Lets Post our Daily Exercise
Comments
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Had hard rain this morning and some in late afternoon. Cleared off to a beautiful day and I was able to walk/run.
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What a difference a day makes. Tonight, I finally feel human. Still not sleeping well, but took a long nap this morning. Read this afternoon and went for 2 walks today - had to push myself in the morning but before dinner I was starting to feel better.
I had BC chemo on Thursdays and went for IV hydration F,S,S and extra anti nausea meds in the IV. I had Emend as a pre-med as well as something else. I also took Kytril, BDR suupositories. I took anything and everything for nausea.
I can't take narcotics as they bind me up, make me sick to my stomach and cause severe nausea. Gd wiling any future surgeries acetamenophin will do the job since I can't take NSAIDS
I wondering if #2 and #3 were easier as I was on the Revlimid (its a from of thalidamide (sp) that was used for nausea in pregnancy in the early 60s and my hematologist also said it was used as a sleep aid). and for #1 and yesterday I wasn't. I will definitely get a head of the game next week.
Got lots of paperwork to do tomorrow. Write IEP goals for a meeting on Thursday. Finish work for the class I've been taking since January and start my end of the year self-evaluation for my meeting on May 12th. I have one more observation for the year and that is May 1st at an annual review IEP - will work on that next Sunday.
Curious as well as to what the new platform will be like. I guess we'll find out next Tuesday or Wednesday.
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Karen. I'm with you on the narcotics! Horrible, horrible!
Despite the weather in North Dakota, and the plane having mechanical problems in Denver, we did make it to Arizona in one piece. Today we headed north; walking around in a Saguaro Cactus Forest, taking a jeep trip in Sedona, and ending up in the Grand Canyon, where after a brisk walk, DH & I watched the sun go down.
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Ruth - great photos. Sounds like you are having a nice trip. Saw the pics on FB.
Made a strawberry smoothies with one scoop of protein powder (only 70 calories - but more than nothing) - frozen strawberries, OJ and almond milk. Actually quite good. Ate two Eggo waffles for breakfast with the smoothie and I"m FULL, FULLL FULL! I figure I an eat the waffles or English muffin before I leave for work and drink the smoothie on may to work.
Read the notes from Endocrinologist appointment and there were a couple things that I didn't remember from the visit but all in all good. She mentioned possible adding back calcium depending on how my levels do, after DEXA scan this summer, maybe other testing as well. Return in 3 to 6 months.
CMP in Cancer portal - blood calcium right at the cusp of the normal range - kidney function pretty stable but that is good. Hematologist ran 7 vials so curious what else he ran along with the 84 panel genetic testing. To be honest, a little worried about what will show up.
Doctors need to learn to hear and listen to us. My medical oncologist knows me well, Hematologist is just getting to know me an he is beginning to learn that I have a mind of my own.
Off to get busy for the day. GF is calling me this morning. Lots to catch up on.
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Rain starting tomorrow night in Denver 1-2" Monday night into Wednesday morning and 1-2 feet for the mountains!!!
See everyone on the other side of the new boards
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I better post a few pictures before we're shut down. We took a helicopter flight over the south rim of the Grand Canyon today. Amazing views from the air! This afternoon we took a hop off/on shuttle out to see some of the scenic views on the rim....also Amazing. My Fitbit says I have 16,000 steps, so I'm ready to relax for the evening. See you all after the upgrade!
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Karen: I am so glad you feel human again and I hope that feeling continues through your treatments. May each night sleep get better for you.
Ruth: So cool you took a helicopter ride over the GC! Dh and went there on our honeymoon. We took a mule ride to the ridge. It was fun but the trail wasn't very wide in some areas and I was afraid my mule was going to go over the edge.
Walked/ran today.
Tomorrow night is a very important meeting for my county. Our county commissioners want to Take Over the Board of Health - the ruling board over our health department. They want to have the Final Say in public health decisions in our county. One of the 7 commissioners was vocal at School Board meetings during the pandemic that he opposed the mask for students and staff and said he was going to get the health director fired. Then he found out the commissioners don't have the power to do that, only the Board of Health can. Thus the Take Over. I used to work at the health dept. (worked there for 6 years) and I am a former member of the Board of Health (on it for 9 years). I have been working very hard with the health dept retirees to stop the Take Over. I'll know tomorrow night but will not be able to report back until the new site is up and running. Wish us luck in stopping this potentially deadly disaster.
