Im bitchy, I moan, I groan.....anyway.

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Comments

  • kmccraw423
    kmccraw423 Member Posts: 885
    edited October 2011

    That sounds like a really scary drug!

  • Connie07
    Connie07 Member Posts: 446
    edited October 2011

    My psyche told me it was a hard one to get off of. 

    I take Effexor as part of a generic mix as Cymbalta (effexor and prozac). and I get it for 90 days, from CANADA!!! You do have to ask the doc to write it for 90 but they don't seem to mind..  Locally they would only sell me 30 days at a time.  Maybe it's sold on the black market so they don't want to give you some to sell on the street..    Here dopey.. come get your anti-ds here.(AS IF) Who takes it, that needs it and would sell their supply????  Also, there is a generic available now, but they still restrict amount.

    I got a cortisone shot in my shoulder yesterday and it was NOT the worst one ever and it helped SOOO much. Its hard to believe one could function with so much pain, because when its gone I can function SO much better. Nicer. worth the $40. He wanted to do MRI, but at $375/copay I'll wait until after Jan. 1 when I;m changing insurance and will have a much smaller copay.

    What a world, what a world. ~Connie.

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited October 2011

    Connie, my doc told me that kids are breaking open the capsules and snorting Effexor and Cymbalta!!!! What idiots!!! I didn't know Cymbalta was connected to Effexor. I'm on the highest dose I can take on Cymbalta as well as 200 mg of Seroquel! I should be as friggin' happy as.....crap! - who's happy???

    We had taped a movie called "Beethoven's Second" where the big dog mates and his girlfriend has puppies. I had Paul stop and erase the movie once the pups were born cause I didn't want to see any angst or have to watch a sad part How SAD is that??????

  • Connie07
    Connie07 Member Posts: 446
    edited October 2011

    Yeah, I understand that.. Like don't get me started with the tears. But at least you know yourself well enough to not watch past the downers. I ALWAYS literally, always rent comedy's. maybe romantic comedy's but something that will be either emotionally silly, or made to make you laugh out loud. There's no better way to provide your entertainment than to get or do something that makes you laugh.

    Here comes Halloween. We have "trunk or treats", for instance a church, or tonight the YMCA lets members park in a limited parking lot area and dole out the treats to a parade of little monsters.

     gotta run.. I'll BE BACK!!!

    Superwoman

  • sueper13
    sueper13 Member Posts: 360
    edited October 2011

    Connie,

    We have Trunk or Treat too! (at church).  I LOVE the little monsters!

    yes, Effexor is scary.  Trying to avoid the anti-D completely this time around because it was so hard to get off and because it made me feel NOTHING--which was a bad thing.  Meanwhile stay away from me in the mornings as it is still hitting me brand new every morning and that is when I cry.  Today is  my last day of my first cycle of Xeloda.  Week off!!  Not too bad except if the fatigue is cumulative, by the time I'm done I will be in double-nap-a-day territory.  Oh, welI am retired...my only job right now is producing the Christmas play and waiting for the grandbaby boy who is due in November,

    Hoping for minimal suckage!

    Sue

    Edited to remove the 's' in 'mets'....

  • Harley44
    Harley44 Member Posts: 2,126
    edited October 2011

    Sue, 

    Thinking of you, and glad you are finished your 1st cycle of Xeloda.   (HUGS)

    Wish, and all,

    I have been through the crazy withdrawal symptoms from Effexor, and I didn't want to go back on it.  BUT,  back in July and August, I was having some terrible back and shoulder, and arm pains.   I was SURE that I had bone mets.   I wasn't eating, not sleeping, and, well, I was a basket case.  So my primary care dr. told me to go back on the Effexor.  That is why I am back on it.  Also, the HOT FLASHES got WORSE... maybe because I was so stressed....  I dunno...

    Hope everyone has a wonderful HALLOWEEN!

    Harley

  • wishiwere
    wishiwere Member Posts: 934
    edited November 2011

    Harley....are you on arimidex by any chance? I thought it was tamox., but just curious, as I know those pains and fears lady....we always will think the worse, I'm sure. Sorry you are feeling that way hon :(  Wish I could take that fear away from you, it's simply NOT a good way to live our lives after BC.....

    {{Sue}} Hoping for an update hon.....keeping you of course in heart, mind and prayers...as well as others fighting the suckage...Damned c anyway. 

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited November 2011

    Harley, Effexor is often used off-label to ease hot flashes. You should be getting some relief!!

