Can we have a forum for "older" people with bc?

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  • petite1
    petite1 Member Posts: 2,291

    YIPPEE

  • mavericksmom
    mavericksmom Member Posts: 1,275

    Petite, great news! I wish I could stop Letrozole. What type of sample is used for that test? Blood, saliva or tumor sample? Honestly, other than knowing Letrozole makes it harder for me to lose weight, I haven't had any side effects. I am so happy you don't have to keep taking it! It is about time something goes right for you!

    Our little pooch is adjusting. Poor baby hides in the kitchen corner. I retrieved her earlier and put her on my lap and petted her. She started to close her eyes about the time I had to go pick up our dinner, a veggie white pizza. She ate her dinner but has yet to drink anything nor has she peed or pooped. Ugh! She is super cute, quiet, and so confused as to what is happening to her. Poor thing has not had a good life so far and doesn't seem to know it's ok for her to walk around the house. I think she just needs time. I am hoping she will at least pee tonight before bedtime. I am going to go and get her now. I think she is over-due for some lap time. Dh thought she would eventually come out in the living room to see us, but she hasn't.

  • wallycat
    wallycat Member Posts: 1,413

    Mavericksmom, just read your previous post had to chime in…Microbiology was my most favorite course when I went for my dietetic degree!!! It is just incredibly fascinating!

  • betrayal
    betrayal Member Posts: 3,154

    petite1, congratulations of BCI results.

    MM, BCI is done on tumor tissue according to my memory. Give the mom some time to adjust. She has been farmed around quite a bit and it is probably confusing. Take something with your scent, like an old towel, and put it in her crate. Even though Regan cuddled with me for the long ride from Harrisburg to our house, she was strange once she got here. I walked her every hour during the day to try to find her "schedule" and also to minimize accidents. Was she using pee pads at the foster? Did foster give you info on meals? We got nada from Regan's owner but could tell by her reaction to wet dog food she had never had it before. It is mixed with dry food now.

    Trip to Ikea was a nice venture considering we haven't been there in quite a while. Of course, I always find some things we could use like some 12 oz. blue glasses that will go well with dishes. Found some nice bins that I can use for shelf organization in garage and they are quite sturdy versus those purchased at Dollar Store. Got a plant and of course, we had a late lunch followed by their yogurt cones which can't be beat at $1.50. Today's was vanilla swirled with strawberry sherbet and it was good.

  • illinoislady
    illinoislady Member Posts: 39,529

    Yay Petite. So good to hear. Puffin, glad you went home with meds for your thrush. I got thrush during some of my chemo. Got missed to the point of my having to overnight in the hospital. Found it has started at the bottom of my esophagus and moving up to my throat and mouth. I used Magic Mouthwash for 4 months to get rid of it. I hope you have much success.

    Good advice I think about working on your exercises not for strength but to help in fulfilling your abilities.

    Litte Jo-Jo. Likely she is confused and doesn't understand yet you and hubby are her parents for all time. She will I'm sure come around. She has a real family now and it will dawn on her once she can allow herself to feel safe and secure. Happy mothering.

  • 1946taco
    1946taco Member Posts: 299

    Great visit with my sister. Dinner out with BFFs tonight. They leave on Wed. for Michigan until Sept. Nine holes of golf tomorrow.

    We went to see Ella's skating competition on Friday. She was second in her 8 person group and we were happy we were able to go even though it couldn't have been at a more inconvenient time, 5:20 which made it 8:20 on Janet's time. We stopped for dinner on the way home.

    Have a good week.

  • illinoislady
    illinoislady Member Posts: 39,529

    Expressing gratitude ignites the light within us and is a sure
    path to joy.  Gratitude is one of the highest vibrations of
    energy we can create, it's free, and anyone can give it.  It
    can be as simple as being thankful for soup, being thankful
    one can see, walk, wiggle a finger, or tap to a beat.  One
    can be grateful for happy children, good neighbors, good luck,
    and simply being alive. . . . Part of the journey toward joy
    involves not waiting around for trouble, but being
    continuously aware of our blessings.

