Im bitchy, I moan, I groan.....anyway.
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Ok Kathleen - You win the crap award of the day.
The winner's check will be in the mail tomorrow. Once received, you can trade it in for one item of crap in your life. While the forum allows more than one submittal of crap, here's hoping you don't win again.Hope you get to feeling better.
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Kathleen, vertigo SUCKS! I had it at Thanksgiving last year, just woke up with it one morning, and it took me two or three days to realize it was positional. (Nice talking to you again, by the way!! ) Did some research and now do Epley maneuver at first sign of vertigo's return. (You can google Epley Maneuver and it shows you what to do--for me, it works!)
Off to see sweet plastic surgeon to get that pesky top stitch removed. Every time he says, "These are absorbable." I just look at him, and then I say, "It is extremely irritating." Then he removes it. I am also going to get copies of the pictures he took during my recent surgery, they should be pretty cool. THEN I need him to explain exactly what was done for reconstruction because I don't have it clear in my mind and I have to know (just have one of those brains)...
Much love to all of you. Day 3 of home chemo. Not too bad, just a lot of nausea.
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Update from page 387, still waiting for a call from an Orthopedic Surgeon to do with new spot on right femur. While in Brisbane for rads tx 2 weeks ago, told my Oncs registrar that I thought I had broken a rib in lower rear LHS near Thoracic spine as, having done RHS x 2 before, it felt the same. He just nodded and proceeded on about having a CT done on right leg as soon as possible. He also warned me off taking too much Ibuprofen for pain as it can do nasty things to ones kidneys.
CT done that afternoon and no more was said about it.......till the call last week re the Ortho surgeon.
Today, I went to pick up my full body bone CT scan done three weeks ago and, being the interested bystander I am, decided to read the diagnostic report inside.
I now find out that I have a new met on T11 'in the kidney zone!' I put up with self-inflicted (doing some cleaning while bent over) pain in that area yesterday because I thought that maybe my kidney was failing me from over use of Ibuprofen!
I feel like doing kidney damage to that Dr for not telling me what was written on that same report that he had on his screen while he told me about my right leg. Maybe then he would understand why I mentioned I had pain there in the first place. I don't know why I should be the only one to have to suck it up.
Sheila.
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Sheila, that's just not right!!!!!!!!!! When do you see the dick again? I hope you set him right. Ask him if he knows how to read a report????
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I don't want to win any suckage award, I just want to vent.
I just got off the phone with my mother and literally slammed it down on the counter and screamed in frustration. She just doesn't get it. She calls to ask how I'm doing, I tell her I'm tired (I did the Avon Walk this weekend) and then she's disappointed that I'm not feeling chipper. She was there to see, she knew what I was doing, so how else could I be doing after walking 30+ miles over the weekend?
Whatever... so next she asks me what's going on with the doctors, when is my revision surgery scheduled? I tell her, as calmly and patiently as I can, that I already told her last week, as well as the week before, when I first found out, that I wouldn't be having any consultation appointments until the end of THIS week, Thursday the earliest. So nothing has changed since the last time I told her this. But she's still pushing, asking me to talk about how I'm feeling about it all. I tell her I'm annoyed, obviously, but there's nothing I can do about it, so I prefer to not talk about it. But she presses further, asking about the details (as if she didn't already know them). So I tell her again, that the implant is too big, that it's bottoming out, that I have pain down my arm that might be from a neuroma (i.e. a nerve caught in my ribs or something). She admits she knew all this. So what more do you want???
And that's when my patience starts to fail. She says to me "it's good to talk!" and reminds me that she never talked for 20 years about her mastectomy and all. I tell her, "I'm not you! You're not my therapist; I have someone I talk to already, so stop pushing!" She's now in shock; I've commited the cardinal sin of admitting I'm in therapy (hey mom, you wonder why???). And now comes the "I'm sorry, I'm not angry, and didn't mean to make you angry either, I just wanted to help you" crap. AGHHHHH! If you wanted to help me, just call and tell me about your day, and if I had anything I wanted to share, I would tell you. Yes, I even tell her this, but she still isn't satisfied. So I finally hang up.
The hurry-up-and-wait of things is never pleasant, and so being constantly reminded that you have no control over your situation, regardless of what it might be, is quite frustrating at the least. To be told that someone feels bad for your situation is fine; but for someone to keep cajoling you to "talk it out" is just plain cruel. I started therapy when I realized I couldn't stop crying about things, and I was ready to accept whatever came with that. No one dragged me there kicking and screaming. And certainly not to my mother.
Thanks for listening. Hugs to all of you, for all your ills and complaints and annoyances. Vent on, girls!
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Orangemat ... I read somewhere that, of course, your parents know how to push your buttons - they installed them!
Sue ... I am going to google that web site - I don't know what's worse - vertigo or nausea. You poor thing.
Sheila ... don't you just love medical staff that ignore you?