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Hi everyone, I have been off these boards for a long time! I have skimmed through and tried to get caught up.
Karen- so sorry to hear all you’re going through. I hope you get some relief from the side effects.
Ruth- your trip sounds very cool. Can’t wait to see more pictures.
Wonderland- I hope the takeover doesn’t succeed. It’s a scary time these days.I have had a rough time since getting Covid last April and dealing with side effects from it through the summer. Then in September I fell and got a concussion, in October I was diagnosed with Lyme Disease, in November I had an allergic reaction to a yellow jacket sting (crazy to have them in CT at Thanksgiving time). In December I missed a week of work from the flu and in January my back went out for a week.
I have been having lots of pain and inflammation in general- suspected to be from Breast Implant Illness, and last week I had my breast implants ( from mx in 2011) removed.I am already seeing so much improvement in my symptoms that I am encouraged. I just cannot wait for these drains to come out!
That’s what’s been happening in my life.
Hope to get on here more regularly and looking forward to exercising once I am cleared. I miss my Zumba!0 -
Oh my goodness, Ginger! Something new every month. The good news is that you are feeling improvements since you had your implants removed. Yellow jacket stings are very painful. And Lyme disease! You have been through it and I hope you can get back to Zumba soon.
WE WON! The County commissioners will NOT be taking over the health department. The vote was close: 4 to 3. One commissioner was the swing vote. He was all for it in the beginning then had a change of heart. He realized it was not moral what they wanted to do.
Have a lot to learn about the upgrade. Time will tell if it's good or not.
Been walking between the time the site went down and today.
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Well, all my treatment information is gone and looks like it's the same for some of you. Maybe it's here but I just can't find it.
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Yes, I had to re-do my signature block…added some humor 🤣
Good to see you again Ginger! I have thought of you and so sorry for all your travails.
Thanks for the pictures Ruth, love them! TT
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Not happy with the new boards. After 17 years I need to decide how often I will frequent the boards. I find the new platform user NOT friendly. I don't want to leave as I'll miss everyone, but I do't have the energy to deal with the not friendly changes.
Tomorrow is treatment #5. Tired of it already and the road is so long! Sweet dreams.
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Wonderland, the first time I logged into the new site I was prompted with an "update your signature" pop up…it included a partially correct/partially incorrect version of my old signature, Hopefully you don't need to start from scratch!
Friday, rainy and relatively cold (50's) for us. Had planned to tour an assisted living facility today for my mother…but I think I'd rather be a hermit today. Will go to Happy Hour Yoga at 5. TT
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Ginger, so sorry about all the stuff you have been going through! Glad that things are looking up.
Alice, I am so glad that the 'good guys' won!
Karen, I'm not sure what to think about the new boards as this is the first time I've been on them. All my information seems to be gone so I suppose I will have to try to figure that out. There are more emojis to choose from, so that is good.
We had a wonderful vacation! Lots & lots of walking in beautiful settings. I will try to post some more pictures once I get organized.
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Monument Valley, Utah
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Antelope Slot Canyon in Arizona might be the most amazing place I've ever been.
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Bryce Canyon
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Zion
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Zion
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Not happy with the new boards. After 17 years I need to decide how often I will frequent the boards. I find the new platform user NOT friendly. I don't want to leave as I'll miss everyone, but I do't have the energy to deal with the not friendly changes.
Tomorrow is treatment #5. Tired of it already and the road is so long! Sweet dreams.
Sunday - Evidently I never posted this on Thursday!!! Treatment #5 was better than 4. Stayed a head of nausea which never came :) But the dexamethasone messed with me. Only 11 more weeks to go!!! Seems like eternity. Counting down till the 10th when we meet with the transplant doctor. Hopefully, I'll get lots of answers. I guess DH and I are need to come up with a list of questions to get answers.