    Charlotte Davis Kasl

  • carolehalston
    carolehalston Member Posts: 8,187

    Puffin, I'm impressed (and appreciative) that you typed that post with your left hand and brought us up to date. I think about you and send my support. The fact that so many people are stepping up to help indicates what a good person you are.

    Petite, good news!

    MM, I'm glad you adopted the mamma dog. She obviously needs security and love and she will get both from you and your dh.

    It's rather gloomy here today but the rain that was forecast has not happened yet. We are supposed to cool off and have less humidity for a few days.

    Happy Sunday to all.

  • illinoislady
    illinoislady Member Posts: 39,529

    Happy Sunday and happy sun day. It's so pretty outside. Not going to get too warm, but the sun will make up for it. I think SIL is going to put new front brakes on my car. I may need some struts as well. There has been 'noises' for a while. Great that I have someone at home who can do these things as it would be expensive in the repair shop. At almost 160,000 miles, my car motor is not as whisper quiet as it was when I bought the car, but not bad. A couple of times I accidentally left it running it was so quiet.

    Well tomorrow is the day again to go get my hair-do. Looking forward to it. It has been 8 months now and my hair is way longer than I like it. Harder for me to take care of and style for sure. Also way too thin and wispy.

    Hope all will have a really good day today. Sending good health and good healing to all.

  • cindyny
    cindyny Member Posts: 1,319

    I’m behind but trying to catch up.

    Anita, I had LX so I didn’t have expanders. I feel like the others have said, ignore your BMI. Sending you HUGS.

    Harley, I’m hoping you’re feeling good.

    Sandy, I’m hoping Bang Bang & Roxy are settling in. I remember being nipped by my sisters cat. She’d run up and nip the cord at my ankle. They say it’s a sign of affection. HA!

    Puffin, so nice to have family come by to help you out. You’re in my thought. Just take it one day at a time.

    Petite, super good news on the test and on your house repair. I hope the estimate is within your expectations.

    MM, it will take time for your new pup to adjust. She’ll be in one of your Kai’s before you know it.

    Betrayal, I’ve never been to an IKEA. Not for not wanting to go, there just are none close by to where we live - FL & upstate NY. I’ve passed by one in NJ. I’d like to try that yogurt cone!

    Taco, I’m glad you enjoyed your outings and got to see the skating competition.

    Carole, the humidity kills me. Yesterday 89, and felt like 92. We skipped an outdoor concert at the casino and opted for the pool. Pool was so warm, it felt better out of it with a breeze to cool off.

    Jackie, enjoy your haircut! A little pampering always feels great.

    Teeth - bridge is being remade with correct color and bite. Fingers crossed.

    Not a lot happening. A lot of neighbors have already left for home, with others leaving by the week’s end. Most have said it’s just too hot. Can’t get out to enjoy a walk in daytime, and biking provides a breeze only while you’re moving. The pool kept at 85 degrees during 89 full sun days is way less than refreshing. But home is still cold with low temps and wind, toss in it rained for days.

    So here I’ll stay. After dinner I did sit in the garage watching Harry Bosch on AppleTV until about 10 pm. Some folks were out walking that late. I probably could too, but I wear the ear buds to listen to a book, and night walking isn’t the same. Although I may try it.

    Enjoy your Sunday, no matter the weather!

  • betrayal
    betrayal Member Posts: 3,154

    cindyny, we go to Ikea for a Swedish meatball (choice of 8 or 12 meatballs) fix as well. The meal is inexpensive and tasty. We also buy the meatballs for our freezer and the gravy packets so we can make it at home. They used to serve it with small red skinned potatoes but now have switched to mashed potatoes. DH got the baked cod which had a lemon garlic coating and he said it was delicious. Brought home a pack of their cinnamon swirl buns which are tasty and can be heated in microwave. So I encourage you to make a stop and see what they offer. It's an interesting store and we actually visited one when we were in Hungary with our local guide.

