CALLING ALL STAGE I SISTERS
Comments
-
OH Boy! I would surely bring that BIG ERROR to their attention. HELLO!!!!!!! I would show that letter to all your doctors and raise a stink.
0 -
To All My Sisters who are effected by the weather.
(((♥HUGS♥)))
0 -
I need to say this......................2,000.000 yea 2 million dollars for flowers.................$8,900 a night for the hotel room Kate's family is stayingin.....................champagne, cavier, what the hell is wrong with those people...........................they should be ashamed of themselves......I don't care if its the friggin Prince or not...............that is outragous, with the economy all over the world the way it is.....................and that is just the begining..........can't imagine what the rest of it cost................I am sick of this whole wedding idea.........People are dying here in the U.S. and that takes a back seat to the friggin wedding................I'm sorry it really pisses me off.............camping out, pleaaaaaaaaaaaase..............who cares, not me...........but my daughters are getting up a 4am............their nuts too. hahaha
0 -
Debbie- seriously??? I would bring it to the radiologist for sure and I would also call the clinic I had the mammogram at and would ask them for an explanation.
0 -
ducky - I am with you on this whole wedding thing. How friggin cares. So what if they are getting married but shame on them for putting that financial burden on the people. I certainly would not get up at o dark thirty to watch it. It will be televised on tape delay all day long.0
-
And the Queen has to walk with her head held high with all the shame her son brought to the family.And all that $$$$$$$$ and they cant find a cure for cancer.yea right.
0 -
I emailed my oncologist's nurse and told her about the letter. She contacted the place where I got my mammogram and the head nurse wants me to call her tomorrow.......
My concern is....what if I had gotten this instead of the report that said there was something there.......I wonder how many times this happens. I know we are only human and mistakes are always made but when it comes to our lives then there is just no excuse for that.......
Oh and another thing about the side affects of this radiation......I was checking out my poor boob cuz it's so red and has all these cute baby blue marks on it.....then I noticed.....I look like I had a boob job but could only pay for 1!!!!! The boob that is getting the radiation is getting HUGE!!!!! I mean it is very noticible!!!! Starting to feel like a cow that needs to be milked!!!
I saw the Rad. Dr. today and told him about the itching and he said to start off with cortaid or something with 1% cortesone and then if it gets any worse he will write me a prescription.
Hope everyone is having a good evening!
Debbie
0 -
Debbie - Good for you for following through. Mistakes like that are certainly not acceptable as far as I am concerned. I would not let this slide. It sounds like someone needs to be reported for such a screw up.
Take good care of that skin - that is the most important thing to remember when going through rads.
0 -
Debbie, same thing happened to me. I'm 7 months out of rads and the breast has shrunk but is still almost a cup size larger.
0 -
Thanks so much for the welcome!!
Seyla88- I am getting Herceptin treatments now. I never had chemo. I am just wondering about any side effects people might have had from it, if they did it without chemo.
O2bHealthy- I was very excited when I found my Dr at the CTCA. And very happy I was healthy enough to go into the trial. I do weekly treatments for a year, I am about halfway done. But recently I have not been feeling very well. Increased BP, increased HR, SOB, fluid retention and occational weakness and dizziness. I am going to see the cardilogist next wednesday. Hoping it is just the half way done blues
, maybe electrolite imbalance or hormones as I do not want to have to stop my treatments. 0 -
Debbie you might want to try taking an anti-inflamatory. My breast also swelled. If it is still swollen after rads talk to you RO about ice pacs. But do not do them during rads. He can tell you when the time will be right. I also had a rash that itched like crazy, the hydrocortisone did not work for me so they gave me a RX for Kenalog that worked pretty well.
0 -
Cyndi2304 - I hope your SOB and increased BP, HR are nothing serious. I know for a while there I would get so anxious when I would go to see the doc that my BP and HR would speed up just by being in their office.
I think it is awesome that you are so pleased with your onc and the CTCA. I went to CTCA for a 2nd opinion at the onset of my dx and did not walk away from the experience feeling very confident with the facility or staff, granted they had recently opened and were working out the kinks (Phoenix, AZ) but it did not meet my expectations.
Please let us know how your appointment goes next wednesday with the cardiologist.
0 -
Debbie- I had surgery August 17th and my boob also is 'uplifted'....nipple aimed in different direction...bothered me at first but now I could care less. ...it was swollen to the size of the other one (despite a large piece being removed) but I noticed last week that there is a noticable difference in boob sizes now....it is making bra shopping interesting....they are either too big on one side or too small on the other..Keep putting aloe vera on your skin..it will help with the itch and the redness and overall impact of the radiation
0 -
Hi All! Just discovered this thread. I've been posting on the April Rads thread (hi duckyb1) and the 40ish survivors thread, but this one looks great as well. I am 3 weeks into rads with 4 weeks and 1 day more to go, and you ladies are scaring me!! My boob hasn't swelled yet! Except if you count for the two infections I went through after surgery and the beginning of rads. I guess the best is still yet to come
A little bit about me: I was diagnosed in December with a large area of DCIS, lumpectomy found a 3 mm. triple negative tumor hidden within the area, next to the area of calcifications found on my mammogram. No chemo needed, but two surgeries and 36 rad tx including 8 boosts.
Hanging in there!
