CALLING ALL STAGE I SISTERS
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Melmes, you are truly lucky to have found a great Onc. I'm searching for someone else. I have an app't with the rad onc in June and will discuss with him what to do. He's a fabulous! Maybe I'll just have him do all my blood-work, etc. He used to teach so he's good at explaining everything to me. I'll take my recent blood-work into him and he can tell me what it all means... the onc didn't.
More testing, and more testing.... we're on that schedule!!! Gives us something to look forward to... not quite a vacation or party but it's something! Buy some flowers today, get out in the sunshine, watch a great chic flick, eat chocolate.... Can you tell I'm trying to talk myself into doing something productive?
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Sander I have developed hip and shoulder pain on the left side which is my bc side. I went to a pain dr on Friday because if my breast nerve damage. He is wonderful Shen I spoke to him about my shoulder and hip pain he said it is osteoarthritis caused by rads. He examined that when doing breast radiation they cannot miss our bones. He said that the radiation changes our molecular structure of our bone marrow and that some women end up with arthritis or osteoporosis. I asked him about tamox causing the pain. He said tamox will cause stiffness but not pain. He put me on celebrex for the arthritis. My BS had already put me on a med to help with the breast pain but he gave me compounded topical for the breakthrough pain I was having. A month ago when I had my follow up with the RO my ribs were very sore. He said that us normal and would probably come and go. It lasted about a week then went away. My pectoral muscle is also sore when I stretch and he said that would take a couple of years to go away and to keep stretching it so I don't loose range of motion
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Just introducing myself. I had a bilateral mastectomy with TE placement last Tuesday (24th) and am home with 4 JP drains. I am off the narcotics and OK on naproxen, but the constipation from the narcs lingers. I don't know my stage yet--waiting for the patho report next week. Since he only took two nodes on each side, it looks good for me. Cancer on the left, prophylactic on the right. I'm 44 and was not keen on living with this over my head. People who haven't gone through it talk about radiation as no big thing, but I didn't want to go there. After reading some of your posts, I am thinking it was the right decision for me. Haven't seen an onc yet, but have decided to see two. I didn't get second opinions with surgery and plastics, but I am comfortable with them.
For a funny-I just called the call center for my plastic because the one-way valve in one of my drains fell off. I think they may have been in India. She kept wanting to put down that I had had a bilateral hysterectomy. I joked that no, I hadn't had my two uteri removed, but I think she was just not educated for this. I almost gave up figuring the doc would know anyway, but she finally got it right. Waiting for the doc to call back.
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Shelia- it is going to be ok..I go for my mammogram on the 7th of June....dreaming of deflated breasts and waking up with my hands clutching them...nevers indeed....I can pretend all I want with others that I am not nervous but I can tell you gals that I am scared sh**less....but....being optimistic an dremembering the odds will see me through...think I might have a facial or something that day to celebrate. Was going to get my tatoo done that afternoon but am thinking with all the skin reactions I am having lately that I might have to wait a bit for that....do not want to cause my own reaction to something:)..We will all be ok....and if something we don't want or expect to happen does happen, we are all here to support...and we all need to remember...we made it through this last year...the unknown...the unexpected...we made it....if we have to do it again ( big iF and unlikely but clearly our fear), we will, we can...because we we know we have already done it before....we are stronger than ever before...we will all be fine. You;ll see.
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sandeeonherown - amen.
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Sandee - Well said. This is a wonderful place for support and comfort. You gals have made me laugh at times I just wanted to cry. Everyone here is amazing. Thank you so much ladies.
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Sandee your post brought tears to my eyes what a beautiful way to put our fears into words.♥
Welcome Janeybw♥
(((♥Sisters♥)))
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love your post, Sandee. I wan to post it on my bulletin board at home for those days I get discouraged!
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Thank you Sandee - we all need to remember this when we feel just the opposite....
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Welcome, Janeybw. I would have never guessed that a doctor would outsource his answering service outside the country! How frustrating, details can be so important in getting a correct message to your doctor.