  • StillKicking
    StillKicking Member Posts: 29
    edited November 2011

    I've had it pretty good lately so hate to complain but that's what this topic is about.  I am the executor to my sister's estate and I sold her older SUV to a DEACON in the church for $1,200.  He only had $600 and said he would pay the balance in two months.  I went ahead and transferred it to his name (I know dumb move) because I was paying insurance on it.  Four months later and I haven't gotten another dime from him.  Now i've got get nasty.

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited November 2011

    This may sound dumb, but have you asked him? Bill the church - maybe someone else opens the mail and will see it. That's bullcrap no matter which way you cut it, though!

  • sueper13
    sueper13 Member Posts: 360
    edited November 2011

    Wish! I am doing good. I started radiation yesterday (2 down, 26 to go!) and the onc told me today we don;t need to treat with the Xeloda while I am doing radiation.  BIG SIGH OF RELIEF as I got a mouth sore and really bad nausea ON MY WEEK OFF.  So, just five and a half weeks of rads and then the Xeloda.

    Christmas play practice is going great..it's SO much fun!

    Harley, sorry those fears and nervousnesses bother you like they do.  Hugs and prayers to you!

    Much love to all of you!

    Sue

  • 3jaysmom
    3jaysmom Member Posts: 2,604
    edited November 2011

    i haven't been here in forever; but life is kickin my butt lately, and i missed you guys... nothing new,really.. the same old suckage.. sometimes it just gets overwhelming!!!

     Just wanted to let you know im still reading, if not posting. i also wanted to get my computer started on a decent page, not 6 back...Barbe; still praying sunday goes well... its this sunday, right??? kiss Zach from all of us.....3jays 

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited November 2011

    Yep, tomorrow we all gather for my step-mother's birthday. I'm NUTS to put myself through it all, but am hoping it all goes well. I'll let y'all know when the dust settles....

  • sueper13
    sueper13 Member Posts: 360
    edited November 2011

    Barbe,

    Just yell if you need the shovel brigade....

  • Harley44
    Harley44 Member Posts: 2,126
    edited November 2011

    Thanks, everyone:

    I had a bone scan back in August, and a ct of the cervical spine.  It was SEVERE ADVANCED ARTHRITIS.  I thought I mentioned it before.  YAY!  ARTHRITIS!  No, I am not having those fears now....   but they do seem to pop up whenever I have some new pains...  I'm sure that we are ALL that way.

    Harley

  • wishiwere
    wishiwere Member Posts: 934
    edited November 2011

    Harley??  Is that from one of the txs, or something else?

    {{Sue}} wishing you would post hon...worried we've not heard from you this week at all :(

  • Harley44
    Harley44 Member Posts: 2,126
    edited November 2011

    wish,

    I don't know...  but I suspect that even if I was going to develop SEVERE ADVANCED ARTHRITIS,

    it would not happen til I was really OLDER...   my guess is that either the year of Femara or the Tamoxifen accelerated the process....

    Harley

  • wishiwere
    wishiwere Member Posts: 934
    edited November 2011

    That's what I was wondering...you're younger than me and I wouldn't have expected the advanced OA.  And Tamoxifen is supposed to strengthen the bones, so my guess was the chemo and femara?  Scary....

  • sueper13
    sueper13 Member Posts: 360
    edited November 2011

    Wish,

    I'm fine.  Doing radiation but I get to wait until it's done to continue the Xeloda.  The onc said when we were talking about doing them both together that was before we knew we were going to have 99% of it removed.  So, just daily rads (30-minute drive each way) and producing  the Christmas play at church has been keeping me busy.  I am grateful for your concern and sorry that you were worried.

    Much love,

    Sue

  • wishiwere
    wishiwere Member Posts: 934
    edited November 2011

    Sweet, sweet, Sue~  Never a reason to be sorry about being busy with life hon.  I'm glad you hold off on the Xeloda till the rads are through.  I hope you've got help with the play, I know that's very intense when putting it together.  Stay healthy throughout dear friend.  Remember to drink and eat well to keep you strength and energies up as you know.....{{hugs}} till you can update again :)

    Hope the lack of postings mean everyone's suckage is minimal as we get through yet another week ladies~ 

  • Harley44
    Harley44 Member Posts: 2,126
    edited November 2011

    Thinking of you, Sue...  Praying that your treatment goes well.

