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Hair Hair Hair - Another question

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Comments

  • cbk
    cbk Member Posts: 323
    edited January 2018

    Jennifer522- My experience was that fuzz stayed on my head and kept growing while on Taxol. I would not anticipate it falling out!! Totally plausible that this is that start of your hair growth; my MO told me I would sprout hair on Taxol and I did about 3 weeks into Taxol treatment. I had weekly infusions of Taxol for 12 weeks and head hair grew throughout.

    Never lost the head fuzz!!

  • catlady44
    catlady44 Member Posts: 73
    edited January 2018

    Twills, my curls fell out after about a year and a half. I was so sad because I thought they were cute! It's pretty straight now. The texture is a little different and it's very thin, especially on top. Thanks Arimidex, you jerk Winking

  • bellasmomtoo
    bellasmomtoo Member Posts: 93
    edited January 2018

    Has anyone tried ketoconazole for hair growth? I saw a Dr. Oz episode on thinning hair a while ago. They recommended ketoconazole 2% shampoo to encourage hair growth. But I don't think the shampoo w/ 2% is sold in the US. Nizoral A-D is a dandruff shampoo that contains ketoconzole 1%. Wondering if the 1% would work.

    I'm not on any hormone treatments cause I'm hormone negative. But my hair is much thinner, especially on the top, than it was before chemo.

  • TWills
    TWills Member Posts: 509
    edited January 2018

    I used 1% during chemo until my hair started growing. Just to keep my follicles clear.

  • Runrcrb
    Runrcrb Member Posts: 202
    edited February 2018

    Deen, my radiation oncologist said hair usually starts to grow back ~3 months after last chemo. I lost mine 2 weeks after first chemo. Started coming back two months after last chemo. I stopped wearing my wig ~4 months after my last chemo as I had enough hair to sport a short pixie.

    Twills - I'm 13 months post last chemo and have chemo curls - had waves before but it's definitely curly girl curls now. Hoping it stays but ... happy to have hair.

  • catlady44
    catlady44 Member Posts: 73
    edited February 2018

    My oncologist said people have good luck using Monat products, but they are friggin expensive! Have any of you tried it? I don't want to spend the money and have it not work. I've been using Nioxin products. The shampoo and conditioner are nice, but they haven't really changed anything. I'm trying their 2% monoxidil (sp?) serum, so we'll see if that works. They also have a thickening hair gel that's awesome.

  • OCDAmy
    OCDAmy Member Posts: 289
    edited February 2018

    I use Monat products. I started before I began chemo and have continued. I never lost all of my hair and it is growing back really great. I don't know if I can attribute it all to Monat but maybe so. I use the Let It Grow system which has the Intense Repari Shampoo and Intense Repair Treatment Spray along with the Revitalize conditioner.

  • Joyseeker
    Joyseeker Member Posts: 247
    edited February 2018

    Same as Amy here. Except I started in my fifth round. I have one more Thursday. Hair is coming back nicely. Monat is very expensive. I think my current bottles will last a long time. I use so little!!

  • DespiteEverything_ITrustThee
    DespiteEverything_ITrustThee Member Posts: 16
    edited February 2018

    I've heard Monat can be really effective. But I can better afford and have been using the Itworks Hair, Skin, Nail products since July of 2017 at about 30 weeks PFC and I am very pleased with the results.

    You can get the discounted $33 per month supply by setting up a minimum 3 month autoship and it's been working out great for me!! Shipping is free after that 3rd month! Love it.

    image

    image

  • AgathaNYC
    AgathaNYC Member Posts: 317
    edited February 2018

    I just started using 5% Minoxidal foam at the suggesting of my dermatologist. He said to ignore the warnings that women should use 2%. The foam supposedly won't drip down your face like the liquid version could. Wish me luck!

    I really am looking forward to having hair again :-)

  • misslil
    misslil Member Posts: 229
    edited February 2018

    Agatha, is that once a day or twice?

    I notice they are also marketing a 4% solution as a foam for women.

