CALLING ALL STAGE I SISTERS
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Chevyboy....did you get your hearing back????? I've had tinnitis for more than 20yrs and it seems to be getting now that I'm on Letrozole.....not sure if it has affected my hearing but I will have another hearing test to check.
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No Scottiee.... They told me it is "permanent nerve damage".... I've been wearing hearing aids for almost 2 years now... I researched it all, and I know Tamoxifen is a "chemo drug".... so maybe it affected the little nerve "hairs" in my ears, like it does the hair on your head. I was so afraid when it happened, but you just get through it.
I know it doesn't happen to everyone.... I still have tinnitis, but that's also something you just have to live with. By the way, the ENT Doc didn't know if it was possible or not, that Tamoxifen caused it.....but just one morning my left ear closed up.... then my right ear. My Doc thought it was allergies, so for another month, we treated it for that. But finally she referred me to an ENT... All I knew was I could not hear....
I took Tamoxifen for 14 months.... I wish I could have taken it for the 5 years, but I was just too afraid.
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Chevyboy how horrible for you, I'm sorry. I lived with a mother who started out by losing
her hearing in one ear, but hated wearing the hearing aid. As she got on in years, the other ear started to go. I cried for her because she was such a social being and the loss
of her hearing took most of her social life away. She just couldn't tolerate the hearing aids. What made matters worse was that she was in Scotland and I'm in Canada and we used to talk for hours on the phone, then, of course, that ended. I also worry about myself re tinnitis and being on Letrozole.0 -
My breast cancer wasn't easy, but for me, maybe going through what I DID before, made it easier for me to face.
sorry chevyboy...not too sure what you mean ( before ?)
but yes, I appreciate the fact that we all have very different experiences . Furthermore, we are all at a different stage ( denial, acceptance, depressed, content, happy, miserable, afraid, alone, grateful, depressed etc ) that is fluid- hopefully.
Thank you for your post.
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Hi Purple.... I meant that what I went through 10 years ago, before I got Breast Cancer, was worse on me emotionally than going through the BC surgery.
And yes, we DO go through different stages.... I remember "before," when we were going through such a hard time, I would lay in bed, and just get sick to my stomach, I was so afraid. So I can really appreciate being where I am now. I guess those feelings ARE "fluid".... that's a good way of putting it.
Scottiee... I can see why your Mom didn't want to wear the aids. They ARE a pain in the butt sometimes.... And it IS so LOUD in restaurants, stores, etc. But I lost 100% "word recognition" in my left ear, overnight. Then just 50% in my right, and that's within a couple weeks.... So that's when I quit the Tamoxifen. Honey, don't feel bad for your Mom.... she wanted to do it that way.... She must have thought it wasn't worth it to wear the aids....
My girls AND my DH still get a little "testy" when I can't hear, or when I ask them "what?"..... I can hear a lot better, but it is NOT like your own natural hearing. It's like wearing an amplifier in each ear! And these are good aids! Ha!
Kantalope must still be asleep..... she isn't around here to rattle things up!
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good afternoon
Chevy thanks for the pic.I know you will be in GCS..As Val says im gonna blow in the air.think of me...and you my sista i will think of you too.
next-I remember when you lost your hearing....oh how i remember that...Im glad you are doing good with the hearing aids.Yeah it coulda been a lot worst...Like yesterday kantalope came to visit me....my breast is that size again.went to the dr.and now i need pt....Im icing it and sleepin with a raised pillow.I dont remember what else to do so im doin my lite stretches and massaging and waiting to call for an appt.yeah the LE is back.grrrrrrrrrrrrr.
I dont even want to talk about the first yr of this train wreck that i went on all i will say is that it took 4 BS to figure it all out...That was back in 2010.If it wasnt for this thread i think i would have killed myself or anyone who got in my way....Chevy can vouch for that.....
Im sorry for all of us.....I pray every nite for a damn cure/vacine....It hurst soo bad when i read about the young gals with small children..I consider myself lucky that i got it at age 69....but that dont mean i wont bitch and complain about this shit storm....
ill be back!!!!!!
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Oh man, I'm sooooo sorry!!! Did anything cause it, or did it just start on it's own again??? Can you take anything for it, and does it hurt? I don't know ANYthing about Lymphedema...is it that, or Edema? I'm just sorry that it is a week-end. We'll get you through it.... again....
I wish I could help you, with a massage, or maybe a White Russian...
Just go dancing! Or go play poker with the boys..... Does icing feel better than heat? I just know when I don't feel good, I want to be warm.... everywhere.Go make you some milk-toast.... that's what my Mom used to give us when we didn't feel good. I am having left-over alioli, or however you spell it... That vermicelli with fried garlic and olive oil, and I put in some diced mixed olives. YOU should know.... being Italian and all....