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Hello everyone. Welcome Janeybw. I hope you are feeling okay after your surgery. I went to my med oco on Friday for the first time. I really like him. He did suggest hormone therepy but after reading all the side effects I'm not sure I want to take it. I'm not looking forward to the radiation either. I JUST WANT TO BE LEFT ALONE. I get another mamo in six months. I'm going to be nervous also. People just don't realize what we go through after BC. I hope all had a great holiday weekend. Love to all my sisters.
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i had a ct scan of my lungs and they found one 3 mm nodules on each lung. the first ct scan was done 3 months ago and it only shows a 3 mm granulade in the left lung. i'm very concerned.
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Hi nene1...I know what you are going through. As the gals here know, I had an xray which found a 4 mm nodule on one lung, so I'm waiting for the CT. I'm concerned also. Prayers to you. We'll get through this and hopefully we'll both go "whew!" My doc and the gals on this site told me that lots of people get these nodules and they are usually nothing. The good news sounds like the one 3mm nodule you had three months ago did not grow.
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nene/cakeisgreat- all I can say is we are here...and we are sending thoughts your way that your lungs are clear, that whatever the catscan picked up can be dealt with swiftly and smoothly and that you remain well.
beetlebum- i remember that feeling...did not want to be touched, talked to or anything....the amount of informatio I got and read about was a wee bit overwhelming...hard ot make decisions about your own health when you are not an expert but hard to trust people you have just met , hmm? keep reading...keep asking questions. As someone said to me here a few months ago..you can always start them and then choose to go off them...radiation....yeah..no one really wants to go through that but bring an ipod, imagine the radiation machine blasting those bast**ds away and bring a shawl or something to put around yourself in the waiting room while you ar ein your johnny shirt waiting for your time...it all helps...
jo/raincitygirl/seyla/vhseah/susan- glad my words made sense and resonated in some way....takes a sister to understand...I go for my cardiologist appointment tomorrow and mammogram next week....lots of swelling in my left breast...more than there was immediately after radiationand that is more my concern than anything else right now, stragenely enough...everything feels tight!!! bras, shirts....everything above the waist so...have to tread lightly as this is the unknown yet again! (the knowns are not so scary, hmm? it is the unknown....) ... we will all be ok.
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Sandee have they checked you for LE? Hope all goes well with your app't.
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Holding each-others hands♥
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Samsue- I went to a lymphodema massage therapist last week and she thinks it is edema from the radiation but does not yet think it is lymphodema...but did a lymph massage ...I meet the lymphodema folks at the clinic in the cancer part of the hospital on the 14th of June....meawhile, I am doin gbreast and arm massage..definitely swelling though....and hurting..it did not hurt Friday or saturday after the massage but does now.thoughts?
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Sandee - Hope all goes will with your appt tomorrow.
The anxiety is starting to set in. I go for my first diagnostic mammo since dx on Fri. My BS did give me some pain meds to take the morning of the test. I have mine first thing in the morning so I can get up and go get it done. Not sure when I will get the results. I will ask if someone can give me any information that day before I leave.
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HI ladies. I'm scheduled for BMx with DIEP on June 7th. I'll also have SNB. IDC is in my left breast but I've chosen to do BMx.
I've learned so much from this website and forum.
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Jo...At Breast Center I go i learned that they have DR on Wednesday & Thursday's who read the mammo right there.
I get the answer before I leave. Maybe you can ask for the same thing next time.
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Welcome ((TSB1)) & ((nene1))
♥
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It looks like JUNE will be a very busy month for most of us.0
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sandee- loved the post- love you, my friend.
Janey, tsb1 and nene1- welcome- sorry you had to join us but glad you found us:0
Jo- come withme on Thursday for my Mammo at the BS and I will go with you on friday:) man- it is nervewracking...
ARGHHHHHHHHHHHHHHHHHHHHHHHHHHH (ah, that feels better:)
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annette - I'm there for you sister. I will be in your pocket - don't need a big one - I'm kinda small. I'm with you - this is nervewracking. I hope to hear something before I leave and that I don't have to wait until the 20th when I see my onc - he was the one who set up the mammo.
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{{{JO}}} {{{ANNETTE}}}
I am in there with you, Jo. And Annette.
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Welcome to nene1 and TSB1. Glad you found this place for support and information.
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