    I've been trying the 2% Nioxin version twice a day for the past few months. The thinnest areas on top and back have been narrowing, but I'm a good way from acceptable coverage to be seen in public without cover-up.

    I should probably ask a dermatologist but with all the other appointments I haven't got to that one. And if my hair won't ever be growing back well, I'm not ready to hear that yet.

  • Flynn
    Flynn Member Posts: 208
    edited February 2018

    Hello ladies! I love the pics that have been posted since my last visit! You all are coming along very well!

    I colored my hair about 2 months after I finished chemo. Not positive on exact day but there was a bit of hair to work with. I just bought a root touch up kit b/c my hair was (is) so short. It worked well and I feel better not being gray. I’m started to use a bit of mousse to spruce up my short do a bit.

    Cheers to all of you!



  • LisaCincy
    LisaCincy Member Posts: 316
    edited February 2018

    I went to get my 2nd to last infusion today. A lady walked in with about 1.5 inches of hair all over. It must have been an impressive growth, because all the nurses and NPs raved about how much her hair has grown. She said that she's been using Nioxin.

    Put my order in today!

  • Dianarose
    Dianarose Member Posts: 1,951
    edited February 2018

    Lisa- you can get Nioxin at most Wal-Mart salons and a lot of times I find it at Marshals for a cheaper price

  • anothernycgirl
    anothernycgirl Member Posts: 821
    edited February 2018

    Hi All,

    I am just back from seeing dermo who specializes in hair loss. He is sending me for a blood work up, and wants me to start minoxidol (he suggested 10% strength, but I declined and said mayyyybe 5%). He checked with my cardiologist who agreed to my trying minoxidol, as well as possibly switching my blood pressure med, which may be contributing to thin hair. So, in addition to minoxidol, he wants me to start twice a week red light treatments in his office. Any one else told to try that??

    I am not sure if I am ready to follow through. I am afraid this is all a money making venture for this dr.

    Sad

    Your thoughts?

    THANKS

  • anothernycgirl
    anothernycgirl Member Posts: 821
    edited February 2018

    PS The dr had male pattern hair loss, which did not add to my confidence in him!

    Sad

  • AgathaNYC
    AgathaNYC Member Posts: 317
    edited February 2018

    misslil - I'm doing the 5% foam once a day. Dermo said that more than once a day won't speed hair regrowth. (the package insert says twice a day and I'm ignoring it.)

    Nioxin ladies: which products do you use? They have a Minoxidil product that i assume is the same as other brands, but what about the shampoos, conditioners, serums, etc. Their line is pretty expansive.

    I haven't started yet, but I may start massaging some Jamaican Black Castor Oil on to my scalp, too. It has a different pH than simple castor oil since the beans are roasted before pressing and some of that char gets into the oil.

    Started Latisse on my eyelashes last night, too. I really hope that helps, too!

  • Joyseeker
    Joyseeker Member Posts: 247
    edited February 2018

    And......DONE!! image

  • misslil
    misslil Member Posts: 229
    edited February 2018

    I have to say, I have a similar concern on going to see a dermatologist for hair loss. It seems like something where with the wrong doctor, you could be brought into lengthy treatments of varying types that might not really do anything.

    I'm motivated to deal with this if it's fixable but I don't want to make my life revolve around it.

  • anothernycgirl
    anothernycgirl Member Posts: 821
    edited February 2018

    misslil, - exactly my thoughts!

  • scaligirl
    scaligirl Member Posts: 37
    edited February 2018

    Hello ladies! Just checking in to say HI to everyone and catch up on some posts. I thought about using minoxidil too but nixed that idea because my Onc told me once you start you can't really stop without losing some of your hair again. That seems like a lifetime commitment for short term gain. So the wait continues for me.... come on hair!

