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  • swimangel72
    swimangel72 Member Posts: 142
    edited December 2009

    I'll also be praying for Dave Emmons - may God's angels soothe him and help him find his way - and soothe his family and friends too.

  • g94u67
    g94u67 Member Posts: 91
    edited December 2009

    Hello all,

     Well I too feel like having a pity party today. My path report was not good at all..appears tumor was so huge and even in my skeltal muscle. I'm now Stage IV. . can't get myself to write or say this. I'm in shock. Dr. did say he was able to get most out. BC hasn't moved beyond brst but is very aggressive. This is so hard to digest. Thinking I probably won't see my son graduate middle school or high school kills me. I pray I get into the PARP trial at UCLA.  My family is throwing me a 43rd birthday party (in a few weeks) and I just hope it doesn't conflict with the trial. Please continue to pray for me dear sisters. I'm in desperate need of a miracle!

    Please St. Peregrine, continue the intercessory prayers for all our sisters suffering. In Christ we pray. Amen.

  • apple
    apple Member Posts: 1,466
    edited December 2009

    g94u67 - that's a hard name to pronounce.   Of course I pray for you.  Know that my friend was diagnosed at stage IV 12 years ago.  Our sons were born just before her diagnosis.  She is doing fine.  I won't lie and say that it has been an easy road for her.. she's lost her hair several times  .. but she is NED now.  She pitches softball.. she's a soccer mom..  she's a room mother... her hair is alot longer than mine. There is  hope and  I pray for a miracle for you.

    i pray for Dave Lemmons and all my sisters.

    may we all be filled with the peace and love of Christ.

  • g94u67
    g94u67 Member Posts: 91
    edited December 2009

    Thank you Apple.  I need to hear that and believe and have Faith. This will be my 3rd time w/chemo.

    (My real name is Jeannine).

     God Bless you.

  • Estepp
    Estepp Member Posts: 2,966
    edited December 2009

    Jeannine... sister.... I am mad with you and sad too...

    You can live with stage 4 a longgggggggggggggggggggggggggggggggggggggggggggggggg time as Apple tells us. I just know soon there will be a cure for BC.. and you will be here to get that cure with us!

    MIRACLES happen...
    I will say a 9 day Novena for you to St. Peregrine. He is such a blessed intercessor for us.

    GOD BLESS YOU dear lady!

  • nancyd
    nancyd Member Posts: 557
    edited December 2009

    Jeannine...I am starting my novena again for YOU.

    St. Peregrine, I pray today that you intercede with Our Lord for Jeannine. I ask that her doctors find a treatment that greatly benefits her. I pray for relief of her worry and pain. I pray for a miracle. In Jesus's name. Amen.

  • plainjane64
    plainjane64 Member Posts: 521
    edited December 2009

    Oh I curse myself getting behind on this thread esp after coming on and having a pity party!

    Apple......ROTFL about the confessional story...sheesh!  that is a LOT of repetition in a pennance!  When I finally went to confession for the first time in almost 15 yrs?  First I couldn't believe the LINE....when I finally got to the front(last April or May) I had been reflecting thinking....OK, even tho I have 15 yrs worth I need to be concise and as condensed as possible .....mass was to start in about 5 or 10 minutes and I swear there was a HUGE line behind me and I KNEW the priest hearing confessions was also saying the mass.  I basically just said I've forgotten how to do a lot of this, that's part of why I was there and summarized all by saying "here's the condensed version-I've basically fallen away from the church but my illness has made me very bitter despite the good prognosis"  And that was enough.  When I was annointed prior to stage 1 recon I learned the annointing also absolves you of sins.  SO YEAH  It was nice! ...the other thing that struck me....after my 15 yrs of no confession....my pennance:  1 our father, one hail Mary......I concentrated on every word...I think he's a  quality over quantity priest!

    Thanks everyone for the kind words of support and prayers.  I do believe they have helped.  Have had a wonderful PEACEFUL, actually joyful last 3 days after my rants!