    Ironed today and watched a Netflix film while I was doing it. I like to iron, it gives me a chance to disconnect for a while. DH helped DS with an electrical outlet issue and now all is well. Did this over the phone while he used my phone to look at photos DS sent.

    Kind of a gray day with temps in mid 50's, breezy so make is feel cooler. Suet cake I put out yesterday is already half gone. Birds are really enjoying it. Ordered a large box of them from Walmart and the birds seem to like these better than the more expensive one. Come Mother's Day though this shepherd's crook holds my hummingbird feeder because that's when the hummingbird usually buzzes my window. I use more sugar making nectar than for any other purpose. I have a seal a meal machine so I buy 10 lb of sugar because it is cheaper and redistribute it in several meal bags. I recycle them so it's purposeful.

    Hope everyone has a relaxing Sunday. Back to my movie.

  • cindyny
    cindyny Member Posts: 1,319

    I took my walk tonight because it felt like it cooled off and there was a slight breeze. Well, I was drenched before I was 1/2 way through. Peeled off the wet clothes as soon as I got in, and showered.

    I really don’t want to walk at night. Ear buds in listening to a book, I’m not super aware of my surroundings. May have to recruit my partner to walk and protect me. LOL

    When I started out, 78 and sun setting in the west, with the moon at my back in the east.

    Betrayal, I’ll have to make time to stop in at an IKEA.

  • chisandy
    chisandy Member Posts: 11,408

    Happy anniversary, MM! Hope Jojo settles in. My "girls" seem to have, to some degree (more about that later).

    Great news, Petite! I'd asked my MO about BCI and she replied that after 6-1/3 yrs of letrozole, it was ok to stop. (That was in April 2022). By then, though, the damage had been done to my bones & metabolism: it gave me hyperlipidemia, which required a statin…and then raised my glucose & a1c to prediabetic levels. When I told Bob both numbers were strictly from the AI, he replied "that doesn't make them any less real."

    Anita, I too had only an LX so didn't have any experience with implants. But can you get a second opinion about the surgery to remove the TEs? A BMI of 37 is still Class I obese, and reducing it to 35 wouldn't seem to make much difference. Besides, BMI doesn't tell you how much of your weight is muscle, bone & excess skin. By comparison, when I had my knees replaced in 2012 & 2013, I weighed 200 lbs (at 5'2", too much for someone with small bones and not very muscular). Yet my surgeon didn't consider that a dealbreaker (except to insist I not get them both done at once, and that was due more to my age than my weight).

    I don't think my current weight loss solution would be a good idea for you: tirzepatide (Zepbound/Mounjaro), which my endocrinologist prescribed because of the rapidity of my weight-regain (bottomed out at 142, BMI 27, in Aug. 2021 before I slacked off and boomeranged back up to 183 this past January. My glucose and a1c were prediabetic too. BUT it should be taken for life—trials have noted that most patients regain most or all their losses by 3 yrs after stopping. It is hella expensive—especially since Medicare won't cover it and drug manufacturers are prohibited by Federal law from issuing discount coupons to Medicare/Medicaid patients for ANY branded drug. (I pay $1000 for Mounjaro or $1100 for Zepbound—exactly the same drug and single-use injector "pens" but with different names because Mounjaro is supposed to be for Type 2 diabetes). The GI side effects can be difficult, too—constipation & mild occasional nausea for most, and diarrhea & vomiting for some. I'm coping, but it is altering my lifestyle (especially the appetite reduction).

