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  • wonderland
    wonderland Posts: 3,012
    edited March 2023

    Karen: I know you're so ready to get going on treatments. Wanted to let you know that I used Ativan during mine. Love my Ativan! Really took the edge off and stopped me from going too deep into dark places in my mind. I slipped one pill under my tongue a little bit before I went to bed. I fell quickly to sleep. Just letting you know what got me through. Heart

    Welcome rahrah! Glad you found us.

    Ruth: I can't believe how much snow you've had. All I wanted was one! Spring is all over the place here. Our dogwoods are just starting, the redbuds are blooming, daffodils everywhere, etc. But with Spring and all her beauty is also pollen! And red itchy eyes!

    Walked/ran today. Temperature nice and cool in the lower 50s.

  • karen1956
    karen1956 Posts: 4,659
    edited March 2023

    Wonder - I took Ativan the first time around. Both for nausea and anxiety. I'm on Xanax for several years now. The new/young psychiatrists don't like Benzos!!! Mine was going to start weening me off but now with the MM diagnosis, she said, I'm not going to take your meds away!

    Ruth - yes, too bad we aren't closer. Your son's fiance must be young!! I was talking to an ECE teacher yesterday and she is 41 - her mother is 4 years younger than me!! Till this, I wasn't feeling old and hoping treatment doesn't age me too much.

    I miss my Gilda Radner hair. Need to get my haircut - I think it's been 6 months and its not looking nice anymore.

    Insurance is driving me cray - My Revlimid need to be pre-approved and thankfully it was. It is being filled at a specialty pharmacy not my Optum mail order. The retail cost for one month of it is over 18K. Thankfully, my UHC Medicare Advantage is a good policy and my co-pay is only $75. Co-pay for each of the chemo drugs is $75 so $225/month for the three plus probably another $100 for all the other. The Velcade retail is about $7K and the Darasumumub)?) is only retail $700. Insurance denied the Promethazine saying it is not FDA approved for nausea from chemo and considered high risk for those over 65!!! I can buy it out of pocket, but want to see what oncologist office offers for an alternative in addition to the Zofran. Just the 16 weeks of chemo will be over $80K retail. I get text and emails from Optum Rx, so I ind myself checking with up on things. I shouldn't have to do that - but I don't want to let anything go to chance. I'm very worried about the cap on Rx - I don't know if my total out of pocket spending includes Rx - but there is no way I can afford 25K/month if insurance has a limit.

    My work is amazing. yesterday I was meeting with one of admin early in the morning about a student and made a comment about feeling overwhelmed etc and she asked if I wanted to be at work or go home. When I told her I was looking into changing chemo to Tuesdays and why - she was like "don't worry about us". I'm at the school M-Th and the SP intern T-F and I said one reason looking to change is so I could be there Monday and the other reason was only working 2 days in a row - M, W,Th with chemo on Tuesday. I feel so fortunate as the principal I worked for 17 years ago was a Queen B. In the fall at the start of the new school year, she told me that they "got the short end of the stick" when I was out. I wanted to rip open my shirt and say who got the short end of the stick. From then on, she made my life miserable. I still need to tell my Float teammates about what is going on but I don't know how. Yesterday I had book study and we are all on the float team (about 1/2 the team) and I couldn't bring myself anything but I could feel myself feeling quite angry in my body.

    T-6 and still so many questions. I still have lots of questions about the CST. I they harvest them from throughout the body - right now it is all so much to absorb. I want to know how soon the Bone Marrow Biopsy is after the induction chemo and how long after that is SCT. Generalities are fine but I want to be able to have some idea - to be able to plan a little. this unknown/uncertainty is driving me crazy. Feeling very vulnerable and pessimistic at times - just want to get the show on the road.

    My husband has been volunteering with our local police department, helping with trainings for about 6 months. He called them yesterday to let them know he wasn't sure if/when he could help and before the end of the day, we got a beautiful gift box from his family at the department. Unfortunately, it's not kosher so my son will take it (he doesn't keep kosher). Soup, rolls and cookies and a beautiful ladle. My school wants to know what they can do to help, but unfortunately, I don't know at this point, but I will let them do something.