    Wish, Well, I had that bone density test BEFORE starting Femara...  and it showed early stages

    of Osteopenia.  After 1 year on Femara, I am well into Osteopenia, which is early osteporosis stage.  UGH...

    Harley

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited November 2011

    Harley, isn't Femara and Boniva and those drugs supposed to HELP with osteoporosis? Isn't that what Sally Fields used to say on her commercials???

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited November 2011

    barbe.........................Boniva is the one your thinking of...........Femara knocks the hell out of your bones......................it is one of the more serious SE's of taking it..................but you are right about Boniva............my GYN wanted me to take Boniva, or one of those drugs.........Actenol, Fosamax, but I refused..............................too many SE's.............I just upped my vitamin D............and Calcium...................who the hell knows......................Like I said.......worked for a Pharma Co................too much knowledge after 15 years........of being in research..................

  • Harley44
    Harley44 Member Posts: 2,126
    edited November 2011

    no, Barb, FEMARA and the AIs destroy our bones.   

    BONIVA is another of those bisphosphonates, and yes they are supposed to help bones... only I read that the bones they build are actually weaker and more subject to fracture, so I refuse to take them.

    Harley

    oops, I see ducky answered...

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited November 2011

    Harley ...............ditto for me too........................refused them a couple years ago........I heard........problems with digestion........don't lay down for 35 minutes after taking them, could cause jaw bone problems, not to mention the biggy..............and certain types of cancer.............really did I need another type of cancer beside the one I already have............don't think so....................people should begin reading the "little insert" paper that cme with their script .............it is put there for a reason..............call me nuts..............I read them all word for word...............

  • chabba
    chabba Member Posts: 3,600
    edited November 2011

    Me too Ducky, but then I once spent 5 years as a manager at the State Board of Pharmacy.

  • 3jaysmom
    3jaysmom Member Posts: 2,604
    edited November 2011
    a friend of mine, from France, had really good luck with stronium; a suplement; for her bones. she had severe thinning, and OA; but in a year or so, came back with a bone density pretty much normall.. might be worth looking into. she said she had no se's like the rest rxs do.........3jays
  • Juli50
    Juli50 Member Posts: 652
    edited November 2011

    Thanks, 3Jays, I just ordered some Strontium supplements. I have osteoporosis from chemo. I get the once a year infusion of Reclast and also take calcium and vit D everyday, but don't feel like that is enough.

    Juli

  • Connie07
    Connie07 Member Posts: 446
    edited November 2011

    HEY!!  I'm back. Haunting this thread like a ghost. Do you watch those paranormal TV shows? There is one that is called paran.. adventures and stars a guy named Zak. Well, they came to my city and went to one of the worst or best, guess depends what side you're currently on. hahaha  anyway.. they did a lockdown for the night, dusk to dawn is what he attempts and usually succeeds at staying the whole night but when he came here...  they went running for their own sanity. The ONLY time they called to be released before dawn. I cracked up. They were warned.

    Sorry, I digress from the subject matter.

    I've got lots of my particular brand of suckage to bitch and moan about. But that Zak is such a Personality! He calls spirits out, throwing verbal punches and daring them and sometimes gets what he asks for.  I know not everyone has had paranormal experiences but for those of us who have, we know better than to give them energy. Zak gives them that and they gave him a huge headache.

    I actually called ya'll to tell you about the newest PeaceBond having been written to prevent my DDs ex from harassing her. Here's the basics...  DD (27) married 5 years ago, huge wedding, parties, dress, flowers, venue on the water.. blah, blah.  she  and every one of us, all the grandparents, aunts & uncles, cousins, friends thought this guy was true blue and completely smitten in love with DD who adored him and we were looking for a first home to buy, etc.  HE had a lot more baggage than we knew. Then he took to going out alone and she cried.  So, she did what most young married, scared and afraid ... she got preg. That must have ruptured the hole in his vast cloak of deceit and lies and cheating and drugs. She put him in rehab. they kept him one week. as if. then the cycle repeated with the stealing money earmarked for the baby, which he said he was thrilled about. She called him on it, he got drunk. One night when she had tried everything she knew, & he came home trashed, she made him leave with me and the police involved. She barricaded the door and continued nursing her infant with me standing guard.

    more.... .

  • Harley44
    Harley44 Member Posts: 2,126
    edited November 2011

    Strontium, huh?  I will try it...  I guess you get it at the vitamin store?  

    Harley