Iodine, thyroid, and breast cancer??
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Thanks vivre
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Way to go Karen, You beat me to the punch! Good luck to you both!
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I tried to get on the yahoo iodine group. I don't understand it at all. Now I'm getting a ton of e-mails from it and I don't even know how to get on it. (not a computer geek at all).
I have looked at the other sites you both recommended, thanks so much. I guess I will get the thyroid test back and go from there.Patty
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Seaotter Try going back to the iodine groups home page. At the top left you will see edit membership. Click on that and scroll down a bit and it will give you the option of having daily digests rather than a stream of constant emails. This helps a lot and makes it manageable:) Good luck!
Karen
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Patty, I was subscribed to the iodine list nearly a year before I finally got around to the slogging through it all. It's a very active group and the number of emails is overwhelming, but most of the messages are very brief, so keeping up isn't so bad once you're acclimated. There's a lot of great information. The moderator keeps a good balance between allowing some really useful off topic into to run a short course before steering people back on track.
You can opt for a daily digest if you want fewer emails, or you could opt for no emails and just use your browser to read through the messages at the yahoogroups website. Their search function really seems flawed to me though, so I create a folder on my computer for keeping the iodine list emails. That way I can just use my own computer's search function to look for things I want to retrieve.
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Thanks girls, I will try it.
Patty
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Hi all,
Lorraine, I missed your Bday! Hope it was a happy one!
I am post surgical now and out of the hospital and in a hotel. This was the first day i could look at my supplement trays! Glad I checked in here, I need to start slowly ramping up, I started today with probiotics and vitamin C!
Barry, Armour and Nature-Throid and other desecrated Thyroids are by perscription. I heard Armour was having availability issues, and now I am experiencing the same with Nature-throid... ugh.
Spring.
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Hi Spring! So happy to hear from you. Are you feeling ok??? I have had you in thoughts and prayers.
Patty
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Hi Patty! Feeling pretty puny - it will be a long recovery, but glad the surgery is behind me and just the road to healing ahead!
We're in hotel now. Post surgical appt on Thursday and we fly home Friday, 9/11. I hope it is a safe day to fly!!! ha! Spring.0 -
Spring, glad to hear you are done with the surgery and on the mend. I wish you all my best for a speedy recovery and a safe trip home. Welcome back!
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Barry and Springtime-
I am an Armour thyroid gal after having my thyroid killed via radioactive iodine 9 years ago. I would never go back on the synthetic versions - i felt awful on them. I too am about out of stock and there is no natural thyroid to be found in any pharmacy. I solved my problem by calling a compouding pharmacy. They can make something just like what you use without the fillers put in Armour or Nature Thyroid. They don't feel they will run out of stock. Hope this help you out!
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YOu can buy Liugol's solution at most aquarium stores. They use it in fish tanks!
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Oh, Spring, welcome back! I'm so glad you will get back on your supplements and now have the operation behind you. I know it was a lot of anxiety for you anticipating September 3.
Enjoy the hotel while you can. But you must want to get back to your own house by now. Can you sit comfortably?
xoxox
anom
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Packer, thanks for the idea of a compounding pharmacist. We do have one in town.
Hi Vivre and Anom! I am feeling like I've been hit by a truck! But I know in time my body will heal, we have amazing bodies! Anom, I can sit pretty well, getting in and out of chiars is okay, I am working on getting in and out of bed. we fly home Friday. Yes, will be good to be home...
spring.
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oh Spring thank you!! Had a lovely birthday! So glad you doing well!! Had my blood test this morning for my 2nd 4 month follow up with the onc next week, always scares the crap out of me!
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Good luck with your blood test Fairy. I know what you mean about those tests scaring the crap out of you! Whenever I do a test I feel the same way. So far though, good news - as I am certain you will hear too.
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Thanks Deni!