    But right now I wouldn't advise anyone to start it, because all doses except the 2.5mg "starter" and 15mg. are in shortage, which the FDA confirms. (A trip to the message boards on Reddit will reveal just how desperate the supply situation is). Trying to get any dose stronger than 2.5 is like the "Hunger Games," requiring an inordinate amount of time, effort & stress calling different pharmacies (usually futilely). You're supposed to remain on 2.5 for only the first four weeks, then titrate up 2.5g at a time each month till a max of 15mg (which most people under 300 lbs never need). But Eli Lilly is only cranking out 2.5mg, ostensibly to meet the demand by prospective new patients. (15mg is not in shortage because relatively few patients have to work their way up to that strong a dose). This leaves established patients who need to titrate up to 5mg & beyond, or already have and need to go to the next level, high & dry (especially the diabetics). Lilly disingenouously claims it did not anticipate such explosive demand (then it should not have advertised it so heavily when it rolled out). Each month Lilly has been saying the shortage should be resolved "in a couple of weeks," then "end of the month," then "end of the second quarter;" but certain personnel have admitted the shortage will last through the end of the year—the main driver being the cost of materials, labor & packaging for the "pens" and the current inadequacy of the facilities to manufacture them. Some Lilly reps have actually told their "client" doctors not to write any prescriptions for new patients until the shortage is resolved.

    But I suspect there may be an ulterior motive: profit. The FDA, recognizing the shortage, has authorized Lilly to start making it in single-dose vials for conventional injection, but Lilly isn't taking them up on it. You see, the pricing is not dose-dependent: 2.5mg costs exactly the same as the exponentially stronger 15mg. It doesn't take a mathematical genius to figure out that they'll make exponentially more $$$ selling large quantities of the lowest dose for the same price as the higher doses.

    My doc titrated me up to 5mg. after my first 4 weeks at 2.5mg. (having lost 18 lbs). But side-effects-wise, 5mg dragged me into a dark alley and beat the crap out of me, so she put me back on 2.5mg. Just the hassle of trying to arrange that, and the side effects of 5mg., was so stressful that I pumped out enough cortisol to temporarily regain 2 lbs. As soon as I was able to get my hands on 2.5 and resume it, I began losing again. 30 lbs down in 3 months, and unlike most patients I still don't have cravings or "food noise" (which made me night-binge my way up to 183, BMI 34.11); and though I do have an appetite when appropriate, I still get satiated quite quickly. I get hungry when my body tells me it's time—but my brain & gut know when to stop. (And my food preferences have changed—sweets no longer interest me, nor deep-fried foods & rich sauces. I'm drinking very, very little wine these days).

  • chisandy
    chisandy Member Posts: 11,408
    edited April 22

    Haven't been logging on lately because the kitties have been running me ragged—especially BangBang, who is extremely jealous of the computer and won't let me type more than a sentence at a time, if that (she gets on my lap & chest, in my face and rubs & head-butts me). One or the other hides where I can't find her, and right now even the sound of the can opening or treat-bag shaking is not working. And I have no idea what wet food they'll eat at any given time. I can't tell them apart except when they're together. Yesterday, BangBang figured out how to body-slam open the French doors to the bedroom, and woke me up early headbanging, licking, face-marking, etc. So I made sure to securely close those doors and in the afternoon, inadvertently shut her into the room (I'd thought she'd come down off the bed but she was sleeping under the duvet). When I went looking for her at evening feeding time, I had a hunch and opened the door—and she shot out of there like a cannon. BUT out of boredom and frustration, she had pried open the double-doors in the center of my dresser which cover my underwear drawers. (One of the doors no longer closes all the way unless I slam it—now I know). Lo & behold, the middle drawer, containing my panties, was upended onto the floor, resulting in a mountain of disorganized underpants. So my project today after brunch was to go through them all, and put all the cotton "granny panties" (which I wear only for MRIs) and too-large (size 8/9 and XL) undies into a boot box.

    Also discovered a whole storage box of size 40 and 42 bras—they've gotta go too. I'm back in size 36I or even H now—and my more body-conscious smaller tops show the seams of my fancier sewn-cup bras, so I need some smooth-cup T-shirt bras. ThirdLove now has a shop here. At 183 lbs, I couldn't find anything there with cups large enough to contain me without gaping like a suspension bridge at the front of the straps. Now I think I can easily get into their 36H or even G. (They don't make an "I" cup the way the European mfrs. do).