    Going to be 60 today - but anymore I'm always cold. I keep the space heater on in my office and layer.

    I've not proofread my post so hopefully everything makes sense.

    Have a great Tuesday.

  • ruthbru
    ruthbru Posts: 48,599
    edited March 2023

    I'm glad you are working with good-hearted people, Karen. I had the same experience & that helped a lot. Could you send out a group email to your team? With my principal's okay, that's how I told the teachers at my school (except those who were also personal friends). I just couldn't explain things over & over; but if it wasn't addressed people would be speculating & not know if they should say anything to me or not. I also sent out occasional updates that way. Yes, when you think of things that would help, let them know. People really do want to help out so it's a win/win situation. What a nice gesture from the police department. DS can enjoy the food & you can enjoy the ladle. If I lived closer I would make you some soup so you could use it (although you would have to tell me what kind of soups are kosher!).

    I went to Pound this morning. It's supposed to start snowing this afternoon (sigh) and we are in another (expletive deleted) winter storm watch throughout the night. If things are still open by evening, I will go to Zumba & maybe Yoga.

  • ruthbru
    ruthbru Posts: 48,599
    edited March 2023

    Here's a 'First Day of Spring' picture from a town about 30 miles from where I live!

    image

  • karen1956
    karen1956 Posts: 4,659
    edited March 2023

    Ruth - that is a LOT of snow!! The mountains here are getting hammered, but thankfully not in Denver

    Endocrinologist office called yesterday - yup, she says, it is hyperparathyroidism - yes, I've known that for a coupe years, but hematologist was questioning it. Ultrasound of parathyroid/thyroid was normal 2 weeks ago. This part Friday had labs for Calcium and PTH - Calcium rose slightly but big jump in PTH - so now she is ordering CT of neck!! I'm really going to glow soon.

    Received 3 of my Rx for treatment - all pre-meds - 2 of 3 chemo drugs have been pre-authorized - wrote the hematologist's nurse last night to ask her where those meds are being delivered/if I'm responsible for getting them. My mail order pharmacy sends me texts to let me know status. Just want to have everything ready for Monday to get the show on the road.

    My SIL texted me this morning asking how I was doing and thinking of me and praying a lot. Hard to answer, tried to be honest, yet positive. He is a great guy.

    Thankfully work is super busy, non stop non-stop most of the day and it is a great distraction. When I get home, it's hard as too much time to think. Having knots in my stomach - like I've been punched in the gut - taking Pepcid AC twice/day but it still hurts - eating but not really hungry. I'm loosing weight and trust me, I have no extra weight to spare. It scares me as I haven't even started chemo. I force myself to eat but I'm not snacking and that is something I generally did. Primary care tells me what to eat with calories, but it's hard to eat if not hungry.

    Told one of my good friends at work yesterday - we are on the same central team of school psychologists and she is the one who takes care of our float placements - we've been on the same team for 5 or 6 years and she was my mentee her first year. She is the same age as my son, but I don't feel the age difference (I'm twice her age). I haven't decided if I want to tell the rest of the team - we are 11 or so people - I've known all but two for several years. I felt it was important to let my school team know since I've had so many appointments as well as my managers/supervisors but really don't know how far I want to reach in telling other SPs - I've known many of my SP friends for a number of years and we are close, but we don't really socialize outside of work. If I tell the float team, I don't know if I want to email or have Libby tell them. I told her I needed to think about it. I won't be at our April meeting but that is because it's the last day of Passover not due to treatment.

    Thanks everyone.

  • ruthbru
    ruthbru Posts: 48,599
    edited March 2023

    Thinking of you, Karen. Waiting is so, so hard.

    We got 4 more inches of snow last night. Schools had a late start (2 hours) as did our fitness center. Here's a picture of those of us who got dug out by 10 so we could walk (we walked inside but took the picture outside). At least the temperature is mild and it's not windy!

    image

  • wonderland
    wonderland Posts: 3,012
    edited March 2023

    Karen: I'll be thinking about you all day tomorrow with your MRI. Monday will be here before you know it.