    Jeannine.......love........my stomach sank when I read your news.......as it did 2 weeks ago when I learned another lady I met thru these boards also recently was diagnosed w/ mets to spine....her name is Alaina and she goes by BBmom.....I Met her in person last august when I went to Nola for consult for PBM and recon....hadn't seen her since august and ran into her the night before my stage 2 surgery at Nola(Dec 9)...I went to the local EnCourage support group hosted by CRBS and she told me..........Oh! The anger, sadness, sense of helplessness I felt w/ her and w/ you.....................BUT.........I have learned and met women at the same meeting since then who claim to be stage 4 who I look at and say...(forgive the language!)....WTF!  These women who are living pretty darn normal healthy lives and supposedly have stage 4 BC.  I pray you get into that trial or another worthy treatment program ASAP.  And what the heck happened w/ that BC vaccine that was all the rage early last year?  I think Univ of Arkansas was all about that last year and I remember reading about phase 2 or 3 slated to begin Jan 2010.

    Love you all, St Perregrine and St. Agatha please intercede for us all.

    Prayers of love, hope and HEALING this Christmas season and every season.  Amen.

  • plainjane64
    plainjane64 Member Posts: 521
    edited December 2009

    Oh Yeah!   MMM5.......OK, you really need not be such a hero in regards to the Zoladex....are you on Effexor?  I know this is a little apples and oranges here BUT  having your hormones jacked w/ can provoke MAJOR havoc w/ mood etc.  There is NO shame in getting a script for Effexor.  My BC was 98% positive both ER and PR.  Knowing I am sensitive to hormonal manipulation I opted for Tamoxifen not ovarian suppression.  And even then It TOOK time to let the hormonal stuff shake out...I KNOW if I have to step further and go down even a more abrupt hormonal change like Zoladex or if I HAVE to have a hysterectomy that I will again need some help.  This is SERIOUS stuff so please please please cut yourself a break and realize it is REALLY ok to have a counselor AND meds that soften the havoc of very UNNATURAL hormonal levels.  ALL my docs have been aok w/ this....actually I first had to show some articles because zoloft and other SSRI's aren't so great to take w/ tamoxifen....and there is plenty about that on another BC.org thread....Sorry if you already know all this.  JUST honestly when I started Tamox I was fine for about 3 weeks....then about 6 weeks into it I was crying, then crying every day then I could not stop crying.  THANK You GOD I went to see a counselor and got a prescription for effexor and after a month or 2 there was HUGE improvement.  Your mental/emotional and spiritual health are IMPORTANT and there IS/ARE ways to make it better...you don't have to suffer thru this.  Please don't ignore feeling lousy when your hormonal balance has just been major league altered!  FEEL BETTER.  feel free to PM me....seeking help when I felt so hopeless was honestly one of the BEST things I did for myself.  I cannot imagine continuing to circle the drain as I was and NO doubt it was in part due to hormonal manipulation.....my periods became very erratic first time ever about the same time as the mood stuff happened.  Don't be a martyr over estrogen deprivation PLEASE!

  • Angel10
    Angel10 Member Posts: 347
    edited December 2009

    Jeannine,

    Adding my thoughts and prayers to what has been said here....before I started on this breast cancer path...I too was horrified to even think about Stage IV status...that was a death nell!  How shocked, surprised and informed I became to understand this so much better!  Please don't think your days are numbered....any more so than any of our days are numbered.  Jeannine you are going to live the exact number of days the good Lord has deemed for you....no more, no less.  The EXACT number of days.  He may take you today....or let you grow old and decrepit...even have dementia  BAHH!!  You can have a" What the HECK??" day or two over this terrifying diagnosis....then realize it is not truly reflective of your time here on earth or with your family.  You do need time to adjust to your new reality....but don't give it any more power over you than it deserves.  It is NOT a death sentence, you can live a long, long life with Stage IV...or you can fall off the earth when California falls into the sea....but that is not for you to know or worry about.  You have today....give thanks, hug your kids, pass on your faith, revel in the love and concern of your family and sisters here, and then go about taking as good care of your body, mind and soul as I know you have been doing.