    (Sorry for the "girls talk," seeing as how many here had mastectomies sans reconstruction).

  • illinoislady
    illinoislady Member Posts: 39,529

    As you take a few minutes each day to quiet your mind, you will discover a nice benefit: your everyday, "ordinary" life will begin to seem far more extraordinary.  Little things that previously went unnoticed will begin to please you.  You'll be more easily satisfied, and happier all around.  Rather than focusing on what's wrong with your life, you'll find yourself thinking about and more fully enjoying what's right with your life.  The world won't change, but your perception of it will.  You'll start to notice the little acts of kindness and caring from other people rather than the negativity and anger.

    Jack Canfield

  • carolehalston
    carolehalston Member Posts: 8,187

    This morning went very well. I saw my dermatologist and got zapped probably about a dozen times, but the growth on my arm that I thought might be a basal cell hadn't reached that status. It was zapped, or frozen, not excised. I got the whole body examination and was good to go until next year unless I need to see her.

    Next I went to my surgeons' office, which is near by. Neither surgeon was there but I saw the NP and explained my concern about the fluid on the left side of my chest. She took one look and agreed that the fluid needed to be drawn out. The amount of fluid she removed could have filled a Coke can. I feel so much better without the tightness and the worry. An imagination is not always a good thing. A breast popping open and spurting fluid is not a pleasant mental image.

    It's cooler today and gorgeous outside. Brilliant sunshine. I'm catching up on computer reading and puzzles I had to skip this morning.

    Happy Monday!

  • mavericksmom
    mavericksmom Member Posts: 1,275
    edited April 22

    Wallycat, I agree, microbiology is so much fun. I wish I had your degree. Maybe I wouldn't be struggling with my weight! I am still so annoyed that overweight people can't have reasonably priced appointments with dieticians. Now if I had diabetes……no problem! I paid for one session, but couldn't afford to keep going. Also, I wasn't impressed with the woman.

    Betrayal, we are giving her time to adjust. We thought we were settled on a name, but she doesn't seem to fit her. She has really bonded with me and is a completely different dog in the morning before my dh wakes up. We are also slowly introducing his rollator (walker on four wheels). I don't know if she saw one before and it was a bad experience or it just scares her. She is tiny so large things are frightening for her. She is making great progress though. Also, thank you for the info on the test, I really appreciate it. How long do the hospitals have to keep tumor samples? The most concerning of my three cancers was the ILC which was my second dx. I transferred all my records from that hospital to my local hospital. My bones were great as of my last Dexa Scan which was a year ago.

    We planned on not telling our DD and GK's about the dog for a couple of weeks, but that ended yesterday when my DD stopped by with our GD. She came to pick up some bins I had from "decluttering" and when I offered to drop them off at her house she said "I am already on my way to your house!" It was funny. We put the dog in the crate, our GD came in, ran to the kitchen table to set down her ice cream, turned around and said "what is that? Is that a dog? It is!" and with that she went flying back out the door running to her mom who was getting some things out of her car, yelling "Grammy and Pop-Pop were so sneaky, they got a dog!" LOL

    Well, I thought it would be too much for the dog, just the opposite, she loved our DD and GD! DD FaceTimed our SIL and GS so they could see her too. They stayed much longer than they expected, but it was such a fun visit! They had some name suggestions, many that are associated with Taylor Swift, who both DD and GD adore.

    Sandy, I hear you when you said your cats are keeping you from getting on BCO! My time is 90% dog driven. But, my mental stress is about 0!

    Carole, glad all went well at dermatologist and the PS. I liked the PA a bit better than the doctor! Both were fantastic. Yes, it feels so good to get the fluid out. They drained the fluid out of my pocket several times.

