Im bitchy, I moan, I groan.....anyway.
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YAY Kathi...Sooo happy for you...and WAY TO GO. No need for us to roll over to make THEIR lives more convenient! Nicely done!
I have no IOS so I guess that's an SOI?
Welcome AussieSheila...you cracked me up..both for the story and for the differnences in language...somehow it makes it that much funnier!
Traci ~ thought of you today...was on NFL.com and I saw a really cool Dallas hat...on clearance too! I wanted to send it to you then jipped out (grammie's phrase for being cheap) and had to chuckle about that remembering your post about no one buying anything! I guess you were right!
I hope you all had a quiet day and have a quiet night...
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(((((((((((((((((((Kathi)))))))))))))))))))) Woo Hoo!!!!!!!!!!!! Such great news!!!
Welcome Aussie! Boy, you fit in!!! We should rename the thread "I'm Bitchy, I moan, I groan...but I'm still gonna crack people up!!
My bitch today is I couldn't remember which freaking forum our bitch thread was on!!! I WANT MY BRAIN BACK!!!!!!!!!!!!!!
Hugs everybody....gotta run, gotta go to NFL.com!!!
Traci
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Doin' the HAPPY DANCE for Kathi...... step step slide step twirl slide....
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Dream!!! You're a country girl doing the two-step!!!!!!!!!!!!!!!!!!!!!!!!
I took my OAOA to this huge country western bar in Dallas called Cowboys. He fit right in and actually got me on the dance floor. (miracle) I had to teach him the two step. It was so much fun. I would post pictures but I look like sh*t in every picture. Man, I can't wait 'til I get some length on my hair...... (I know, I know!!! At least it's hair!!! Woo Hoo!!)
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I was on an online chat with PMH - Caring Voices and I said that I was upset because the doctor had told me progression but I was unclear was to where and how much it was. They were saying, call the oncologist's office and tell them that you want an explanation. Ok Im a wimp. I cannot do that. So I do the next best thing. I print off a copy, drop in on my family doc and under the pretense of giving him a copy for his file, have him explain it to me. Devious, but effective.
What he said is that I have a kidney stone. But its not doing anything or I would feel it.... very painful. However he says the two tubes that go from the kidneys to the bladder (uters) the right one has a mass in it. He is wondering why I am not seeing a neurologist. Asked me to ask the doc why I am getting treatment without fixing this problem. Ok if I couldnt ask for an explanation, I dont think I can challenge the doc about the urologist thing. Anywhoo he said if any blood in urine go to ER. Ok I can do that. tee hee
This does not sound so bad, but isnt it like a fallopian tube.... if you get something bigger than it is it ruptures. Isnt that what you hear in med shows.... renal failure... I am not reassured.
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Dream that is some major suckage all right! Have you got to be on your deathbed before tx is started?
My current issue of 'suckage' is having had a brain scan on Thursday, without contrast. During my initial body scan in Nov 08, two nurses/techs? tried and failed, 2 x each, to find an accessable vein on my good/left arm into which to inject the contrast. Finally, one of them went off to find a doctor to do the deed. Being a normally laid back type of Sheila, I lay on the scan plank trying to regain some dignity because I had become a bit jittery about what was coming. (Little did I know.)
My nerve stabilising efforts were rudely interrupted when a loud male voice bellowed at me from behind my head somewhere, "You know, this business of not allowing injection procedures in lymph-node negative arms is just a fallacy!" He stormed around to face me then and continued, "There is absolutely no research that shows any detrimental consequences after injections into those areas...." and he continued on for another minute or so before stomping from the room. The two nurses were so embarrassed, their faces were bright red. I was utterly gobsmacked and didn't object to the injection into my right/bad arm.
When I went back outside to the waiting room, my arms covered in band-aids, my DH drew attention to my plight by asking rather loudly, "What did they use you for..... a dart board?" All the patients and counter staff looked at me and then quickly looked away. I was one blink away from tears by this time. When we got home, DH took photos of my arms with the band-aids and without, showing in close-up all the bruises left by the treatment.
I told my Onc about this last week, after she had written out a brain scan request. She then added a 'no contrast' to the order. I am now worried that the scan won't be as revealing as one done with contrast.
I am only three months into this second go-round and realise that I will have to have many of these test in the coming years, but I feel a major phobia about this issue starting up. It's bad enough that we have to have worries about our brains, without having 'suckage' worms eating at our minds.
Next time I have to go to that X-ray facility, I will take a dead fish and b!tch slap that man about his chops if he comes anywhere near me.
