Chemo in Sept 08
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2 weeks left to Go Genia, on the rads??
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I have the 10 boosts and then back to 5 more regular treatments. So I guess it's about 3 weeks unless I have to take more days off because of burning. Were the boosts as bad as the regular rads?
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I didn't have boosts, but I think they are more targeted to a specific area, vs. being all over the entire breast, side, armpit, collar bone!!!!!!!! OK Genia, July is going to be your Month, Woman!!!
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Sure hope it beats LAST July.....that's when I was diagnosed. So far it's lookin good!!!!!!!!
Yes...that's what they told me. I have a purple mark circling my scar area and about 3 inches above and below it, so hopefully it will give my neck a break. She noticed today that my skin is breaking under my arm too. I don't have any feeling there....so I didn't notice it.
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genia- that's what i was thankful for during the end of rads. I was SO burned under my arm but at that point i was thankful for the nerve damage!! I hope your burn will heal quickly and that the boosts aren't too bad.
I go tomorrow for my yearly gyno check and for my check-up with the onco. Tomorrow is the bloodwork for the tumor markers. Not sure how long i will have to wait for results. Anyway it will be a day of appointments and maybe a little shopping. Daughter turns 22 tomorrow. Fathers day is coming up and vacation in a couple of weeks. I would really LOVE to find some shirts that look decent.
Hope you all have a great Thursday,
Callie is tolerating the chemo okay but is very tired and puny. Please pray that her counts will stay up so she can come home again this weekend to her own bed. After this week she has one more week of chemo and time off for her brothers wedding on the 20th. She is to be a bridesmaid so pray for her.
Thanks
BG
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Lisa - I had my yearly gyno check today...1 year from my last visit when I had to tell him I found a lump. He had never heard of this stinging pain thing either, so he said to stop the B-12 and see if that works. He laughed at my street fair bone density test and now I am having a dexascan on Friday. Next Thursday I have my yearly mammo. When I start the Tamoxifen, he says I have to go off the Evista and take Actonel instead. But he wants to see the results of the bone scan first.
Wonder what my PCD will say about all this on Friday. I get my tumor marker results then too.
Hugs to all!
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Genia and Lisa, I tell you, the underarm burn and "hole" was THE WORST so it is really a blessing if you are numb there! It was the thing that was driving me about batz I tell you! Yes, Genia, your collarbone sounds like it is getting a break. Thank God!
Jules, you have a ton going on. Can you ask about Zometa infustions for your bone issues? It's been shown to prevent bone mets (somehow changes the bone iteself to be less receptive to cancer, I believe) and this is what I am doing for Osteopenia. 2x a year, a simple, quick infusion. Just mentioning. I figure, may as well do this if it gives a leg up on the cancer thing.
Chris, can't wait to see your curls, Woman!
July last year (July 10 actually) is when I was diagnosed. Sounds like we're about to hit a bunch of anniversary's!!!! I have a June GYNO appt (Jules, this is when the lump was discovered as well), and a slew of appts in July. Then, I wonder, do we get like 6 months with no appts??? Oh pinch me if it is so!!!
Spring.
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Hey chicas! Just me...
I'm glad that we're all closing in on the end of rads! Genia, my darlin'...boosts are a piece of chocolate cake compared to the regular blasts! It will give your poor scorched skin a chance to begin healing...and when you're all done, it takes a little over a week to be healed of any open areas you might have...YMMV!! I'm still sloughing off some dead skin, and my tan is fading.
I have the D&C and hysteroscopy tomorrow morning @ 7am. My sweet, sweet gyn called me yesterday to tell me that he contacted my onc to confer about what she ultimately wants done once he's finished with surgery. She said that she wants everything to come out...so, my post op check will become my pre op appointment for a total abdominal hysterectomy. My guess is that it'll be at the end of the month, which will suck because the following week is July 4th and my daughter's birthday is July 5th. On the good side...NO MORE PERIODS!!! YIPPEE!!! LOL
Work's going really well...I completed a wedding for this weekend and did a huge funeral that's being delivered tomorrow. It's so good to have energy again!
My hair is very nicely curly...but then again, it always was naturally curly! I get a boatload of compliments on the cut (which I haven't yet had)...and I'm always tempted to shave it all off again, just because I know that I can!
