Im bitchy, I moan, I groan.....anyway.
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Off to try again...good luck, Wish...I hope we both drift off into dreamland soon (and wake refreshed).
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Oh my! I got some fired for hanging up on me, but I made sure I had their number on ID first, before I let them go on and on and then said no. It wasn't for Breast cancer, but something else. Hate when caller ID doesn't show someone. I have my cell set to not accept those calls.
Ahhh yes, the infamous, get up and pee syndrome. But honey, IF you are ON A/C, they suggest you do get up pee and often, at least my hand out said that.
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Good Luck. I decided to cut into a new load of WHITE bread I made today..I know not as good for me, but it surely is tasting good!
G'Night Jane, sleep well.
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Hey Wish - I hope you got some sleep last night. I slept from 4:30 - 8:30. No appetite today, but I don't get nauseous or throw up. I won't have an appetite again until the end of next week. I force myself to eat because I know I need to keep up my energy and I drink, drink, drink. I pee a lot because I don't want this poison to stay in my bladder any longer than necessary.
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Goodness, I'm so far behind that I can't even find my last post! Shouting out hello and a big that sucks to everyone. It was a strange morning for me. Woke up early and while I was making my coffee I could hear ice pellets hitting the windows. If one lives in Chicago...Winter sucks. I have finally accepted the fact that I need to pull out my boots and Winter coat! Maybe even take some time today to put away my Summer clothing as I am such a procrastinator.
Colleen - Hi to you and good to see you. Headaches suck big time. It seems to me that ever since my diagnosis and chemo I get headaches much more than before my diagnosis. I don't know why, but I do.
Jane - What an insensitive telephone call. I use caller ID all the time and never answer the phone unless I recognize the number. Shame on that person for hanging up on you.
Lisa - What in the world is going on with you? Darn girl. I'm sure hoping that by now you have gotten the MRI and know what you are dealing with. Those symptoms can be so many things. Sending a big that sucks your way and will be looking for an update from you...because my friend...now I am worried about you.
Diane - Seems like it has been forever since I talked with you. I have problems with words. I flipflop them like "thats how the cookie bounces" or "thats how the ball crumbles." I'm reading numbers backwords now. 13 looks like 31. Lots of difficulty finding words or paying attention for any length of time. Also seem to be daydreaming alot more.
Traci - I don't know what is going on as I am so lost. But whatever it is, I sending a big that sucks your way.
Fly - Having to go through a broken left foot and then a broken right ankle, all I can say is yes...it sucks...especially right after finishing chemo.
Renee - I had to have my chemo postponed for one month. Having an infection sucks big time. You get your mind set to prepare yourself. I also agree, that there are so many who just don't belong working in healthcare at all. I hate when I'm standing at the desk and being ignored. I have seen people look up at me and then turn around and continue talking about stuff. Grrrrrr it makes me so mad.
Otter - So sorry to hear about your dad and yes, getting "that call" sucks big time. Many of us are going through this journey with aging parents - and the stress alone from that sucks. Shhhhh! sending a hug to you.
Shirley - I was sorry to read that someone close to you lost their battle to this damn disease. So many having a hard time it is making me go crazy!
Saint - Whats up buttercup?
Well this has been my feeble attempt to catch up. I have been so busy that I don't have much time anymore. Usually post a picture here or there and then I'm off running. A big hello to everyone I missed and a big that sux to all that need to hear it today.
Nicki
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Thank Jane, but i got sporadic sleep. DH finally got up about 6:30, so I climbed back in to bed, after opening one of the windows all the way. !/2 later, cat was ticked and knocked the suitcase of his to the floor b/c she was now freezing! Then that da(#)*#_ cardinal starting pecking at the windows, then I heard dh making his breakfast, then the other cat wants in the room after I threw the other out and shut the door (you must know cats do NOT like closed doors). All this about 1/2 hour after I laid down, and to top it off, my hot flashes and hip/femur pain is back with a vengeance. Da*$#*)) estrogen! I quit the estrace about 3 weeks and guess what? DO NOT tell me, MR Gyno (I know everything doc) that it doesn't get into my system, b/c My hot flashes had been less often and less severe, my hips had started to be tolerable at night and now...3 weeks after quitting it..........IT"S ALL BACK with full force! SMALL IOS compared to many and MOST on this board, but it's my Complaint today and I really don't want to work on my feet with a bunch of prissy, pretty, fanciful sorority ladies tonight when I feel like cutting them off at the boobies!