Sheila.
8:45pm Sat 14 Feb.
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Gentle Hugs and a loud THAT SUCKS for all who need it. When I went for one of the MRI contrasts the nurse had me in tears and lots of blood on the floor and on me before she finally got a good vein. Previously I had NO problems - she said she "blew" a vein. Since I have a port, NEXT time - IF there is a next time -- I will make sure that is usable OR at least someone who knows what they are doing. Now, do I have to worry about this blown vein???
Happy Valentine's Day to ((((((((( all )))))))))))), Nancy
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Holy cow....so much suckage! THAT SUCKS, Y'ALL!
Sheila, I think you need to take those photos and attach them to a letter directed to the hospital's director. Adding in the OFFICIAL recommendations of the LYMPHEDEMA network would also be a good idea. When we are met with morons of that caliber, I (guiltily) wish their own ignorance comes back to bite them in the rear. If he had to suffer with LE one day of his life, he would not even consider injecting someone's "bad" side! Slap him with TWO fishes, my dear! What an a**hole!
Ladies, it seems like every time I've posted here lately, I've brought news of a new angel. I am sorry to say that we've lost dear Angela (BLESSED4). Many of you may remember that Luann helped us organize a fundraiser that sent Angela and her family to Disneyland last summer. Angela was so young. I am sure her family is just devastated.
I don't know if this falls under IOS or SOI: Last chemo cycle, the onc told me he was concerned about my tumor markers going up. We agreed to re-test this cycle to see if there was a trend indicating progression. Well, I got the results Thursday. It seems that this most recent test was within 1 point of the previous. So, that would mean no progression in the last month or so, but markers are still higher than they were when I started chemo. We are sort of just waiting and watching, looking for a definite jump or drop to tell us if more scans and a tx change is in order. Anyone who knows me knows that uncertainty just drives me batty, so this is very frustrating. I'm trying to look at it like this: STABLE is GOOD...so let's just call it STABLE for now...right?
Tomorrow marks the 3 year anniversary of my bc diagnosis (mets right from the start). I've already proven my first onc wrong by surviving this long and still being able to walk. I hope to really pi$$ him off and be here in 3 more years.
Much love and many (((HUGS))) to you all!
Diane
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Kathi - great news!
Dream - hang in there
Nice to see everyone, and I wish everyone a suckage-free rest of the weekend!
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A that sucks to all that need it.
Here is mine suck for the day.
Yesterday I go to the GYN in an attempt to find something to assist with my lower desert problem. Over the counter things have not been working. While there she looks at my face and starts to question me about a mole. It has been there about 5 years and no one has mentioned it before. She then calls primary care and sends me there to have it looked at. I now have referral to dermatologist.
This morning I call to check on my sister to find out she has been diagnosed with colon and breast cancer and started chemo last week. She didn't want to tell me until after my birthday and my exchange surgery. I am so blow by this. I have lost one younger sister to this condition. I hate the thought of my next sister having to bear to effects of chemo. I just hope it in time to save her.
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Good deal there, Kathi!
Pinky Lee - oh, awful news about your sister. Hugs and prayers to both of you.
AussieSheila - welcome. Good lord. You wonder sometimes how certain people can go into the human side of medicine. You are not a pin cushion! (Can't tell you how many docs told my mom that there was no such thing as lymphedema.)
Diane - Stable is GREAT. Piss 'em all of - be here for 30 years. So sad about Angela. Too many losses these days.
Nothing particularly IOS-ish or SOI-ish. Pissy mood. Trying to keep #1 daughter on the straight and narrow til HS grad. Then 2 months & she'll be off to college. Too many ups and downs. Yesterday would have been my dad's 75th birthday. He died at 46. I remember how awful it was for all of us (I was barely 19) and my heart always sinks when i hear of another young parent's passing.
Missed much, I'm sure. Keep the IOS to a minimum.
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Dream, the last thing you are is a wimp!!! Get your answers anyway you can! You are entitled!
Aussie, Nancy.......a big OW!! That sucks!
Diane....hope you keep pissing them off! YA!
Pinky, sorry about your sis
Kathi......whoohoo.....thats great!
My suckage is not great, it's my mom. Alzhiemers so they say. She is deteriorating quickly these past few months and it is so sad and frustrating to watch. I feel so helpless and hate not being able to care for her ourselves. It will soon be time to move her to a nursing home......another dreaded place. I can't stand seeing her like this.
