Join our Webinar: REAL Talk: Healthy Body and Mind After Breast Cancer Treatment - Jan 23, 2025 at 4pm ET Register here.

CALLING ALL STAGE I SISTERS

1410411413415416512

Comments

  • LovesChristmas-Barb
    LovesChristmas-Barb Member Posts: 504
    edited May 2012

    We're going to a wedding in Parsippany next month and then spending a few days in Cape May! We've never been there before and I'm looking forward to it. Any suggestions for family-friendly restaurants?

  • Sherryc
    Sherryc Member Posts: 4,503
    edited May 2012

    Tamoxifen made my hair thin.  I first used Nioxin which I do think helped and I also started taking 5000 iu's of Biotin.  The biotin has really made a difference.  A friend just starting using the Aveda product and she said it really works.

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited May 2012

    Sherry, thanks..........ready for more Nioxin.......might just check out the Aveda............I heard the Biotin is great........I'm just a little "goosy" about too many supplements...........I'm sure its fine, and I'm a "moron"........hahahahaa..........might try that too.................hugs.

  • sheila888
    sheila888 Member Posts: 9,611
    edited May 2012
  • Hils
    Hils Member Posts: 152
    edited May 2012

    Sheila888 too cute

  • Meece
    Meece Member Posts: 10,618
    edited May 2012
  • cookie2009
    cookie2009 Member Posts: 10
    edited May 2012

    Did. Anyone have problems with

    Their reconstruction?

  • Sherryc
    Sherryc Member Posts: 4,503
    edited May 2012

    cookie I am in the middle of mine with BMX/TE's and all is going well.  I had had previous radiation to the left breast so was high concern for failure on that breast but all is good. They even saved my nipples.

  • Kaara
    Kaara Member Posts: 2,101
    edited May 2012

    That's good Sherry....glad you're doing well!

  • Meece
    Meece Member Posts: 10,618
    edited May 2012

    Have had two recons on my partial mx side.  It was radiated and seems to continue to "shrink" and it is currently a cup size smaller than the other.  It was nice to have them even for  awhile.

  • Sherryc
    Sherryc Member Posts: 4,503
    edited May 2012

    Meece mine was shrinking as well and was lifted higher after radiation.  For several reasons I went ahead with the BMX and I do not regret it.  I just regret don't doing it to begin with and skipping radiation but that is another story.

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited May 2012

    Repeating myself, just want you all to know I 'm heading for the shore tonight......will be back Monday night ........opening up the house, and the pool...................hugs to everyone.............enjoy your holiday.....

  • Kaara
    Kaara Member Posts: 2,101
    edited May 2012

    Ducky:  Enjoy your trip to the shore...I remember those days when the kids were little...we used to always take them to the Jersey shore on holidays and fight for our little space on the sand.  When we moved to Florida and I saw the beaches here, they looked deserted!

    We have a two grad parties this weekend, some golf, dinner with friends, and then a busy week getting ready to leave for NC for the summer.  I have all my final doctor app'ts starting with the dentist early tomorrow..ugh!  I'll be getting another eye injection before we leave too. 

  • sheila888
    sheila888 Member Posts: 9,611
    edited May 2012

    ducky....i hope the weather will behave and you have a good time....

    Kaara....Are You still gonna be with us right????

    It's very chilly here tonight.....

    Sitting under my blanket

  • Kaara
    Kaara Member Posts: 2,101
    edited May 2012

    Sheila:  Yes...I'll still be here...it may be a few days until I get my system set up in NC, but I'll be checking in regularly.

    Just got home from karoake with friends...it was fun! 

  • sheila888
    sheila888 Member Posts: 9,611
    edited May 2012
  • FireKracker
    FireKracker Member Posts: 5,858
    edited May 2012

    just checkin in to say hi.lots of drama as usual but i dont want to ruin everyones Memorial Day nor mine either.

    ILL BE BACK.

    huggs everyone K

  • Kaara
    Kaara Member Posts: 2,101
    edited May 2012

    Have a nice Memorial Day granny!

  • Meece
    Meece Member Posts: 10,618
    edited May 2012
  • mimi1964
    mimi1964 Member Posts: 851
    edited May 2012

    Hey all I've been so busy working nights continues to stink but thankful for a job and pay check. Saw my med once last Friday and we talked about the hair loss. I will stay off the Arimidex till June 15 and then go back on Tamoxifen 10mg which is a 1/2 dose. If I start having forgetfulness and other probs I don't know what I'll do. I have to remember. When u are a nurse u can't forget ur pts depend on u. Please pray this works. My hair loss has greatly improved being off the Meds. It's pretty much down to a normal loss and I'm taking Biotin daily to help with regrowth. May try the Aveda if it starts up again.

    Sheila did y'all have your meet and greet in NY yet? How did it go

  • Kaara
    Kaara Member Posts: 2,101
    edited May 2012

    mimi:  I'm taking 10 mg of tamoxifen daily and other than a few hot flashes here and there, I have no other symptoms.  I was thinking of increasing the dose, but haven't as yet.  I'm just beginning to have all my old energy back and feel like I did before bc.

    Sorry you're still having to work nights...that's tough. 

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited May 2012

    Hey gals, I'm back as of last night...........The weather was great.....had a wonderful time with my 2 daughters,and their families...............found out on Sunday that my grandson gave his girlfriend a magnificant engagement ring, and asked her to marry him................he took her to Hawaii to do it........wrote it on the mirror in the bathroom of their hotel room......Antoinine will you marry me..........she was sitting on the toilet "peeing" when she looked up at the mirror and saw it...............she said "I stopped peeing  mid-way, jumped up and opened the door...............here my grandson was right outside the door on his knee with the ring box opened, and in his hand................