UGH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!0 -
HOLY SUCKOLA, my dears!!
Diane, thanks for that Youtube link! LOL Traci, I think this would get anyone out of a serious deep-dish funk! But, if not, remember we're ready with our shovels at a moment's notice.
Good grief, I don't even know where to begin.
Lisa, I will personally help you set up a Paypal account that we can all contribute to online & make the first contribution to your MRI fund! Get thee to an MRI!
Otter, let us know what's what with your dad.
Fly, a broken ankle???? Like, you really needed that!
Jane, sorry you are having a headache, but glad you are going to be able to return to work & graduate from homecare!
Diane, I accidently brushed my front teeth too hard a few months ago & still have this tiny gum spot that is healing reeeeeeaaaallllly slooooooooowly. Have been a bit too busy being a cancer patient to go to the dentist yet (well, that's my story & I'm sticking to it) but I'm certainly blaming my slow gum healing on treatment. LuAnn, I'm post-rads now so I think I'm just drying up everywhere.
Renee, if you have a chance to go back a few pages on this thread, you'll find that we are all armed with garden implements, power tools & lawn tractors which we can mobilize at a moment's notice to go after anyone who is RUDE & SUCKY to cancer patients. So, let us know.....
Colleen, Chemosabe, Shirly, LuAnn & everyone else my befuddled brain has forgotten, a big THAT SUX TO ALL!
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Morning Ladies, at least for another 4 minutes it is!
I finally got caught up on a couple boards this morning...so much going on around here! Good news, my ankle is just sprained. I say "just" through clenched teeth because it was my "good" ankle. The other one was "just" sprained 4 years ago and now has severe arthritis and chronic tendonitis in it for which I take darvocet. Hmmm, this could slow down my progress on losing my chemo weight now couldn't it? Oiy Vey.
Otter ~ so sorry to hear about your dad. I hope your drive goes smoothly and your dad is comfortable and recovering when you get there.
Nikki ~ glad you had time to visit. It's so much harder when your trying to balance work, life, family and staying on top of what's going on. Somehow you always manage to stop by and make us smile though. Thanks for all the visuals you bring
wish and jane... I think it was Harley or Sue that used to have a cure for not sleeping. Something about cherries and a glass of milk? Harley, if I'm right and it was you...fill us in next time you stop by?
Shirley ~ ditto on the loss of your friend, hate this disease!
Lisa ~ how are you? Were you able to get the MRI? If not, I second the paypal idea...
Renee ~ how is the infection? I know the postponing is driving you nuts, I went down that road also. I hope by the time you read this you're recovered and on your way to starting the next phase of the journey.
Hi Diane, Hi LuAnn..and anyone else I might have missed! I hope today is a bit quieter than yesterday was!
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Hello all!
Well my CT scan went without a hitch, but of course I didn't drink enough water to flush the crap out of my system and now i feel like the Hindenburg (gas bag about to blow). And now I wait for results. My IOS today, my car decided that it was going to really act up. It's been not starting on the first, second or even third try (sounded like battery going out). This morning it took 6 cranks to get it started. Moved it to the driveway to wash (looks good - finally) and then start it to move it back in the garage and all hell breaks loose. Luckily I live less than 2 miles from the dealership, had ds follow me and let the engine run for the tech to listen. He has me shut it off (it still ran with the key out) and as this was going on, white smoke starts to billow out and the battery cable starts to flame up. Just what I need (in between all the other expenses that miracuously appear at the same time). MIL needed a ramp for her wheelchair built, had to buy ds a used car for college, dd had ear surgery, same dd needs glasses, it just never ends!! It'll calm down after Christmas just to pick back up again in February/March. Ok - I've done my vent - not much as it goes, but it's mine.