    Ruth: As always, a great WWW picture. I just want to get my hands into the snow!

    No formal exercise today. It's been drizzly and chilly. I visited a friend in the afternoon.

  • karen1956
    karen1956 Posts: 4,659
    edited March 2023

    I spoke with a "match" this afternoon who is both a BC and Multiple Myeloma survivor. She is 15 years BC and 10 years MM. She was very positive but it's hard for me to be there yet. It's still so much to absorb. I will be on some sort of treatment for the rest of my life. PET/CT scan is tomorrow afternoon at 3:30 and I have to fast, water only after 9:30am.

    School shooting in my district this morning. Student shot two staff members. On the news all day and even NBC news. I covered at this school 5 years ago for spring semester. The amount of school violence is unbelievable. My husband worries about me whenever he hears anything like this. I'm mostly in elementary schools, but as a float I have done middle and high school coverage. My husband said this afternoon, he hopes they keep me out of high schools.

    Waiting for the neck CT to be scheduled. Tired of appointments and lots to come. Trying to figure out the best way to make a calendar or spreadsheet for meds. What to take when. I do have several pill holders. I already use 2 for the Rx I currently take. Now I'm adding several more - some taking every day or twice/day for the 16 weeks, some are just day of weekly injections. And the chemo drug I take at home is 21 days on and 7 days off - I told someone just like birth control pills - not sure why I thought of this analogy as I have used them in decades.

  • ruthbru
    ruthbru Posts: 48,599
    edited March 2023

    Karen, I saw the news about the shooting. The very sad thing is that I am not even shocked anymore. I fear we are leaving a pretty horrible world for our kids.......I did a google search & both Dairy Queen ice cream & Ensure are kosher. Maybe you should consider adding both to your diet for the calories!

    I went to Pound & will go back to Dance2fit tonight.

  • trmtab
    trmtab Posts: 976
    edited March 2023

    I saw the news yesterday re the Denver school shooting and thought of you. It is becoming too common. We have had two shooting incidents across the street from my school (so not reported as AT my school) as the college bar scene closes (2a.m.) over the past two months...since all of this happens less than 100 yards from my office it is too close for comfort!

    It is comforting that you found a match.

    This week has been so busy, last week was spring break, that between school and making sure I have time for my mother, I have had to cancel out of my exercise classes Tuesday and Wednesday...just walking and walking. Hope to get back to the gym tomorrow...off now to walk across campus! TT

  • wonderland
    wonderland Posts: 3,012
    edited March 2023

    Karen: how amazing that you found a match. Hopefully she will be a great resource for you. Immediately thought of you when I heard about the school shooting. Sickening.

    TT: Yikes about the shooting so close to your office. So scary.

    Walked/ran today. 75 degrees. Will need to mow again soon.

  • karen1956
    karen1956 Posts: 4,659
    edited March 2023

    My team got an email yesterday asking if we wanted to be put on the alert list when notices go out. Of course I sent my information - I can always change my mind.

    The world (actually the US) has become a scary place. They interviewed 3 teachers on the news who work in another school district and were on spring break. They all talked about how this is not what they signed up for and were thinking of leaving teaching. It made me wonder if I'm nuts for wanting to keep working when I have cancer again. But I'm not ready to stop and as many shootings as they are - most schools are safe most of the time. When I made a comment about elementary schools, feeling safer it was in regards to less likely being a student shooting vs middle and high school. I have to have something to think positive as the job is so stressful to begin with. The SW and SPs in my district are stretch so thin with seeing kids, special ed, responding to behavior calls etc. I haven't done much paperwork in the past 5 weeks. I need to catch up over spring break.

    We spoke to DD#2 earlier this morning. DH and I were both on face time and the first think she asked was "is everything okay"? It broke our hearts. She was crying and so worried and scared. She was planning on staying in Israel for Passover and asked if she could come home. Of course we said yes. I also said I don't want the visit to mess up with school. She said she was going to tell friends and I told her she can tell anyone she wants, even on of her bff's mom who she is she knows well and is a nurse.