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Sue,
I am also glad that you took the S out of mets.... ;-) It does suck that all this is happening at the same time the baby is going to arrive... maybe that will add some extra happiness to this otherwise sucky ordeal. Love ya, hon! I'll be praying that all goes well for you, whatever you decide to do...
Harley
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Update...three days later..
Got the call today form Ortho's registrar, up at 5 am next Tues for 9am app't, to 'discuss what you want to do about your right leg.'
Ummm......excuse me? As I don't yet know quite what is wrong with that leg, apart from new met, I would like it if they could tell me 'what can be done about my right leg.' As I have been sent to see a surgeon as opposed to a Rad Onc, I can only think that the next tx involves, sleeping while sharp objects are used.
Aaahh.........I get it! They want me to tell them how to do it probably.
Sheeesh!
Sheila.
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{{Sheila}} That Sux hon...why don't they just do their jobs and get their 'craps' together???
I have to say, it does make it easier for me to accept some pieces of stupidty when I read your ladies woes in dealing with the offices of the professionals (so they've been called I hear?) in white coats.
Trivial suckage of said prof. office I'm speaking about for me, is when my pharmacy calls their office to extend my arimidex order. Mind you I only see the onco every 6 months, right? so my next set appt since June is like the last week in Nov right? So what do they do? Extend the flipping script for 30 (thirty) DAYS!!!!!!!!!!! WHY? Makes no freaking sense...they had to have gotten my chart to extend it 30 days, why wouldn't they look to see that my next appt isn't till Nov and extend it 90 days...this was in mid-sept...Freaking stupid...soooooooooooo...they'll have to spend another wasted minutes searching for my file to extend it twice more....
THAT IS WHY THEY DON'T GET BACK TO YOU LADIES AS THEY SHOULD!!!! BECAUSE THEY ARE WASTING THEIR TIME ON STUPID RECALLS OF SCRIPTS AND SHEEET! Dumbnutty professionals...there....I said it for you
Love and {{hugs}} to you each suffering the real suckage out there ladies
I'm so sorry you are dealing with it all..wishicould lend a shoulder in person to take some weight off your shoulders, hearts and minds SUX...just sux...and we all hate you are dealing with it Off to work...and glad I have the job...so many are hurting on this cold, bone chilling morning...prayers for all...
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Sorry to see all the suckage going on. Listen to my crap - 4 1/2 years after my mx it looks like I've developed LE. SOI (suckage otherwise inverted) - it's early stage and hopefully will stay this way if managed correctly.
Prayers for all going through their own suckfests......
Trish
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Sheila ... (((((((HUGS)))))))
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{{Trish}} So sorry to read your post... a fear of mine, although i had minimal removed, it's still a scary fear
Hope it's kept at early and never progresses hon 0 -
prayrv, suckfest.....lol, sorry you got one going on!
Sheila........wtf???? (((HUGS)))........hope ya figure out how to tell them to do it!
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Viv, I think I can manage how to tell them all right, just not the bloody part!
Sheila.
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Pharmacies give you 30 days so they can charge their 'Refill Charges" again!! We pay almost $12 up here to get a prescription filled, then the charge of the drug itself. Most drug plans will pay only $9 towards the refill part so though I pay for 100% coverage, we pay at least $3 per prescription and as much as $30 for some refills that aren't updated on the Provincial Formulary!! So much for 100% coverage, eh????
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Sometimes you wonder ... I'm asking for a prescription for a chronic condition ... not narcotics. Even before breast cancer when they limited how much of a drug you could have I always wanted to ask the insurance ... what's the big deal - are you afraid I'll die before I can use all the pills? I mean, its not like there is a street value for high blood pressure medication, insulin, high cholesterol, depression, etc.
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Trish, sorry for the suckage but glad it's not worse....Sheila, hope you are studying, otherwise you won't know what to tell the surgeons to do!! Kathleen, sorry for all your suckage. I am in Tennessee, we went to the Jack Daniel's World Invitational BarBQue Contest......Mike was a judge. It was fun except I found myself NOT in a party mood....so went back to room early. It's no fun being around drunk people when you can't drink because you are taking opiates. Mike's mother fell and broke her hip in threee places. She is in the hospital but they are talking rehab and not surgery. Today Mike and his sister, Donna, will bring up the subject of a rehab facility. HIS MOTHER WILL NOT BE HAPPY. Love to all of you AND ENOUGH SUCKAGE ALREADY!!!!!
Edited to remove the 's' in 'mets' cause I only have/had one, and to add--MY SCANS CAME BACK CLEAN!!! No additional cancer, just the margins from the met. SO relieved.
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Sue - that is SUEPER!!!!!!!!!!!!!!!!! about the mets!!!!!
If they aren't going to operate on your MIL, does that mean she will be wheelchair bound for the rest of her life????
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Sue ... that is wonderful news! And I second Barbe - what does that mean for your MIL?