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Hi Barry, try this link for a compounding pharmacy: http://www.iacprx.org/site/PageServer?pagename=home_page
Deni
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Here is perhaps the most important fact that thyroid patients need to know. According to the Centers for Disease Control, eating pork does not transmit the virus. Swine influenza viruses are not transmitted by food. Eating properly handled and cooked pork and pork products is safe. (Source: Key Facts about Swine Influenza (Swine Flu))
And since thyroid medication undergoes rigorous processing, including a cooking/heating phase, the chance that it would transmit any forum of virus is almost non-existent. We don't, for example, have any concerns about transmission of diseases found in pork -- like trichinosis -- from desiccated thyroid medication.
Barry, I found the above info by searching armour/swine flu. It doesn't appear that there is a risk of getting swine flu by taking armour, according to this info. However, that is one reason I did not choose to take it instead of synthroid. I was worried about it.
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Well, the skeptic is now a believer. I was hesitant at first, but I started taking Iodoral on 8/31 (I only take 12.5 mg each day). The first couple of days, I had headaches, and the unusual pimples (minor), so I knew something was going on. I then added progesterone creme a few days later and that made a world of difference for my energy level and mood! I will remain on the low dose until I have a full hormone work-up (next Friday) and then may adjust it. My temp reading had been in the low 97 range (one morning when I checked, it was actually 96.9) and my hands and feet were always cold. Already my temp is coming up (in less than 2 weeks)...mostly around 97.8 or 97.9, but this a.m., I actually got a 98 degree reading! Very thankful for all the information on this site....I feel like I'm on the mend! Melissa
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yay Melissa! isn't that just amazing!! I was wondering about the temperature thing, I was ALWAYS cold, my hands and feet were freezing most of the time, and my temp was never about 96 something, since starting my supplements and progesterone, my hands and feet are never cold, and my temp is at 98! I feel normal, whatever that may be!
L
ox
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Fairy, I am still dealing with the cold hands and feet biz. I have been doing the iodine but not the BHRT yet. Do you think it is the progesterone that has helped with your body temp or the iodine? I never even sweat anymore. I think it was because my thyroid was zapped by rads. I use to sweat so much when I worked out that my clothes were sopping. Now I barely break a sweat.
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Hi all, I am hypothyroid too...this is all very interesting and something I am going to look into. Twenty years ago I became hypothyroid due to my first pregnancy as my thyroid was working overtime for the two of us (my baby was 9# 13 oz's and I gained 23 #'s during the pregnancy weighing at 132#'s when my son was finally born; pregnancy puts an incredible stress on the body...I did not know how much until toward the end of my first pregnancy...I had no idea what that bump was in my neck...it is long gone with Levothroid theray...I have not heard of the iodine website and will definitely check this out!). I have never had a problem with weight gain (I know two other hypothyroid ladies who do not have weight trouble, and my endocrinologist confirmed that being hypothyroid is not synonymous with weight gain, even though the thyroid is underactive). I know, it sounds crazy!!!?? Right? It seems to make sense that an underactive thyroid would lead to general weight gain, and an overactive thyroid would lead to weight loss... like many of you, I also wax and wane with the hot/cold senstivities...so hard to find a happy medium. Cold feet at night! Such a joy, these thyroid problems (kidding). Ugh!