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OMG, Sheila. You cracked me up! That was so funny!
Yep, I just stopped in for a minute. Been very busy...LOL
I've read a little and there's too much suckiness. Mine right now is my kids are coming home in a couple of weeks. I'll HAVE to clean. It'll take me that long to remember how to clean. I suppose I'll make a list of "things to do." I'm really getting very bad about starting one thing and instead of finishing jumping to something else. I hate cleaning!
I'll have to catch up later. I see many new "faces" here.
Shirley
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I don't know whether you all would call this a suckage issue but, when I had my first dx in '95 I had to be a chemo test dummy for two nurses who had just been trained to do chemo. As I live in a small town of 23,000 people, our local hospital doesn't have specialists or the equipment (scanners etc.,) nor staff trained in all facets of medicine. Normally, I would have had to travel 300kms to get chemo, and if I had had radiation therapy, I would have had to travel 3+hrs, to Brisbane and stay there from Monday to Friday.
Donna, the youngest nurse, was very careful about administering the toxic cocktail and warned me that the anti-upchuck medicine (Ondancetron?) would make me feel like I had ants in my pants. This went really well, with no major effects felt because she did it so slowly. The next tx was done in the patients lounge-- as opposed to a private room on the surgical wards--and there were quite a few patients and their male visitors sitting around the room.
I got the older, more 'efficient' nurse this time, so I expected the session to go quite quickly w/o drama. As she inserted the anti-upchuck med into the drip line, she warned me about the ants thing again. The difference this time was that, after inserting the needle into the drip, she pushed the plunger straight down and emptied the syringe in 2 seconds flat. The upshot of this was that I upshot towards the ceiling as fire ants started to eat at my nether regions. My face went red, one leg shot over the other and I had to bite my fingers to stop them shooting into my pants to scratch the itching, in a way any five year old boy would have been proud of. I'm sure any one watching me thought that I was filling my pants like a baby as I went stiff and red faced, whilst gritting my teeth hard enough to crack macadamias.
As most of us know, this effect didn't last long, but I felt so embarrassed afterwards I couldn't wait to get out of there. The efficient nurse told me later that she had just come back from Brisbane where she had nursed her father through cancer tx and I hoped for his sake that she had been less efficient than she was with me.
I wish you all less of the suckness monsters and more of the warm fuzzies.
Sheila.
Mon 16/2 7:05 pm
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Sheila- yow
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One of the ways I prevent anyone from putting a needle near my LE arm is to wear the sleeve. After a couple of swellings, you couldnt find a vein on my hand or arm so I dont have to use the sleeve as a reminder..... At the point where they were about to use the bad side..... the shows over folks, you failed. They could have looked for a vein somewhere else on your body. Feet are good.......
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Sheila - sorry, but I had to lol out your wonderful expressions! As a teacher of 5 and 6 yr olds, I know just what you mean!
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Sheila--THAT SUX! But you did make me LOL.....love the way you state things!
BTW--When running out of veins try NOT to use your feet if you can avoid it! It can compromise your circulation & cause a multitude of other issues (according to a doc after he accessed a vein in my foot!! SHEESH)
THAT SUX & hugs to all-Be well & stay strong
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this is just a drive by...giving a big that sux to anyone who needs it!
Thanks for the laugh Sheila...sorry it was at your expense!
My IOS...my puking has started again so go down to the 2mg doses of Herceptin does not seem to have done the trick! All the other side effects are present as well but this seems to be the most annoying of them, especially since I can't stop it, control it or predict it! Also, this dang cold that doesn't go away...it's the 3rd go round in our office and I'm OVER it! I've been with a cold now (on and off) since Christmas! Ugh!
**sniff, sniff**
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Sheila, your post made me laugh too. Sorry for the suckage but once again, the way it was written made me laugh. I wish I wrote like some of you girls.
Sorry for everybody else's IOS's (Navy, it's not like you to cry!!!) Here's my crap:
The pain in my shoulder is getting worse and this morning I woke up and my back was hurting.
I didn't mention this before but, while my OAOA was here, he saw my appt reminder card in my bathroom. I have to keep it out in the open, if I don't, I will sure as sh*t forget.
I've got to go back to FL for a scan. My Onc wanted me to get one while I was there for Thanksgiving because of my swollen armpit, but I just didn't want to deal with it then. I was on vacation. It was the holidays. Deep sigh.