  • carolehalston
    carolehalston Member Posts: 8,187

    MM, I wonder if being around other people at your home, the little dog's home, will help her to relax. Interesting the way she reacted to your daughter and granddaughter. I love your granddaughter's announcement to her mother! It is certainly looking like adopting a pet was a good decision for you and your dh. I hope the dog bonds to him, too.

  • betrayal
    betrayal Member Posts: 3,154

    MM can you post a photo of your new pup? We always said a dog name had to be one that we would not feel foolish when we had to call the dog from the back door. So far we have been batting a 1000. So much for keeping her a secret, LOL.

    I had a diabetic dietician zoom meeting and it was an absolute waste of time and Medicare payments. I had to submit my normal breakfast, lunch, dinner and snacks to her in advance and she never made one comment about them. I even asked and got ignored. I was looking for feedback but none was offered. I did ask questions like how do you handle birthday parties with cake. Her response was I could have a 2 inch by 2 inch by 2 inch piece of cake and mine was why bother? I asked about picnics and was told to bring my own food or eat before I went. Not exactly what I was looking for since I felt like her solution meant I was not part of the party.

    I asked if the daily carb distribution could be adjusted to permit a piece of cake/potato salad and she said absolutely not! So at the end of the session I had no more usable information than when I started. I was nearly in tears because I did not learn one thing about how to come up with a meal plan for breakfast, lunch and dinner and snacks other than the number of carbs I could have for each. She was not a help but a hindrance because I was afraid to eat. While my carb distribution looks generous, it is not since 2 slices of bread/ 1 small pancake would be my allotment for breakfast.

    My dental hygienist provided me with more usable info than that supposed expert. She introduced me to 6-4-7 bread and bagels which contain more fiber than most low cal breads so I use them for breakfast and sandwiches. I eat 2 Good yogurt for breakfast with whatever carb I have as my protein. Rye bread is lower carb than others so I also use it for toast or sandwiches. My last A1C after all those months of recovery and not strict adherence to my diet, because I lacked an appetite, ate what appealed to me and needed to heal, was 5.4. Meal planning has gotten easier and I do enjoy spaghetti/pizza/baked potato/etc. but not on a daily basis. My PCP asked if I wanted to stop Metformin but I do not because I am well-controlled and intend to stay that way.

    Carole, I saw my dermatologist and she zapped what she refers to as "the barnacles of life" on my left cheek. Right now it is scabbed but I am hoping it is gone when it falls off. Glad you were able to get that excess fluid withdrawn. It is really uncomfortable when you have it.

    Sandy, glad the girls are adjusting. I am glad that you are happy with the results of using mounjaro for weight loss. I have struggled with my weight and have gotten back to pre-children weight several times only to have it come back with a vengeance plus some so I am no longer interested in depravation dieting. I eat healthy and have accepted an "it is what it is" attitude. I just cannot see myself committing to using a drug for the rest of my life as you have chosen. So I admire you for your commitment.

    Illinoislady, I love today's quote.

    It is sunny, in the high 50's but expected to get cold overnight again and I am enjoying the day. Hope everyone else has a good day as well.

  • malleemiss251
    malleemiss251 Member Posts: 608

    @betrayal, I am not sure some of these practitioners live in the real world. I have seen some of the diets prescribed by dieticians and they would be incredibly difficult to maintain if you worked or had a social life or regular family events. Also very difficult to maintain when there are others in the household. It was so rude of her to ignore your questions. In your pocket and well done on the A1C. Enjoy the day.

  • cindyny
    cindyny Member Posts: 1,319

    Betrayal - When I worked out I used My Fitness Pal to track my calories. It was pretty easy to set a goal of 1,400 calories (or whatever number you want) and add my meals after I ate them. Trainer said to do it the day before but I wouldn’t commit to that.

    As my trainer explained seeing the numbers in front of you helps with making choices. Eat the cake, offset it with a tossed salad for dinner.

    I know I make it sound easy. I stopped using it after the proximal hamstring avulsion surgery and haven’t gone back. Right now I’d fear how many calories I intake daily!