    What good is faith if we don't allow it to guide our lives at these times?  I am not making little of your DX Jeannine, truly I am not....I am sorry you are going through this and I do understand anger, terror, confusion, sadness at this time.....but just don't stay there too long.  You have a day worth living...TODAY....live it well.

    Starting the Novena for you today.

    God Bless and big, warm, hard foobie hugs to you!

  • Bless
    Bless Member Posts: 42
    edited December 2009

    Jeannine,

    Prayers and more prayers for you every day...

    Love & Blessings

  • apple
    apple Member Posts: 1,466
    edited December 2009

    Angel10 - that was such a wonderful post.. it really makes me stop and think.

  • mmm5
    mmm5 Member Posts: 797
    edited December 2009

    Jeannine

    I still truly believe in a good outcome for you, whatever that may be. I just know your faith has inspired me several times and that will get you through this.

    I am joining Angel, Laura, and Nancy in a special Novena with your name on it.

    Please come here often to 'talk with us" we will be here for you all the way. Take one day at a time, and feel the prayers coming.

    You great ladies are awesome and I can feel your prayers now....

    I have a scan scheduled for Monday morning so keep up the prayers! Thankyou Jennifer I will most likely look into all of that in New Year if I don't feel better.

    Right now I am giving thanks for this beautiful thread, you wonderful spiritual, unconditional ladies and the shining peaceful season.

    Preparing for a beautiful EVE tommorrow.

    Michelle

  • Estepp
    Estepp Member Posts: 2,966
    edited December 2009

    Jeannine... the Lord is with you... as He is with us...

    Angel... You Rock and you wrote a great post.. a great healing post. At first.. as I read it I thought... OHHHHHHHHHHHHH... a little... "rough" for talking to a stage 4 sister... then I re-read and said to myself... a little piece of ANGEL for a stage 4 sister.. or a sister like me or any of us... TY!

  • Estepp
    Estepp Member Posts: 2,966
    edited December 2009

    Jennifer... great posts and full of love ... TY!

  • plainjane64
    plainjane64 Member Posts: 521
    edited December 2009

    Oh ladies....Merry Christmas!  It is really here!

    I know I sound like a broken record but seriously I credit the prayers and God putting the right words in my mouth or to be typed.   I got another nastygram from a different sister who has not answered phone calls, text messages or e-mails for about a year from me yet she thought OK to go ahead and sort of publicly humiliate me via 6 way sibling e-mail....then told me she'll be calling me today and she and her 18 yr old son would be by to pick me up tomorow and take me to 2 family Christmas celebrations and return me home........................LOL!  Again.......I think it's being the youngest 10 years less than the others ....these siblings have this UNCONTROLLABLE need to 'set me straight?' tell me to "shake it off", etc etc.......as if I was again a child and as if I should be happy to receive any crumb of compassion/caring from them.  It is  constant.....I HAVE to keep the boundaries or just stay away. 

    Please find my response and extrication below.  Sorry if TMI....Just an ongoing battle SETTING the boundaries!