MBROWNING ... I notice you are ER/PR+... I hope you don't my suggestion that you consider checking with your endocrinologist about taking any form of Progesterone with a past/current breast cancer diagnosis. I am post-menopausal for six year now (I am 46 and started around my 40th birthday) and never took HRT as I was frightened about the long term effects, but I did get to use Vagifem with wonderful success (I know, it is a "sort" of HRT, just not systemic). Only problem is that they (Oncologists) have unanimously agreed that ER/PR+ types such as us should not use estrogen, progesterone, any soy products or flaxseed oils as these are considered "phytoestrogens" which have been clinically found to promote breast cancer cell growth. They riddled my medical records with recommendations to get off the Vagifem
I was so discouraged to hear this as the Vagifem has saved my feminine life. I told my doctors that this was horrible and very unwelcome news, and asked what can those of us do that are ER/PR+?! I have been told 3x to tough it out and once I am finished with chemo and the rads, we will look into testosterone. This came from two doctors I trust, and one doctor I don't particularly trust at all...but, the two I trust, one being from Breastlink, I very much look up to. Has anyone heard about using testosterone for stabilizing our female balance? This sounds so contradictory to me...I know, I need to look into this. However, I have ceased all cosumption of soy products and flaxseed oils. I understand ER/PT+ ladies can use Evening Primrose...which I am taking. Evening Primose was actually recommended to me by a reputable Oncologist (from Breastlink as noted above) who gave me a copy of this book: http://tiny.cc/LOtxJ . This book contains a great summary of recommended supplements
Vivre...how cool is that that your rads resulting in the halt of your hot flashes!!! Wow!!!!!!!!!!!!!
Best wishes...
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Sanasia-I think you are confusing HRT with BHRT. They are two entirely different things. Even a lot of doctors do not fully understand the difference. Biodentical hormones react exactly as natural hormone. The synthetic HRT's do not. When we talk about taking progesterone, we talk about bioidentical, not the stuff sold over the counter that was linked (in one study, but that is all) to breast cancer. The fact is birth control is HRT, and any kind of "prevention" drug such as tamox or arimidex are also Hormone therapy. The trick is making the right choice and finding the right balance. That is where having a doctor who really understands hormone tests, and knows how to interpret it is the key to choosing any therapy. I would never take a drug just because my doctor told me to. Everyone needs to have exact hormone levels done before making any decision.
It has been noted before, but everyone should read:
What Your Doctor Doesn't Know about Breast Cancer. by Dr. John Lee
Hey Anom-I just saw that British Singer Susan Boyle. Does she look like she has thyroid issues or what???!!! You can see it in her face, her body and her emotional problems. Maybe someone ought to tell her to get some iodine in her system!
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Sanaisa~
I appreciate your suggestion. I had many reservations before starting both the Iodoral and the Progesterone cream. After much reading and researching, I felt comfortable to start with very low doses of both. I am having hormone testing done on Friday (as long as my PCP agrees) and may adjust my dose according to how my results come back. For now, however, I seem to be having a good experience with both, but am very watchful for any negative side effects.
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Sanaisa~ Here's a very simplistic read on the use of progesterone creme. Of course, there are 2 sides to every story and I continue to read and weigh the good and the bad, just like my very excessive use of flax oil and flax seed, all of which are controversial for bc (specifically ER+/PR+ gals). So far, my body has said "yes" to all these (specifically the flax oil - I'm a Budwigger).
http://drjohnlee.com/store/faqs_progest_crm.html
Melissa
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Vivre! I think it was definately the progesterone that shifted my temperature and warmed my body. It has been a standing joke in our house that I was always cold, my feet and hands were always freezing, even during the hottest days. I was so used to it, that to me it was normal! Its very nice to have normal feeling hands and feet.
Sanaisa, definately read Dr. Lee's book about hormone balance, bio-identical progesterone is protective, regardless if you have PR+ bc, I am 100% PR+, but when I had my hormones tested, my PR was super low. Plus, when I ask doctors what the PR means in the path report, not one of them knows, in fact one went so far as to say, they don't know why they even test for PR.
L
ox
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Here's another article I stumbled on this a.m. about natural progesterone:
http://ezinearticles.com/?Using-Natural-Progesterone-Cream-Wisely&id=25429
I truly believe that the progesterone is helping with the uptake of iodine to the thyroid. My body temp wasn't really budging until I added the creme and then it went "zoom". Like all of these steps we're taking to prevent bc from coming back, I guess balance is the key and just being very watchful. I'm trying to take things slowly and cautiously. Certainly, my cancer didn't appear over night and by the same token, fixing the underlying cause will be a lifelong venture.
Continued health and healing to all!
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