    DD#2 called me back about an hour ago and she sounded good. She had questions and had told one of her bff and I forget what her friend said was funny - something I said. When I told DD#2 I would be on medicine for the rest of my life, she didn't think it was a big deal. She takes meds, my husband takes heart meds so to her it's normal. It made feel so much better. Lastly, she texted me a photo of a shot of single malt scotch with the bottle behind it and wished me a good Shabbat. I love that kid.

    For me saying I wasn't sure I wanted to share with many people, I saw someone in the parking lot at the grocery store and she commented that my husband and I don't age. She asked jokingly who our PS was and I said he did my boobs (she knew I had BC) and then she said I'm doing good right? For someone strange reason, I said no and told her about the MM. My husband can't quite figure me out. But I told this person not to tell anyone and she says she's become a hermit and I said so are we, but let's get together for drinks. We've been acquaintances for 30+ years.

    DD#1, when I told her about DD#2, she said I haven't cried yet, but I'm worried too. I just want to be a support for my sister. I texted DS about the PET/CT scan results and the way I worried it, he had lots of questions. I said favorable no surprises. I can tell that he too is really worried. I really do have wonderful, caring loving children.

    The hematologist's nurse called around 9 with PET/CT scan results. They were good - no bad news on them. What a relief. I asked what time is best to take the oral drug and she asked the doctor and he said at bed since it can make people tired. So that was one of my concerns. So for the moment, I'm feeling a little bit positive - but I'm sure that will change throughout the day. Waiting on the courier to deliver the oral chemo. They said between 9 and 1.

    Well, I best get busy if I want to get anything done today. It's already after 11:00 and other than the grocery store, I haven't done anything in the house.

    Have a good Friday.

  • ruthbru
    ruthbru Posts: 48,599
    edited March 2023

    Glad about the test results, Karen! I think it's better when the people important to you (both in your personal life & work life) know what's going on. Otherwise you are walking on egg shells trying not to talk about things and, if they have any inkling that something is wrong, they are walking on eggshells too wondering if they should say anything or not. A lady I know from exercise class & school (she is in her 70s & used to sub) is about 6 months ahead of you in a MM diagnosis. She came to class last night and announced that she is in remission & is switching to a maintenance regimen. She is so excited & so are we all!

    2 friends & I met up at the fitness center and walked for an hour this morning. Cold, snowy, but sunny & not windy; so I guess we are making some progress in the weather department anyway.

  • wonderland
    wonderland Posts: 3,012
    edited March 2023

    Karen: Your children love and care about you so much. It's great that they worry about not only you, but also each other. Yay on your PET results!

    Ruth: One day you will see the green that is under all that white.

    Walked/ran yesterday and today. Both days the temperature has been in the 80s.

  • ruthbru
    ruthbru Posts: 48,599
    edited March 2023

    I went to Yoga Strength today & we had a substitute who was amazing! Then another retired teacher friend & I had lunch with an old colleague who is still teaching & having terrible, frustrating year (it's not the kids who are the problem). She just needed to vent; so mostly we listened for two hours (and were glad to be retired!). Since then we've been babysitting the dog pack as DS & fiance are visiting her family (which they haven't been able to do since there's been a storm every weekend!). I think the dogs have tired themselves out as they are all sleeping at the moment.....

  • wonderland
    wonderland Posts: 3,012
    edited March 2023

    I kinda want to go to your house and ring the doorbell to set off all the dogs! Loopy

  • karen1956
    karen1956 Posts: 4,659
    edited March 2023

    Starting to really stress about Monday - about 36 hours till I start treatment. I read all the information on Revlimid and it scared it scares me. But just want to get the show on the road. Have a few questions for the hematologist. DH said he asked at last appointment if we wanted to meet the transplant oncologist. I don't remember this, The reason to have DH with me. Yes, I want to meet with the transplant doctor sooner than later. I want to know timelines - when is bone marrow biopsy after finishing induction chemo and how long after that is the stem cell transplant. Life as I know it now will never be the same.

    Sweet dreams

  • ruthbru
    ruthbru Posts: 48,599
    edited March 2023

    Thinking of you , Karen. The sooner it starts, the sooner you will be through the worst of it. We are with you in our thoughts & in our prayers.