Florida was great...watching Sam graduate high school, along with 700 of his classmates was an awesome experience. He cried and cried...kept looking at me like he was memorizing my face, holding my hand and rubbing my back. We hadn't seen each other in three years, so it was long overdue! I'm hoping to fly him back here for a couple of weeks during the summer so he can see the rest of the family. Time sure does fly!
Love, love, love to all of my beautiful survivor sisters...
Robin
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Here is another one 0 -
Last one, look at the crazy curl on the side! 0 -
Hi Robin,
Good luck for tomorrow, I am sure all will be well and like you said no more periods, does that mean that you will be able to have sex unprotected?
Genia, take care and heal soon, I agree boost are a piece of chocolate cake, nice one Robin.
I was told this week while on a course, calling me a survivor is an insult I am a Thriver!
Love to you all.
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chris- LOVE the curls. Looks great.
Robin- great to hear from you. Sounds like you have been busy.
All the docs seemed pleased yesterday. They flushed the port and since it had taken me so long to do it, they actually made me an appointment to make sure I do it again (on time) My gyno was really great and it remeinded me again why i started going there in the first place. At the onco's office they said i would not get the results from the tumor marker tests until Monday or maybe very late today but I am banking on Monday. ( we all know how that goes)
Boss has actually been in a decent mood this week. It has been a nice change. It just makes life so much easier when at least one place has a TAD of sanity.
I did finally find some nice looking shirts yesterday and while I could not find a dress i did find a nice skirt and blouse set so I won't have to keep wearing the other one all the time.
I hope all of you have a GREAT Friday and a SUPER weekend.
HUGS to all
BG
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Robin, best of results, girlie!
Chris, look at those curls! I will post one soon too! Love your color!
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Good luck with your surgery Robin....love ya girl!
Chris......those curls are amazingly beautiful. I keep hopin for some....but so far I don't think it's long enough to be curlin much. lol
My burn has crusted over (TMI), but it still hurts. I've been putting antibiotic ointment and burn cream on it. Seems to be helping it.
My Gyn told me to wait until my Rads were over to come in and see him. That will be a little over a year since my last visit. But I'm not complaining. Just one less Dr. to see right now...lol
Goin to my sister's this weekend again.....need a break from here!
love you all......and have a great weekend
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Good for you Genia, you always have such a good time with your sis!!!
Chris, someone on the Hair thread told me that our curls would likely last for 18 months and then slowly go back to our old hair! Can you imagine! What a trip.
Spring.
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Chris! I've been able to have unprotected sex (monogamous) since I was 27, when I had my tubes cauterized...your curls look great, BTW...nice and thick!
I feel good...but gee whiz! General anesthesia sure knocks me on my butt! I feel a nap coming on!
My hair's always been fine, but I've had a lot of it. I've got loose, swoopy curls right now, which I've always had! Nothing new for me!
I got a phone call yesterday from the hospital asking me to participate in a video interview for the new digital mammography unit in town. They want me to tell my story! I'm so excited!
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Go Robin!!! Tell us how the video interview turns out. I did one at the end of last year, I was still in chemo. Luckily I had a wig!!!! They were teasing me to take the wig off, and I told them, I'd rather take my top off and have my boobs hanging out than show my bald head!!!! lol
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Missing everyone...Genia, I wish you didn't have so much pain. I haven't been on for a while...trying to walk more each day and stay focused on increasing my exercise.
Since I am af/am, I don't have the raw areas and reddened skin, but my doc keeps asking me if I have pain ...until today the answer was no. They shoot the blasts, two to each side and then I'm off the table. I have 12 more days to go. My boob is getting my kind of tan
lol therefore, I assume the radiation is doing it's job.Your curls are gorgeous Chris. I don't have a clue about my hair except the peach fuzz baby chick transparent white hair has been replaced by very fine straight brownish-white hair with a white streak of hair growing down the middle of it... darker hair is coming in under the white in place...sparse... sparse...YIKES. My hair was mixed grey and I used dark brown/mahogany Henna for color. I can't wait. This is not my hair but something is growing so I'm grateful.
Too think I was going to have my boobs lifted. Well, no voluntary surgery for me now unless it's reconstructive post mastectomy. With my triple neg dx and my sketchy chemo history who knows what comes next... but the girls are good for now.
Spring, work it girl! 4.25 miles.
Juli, I hope the removal of the vitamin does it for you. I tried to do Niacin once but I flushed and flushed so much I had to quit.
I thought I'd chime in on SSDI...I can earn up to $700.00 more than I bring home per month...what I worry about is losing my health coverage...but maybe this too will improve with Obama.