Take care everyone,
Blessings
Trish
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Shoot, so many IOS's and so little time to mention them all, but THAT SUX ladies! BIG time THAT SUX, to each of you with IOS's, many hugs and dang it all, a big hope for some SOI's to replace them! Shoot, IOS's BE GONE from these ladies, Please!!!!!!!!!!!!!!!
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This would be me and I defy anyone to tell me to get up. I have my shovel ready to protect my domain today. Even have new PJ's on.
Wish: Window open with cold weather, feels so gooood when one is having a hot flash. I laughed at your cats cause I have 2 crazy ones myself.
KAK: Oh boy, thanks for pointing out that youtube by Diane. I'm laughing my arse off because even though I'm bound and determined to do absolutely nothing, I found myself dancing in bed. Now that would make a great song to exercise to. Thanks Diane!
Fly: Sooooooo happy the ankle isn't broken, although bad sprains sometimes can hurt more. Sometimes, I only have time to talk with pictures lol.
Trish: Hi to you. It's been along time since I have had a chance to talk with you. Sucks about the CT scan - what was it for? I'm sorry, I know you may have mentioned it, but I missed what was going on. I have to admit when I read the description of what was going on with your car my initial instinct was to laugh...which I did...the car sounds possessed. Having car problems anytime is an unexpected expense and I'm sending a big sucks to you.
Well after putting much thought into how I will be lazy today. I have decided to go find a free video game I can play on my computer. Something I haven't done in years!
Oh and BTW! I'm really watching Law and Order lol
Nicki
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If I bring you oreos, will you share the couch? I hate my loveseat! It's NOT comfortable anymore with my hips so painful
Can't even use if for short term sitting Nother IOS....danged washer, didn't dissolve the 'liquid' soap in the load and I need my clothes for work!! UGH!!!!!!!!!!!
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Wish: Hi to you!0 -
I got home late, late, late from the ER. Went in to the EvilRoom at before 2pm, left at 4pm (well, tried to) left at 6pm (well, tried to) - this was midafternoonFriday but I kept getting 'triaged'.Went back due to the nurse saying I had the next bed. Well, not quite but I saw a dr. at 7p.
I've got brain mets
Of course the medical establishment runs VERY slowly, I waited through kidney function tests (to see if my kidneys could take the contrast) I waited while the lab had a breakdown in the equipment, etc. But I got the news about 11pm. It took them another hour to convince themselves I wasn't going to be admitted. Seizure risk, you know? I hadn't had a seizure so what was going to start me now? I promised to take the decadron and signed myself out AMA (against medical advice). I felt the whole shebang wouldn't have gotten done (the MRI) and then waiting for diagnosis - it would have been a week later by the time I got the news. I wanted to sleep in my own bed!
My daughter drove down from Orange Cty (about 90 min. away - oh, and she brought me SUSHI!) during all of this, so I had her with me. And I had her with me to my leave Element while I took Dilaudid IV. We gotta go back and get it today.
The radiology report shows a 2cm and a 1cm mass. It shows a 3mm left-right midline shift. It ain't pretty.
Lisa
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Lisa: No no no! Did you have mets before this? You must be in total shock as this all did come on so quickly. What will the treatment plan be. Damn! Just sending lots of hugs to you my friend.
Nicki
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Lisa - you have the biggest THAT SUCKS ever ... I was hoping that you'd get the MRI yesterday - but really hoping and praying that it wouldn't be mets ... but something else going on. I'm sooooo sorry and hope that you'll get a treatment plan in place quickly that zapps that dang mets to bits.
Hugs,
Doreen
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Oh CRAPOLA LISA! DAng it all! Woman, so many {{{{hugs}}}}} for you today and prayers for your followup to be quick! Shoot, shoot, shoot! This Da*((##)&& disease! JUST SUX BIG TIME! CRAP
Sorry, gotta run and check this load....please know you held in prayers dear Lisa
Sorry you went through all that but glad your dd was there and you are home now 0 -
BACK AT YOU NICKI!
Nicki? Do you have to have all your pics on photoshop to include them? Seems so danged troublesome for that!
Isn't there an easier way????? Please say there is!0 -
Lisa: I'm crying with you and I'm thinking of you. Know that we all love you and you will not be alone through this. I mean this SO SUCKS!