    Alice, you would have enjoyed the din if you had rung the doorbell. DS & fiance were back by 10 pm; by that time everyone was tired out, especially the humans! We are invited to brunch today as a 'thank you for babysitting'. I am going to try out a Pound/Barre class this evening. I usually like to be home Sunday night, but this sounds interesting.

  • karen1956
    karen1956 Posts: 4,659
    edited March 2023

    I had one of my very close girlfriend for dinner. We were talking about treatment etc and she asked what would be wrong if I had to retire? I told her I wanted it to be on my terms, my choice - she got it. The look on her face when we were talking about stem cell transplant - wow - she is an anesthesiologist so she knows medicine. Right now, I can't go there beyond is it a given and if so when after finishing chemo. 10 hours till I start treatment and my life changes even more than it did with BC - 17 years older and not nearly as healthy - so many more things going on. MY gf says that they are all related but I need her to explain more. She will check on us tomorrow.

    I'm in a weird space right now. DH and I were going to tell our brothers tomorrow and not I'm not sure I want to tell anyone else including our brothers. I know I should, but....

    DD#2 is coming home for Passover - she bought a ticket last night and got a great price and we talked this morning. She asked if we wanted her to come home and I told her she needed to do what made her feel best and that we would never tell her not to come home - so she said I guess I'm coming. I know she is so worried. She will miss one day of classes. It will be nice to have her here. She was going to go to one of her friend's houses for the first part of Passover and my gf who was here tonight for the end.

    Well, it's late. I should probably go to bed shortly. I will update tomorrow sometime.

  • trmtab
    trmtab Posts: 976
    edited March 2023

    On the retirement issue, I am getting that question nearly every day it feels like, but definitely at least once a week...and I am really torn on the issue. I really love parts of what I do and I really don't other parts.

    This past weekend I read the advice column of Carolyn Hax (Washington Post but in syndication) and what she had to say really got to me. She was referring to any yes/no decision: get married, get divorced, have kids, have more kids, move, retire, etc. etc. She said if the answer isn't a solid YES, then the answer is a NO.

    I really liked that as I am clearly not a solid YES...so even in my bad moments when thoughts that make me consider retirement pop up, I'll still come back to no.

    Thinking of you today Karen. TT

  • ruthbru
    ruthbru Posts: 48,599
    edited March 2023

    That is good advice, TT. You will KNOW when it's time to retire, at least I did (I still miss parts of my job, but LOVE the flexibility & lack of paperwork in my retirement life....I am surely never without things to do!).

    Thinking of you today, Karen. So glad that DD #2 is coming home, both for your sake & for hers.

    My Zumba class was canceled at the last minute, so a couple friends & I walked around the track at the fitness center for an hour. I will go to Pound tonight.

  • coffeelatte
    coffeelatte Posts: 109
    edited March 2023

    Wow, it has been a while since I have been on this site and I sure had a lot to catching up to do. I don't know what to say Karen except my thoughts and prayers are with you. I really appreciate all the time you have given to this forum to tell us about your new medical challenge. I have read most of your posts two and three times and I have learned so much from the information you have shared. I have heard about Multiple Myeloma a few times but I had no idea how involved the initial treatment plan would be. I can see why your mind is on overload. It seems to me your are handling this issue like a rock star. I can't even begin to imagine how frightened you must feel because you sound so strong and focused to me. Just remember you are in great shape from all your years of walking and your diet is so clean. Plus you have such a loving family and a great network of friends and colleagues. I think you are going into this treatment in a very good position. You may be 17 years older but you have taken such good care of yourself you will find strength to get through this initial treatment.

    I am so glad your daughter is coming home for Passover. That is just what the doctor ordered to bring you a glimpse of light at the end of the tunnel. Your children sound so wonderful. The flowers your son sent your brought me to tears. What a wonderful mother you are Karen. To be loved so much by your family tells it all. You've got this.

    Lisa



  • karen1956
    karen1956 Posts: 4,659
    edited March 2023

    Coffee - thanks for the kind words. I feel so blessed to have such wonderful caring children.