Now, of course, everytime I move and feel pain, I think cancercancercancer. (I forget who I stole that from....that sux...can't even give credit where credit is due)
And then, to top it off, my boss had car issues today so he asked me for a ride. I said "sure". Well, at just before 6 I was like "are you ready to leave yet?". I'm sorry but I've come to realize that life is way too precious and I do not want to spend 11 hours of my day, commuting and working.
And......I've got computer work I have to do tonight. ARGH!!!!!!!!!! Anyway, thanks for the rant. Sure not very much bitchin' goin' on. I guess that's a good thing.
Love you guys,
Traci
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I have cancer brain suckage!!! I thought I paid my mortagae on line back on the first of the month. It never showed up. So, I went back and did it again, figuring I must have forgotten.
Just checked again and still no payment shows!!?? Needless to say, it is now over 14 days late!! WTF?? Went back to the site and - DUH- I never completed the transaction!! It said "print" after the first click and I did!! And thought I was done. How can I be so STUPID?? No, don't say it.
And, I'm right in the midst of refinancing the d*mn thing.
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Here's a hearty THAT SUX to all who needs it.
(((((((((((((((((Traci)))))))))))))))))))) Let us know when you get your scan scheduled so that we can all fit in the scan room with you and hold your hand.
Susan - don't you just hate the internet sometimes? I work for a company that offers our customers online ordering and if they don't finish their order completely - la la land for the order. (our ordering system is a little confusing, I admit)
Back to work - HUGS TO ALL!
Trish
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HI guys...lunchtime at the OK corral...don't ask me where this stuff comes from, it just does...
Traci ~ get the damn scan done before I fly to Texas and kick your *&$%! ...then let us know when it is so we can do like prayrv said...we'll gladly hold your hand through it and pour rounds until it's read.
Susan - I so feel your pain...I got a call from a debt collector the other day...I was mortified...I haven't been late on a bill in over 10 years. I have no idea what happened, I am sure I missed something-obviously more than once, which is scary - I probably thought I paid it and ignored the other notices...but you know what, I feel like crap - it's already late - and I just don't want to deal with it at the moment so f-it, I'll call when my cold is better. Besides, my account only has change in it until Friday anyway so unless the prez has a piece of that stimulous package with my name on it...we're both SOL until payday
IOS...or SOI - I'm not sure yet...company coming to visit this weekend...I've already delayed once so I didn't want to do it again...I'm just NOT in the mood! Anyone ever felt like that? Like you just don't want anyone invading your space and time and interfering with you doing exactly what YOU want to do...even if it means just laying on the couch watching Animal Planet? Really, they are low maintenance so I don't know why I'm being so bitchy about it...but I just don't feel like dealing with anyone in my space while I am having such a hard time...unless of course, it's my choice
Ugh, someone kick me in the butt and tell me to stop being such a grumpy ass whiner!!!!
Here's hoping the low levels of suckage continue...Aussie..tell me another story will you???
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PS...Shirley!!!!!!! I forgot....good to see you! Thanks for coming "home" and visiting...we thought you'd never be back
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I wanna 'nother story too..... come on aussieshiela
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Navygirl, we can certainly give you a kick in the back end, but for me- I believe I am entitled to cocoon, hibernate, keep my space to myself. So much energy and effort to do day to day things, adding company is hard. I usually meet people at resturant etc for a little while, then get to come home, get into comfy clothes and be safe again. Kind of like protecting my den (speaking of animal planet).
Elaine
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I got a shut off notice for my electricity. 15 days after the "due date"... and there is was sitting on the front seat of my car, ready to go into the mailbox, but it was UNDER a scarf, hat, 2 pair of gloves, box of kleenex. Don't good intentions count for something ??? A phone call took care of it AFTER I put IN the mail slot at the post office.
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They are much quicker and more agressive to take action these days. Guess recession/economy has taken its toll on everyone. I got a rather obnoxious call ONE day after the due date on a bill. Its crazy.
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Well, I'm obviously still at it...just found my sewer bill payment (check dated Jan. 14th) in a stack of papers on my scanner. Hope they don't shut my sewer off!!
What I need is a wife!!!Susan
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Hey, I played the cancer card recently with American Express because I really did forget that I'd bought a set of DVD's right before my surgery and then forgot to pay my AMEX bill for 3 months. And they nicely removed all the late charges for me and brought me up to date.
Susan, what we all need is a wife!! I've often said that. Or a personal assistant, which is just the politically correct term for a wife-like person who gets paid for everything she does. I may break down and get someone to help clean my house, though.
A massive and heartfelt THAT SUX to all.
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