Sat outside and read yesterday afternoon. I even put sunscreen on which I never so and got a little too pink. One of the chemo drugs makes you sensitive to the sun. Supposed to be nice again today, but will be in doors as I have lots of paperwork to do for work.
Ruth - your pictures are great.
Have a great Sunday.
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Glad treatment 5 wasn't as horrible as 4, Karen; and glad you go some time outside yesterday……which is always good for the spirits!
I spent yesterday washing clothes, getting my trip pictures organized, picking up branches in the backyard (the snow is gone but everything is too wet to do any yard work yet) etc. etc. no formal exercise or even very many steps. Today I must get groceries and make a plan to start doing everything I wrote down on a list to do 'after vacation'. I may, or may not, get to yoga; but tomorrow I will be back at my regular exercise schedule for sure.
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Karen-glad that treatment 5 was kinder to you. It sounds like you have a lot going on. Are you also still working? I hope these boards get easier to navigate
Ruth your pics from your trip are amazing.
TT- thanks for the welcome back. I have thought of you all often too.
I think this past year I was just wiped out from everything going on and I really pulled inside my own shell. The longer I was away the more posts I had missed and it was hard to catch up. I had the worst brain fog.
It seems like others are missing too. Anyone hear from natsfan, Lilac Blue, Claire, Heidihill, Mommyof3, or others?0 -
I'm still in touch with natafan. She's retired, living in a cabin in the woods with bad internet connections & traveling a lot. I haven't heard from the others for a long time. If I can figure out how to message people from this new format, maybe I'll try to connect with them. Sad to lose track of people
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Hi Ladies - I’ve been a lurker on this thread but have never posted. I exercise as much as I can, walked all throughout chemo, and am really trying to stick to a daily routine for obvious reasons, but also because I’m overdue to start Tamoxifen and want to have my habits cemented prior to beginning. My question is have any of you noticed that exercise alleviates side effects from AI’s or Tamoxifen? I’m looking for some encouragement wherever I can get it.
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Welcome jh40! When I was starting Arimidex, a friend of mine who had been on it for awhile advised "keep moving, keep moving, keep moving". I found it helped with the creakiness as my body was getting adjusted to it. I didn't really have trouble with it & I think you have to go in thinking that you won't either. It is totally understandable that those who have side effects are the ones talking about it, while those who don't are just out living their lives.
I did get to Yoga yesterday, which felt good. I went to Zumba this morning & may go back to Pound. DH woke up with a horrible cold yesterday & still feels rotten so just went down to the clinic for a Covid test. Yikes! I hope it's negative & that I don't get whatever he has! I have too much to do to be sick!
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Thank you Ruthbru! I think that’s good advice about going into it with a positive mental attitude. I’m hoping I can be one of the lucky ones who can tolerate any side effects well. I’ll take your friends advice to keep moving too. 😀
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Ruth: Your pictures are breathtaking! Thank-you for posting them. Really hope your dh only has a cold. Keep up posted.
Karen: So glad your last treatment didn't cause any nausea! Good idea to be thinking of questions now before you meet your transplant doctor.
Ginger: I'm really sad with all the others who left when BCO supposedly improved last year. Too many people left. There are still a lot of problems with the site and I hope they can be corrected.
jh40: Welcome! Exercise definitely made a difference with my joint pain while I was on Arimidex.
I haven't done any formal exercise since last Wednesday. Been having GI problems that thankfully are clearing up. Maybe I can walk tomorrow.
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Ruth-glad to hear that you’re in touch with natsfan.
I agree it’s sad how many have left. Wishing we could know how everyone is doing. Hopefully they are living their best lives.Jh40 I found that exercise definitively helped when I was taking Aromasin. I felt like it helped keep everything moving and kept me from stiff muscle/joints.
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Well, DH went to the doctor yesterday and DOES have Covid! Yuck! I banished him to the spare bedroom and bathroom and spent the rest of the day cleaning!! Hopefully the germs will skip me. The recommendation now is that you don't have to quarantine even if you've been exposed so,Right now I am at a hair appointment. After that I will get the dog and bring him to the Dog Park (trying to find things that keep me out of the house as much as possible). I plan on Zumba & Yoga tonight.
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Hope DH recovers quickly and you don’t get it, Ruth.
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