    We had a thunderstorm 5:40 AM with a good soaking rain. Got up to gray skies, heat and humidity. No walk. So I ran around shopping for shirts. I bought 5 and after I got home I debated on returning 2 or 3. Nope! They’re all hanging in the closet. More to pack when we leave.

    Tomorrow should be walking weather if I get out before ten. It’s going down to 59 tonight so I have hope.

    Carole, I’m glad you were able to get the fluid drained. And dermatology was better than you thought. A double doctor day!

    MM, so happy your family loves your new pooch as much as you do. Sneaky grandparents! Loved that.

  • chisandy
    chisandy Member Posts: 11,408

    Happy (or at least meaningful) Passover to all who observe. No Seder here: for safety reasons our temple is not holding one; Bob came home exhausted from a long day (and early morning) and went straight to bed for a nap; Gordy's working tonight & he & Leslie are going to a concert tomorrow. So Bob & I will try to snag a reservation at a restaurant serving a Seder menu.

    HK is home today with a nasty bacterial sinus infection that sent her to Urgent Care. She swears she'll be in tomorrow but I think she should stay home again lest she overdo and relapse. We managed over the weekend and today—one more day won't strain us.

    After BangBang helped me "Marie-Kondo-ize" my panty drawer, my attention turned to my bras. Most if not all are too big or problematic in one way or another (especially the seamed lacy embroidered ones that show through sheerer more fitted tops). So I decided to get some unlined or T-shirt bras. My last fitting at ThirdLove at my peak weight in January yielded nothing that fit, and when I went to Busted I got a couple of 38 I bras. I figured I'm probably down to a 36H. Well, I got to ThirdLove today and found I'm a 34G. I have some axillary overhang due to loose skin, but I never go sleeveless anyway.

    Third Love is doing a promotion: for every 20 lbs of bras, panties and T-shirts you bring in through the end of May, you get a $30 credit. The clean & undamaged stuff will be donated to migrant & homeless shelters), the damaged stuff will be broken down for textile recycling & repurposing. They're trying to combat all the "fast fashion" that ends up in landfills here and in the Third World.

  • puffin2014
    puffin2014 Member Posts: 979

    I met with radiation oncology and oncology) this morning, and shared how my symptoms are worse now than when I was discharged from the hospital a week ago. They are treating my tumor as mets from my breast cancer 10 years ago, so I'm now considered stage 4 cancer with a 50% chance that I can expect more tumors.

    I will be having another brain MRI tomorrow morning and in the afternoon doing a simulation for the radiation therapy, called linear acceleration. Don't know when that will actually be done but expect soon.

    I will have a PET scan to look closer for other tumors on May 1

    To save on typing with my left hand I've been doing more dictating into a note on my phone, editing the errors and then sending it to myself as an email that I can then copy/paste on my laptop.

    Guess it's also time to check out stage 4 forums here and to update my history

  • illinoislady
    illinoislady Member Posts: 39,529

    On so late I could have waited till tomorrow I guess. Just so you know — I was due to get my CT this afternoon but they called early this morning with a cancellation. So for breakfast I ran down to the hospital and did the Ct.

    Home to breakfast, and a few chores then off to get my hair done. It looks great. Got a perm and a good cut. She left it a bit longer than I like, but it's okay. I think whatever chemo she was switched to is really being rough. No complaints really, but she just seemed weary to me. So — no complaints from me. She is good about re-doing anything I'm not totally good about. I just didn't have the heart. Been there and done that and just didn't care to 'force' her to keep working on me. It's fine. I've done it like this a couple of other times so no big deal.

    Home to more chores and dinner to cook. I'm bushed. Will catch up tomorrow.

    I'm sorry to hear about your new dx Puffin. Sending love and lots of hugs and so hoping your treatments produce really good results.

    Talk to all tomorrow.