    TT - I love the saying. I agree with her perspective. My close co-workers know two more years after this year but that could change. My gf who asked is the same age as me. I just want retirement to be on my terms, to be my choice, not a choice made for me.

    Good visit with the hematologist. He answered all my questions. He is referring us to a transplant doctor for a consult- her speciality is multiple myeloma. Really liked what I read on the website and her video. Hematologist prescribed two additional meds and is putting me on Zometa - I think monthly. No more Prolia. I will get Zometa at second chemo as it needs pre-approval from my insurance and there wasn't enough time today. Felt okay, but tired for a couple hours after the two injections but then started feeling lousy - took a Zofran at 4:30 and will take another when I go to bed. The Revlimid is also taken at bed. The two new meds are Singular to take for 3 days starting day of injection and Albuterol inhaler as needed. Hope I feel better tomorrow. We moved chemo to Fridays so next one is not till April 7th. I see the hematologist monthly but have labs weekly. So total meds I'm taking for the MM are 9 Rx (2 are PRN) and 3 OTC. Plus the meds I've been taking. Don't even want to figure out that total. I'm a walking pharmacy. Happy

    All my kids checked in with me today, including my SIL. Thankfully by text so I didn't have to talk.

    Still waiting for the neck CT scan to be scheduled. Endocrinologist called me last Tuesday to say it was being ordered. I'd have to look at my patient portal to see when I was actually sent. I may call tomorrow or send message on the portal.

    Starting back to see my Nephrologist. The only appointment he has before the end of June is a telehealth appointment in about 2 1/2 right after chemo #3. I don't want to wait 3 months.

    When I asked hematologist about stem cell transplant - was it a given, he said I can't force you to do it, but it's best to do it when I'm healthier and not doing it can cause more damage to my kidneys. I wasn't questioning doing the SCT, but more wanted to know timelines. The next bone marrow biopsy will be 2-4 after finishing the 4 cycles of chemo in mid July.

    i ordered flavor free protein powder. I will added to a smoothie, teal or water to help maintain my weight and not loose more. I'm eating but not a lot.

    I texted my brother to ask him to call me when he has time in the next couple days. He is Eastern time in Ohio (2 hours earlier than mountain time) and he wanted to know how late I would be up. I told him 10 or 10:30 and that I'm up quite early. DH will call his brother tomorrow.

    DD#2 will be here for two of my chemos. I will have her go to #2 - I think she will like that. They only allow one visitor. It shouldn't be more than an hour total. She did well on the final on her birthday that she thought she failed. She was so happy and proud of herself. Dad and I are also proud of her - even when she doesn't do well on a test or in the class. It's a very hard program and she is doing it in he second language.

    Cold, cold today. Didn't walk at all today when DH walked. Wasn't feeling good enough in the afternoon and after dinner, I was slightly better but it was COLD. Anymore I'm a wimp in the cold. Also, I didn't want to push the limits too far. Hopefully I'll be up to walking tomorrow.

    Sweet dreams.

  • ruthbru
    ruthbru Posts: 48,599
    edited March 2023

    Karen, I'm glad Day 1 is over, and hope that you are feeling not-so-lousy tomorrow. Coffee is right; you are strong and focused!

    I don't know if you are sending us your weather, but it is very cold here & is supposed to snow again tomorrow. We are breaking records in a very bad way!

  • rahrah2023
    rahrah2023 Posts: 13
    edited March 2023

    Hey Ruthbru,

    I feel so much better after my walk. First day of spring looks colddddd Smile. I lived in Massachusetts for 13 years and I do not missed snowed in days but it definitely beautiful to look at. Going on my 3rd treatment and so far it is getting much easier to manage

    Take care

  • karen1956
    karen1956 Posts: 4,659
    edited March 2023

    I'm drinking the protein powder with water, but just 6oz as if I drink more, then I won't have room to eat anything. I lost weight with BC chemo (TAC) but I had weight I could loose - I've always say be careful what you ask for as I had wanted to loose 10# and get through menopause and I did, but now how I planned.

