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CALLING ALL STAGE I SISTERS

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Comments

  • odie16
    odie16 Member Posts: 1,415
    edited November 2011

    Grannydukes - Just wanted to tell you that your godson is precious & adorable.

    Wishing you & all my Stage One Sisters sweet dreams tonight....

  • samsue
    samsue Member Posts: 599
    edited November 2011

    Last year when DD had GS they were up a lot during the night. She was so tired I took over a couple of times just so she could rest. I found that GS liked the swing so I used it to quiet him. He definitely had days/nights mixed up because he would sleep most of the day away.

    Sherry good news! Glad to to hear B9.

  • vickilf
    vickilf Member Posts: 17
    edited November 2011

    I'm stage 1 also. Had a lumpectomy and 16 rads. Doctor wants to put me on Femara next.  Anyone on this? Good or bad. I hate taking any medications except natural.

      I have 6 grandkids., 3 grown children 2 boys 1 girl. I live in a very small farming town, Still work full time and still feel good most of the time.

    I also have another cancer CLL and am now waiting for the results of 2 ,biopsies in my throat. I pray it isn't another cancer.  Cancer doesn't run in my family. I believe I got my cancers from taking prescription drugs, so I am hesitant about taking Femara.

    Thank you for this site and my CLL forum, these forums really help!

    Hopefully they find a cure for all cancers real soon so none of us have to go thru this again.

    Vicki.

  • eph3_12
    eph3_12 Member Posts: 2,704
    edited November 2011

    Vicki, I will have been taking Femara 2 full years the 16th of this month.  there are a couple Femara threads out there.  It's not the most fun medicine in the whole world, but I'm not particularly fond of the alternative either!  Feel free to private message me

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2011

    Vicki....I was on Femara for 5 years March 2006- March 2011.

    my experience was very positive just some hot cold flushes the first few months then nothing.

    Again this was my own experience. I wish you well.

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2011

    This reminds me ducky....

    How are you doing with Femara?Wink

  • samsue
    samsue Member Posts: 599
    edited November 2011

    Vicki, don't know if you're new to this thread but if you are I wanted to say welcome! Lots of great help from the ladies... I'm not taking Femara but it looks like you're getting answers from those who have.

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited November 2011

    Sheila...............so far so good...........some aches and pains, but I had some of those before I started Femara..............no hot flashes, but then never had them going through the change either..........I had arthritis before I had cancer, so it is hard to tell whether it just a progression of that, or the Femara..............I am on WW now, and lost 7 lbs, not much con;sidering I need to lose a small "toddler", but I'm hoping to lose as much as I can to help with the joint aches...............

    I will stay with it until I can't do it anymore, but for now I'm handling it very well, at least I think so...............thanks for asking........

    I think everyone has to at least try it, and thank God for you ladies, you had my back, and gave me good advice.....................hugs.

  • valjean
    valjean Member Posts: 1,110
    edited November 2011

    Sherry ~ I don't really want to swear, BUT, the first thing that came to my mind when I read your B9 news was: Hot Damn!!!!

    Wonderful to hear that happy news! I am soooo relieved for you!!

    Big hugs, sista!!

  • Sherryc
    Sherryc Member Posts: 4,503
    edited November 2011

    Thanks ladies, I am so relieved.  the last couple of weeks have not been fun.

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2011
  • jo1955
    jo1955 Member Posts: 7,545
    edited November 2011

    Sheila - Thanks for sharing the article.  It was informative and interesting.

  • Sandeeonherown
    Sandeeonherown Member Posts: 1,781
    edited November 2011

    Val - congrats...three years...wow!!!!

    Joan811- You will get through rads....and do not diminish them....you have valid concerns..it IS a big deal to go through radiation and you have the right to talk about it my dear...bring some tunes with you...I listened to my mp3 player the entire time...took three songs each day...I brought a colourful shawl to wear over my hospital lues in the waiting room so I didn't feel exposed ( or cold) and i lubed up with aloe vera gel before and after each session....the technicians were amazed by my skin....I also kept kleenex in my pocket as  I found the whole thing very emotionally draining.

  • Sherryc
    Sherryc Member Posts: 4,503
    edited November 2011

    Sheila thanks for sharing the article I had heard it on the radio today.  Maybe there is hope after all

  • joan811
    joan811 Member Posts: 1,982
    edited November 2011

    Sheila, The article shows research going in the right direction.  We can only  hope it is soon.  I never want my daughters to go through this.
    Sandee, Thanks for the rads encouragement.  I have tried some drug combos this week for my allergies and today was a breakthrough.  Hope I can duplicate tomorrow. 
    The music is important to me - they said no headphones, but they are always asking me to try new stuff, so I'll ask them to give it a try.  can't hurt.  Otherwise they have an iPod dock. 
    My planning session should be Thursday.  I think I'm about ready.