    She is a lovely girl, but let me tell you........she is getting one hell of a guy..handsome, brilliant, fabulous job, and puts women on a pedastal........what a catch..............takes after his father, who is my son in law.............

    On to the cancer bullshit.........i am aching so bad from this frigging Femara it isn't funny........I realized over the weekend how little I can do.................I hate it, it depresses me, and honestly, at 77, I am thinking about stopping it.......I got to the Onc. tomrorow, and I am going to mention it................I can barely walk sometimes, and even I can't stand my limping around, like some frigging cripple.................I have had it...........between, that and the LE, I am ready to pack it in...................I have fought the good fight, but I want quality of life now...........now just "life"......................it is horrible............not to mention my hair..............oh well, I'm done bitching.............just wanted everyone to know I'm back........didn't mean to start a "pity party".........hugs...

  • onvacation
    onvacation Member Posts: 521
    edited May 2012

    Ducky - (((((HUGS)))))

  • Kaara
    Kaara Member Posts: 2,101
    edited May 2012

    Ducky:  Glad you're back and had a nice time.  Hooray for your GS's engagement...it certainly sounds like he's a real romantic!

    If I was having that many SE's from a drug, I would seriously consider not taking it as well.  I'm on tamoxifen, and only take 1/2 the dose recommended and I feel fine except for some hot flashes that I can tolerate.  At our age I think it is about quality of life!

    I'm off to get my third eye injection this morning, then we're good to go for our NC trip.  App't with MO yesterday went well...my mammo was clear, so don't need to see him again until late October. 

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited May 2012

    Kaara.........I do believe he is a real romantic............he is so good to the ladies he dates it is sad......also......when he falls he falls hard.........He got hurt so bad by a girl he met in college.......he loved this girl so much........she was a lower classman, and they went to the same college.........Carnagie Mellon in Pittsburgh....he was the QB for the football team, and took the to the championship with an 11-0 season.............he was amazing........well he graduated, and she had I think 1 year left....listen to what he did for her while they were going out together.He had gone with her for 3 years....Hawaii, Miami, NY weekends, best hotels, restaurants, tiffany jewelry, and the kicker........took her to Aruba in January, and found out from his friend still in the same college that she was cheating on him since thanksgiving or before.......while he was still taking the ride to Pittsburgh from Philly area each and every weekend to see her..........we thought he would never get over her...............and low and behold he went to Chicago to see his brother (who moved there after getting a job at JP Morgan, and met her while they were out one night................she is a Pharma Rep, and a wonderful girl................I told him when the other one left him while he was sitting with his head on my shoulder "crying"..............Kevin honey, there is someone out there for you, so wonderful, the good Lord is making his plan.........be patient, and the next time........."don't be so giving"......at least not at first......................he is happy.

    As for me, went to bed in pain, pain through the night, and woke up with pain.............something has to be done.................I'm at the point now where I don't care about "cancer"..............I care about having a couple good years before I leave this earth............As I said "I even get on my own nerves"...............hugs.

  • Kaara
    Kaara Member Posts: 2,101
    edited May 2012

    Ducky:  Nice story about your DGS..a lucky woman his fiancee is!  I'm reminded of a line from the recent movie I saw "The Exotic Marigold Hotel"  where the young man told the older woman "If things aren't working out well in the end, it just means the end isn't here yet".  Quite prophetic!

    As for you ongoing pain, I would seriously consider going off that Femara, and maybe switching to another drug or even a supplement like grape seed extract which is supposed to have the same benefit without all the SE's.  I'm going to make it a part of my regimine.  

    My eye injection was a bitch today...I couldn't see a thing out of the eye for about a half hour, which was really scary.  This hasn't happened before...he said he gave me extra medicine.  I said take it out I don't like it, so he did.  He said there was remarkable improvement...there better be for the aggravation of going through this once a month! 

  • wren44
    wren44 Member Posts: 7,956
    edited May 2012

    Ducky, I don't blame you for wanting off the Femara. I'm 71 and my chances of dying of something else are so much higher than for BC that it's hard to believe it's that big a threat. That said, I'm lucky/cursed to have a very low anxiety level. I think it comes from having a Mother who worried about everything for me. I'm on aromatase and have not had bad side effects so far. I've heard they're worse between 3-6 months and I'm not there yet, so my fingers are crossed. Being in pain all the time does steal QOL. (((((HUGS)))))

  • LovesChristmas-Barb
    LovesChristmas-Barb Member Posts: 504
    edited May 2012

    If I was in my 70's or older, I would seriously consider quitting too, ducky. I keep hoping I can hang on for at least 2 years or that the side effects lessen. I went for my eye exam today for the first time since my diagnosis and when he heard about the breast cancer, he told me that he always checks his BC patients for eye mets. He said it's rare but possible. What a nasty, horrid disease this is...

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited May 2012

    Love you ladies............thanks for the comments......it means so much to have someone to talk to when everyone else gets sick of listening to you.............like I said "I'm sick of hearing myself".........lol

    Will be on later to talk about my Onc visit today.......what a trip that was.......they found another lump on the same side......I think they are all nuts.

  • FireKracker
    FireKracker Member Posts: 5,858
    edited May 2012

    Hello everyone

    missed all of you.been in a funk for a few days and i had a pity party THAT IS NOW OVER!!!!!

    Ducky-sista/friend congrats with your GS.Dont even let me get started on the meds.

    EXCEPT

    I told my onco the last time i saw her that bc will not kill me the stress will.She said so i guess you still dont want any of the ALs.HELL NO I WANT MY qol BEFORE the drama in my family kills me.

    end of rant.love all of you...prayin too.hugggggs k