    No worries!  As I told you all via Judy WAAAAAAay back in October after stage 1 when I was having issues/complications.... if you are interested- feel free to stay "abreast" via my caring bridge website.  There have been no changes in plan/course of treatment and all was outlined from the get go, but NO worries! I do NOT/have not relied on any of you for some time now. I am grateful for any favors paid previously but everyone has their OWN sense of priorities and concerns....and that is your business....and It's REALLY OK!  Everyone has their own personal dramas going on and I have learned how to take the best care of myself, and in the words of Jack Dacy 'Take care of Jennifer'. People who are interested and care DO manage to let me know and have been wonderful.  When each of you e-mailed me separately I gave you access- so if you're interested ...Hey Just like before!  THAT is where any lack of knowledge you might have might be hiding....all spelled out unfortunately almost blog style now, between the rambling!  There is More than you ever could have wanted to know there ALL SPELLED out............and NO the individual phone calls initiated by me-exhausting.  Besides- you for one Joyce- has not answered or returned a phone call, text message, or e-mail from me in over a year or at least since....Last winter?  So seriously...do NOT sweat a thing! There is zero expectation -only wishes for mutual respect and consideration.   Love you all, But again- I signed off this 6 way speechmaking e-mail thing back in the summer and I really didn't ask to be included again so please...leave me off. Have a VERY Merry Christmas,   xoxo,jennifer  

    Oh the drama of FAMILY!..... 

    Thanks so much for adopting me into THIS family....Love you all.  St. Perregrine and St. Agatha please intercede on all our behalves!

    MERRY Christmas!

    jennifer 

  • apple
    apple Member Posts: 1,466
    edited December 2009

    a Blessed and Holy Christmas to you sisters.

    I am playing the 5 PM Mass this evening and then heading to El Paso Christmas morning to celebrate with family down there.. with my husband and 3 kids.

    I don't know what to wear to church.  eek.   the highlight will be accompanying on O Holy Night.  I adore that song.

    May the love and peace of Christ be with you all.

  • Angel10
    Angel10 Member Posts: 347
    edited December 2009

    ooohhhh....love that song, too Apple!

    Christmas Blessings to each of you!

  • g94u67
    g94u67 Member Posts: 91
    edited December 2009

    Merry Christimas and Praise God!

    Thank you all for your beautiful sentiments, prayers and Novenas. I feel much stronger and faithful today. My new phrase "Live by Faith"  I truly believe I will get through this and if I can help others, then it's God's plan. You're right Angel: We don't know how many days we have and whose to say I'll go from bc? We need to make each day count! And I vow to do that. Many of you have said my stage is not a death sentence (even though my Dr's are ify) I pray to get into the UCLA trial and make a break through for all TN and BRAC+ women living with this disease.

    Yesterday I was able to help my neighbor with a $100 Wal-Mart gift card because her husband is out of work. They literally had no money for gifts.  She was so appreciative and had tears in her eyes when she came to my door.That I was able to help a family in need made my X-mas.

    My beautiful BC Sisters, I wish all of you a wonderful and blessed Christmas with your families.

    May the spirit of our Lord and Savior Jesus Christ be with all of us.

    Jeannine

  • nancyd
    nancyd Member Posts: 557
    edited December 2009

    St. Peregrine, I pray today that you intercede with Our Lord for Jeannine. I ask that her doctors find a treatment that greatly benefits her. I pray for relief of her worry and pain. I pray for a miracle. In Jesus's name. Amen.

    Jennifer, I hate family drama at Christmas. There's enough stress what with traveling, gift shopping, house cleaning. Why can't the dynamics of a big family can just take a break for a week? Thank goodness things are somewhat low key here this year. With my father's death in September, we're all still feeling a little somber. Still, the one thing I asked of my brother...that he pick up his things all over the dining room (he has stuff in other rooms, too, but the dining room would be used for a few holiday meals)... hasn't been done. So all my spirit and energy has just evaporated. I have a tree, but it isn't decorated, yet. If others aren't going to put anything into it, I just can't afford to waste my energy, and I certainly don't have enough to do their share, too.

     So maybe this year, Christmas in my house will really be spent thinking about the reason rather than focusing on the decorations and presents.

  • apple
    apple Member Posts: 1,466
    edited December 2009

    Merry Christmas everyone. 

  • swimangel72
    swimangel72 Member Posts: 142
    edited December 2009

    Merry Christmas to all my sisters!

    I love this version of O Holy Night (the beginning is missing)........these kids have gorgeous soprano voices!