    Thanks to all for always having a word of encouragement, a smile, or just an honest opinion about how BC affects our lives. 
    Good night to all...
    Joan

  • Meece
    Meece Member Posts: 10,618
    edited November 2011
    Sherry, congratulations!
  • SAB
    SAB Member Posts: 1,121
    edited November 2011

    Re: article it seems like there is more than one line of research geared towards immunology...let's hope that the competition spurs things on!

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited November 2011

    Hi Ladies...............................some sad news today ..................you may recall my identical twin great-grandaughters born in March/ 11 , while I was going through Rads...............not sure ifyou rmember but the 2nd twin was pulled out of the birth cancal "feet first"..........the 1st baby was born head down...............well baby 2 spent 2 weeks in Children's Hospital in Phila.........where they knew she had a problem as a result of the tramatic delivery, but were not sure what..........they did an MRI at the time which showed little......................they said until she tried to sit, crawl, stand, walk, they would know little, but would monitor her progression based on what the 1st baby did..............well baby 1 is crawling, pushing up, sitting up.............so yesterday they did another MRI on Grayson (baby 2, that is her name)........................my grandaughter said "once I saw the neurologist come through the door, I knew something serious was wrong.........................they told her Grayson has a severe spinal cord injury, which finally showed in the MRI..................and she will probably "never walk"

    We are all devastated, and are praying for a miracle.................how one Dr. could think he could "play God", and instead of doing the 2nd baby C-section, (which he was told to do by the "woman Dr. who he relieved".............is my  beyond me.......................now he has destroyed my little baby girls life.................my heart aches for my grandaughter, and her husband.........but my son so much..................he worshipped these babies, and has become the best Poppie I have known, since my husband died.............he was Poppi to.

    Please pray for her, pray for a miracle, that somehow Children's Hospital, and all the genius Dr.'s there will find a way to get her walking one day ...................Its in God's hands.

  • mimi1964
    mimi1964 Member Posts: 851
    edited November 2011

    Oh dear ducky that is the most sad news my heart goes out to you and your family.  Babies are such sweet, sweet blessings from God and are to be treasured.  How that Ob/Gyn could have delivered that sweet baby and caused that damage is beyond me.  Please know that I am praying for you all.  Miracles do occur everyday if we have faith and believe.  I will ask all I know to place on their prayer list.  Love to you ducky..

    Sherry - doing a happy dance for you and your B9 results that is wonderful news

    Renee 

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2011

    My prayers are with you ducky.

  • hopefulhealing
    hopefulhealing Member Posts: 581
    edited November 2011

    Ducky I am so sorry for all your family is going through. Prayers being said.

  • samsue
    samsue Member Posts: 599
    edited November 2011

    Ducky I am so sorry to hear your news about the babies... prayers for your family. May God hold you all in the hollow of his hand.

  • jo1955
    jo1955 Member Posts: 7,545
    edited November 2011

    Ducky - I am devastated by the news.  You and your family are in my prayers.

  • odie16
    odie16 Member Posts: 1,415
    edited November 2011

    Ducky,

    Praying for a miracle for baby girl Grayson and your family.

    Sending heartfelt hugs...... 

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited November 2011

    Ladies....thank you so much for your thoughts and prayers.........I want to share a text message I got from  my grandaughter tonight.

    "Nan, I know my Dad told you the news about Grayson.  I just want you to know, she is gonna be fine,. "...."I am going to make certain of that......."This is a bump in the road, and while it sucks I see so much more potential in her, and I have no doubt she will with the help of God walk"  "So please do not worry about this....you can't afford the stress".  "We're gonna get thru it"......Hugs and kisses from Grayson.........................She is a remarkable grandaughter and if anyone will bring my Grayson through this, she will.

    Again, thank you for your prayers and thoughts.......your wonderful, and I love you all.........Cry

  • joan811
    joan811 Member Posts: 1,982
    edited November 2011
    Ducky,
    What a thoughtful, hopeful, prayerful message you have received from you loving grandaughter.  She is thinking of you, knowing what a year this has been for you.  It is truly a beautiful thing.
    My heart breaks for you and your children, grandchildren anc great grandchildren.  I pray that during dear Grayson's life, she and her sister will have everything they need for happy, beautiful lives..  And I believe that there will be medical miracles beyond our comprehension during her lifetime.  For what the doctors cannot yet do, we shall shout prayers to heaven for all of you.
    As if BC weren't enough.....Love & hugs to you.
    Joan
  • valjean
    valjean Member Posts: 1,110
    edited November 2011

    Oh, Ducky, I don't know what to say. I can certainly tell by the text message from your Granddaughter that she is as strong & determined as her Grandmother ~ you!

    I will keep precious baby Grayson in my prayers, as I will for your entire family.

  • Meece
    Meece Member Posts: 10,618
    edited November 2011
  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2011
                                                          
  • hopefulhealing
    hopefulhealing Member Posts: 581
    edited November 2011

    Ducky, shivers as I read your grandaughters message. Such faith and gentle grace she shows.