    DD#2 told DH that she would get me to eat. She said I needed to eat peanut butter during Passover - I did the last time during chemo. I will eat what I need to eat. During my BC chemo I ate whatever tasted good. I'm eating, just not a lot and I"m not snacking. The not snacking is probably the culprit for the weight loss.

    UHC approved the Zometa - I think it might be weekly - They approved it for a year. My vein on my left side is shot so I'm using my right arm - BC/axillary dissection. Oncologist said my risk of LE is 30% over my lifetime. BS said she only took out first layer to minimize risk of LE.

    Insurance pre-authorized the CT scan of neck and it's scheduled for this Monday. I also got an appointment with the transplant oncologist - but not till May 10th. That was her first opening. It took a lot of perseverance on my part, dialed the number 10 times till I got someone instead of voice mail.

    Strong winds here - up to 50mph. The wind is loud in the house. There is a wild fire in Morrison which is just SW of Denver, near Red Rocks. Red Rocks is a great concert venue.

    DH and I don't follow sports. So we only know what is going on from the news.

    Have a great Friday and Saturday

  • ruthbru
    ruthbru Posts: 48,599
    edited April 2023

    I ate a lot of mashed potatoes during chemo, which is probably why I did NOT lose weight! Glad you have gotten things approved on the insurance end & finally got through to a real person so you could get the appointment with the transplant doc. You wonder what happens to people who aren't as on the ball as it takes a lot of effort to get things in place even if you are.

    You are sending your weather here, Karen. South & east of here are a mess with rain/ice/snow and the winds. We are just getting the winds so it's okay in town, but no travel is advised on the highways. Next week another Colorado Low might bring us more bad weather. What a spring!

    I spent almost the whole day cooking! I made a lemon cake (which was an experiment as I added & subtracted ingredients from the recipe), dinner for our friends whose wife is sick, cookies for another couple who are dealing with some health challenges, and a nice supper for us. I actually don't like cooking that much, so may need to pour myself a glass of wine to recover from my day in the kitchen! I did a 30 minute ab DVD & a little dancing around with Marshall Fitness on utube.

  • ruthbru
    ruthbru Posts: 48,599
    edited April 2023

    Yoga Strength this morning. We are having company for dinner, so more cooking for me!

  • trmtab
    trmtab Posts: 976
    edited April 2023

    DH packing up for a week's business in Boulder, travel out early Sunday, home late late Friday, ugh!

    Wednesday it will be 82 here (unusually high) but only a high of 39 there with an overnight low of 13...yikes!

    Between Passover, Holy Week, Ramadan...and no doubt others, plus for us K-12 school is on recess... really can't believe the timing of this trip...it's all a bunch of guys and no one wants to be the one to say "really, with all the holidays, isn't this a bad week"

    Whatever, I plan to clean the house, do the last of my grocery shopping for the week ahead and then go to a candlelight yoga.

    Happy Sunday all...TT

  • karen1956
    karen1956 Posts: 4,659
    edited April 2023

    Today is the first day that I feel pretty good since the injections last Monday. Ran a few errands to TJs and King Soopers. Produce DD#2 or DH can get on Tuesday or Wednesday. I got veggies that last - carrots, squash etc.

    DH is doing the ovens. Slowly I'm doing the kitchen fridge and freezer. Counter tops and sinks will get done on Wednesday by DD#2 and DH. Plus they will do most of the cooking. I made a list of "to do" and I put myself down to cook two things. Everything will get done in time. I'm pacing myself to not wear myself out or over do it. But it hurts to know that I can't do so much. Under normal circumstances I could have worked in the kitchen all day today and cooked after work M and T. Oh well. I'm just grateful for the extra few days before the injections again on Friday.

    Gorgeous out today - sunny, blue sky and high 60s. Similar for tomorrow. Tuesday chance of snow and low 40s Tuesday and Wednesday. Then warming up starting on Thursday into next week.

    TT - Agree with you - who schedules a business trip this week!!

    Back to cleaning the fridge. Tomorrow is back to work - 2 more months to go.

    Have a great Sunday.