    Angelis - O Holy Night

    Innocent

  • apple
    apple Member Posts: 1,466
    edited December 2009

    that is a gorgeous version of O Holy NIght swimangel.  I adore boy sopranos and that blond one has a splendid voice.

    (I have a boy soprano in my group who is becoming way too self conscious about singing soprano.. he wants to be a tenor.. sigh)

    we've had a blizzard in Kansas .  Be safe all.  Prayers and Merry Christmas again to you all.


    Diagnosis: 5/10/2008, IDC, 5cm, Stage IIIc, Grade 3, 4/9 nodes, ER+

  • mmm5
    mmm5 Member Posts: 797
    edited December 2009

    Hope you all had a blessed Christmas!

    Am having a Thoracic MRI, could really use your prayers please work your magic ladies!

    Jeannine I am  on Day 2 to St. Agatha for you...be well!

  • Bless
    Bless Member Posts: 42
    edited December 2009

    Prayers for a good experience for you Jeannine and a blessedly wonderful healthy outcome.

    May the Christmas Blessings overflow on all of you ladies and your families and friends and doctors too

  • nancyd
    nancyd Member Posts: 557
    edited December 2009

    St. Peregrine, I pray today that you intercede with Our Lord for Jeannine. I ask that her doctors find a treatment that greatly benefits her. I pray for relief of her worry and pain. I pray for a miracle.

    Please guide mmm5's MRI.

    In Jesus's name. Amen.

  • Angel10
    Angel10 Member Posts: 347
    edited December 2009

    Christmas Blessings to all my sisters!

    Continuing Novena for Jeannine and prayers for mmm5.

    God BLess!

  • Estepp
    Estepp Member Posts: 2,966
    edited December 2009

    Jeannine... you inspire me...

    Lets all pray for mmm5's MRI tomorrow.. that it will be CLEAR of any BC....

    Ladies... you all inspire me and I pray for my sister daily..

    I pray your 2010 is soooooooooooooo blessed!

  • nancyd
    nancyd Member Posts: 557
    edited December 2009

    St. Peregrine, I pray today that you intercede with Our Lord for Jeannine. I ask that her doctors find a treatment that greatly benefits her. I pray for relief of her worry and pain. I pray for a miracle.

    Please guide mmm5's MRI.

    In Jesus's name. Amen.

  • mmm5
    mmm5 Member Posts: 797
    edited December 2009

    Dearest Ladies-

    I want to thank you so much for praying for me, Laura special prayers to you for your complete empathy and love.

    The MRI was negative just a disc protrusion and of course My ONC reminded me that if there is a small problem if will be excerbated by LACK OF ESTROGEN. I am blessed and thankful but I will tell you as I went into the chamber this morning I felt weird, disconnected and then I just felt like why am I so afraid.... I was able to walk in here today and have this test and there is hope and there are so many out there that are suffering more.

    I prayed for Kalya who is on these boards who was in ER xmas eve finding out about her METS and could not breathe due to much fluid on lungs, and Jeannine who is facing chemo again, and Heidi's children who are without their Mom on Christmas this year. The whole thing just made me realize for the 100th time to enjoy this moment and try  try not to be paralyzed with fear and that we just need to find a way to help those that are in so much fear and I have a special affinity for young Mothers going through this that are afraid for their children as that is what crosses my mind each day.

    Anyway I wanted to thank you again for praying for me and being on this thread, it is important and I just feel we can really help many out there!

    Peace be with all of you.

    3rd day to St. Agatha for Jeannine!

  • nancyd
    nancyd Member Posts: 557
    edited December 2009

    mmm5 - Good results of the MRI. At least it isn't mets.

    I know Kalyla from the Starting Chemo in April 2008 thread. I started my chemo very late in March 2008, so I often cross-posted to that thread. So sad this beast has come back so soon after her initial treatment. I will definitely add her to my novena.