    I took this pic this morning, so 7 weeks PFC. I am actually starting to notice my dark brown hair growing back beyond all the wispy grey/whites that are longer. It is all very short and still seems to be growing super slow even though I am taking 10,000 mcg of biotin a day. It makes me really question how much less I would have if I wasn't taking that. I am really thinking it is going to be months and months before I can ditch the wigs and hats. Maybe in another month I will be confident enough to rock the "recovering from chemo" look with super super super short hair. Right now I have too much shiny scalp showing through to even think about pulling that off. From a few feet away it's like I have a little brown halo over my head LOL.

    image

    Oh and like lots of others, I have pretty much lost all my eyelashes. None on the bottom, and maybe 6 individual lashes over each eye. I'm experimenting with false lashes but I totally suck at it. It's very comical and I make myself laugh every time I try. I'm gonna need to buy like a dozen to practice with over and over before I don't feel like I have caterpillars on my eyes. I have about half my eyebrows but they are definitely thinning. I need to go get a waterproof brow kit as my pencil is definitely too smudgy after a few hours for my liking. Hope everyone has a great weekend!

  • cbk
    cbk Member Posts: 323
    edited February 2018

    imageScaligirl- I'm totally with you on minoxidil!!

    First time I'm bold enough to show my PFC lidphoto..Here I grow, 9 weeks post chemo.

    And I had a little surgeryin between!!

    My eyebrows and lashes mostly dropped post taxol, I'm shocked how fast they grew in!!



  • misslil
    misslil Member Posts: 229
    edited February 2018

    Curious what the dermatologists say on minoxidil in chemotherapy cases. There was upthread discussion about a small study suggesting you might not lose your hair (at all, as much?) after stopping minoxidil if you'd lost it due to chemo vs. a natural/genetic reason.

    It didn't seem like a lot of research to rest much confidence on for that theory, but it would be nice if true.

  • rdeesides
    rdeesides Member Posts: 233
    edited February 2018

    CBK your hair is quite impressive. I am 7 weeks PFC and I actually have less hair now than I did during Taxol. Sigh

  • cbk
    cbk Member Posts: 323
    edited February 2018

    Rdeesides- But you just went through a big surgery. Give it time!

    Not familiar with your chemo regime but I think after A/C a lot of us sprout hair on taxol. Or maybe it’s that we are so bald after A/C, we just see it better. When I say I was bald, I was like shiny cue ball bald without a hair, pre-taxol. My MO was OK with me taking biotin on taxol, so I did.

    Of course, that didn’t stop me losing all my lashes and brows. That was super hard for me. Like really, you couldn’t spare me that? Nope!

  • MamaOz
    MamaOz Member Posts: 239
    edited February 2018

    girls! Have patience! Your hair will grow! I used good shampoos and a dandruff shampoo to unclog the folicles the first month .. but I have to say it was 3 months post chemo that i dared not wear my hats and my hair was maybe 1/2 inch then , its now @ 4 inches (10) months post

    I worried as well , it was a good 2 months before real growth was decent, I have since colored it as my hair came back grey .. hang in there!!

  • rdeesides
    rdeesides Member Posts: 233
    edited February 2018

    I can see today that I have stubble eyelashes and some very tiny stubble on top of my head. Yay

  • orangedaisy
    orangedaisy Member Posts: 129
    edited February 2018

    scalagirl, your brown hair gives me hope. All I see on my head is the gray with just a little brown sprinkled in. My hair was mostly brown everywhere but around my face before chemo. It feels longer but still like stubble. I’m taking biotin, but the study that shows it interferes with blood tests is scary. Might switch to collagen. I start Anastrozole today which can cause hair thinning.

  • vl22
    vl22 Member Posts: 471
    edited February 2018

    I’m 7+ weeks PFC and I really want to dye my hair. I’m reading that it’s bad to use permanent dye or even semi permanent because the new hair growth is fragile? Is this true? Can someone share their hair dying experiences? I’d rather go to a professional than do it myself and have read about Henna, but not sure salons do it. If it were colored I’d definitely go out without my hat. I’m going to Florida end of March so definitely want to color it by then. Thanks!

  • Hopeful17
    Hopeful17 Member Posts: 20
    edited February 2018

    hi vl22

    I colored mine around 8 weeks or so too. I was happy to color it once I wasn't using anything too harsh. In the end I went with a water based color, with no ammonia or peroxide, and have been using it ever since, I'm v happy with it.

    I did feel much more like myself with the grey gone.