Wish: All of my pictures are from photobucket. I have so much fun looking different things up.
Nicki
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No - I did't have mets before. I was getting my life together. Well, except for the aphasia which I attibuted to chemo-brain. Until I couldn't.
My sister's node neg, triple neg., BRCA1+ tiny teensy tumor went to her brain in a matter of nine months after treatment. I just took a little longer to find mine. The PET/CT, that I celebrated in late May, didn''t scan my HEAD.
It does suck. I do not know what to do, I'll not do much. If it's not doable with GammaKnife, I may not have a lot of options.
Lisa
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shitshitshitshitshit. Lisa.
BC SUCKS
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Lisa this is WRONG!!!! I HATE THIS FR$##$N DISEASE!!!!! I am so tired of finding more and more ladies with mets!!!!
WHERE IS OUR CURE!!!!!!!! WHY DOESN'T ANYONE HEAR US????
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Y'know, I logged on again to check on you, Lisa. I am so sorry to hear about your MRI. It does suck! Well past sucking, actually. This disease is so full of crap it isn't even funny...
I'm glad your daughter was with you, though. We'll be praying for lots of options for you from your treatment team. Perhaps if gamma knife isn't an option then WBR could be.
Hugging you hard, Lisa. I'd head out to the gym to kick the heavy bag in your honor (I just picture cancer cells and wallup the hell out of the thing), but my back is out and I can't twist to kick just yet. Should get clearance to resume all activities by mid-week. Kicking will commence as soon as I'm able...
This hit me like a ton of bricks, so I can only imagine how it has hit you and yours. Know that I am crying and cursing right along with you...
So hating this f*cking disease right now...
Hugs...
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Lisa - I don't know what to say. Yes, I will be here with the others every step of the way. I'm just at a loss for words.
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OK, I just did a search. Lisa, there are lots of treatments available. Some with 85% success rate. Sending big hugs to you, taking a deep breath, and waiting along with you to hear what your options are. Gosh darn you have to be so darn scared, we are with you my friend. Together we are strong. Chemosabi has put on her war paint. OK so who is gonna be our contact to find out how you are doing?
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Lisa
IT SUX!!
So sorry to hear the news! Please keep us posted, and let us know how you are doing, ok?
HUGS
Harley0 -
Damn this disease! Damn it to hell.
Oh Lisa, I know how you are feeling. This is the most awful feeling in the world. I don't have any words to comfort you right now. Just know you are not alone. Please know that. I can't tell you how long it will take you to wrap your head around this. In a couple of weeks, it will be five years since I found out I have mets. Some days I swear I still haven't come to grips with it. But most days are good. Not great. But good. And I see you have so many wonderful friends here, praying, cursing, crying and most of all....hold you up. Count me in there too. I hope you feel the strength around you. I am so glad you went to the ER. You will get a plan together next week and we will start fighting this. You can do this. I am glad your daughter is there for you. I have one of those too....a good daughter. And of course, my furry babies. Draw comfort and love from those furry babies of yours.
The biggest hug to you, Lisa.
Bethie
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Lisa. Da*n. Sh*t and da*n. I give you so much credit for saying "something is wrong" and getting it checked out.
***a long, long pause as I just sit here and stare off into space, thinking about you.***
We are rooting for you, Lisa. If there was a way for us to will this away, you know we would.
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Oh Lisa, I just can't even stand it. I am rarely, if ever, violent, and I just want to scream, punch and kick something. I am so sorry, and I am very hopeful that there will be a great response to whatever treatment plan they come up with. I'm going to go look for you name in that breast cancer survivor exercise book again, and run my finger over it, and think of you. Colleen
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Lisa, ditto with everything everyone else has said. @#$%^&*!!! I can't believe it. I don't want to believe it.
Listen, Lisa, one of the women in my September rads group (vhqh) recently went through whole brain radiation for brain mets really, really well. She's working, she's lucid, she's okay, from what she's said. Please feel free to visit our September Rad Group thread under Radiation. Here's a link to the page where she first told us. Scroll down to her later post near the bottom of the page:
http://community.breastcancer.org/forum/70/topic/719767?page=14
You will be in all of our hearts, throughts & prayers. Kathi
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