Susan
0 -
Susan- welcome!!!! Keep the aloe vera handy and take the cortisone script or bottle they give you when it is over as rads keep on ;giving' for a couple of weeks once you are no longer on the table...rads working its magic but it can cause the skin to redden and peel ...and depending on your boob size, chafe as well...my main are of tenderness was under my arm so I bought a huge bottle of eucerin and liberally applied it every hour or so....made things very tolerable..not to worry. You are almost done!!
0 -
Thank you for the words of Wisdom, Sandee! yeah, the rad onc is always having me lift up my boob, like he is expecting something to be there. So far, so good!
0 -
talcum powder also helps under the boob...or corn starch! I wore a cotton sports bra and found a great camisole with support built into it (Walmart)...called Cupid...$14.00....it was my lifesaver! Goooood luck!
0 -
SusanHG -Welcome! You have found a wonderful, supportive group of ladies If it is any consolation, my boob did not swell during or after rads. Maybe a stroke of luck? I did get red but nothing to write home about. Each one of us reacts differently to rads treatment. Skin care is really important. I used Aquaphor during my treatment - yes, it is greasy but it did work. I continued using it for 2 weeks after finishing rads and then went back to using Lubriderm0
-
Susan HG - I also did not swell and rads for me was fairly unremarkable. I used Aquaphor and 100% aloe from Trader Joe's. Aloe during the day, aquafor at night because it is so greasy. My lumpectomy boob is a fair amount smaller than the other but I just don;t care about it yet or maybe ever.
This is a great place to find wisdom and support along with hugs as needed.
0 -
I had no swelling what so ever while I was in tx for rads. My nipple is a different color that the right. Rads for me was a piece of cake, I did get medium well done but after the boosts within 4 days the redness was gone, you could acually see the path of the radiation, I should of taken pixs.LOL Left one is smaller, had to have re-excision for better margins.
0 -
Lump boob is smaller than the other one - not significantly and I can't tell the difference when I am dressed. Like Deborye, the redness was gone in a matter of days after rads and I could see the path of the radiation. Looked almost like a square in places.
0 -
Thank you for all the feedback, Ladies! I am just hoping that my skin holds out for the next four weeks, but so far the time has gone very fast and I'm not feeling too bad. Thanks for the support!
Susan
0 -
Susan - Be sure to drink plenty of water and get rest when you can. The fatigue will start to set in and you will have to pace yourself. I still felt the rad fatigue up to a month after I finished. You will get through this. Keep us posted.
0 -
Hello everyone,
I am a newbie just diagnosed 3/27/2011, on 4/7 had a lumpectomy and 6 nodes removed all clear margins and 0/6 nodes. Glad to meet everyone. I have a family history of BC, my mom was just diagnosed in Sept, 2011 and her mom dies of ovarian cancer and my other grandmother died of colon cancer so her I am. I just received my Oncotype score which is 17 yaaaa and am waiting for my genetic BRCA to come in any suggestion on what to do??? This site is awesome along with everyone on it.
Many xoxoxox Pam
0 -
Hi Everyone,
I've been kinda quiet for a while, but I've been here reading, and of course, praying for all of us. A thought has just occurred to me and I'd like to get some opinions. When I was diagnosed and surgery was getting scheduled, I said I had already decided on BMX because I was a world-class worrier. My BS said as long as we are doing both sides, let's do SNB on both sides. I was surprised, but agreed because I didn't think it mattered, and he didn't say he thought there was any issue with the "good" side. Fortunately, I turned out to be node negative on both sides, but I am wondering if he thought he might find something, or if this is usually done where BMX is chosen. I have more numbness on the no cancer side, but that's the only issue. I'd like to know if anyone else had SNB on both sides when there was only cancer on one side.
0 -
Welcome to the "newbies" glad you found this thread... come back often to vent, question or just say Hi.
Catbil, I only had the lump and sentinel on one side. Did have lump on "other" side about 10 yrs ago because they found calcification and had a big question about the area. They didn't do any nodes then.
Been having trouble with a flair with LE this past week. Hard to deal with at times and even harder to get someone to take care of the issue. The LE therapist at the hosp. is worthless. I now have a script to see someone else. I'm into a pitty party with this because I'm the housekeeper, cook, yard "guy", mop it up and clean it person and also work full time! Oh, and my windows are a mess! ARG... Thanks that felt better!
0 -
Welcome Pam....We all are here for each other through rough and happy time.
0 -
samsue....I remember those days.
Paying jobs, not paying jobs. My windows are not clean either and honestly that's the last thing on my list I should worry about.
Take care of yourself.
(((Michelle)))
(((Jo)))
(((Sisters)))
Hugs to you all.♥
0 -
Renee (Mimi) Im really worried about you my sister/friend.
Everytime I hear Alabama my heart jumps.
Hugs to you and the family.
♥♥♥
0 -
SusanHg welcome this is a great group of ladies. I envy those that did not have problems with rads. I am sure I was the worst but had my fair share. Use the creams and if you get an itch use the hydrocortisone. If that does not give you relief press them for a script of something. The fatigue got me in the end and I could not seem to drink enough water. I was like Jo the fatigue lasted for me about a month after rads. The healing was quick.
Plils- good to have you on board as well. Can't help you but am interested in your answer about the SNB on the good side. I have had a lumpectomy but my BS is now wanting to go back and do a BMX on me and I did not think to ask her about the SNB on my good side. I have that as a question on my next visit.
0