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Barbe,
That sucks! I thought it was bad that my insurance just went up on my prescriptions... now $5 for GENERIC... 30 days, that is....
Kathleen,
I always wondered why my insurance won't let me refill any of those meds. earlier than they allow it... I thought they were worried that we would OVERDOSE on them, and kill ourself... now WHY would any of us do something like that??
Harley
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Sue
YAY on the ALL CLEAR on your SCANS! YIPPEE!!
Harley
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Overdose? Nope! I can get my Oxycodones 180 at at time, my Hydromorphone 60 at a time. But my blood pressure meds??? NOT!!! Those I can only get 30 at a time....sigh.
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Apparently two of the breaks are in the pubic bone and only one is in the iliac. Physical therapy to make her UPPER body stronger to allow the fractures to heal is the way to go, it seems. She was able to walk down the hall and back with a walker and help today.
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barbe, that is so ridiculous! I can get ALL my 'maintenance' drugs 90 days at a time, but ONLY IF my stupid pcp doctor will write the Rx for 90 days... My Effexor, he insisted on writing for 30 days. Then he only gave me 2 re fills. When I called for MORE, he wrote it for 90 days, but NO refills! WTH?
ooh, Sue, sorry about Mike's Mom! Sending HUGS
Harley
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Sueper...................WHAHOOOOOOOO!!!!!! Hope the rads and Xeloda take care of the rest of the little beasties!
Hope mums hip heals well enough for her to remain mobile. No fun getting old sometimes! The more mobile one can stay the better!
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Sue, glad to know she can walk with a walker!! Avoiding the surgery really is the best thing. It seems like she will still be mobile.
Harley, I thought they wouldn't give someone enough drugs so that they could OD on them, but that doesn't seem to be the case. As for the Effexor, you will have to get bloodwork done on your liver as you continue to take it so the doc has to see you regularly. Also, you may need and increase or decrease so he has to monitor it all.
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Barbe,
Well... I am only taking the 37.5 dose... I didn't know that Effexor messed up the liver.... UGH...
Harley
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All I've got to say about Effexor is what yourself on it Harley. Take it everyday without fail. This stuff can drop you in the deep abyss without a second thought! Seriously...do NOT forget it. Take it as soon as you realize you've missed it. And for heavens sake, if/when you decide to stop it...do it very slowly....very, very slowly. I only took a short while and it's nasty stuff when you try to stop it. Nasty....
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Agree, agree, agree, Wish. I took Lexapro and coming off that was really strange. I tapered down, but there was this weird brain reboot thing that happened about twenty times a day...really weird physical sensation. I am avoiding the anti-D's for now, although I am taking an anti-anxiety.
I saw the rad onco today, and I asked her why the med onc's estimate of my radiation treatments was ten days and the rrad onc wants to do 28. She answered me that she considers my sternal met to be more of a loco-regional recurrence and that her treatment is curative in intent. That was SOOO good to hear!
Christmas play practice--we gave out the parts tonight and only had three meltdowns. I PROMISED those kids that melted down that they would have a part they could be happy with. So, next Wednesday, we will start running through the play at last!! I am so excited!
Much, much love to all of you.
Sue
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Wow......{{SUE}} My prayers will be on for her than Lady! Gotta love a positive Rad Onco hey! She sounds wonderful to work dear!
(had to edit this, as I had NO idea what I was saying in that first sentence....couldn't make it out...seriously worry about my brain some days Those kids are so luck to have you working them~ I'm sure there are many, that wouldn't take the time to care enough to even both with the emotional issues of posting decisions like that. It can have an impact on childrens psych. Even adults have issues with rejection, how is a child to learn from it, if not through a great leader as yourself....Kudos to you for taking the time to make this experience a good one!
Cripes...had to edit to say I'll keep Your mom in prayers....how did I miss that....Oh, perhaps b/c I'm dealing my own 83 y/o mothers torn shoulder cuff....and her fight with meds and possible surgery...I pray we all live so long and healthy as she has been. What an inspiration she is to us all.
{{hugs}} to everyone...hope the suckage is in minimal mode for all this week?
I was taking the effexor b/c I wanted relief from hot flashes. ONE day I forgot a pill....by the time I realized, it was 1/2 through the day and figured, whatever, I'll take the 2nd day as I did in the morning. Wrong move....I had such severe headaches, I was throwing up. Depressing like never in my life, except from the chemo/steriods....deep and dark so quickly...within hours of taking the effexor, it was over...SWORE to get off it. Doc wanted me to wait, and I finally did it myself over 6 weeks...very slowly and very carefully. Even when I was down to one pill every 3rd day, from 2 twice a day....I had severe headaches at first...Hate that med. I know some need it for depression, and i'm grateful they have it, BUT Oh my, what a powerful drug...I'd rather than oxycodone or what ever for pain and risk that than to take effexor again...scary stuff.
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