  • cindyny
    cindyny Member Posts: 1,319

    Sandy, you may have hit the jackpot if you can turn in all your bras, tee shirts & panties that are not being used! Hoping your HK feels better soon.

    Puffin, I’ve got chills reading the list of what’s going on. In your pocket for tomorrow’s MRI. You’re acing the technology to be able to make your post! (((HUGS)))

    Jackie, I’m glad you were able to have the CT done and over with early. A good haircut makes such a difference in our days. I’m glad yours looks great.

  • mavericksmom
    mavericksmom Member Posts: 1,275

    puffin, it goes without saying, I am so sorry you are going through this! Definitely check out stage lV brain mets forums. I think it is so helpful to have people who truly understand what you are going through. Sending you tons of healing vibes, and cyber hugs!

    illinois, glad you fit in your CT early in the day. Hope you get good news results!

    Sandy, I am so sorry the country is making it unsafe for your temple to hold Seder. I am so disappointed in mankind, especially in USA. I get it that we may not like people we meet or have to work with, etc. but I thought intelligent beings, in this era, would be kinder. I have good friends of different religious and ethnic backgrounds and I find they enrich my life. I loved that the school I worked in for most of my 33 years with the district had "No Place for Hate" policy, and even a "club" that did events to promote kindness and understanding. I hope you were able to find a restaurant to celebrate Passover!

    I posted pictures of Hannah (yes, we decided to keep the name), from my phone, but I don't see them via my laptop, so maybe they didn't go through? She is a trip! Has a mind of her own, and is so sweet, I love her! She is definitely great for mental health as well as physical. I am losing weight without really trying as she occupies most of my time!

  • illinoislady
    illinoislady Member Posts: 39,529

    I shall open my eyes and ears. Once every day I shall simply stare at a tree, a flower, a cloud, or a person. I shall not then be concerned at all to ask what they are but simply be glad that they are. I shall joyfully allow them their "divine, magical, and ecstatic" existence.

    Clyde S. Kilby

  • illinoislady
    illinoislady Member Posts: 39,529

    Muted sun this morning. I think there is a good chance we will more rain, if not during the day easily could be tonight. We do seem to get plenty of 'night' rains. Likely not so warmish either. Where to begin as I feel so behind.

    Puffin, it is great advice to check into the Stage IV forums and threads. Much more throughfall understanding for your dx and paths forward. I am hoping that it with help smooth and even your path forward. Hope you will continue on with us here as well.

    Sandy, what a win. Getting to turn in all your old too large, maybe even some small due to age items and get credit for them. Just wow!!! Good for you. Enjoying so much your 'cat' tails/tales.

    I think Hannah is a great name. It does make me think of 'little house on the prairie' for some reason but also invokes a sort of idealist existence which I am pretty sure Hannah will now have. She sounds like she just needed a small amt. of time to get her bearings after coming 'home' to your house and now she has. She sounds just so delightful. I'm glad for all of you and the 'extended' family of yours who already love her too.

    My kids are having a time of it. Good thing they are a little younger. They are both to work at 6 a.m. and then after work go to SIL's son's house to baby-sit till son and wife get home from work around 11:30 p.m. Then home here to sleep till time for them to get up again for work. What we do for family but sounds so daunting to me now and I'm sure I could to that once upon a time. Don't know for how long. SIL's son and daughter had a live-in nanny, but she acquired a boyfriend along the way lately and things quit working out so she is gone.

    Cindy, I hope you can get your walks in w/o too much discomfort. Walking is such an excellent exercise, but if humidity is high it sure doesn't seem to refresh — only the long cool shower afterwards.

    Carole, Taco, and others — hope you are all doing ok. I always 'reflect' a moment with hopes and well wishes for all not posting at an time here.

  • mavericksmom
    mavericksmom Member Posts: 1,275
  • illinoislady
    illinoislady Member Posts: 39,529

    Oh my. I'd be first in line for baby-sitting duty if I lived anywhere near you. Hannah is a beauty. She looks so content in those pictures. Home at last.