worried and then smiling big, fake smiles at me, I was getting plenty worried, too.
Anyway, a radiologist came in and told me to alternate heat and ice on my arm and to keep it elevated. She looked at my films and said she could see what she needed to see without contrast. Now that scares me. Wouldn't she want to be SURE about what she is seeing? That makes me think it IS cancer. I am definitely calling my onc before work tomorrow to see if I can find out.
I left to go get my mammogram (which there was only one person in front of me, so that was all good). The benedryl had kicked in and I was ready to try to make it home. Now I still don't know if the reginmen of pills I took will stop the contrast reaction. Oh well. I'll probably get another chance.
I'm off to google what they did to me.
Thanks for all the prayers and well wishes. I'll definitely let you know how it turns out.
Love to all,
Miss S
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I swear in and effort to fight costs, they've hired parolees to do IV starts lately! That's just ridiculous she didn't listen to you. After all you've been through, you certainly know when an IV feels right or not. And IF you can feel it, most likely it's NOT right! UGH! So sorry you went through this.
{{{hugs}}} and gentle prayers you get results you want, and not the ones you fear.And I certainly hope they aren't going to charge your insurance for the contrast that was NOT used for the test. For that matter, I thought they needed the contrast to see with that test what they are looking for? Sounds suspicious in and of itself I would think. I'd be asking a whole lot of questions from my onco and perhaps writing a letter to that radiologist asking how he could read a PET without contrast or what ever it is they use for that test.
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Miss S, it is crazy when they won't listen when we tell them it is not right. Hopefully you won't have too bad of a reaction.
Sheila
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