I would like to volunteer again. I was Guardian Ad Litem for a while after my RA was stabilized and felt like I was helping so much. My last little boy's mom left him alone at McDonald's for more than 6 hours before CPS was called. He had been taken by CPS 9 times prior to that call. My fingers are crossed for a fruitful future.
Jane, hope you're still having vacation fun.
bettysgirl, yeah I see that light. I never understood...and why should I have...the phrase 'battle against cancer' but that's what it is...a Battle.
Good luck Robin... I hope your surgery goes well and you have a rapid recovery.
I had a port flush and blood work this morning...all is well...but I have to keep this port until all scans are finished...arrgh.
luv you...thanks for pulling for me...my one bff has disappeared. I get tired of calling her to tell her how I am. so I'm through with that for now. It's funny how Cancer clears your head. My son is here and my friends who call to check on me I call back now. and I talk to my mom in heaven.
luv you all and will see ya on FB:)
Going to a Health care reform metting tomorrow if I can.
xoxo
mina
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Lisa - I hear you on the shirt thing! It's so depressing. No offense to older women, but I can't find anything that doesn't make me look like I'm 70 years old. I want to look 70 when I'm 70, not when I'm 44. They just aren't making anything stylish that goes high enough up on my neck. I never liked the way the old me looked and now I don't like how the new me looks - now I want the old me back. I guess I'll never be satisified.
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Jane, please NO apolgies. I color my hair to enhance my 63 year old self:) I'm going to try to find a different lipstick shade when I finally go to lGFB and I may yet check out Mac counters and Sephora when I can. I have one friend who hates that I COLOR MY GREY? and suggests I'm rather shallow with her tone of voice...later for her.
back soon:)
Jane finally got to your Relay site:)
Genia enjoy your R&R:)
mina
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mina- don't let her make you feel bad about coloring your grey.If I could go back to hair color without another allergic reation i would in a HEARTBEAT!!
I have still had a lot of peeps tell me they like my hair short. I am not convinced and do not want to keep it this short but am checking out books and stuff to see where i might want to go with it.
Jane- I might have spent a "tad" too much but once i found some shirts that didn't have boob darts and i had some really helpful sales people, well i just kind of had a good time. BUT the on regret about not having prosthetics is that now that the boobs are gone the stomach seems to have tripled in size LOL....Time to diet I guess.
Babysitting all day today and tomorrow. Say a prayer that i am still SANE by Monday.
Love you all
Lisa
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You all will get a kick out of this - while I still look deformed and can't find a decent shirt - I do look better now that I have figured out I've been wearing my prosthesis sideways!
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Jane - Too funny! ROFLMAO!
I'm very discouraged... My PCD doesn't think it's the B12 causing the stinging. He thinks it's a side effect from being thrown into menopause, as opposed to easing into it. But no one else has this problem!
hugs
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LOLOL.....Jane!!!! Sounds like something I would do.....that's so funny!
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too funny- sounds just like something i would do jane. although i wouldn't figure it out.
3 more hrs of babysitting...I am soooo tired. I wish i had their energy
Well weekends almost over, seems so short and yet has been soooo long Vacation is coming up and for some reason just not into it this year. Kind of dreading it actually.
Anyway have a great evening ladies.
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Jane, I love ya and I know that would be me... bettysgirl...lov ya:) Jill...many big hugs to ya...hope you get answers soon.. Genia....hugs to you too...
sharing this news.... new to me though with my chemo brain I think I've seen it before now that I've I shared it on two boards here.
tired nitenite
http://www.webmd.com/breast-cancer/news/20090602/new-drug-for-hard-to-treat-breast-cancer
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Oh Jane, you silly devil, but how can you tell, it dosn't have eyes does it??
Sorry about the rash Juli, we have all been thrown into menopause, I honestly don't think it is that, keep looking for answers, go to a skin specialist if you haven't already, I am sure there is a way out of this awful period for you.
Best wishes Singapore
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Chris - no rash, just stings all over till I cool down. It must be a rare side effect of something.
hugs
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Jane, you are A RIOT!!!!!!
Chris, I was at church this weekend, and a few rows up was a little girl with the curliest hair, down to her shoulders, and it looked so cute. Just saying!!!
Jules, don't give up. But what a pain!! Do you think it could be an effect of the chemo? Or was it not happening when you were on Taxol??
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