I don't care for the Anchovies.... I'll add some capers in it for tonight.Well go to bed.... sweet dreams, sleep tight, don't let the bed-bugs bite...I love you..... xoxoxoxo
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Hi Purple.... I meant that what I went through 10 years ago, before I got Breast Cancer, was worse on me
Hi ChevyI had an idea that was what you meant- I just dont know what you went thru 10 yrs ago/sorry.
Feel better, granny !
PS Massage ( regular ) is NOT a good idea ofr LE
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Purple-im doin gentle kitten like strokes toward the sternim.also toward the elbow.i was taught that in pt.done enuf of that.No wonder i ran an exercise class here....im only doin stretchin.easy like.And tryin to sleep off that side.Im betta today.
A lot of things (i think) could have brought it on.I had pneumia on that side.right around the breast area.
I tossed the baby from arm to arm maybe 2x.he weighs 22lbs.could have been that
I carried a box of pirex dishes in kmart.didnt think they were gonna be that heavy.The store is large and my GD was drivin around with the 2 brats.
I shopped up there so i had to bring a shopping cart to by enuf food till i got to a store.
It could be anyone of those things.
yeah that is what LE is all about and stage 0 is very dangerous.you kinda take it for granted.I never did until i ran from sandy.i think its a combo of things....im just takin it easy today.not gonna write too much.gonna try anyway.
chevy---i still dont like your cookin!!!!!
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I carried a box of pirex dishes in kmart.didnt think they were gonna be that heavy
That'll do it !
Granny,sounds like you know ML D- good to do both morning and night. Dont forget to drink lots of water and raise your arm up over your head now and then and very slowly open and close the fist. Lots of deep breathing when you think to do it.
Hope this subsides.
No more lifting!!!
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That's right! Carrying ANYthing around, that is heavy is hard on you.... especially anyone that has or had Lymphedema. And all the rest of it put together. And the stress.... I think that's why you were so sick also.
I put a Brisket on to slow bake yesterday.... with a package of onion soup mix on top, then bake if for at least 5 hours or more at 300-325. I sealed it in foil, then put it in a baking pan. It was sooooo tender! And I cut up potatoes & carrotts, sprayed with butter spray, and a little onion soup mix on top, and baked them for a couple hours. You have to cut the brisket on the bias....
Okay miss finicky pants.... what CAN you eat? Or what WILL you eat? And are you drinking that Aloe Vera? I'll bet you're not! I know your stomach is always on the blink..... I've heard you are what you eat.... So what are you? Macaroni and cheese kind of gal?
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Well i think i caught it just in time...yesterday i did the massage every time i thought about it.today is the first day i put the bra on and it feels good.now i know why they say that stage 0 is dangerous..i did neglect it while i was away.AND did all those no nos.i keep forgetting cause i feel good.ill never take this for granted again.
Chevy--darling that sounds yummy but you know im on a restricted diet.I dont eat beef.ever...i eat bison.I hate mac & cheese.I hardly eat dairy only yogurt and greated cheese...hormones my dear is pumped up in both and you know im not takin the 5 yr.meds sooo im careful with what goes in my tummy.I do drink lots and lots of water.I even drink coconut water.You gave me the recipe for conge(something like that) and i do make it with the natural chicken....
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Yes! Congee is very mild and good for you.... always use the grated or sliced fresh ginger, and cook it with lots of water, for about 3-4 hours.... until it gets real creamy. It's also good with minced onion, carrots, or whatever you like.
I'm so glad you are doing better....!!! xoxoxoxo
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So where did everyone on this thread go? Are Granny and Chevy out partying without us. Maybe I am just getting signed in early tonight. We had record temps today got up to 68! Normal temps are usually in the 30's. Just doesn't feel like Christmas is only a few weeks away. Everyone have their shopping done?
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I'm done shopping but not wrapping. Still haven't finished the tree yet. Doesn't seem like Christmas tree trimming time with this warm weather. Who would have thought I'd be walking the dog in a sweater in Dec.????
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No not done shopping here, no tree or decorations up yet and what with all of us having had the flu the last 2 weeks haven't felt like doing much. It may not happen until the week before Christmas at this rate. Besides I'm still mad with my hubby because I wanted a new tree and he didn't want me to spend over a 100.00 on a new tree, but he blew almost 200.00 on a drill, flashlight, and shop vac that he didn't need right now. Ugh... MEN!!!
Now... I have an appt. with my Med Onco tomorrow and before his appt. I have my appt. to get my yearly mammo. Let's just say I am worrying myself to death. I am totally stressed out and will be till I get an all clear back. I hate this time of year. It would help so much if they just gave me the results tomorrow, but NO!!! I will have to wait a week till I get a letter or a call from the nurse letting me know. Normally I have gotten both. Anyway I have been so stressed I have had a migraine for 3 days.
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Renee....I have my MO appointment next week.....
I have a new DR seen her in June ....she doesn't do Tumor Markers test...so I don't get all hyper-ed up anymore.....I don't know she examined me and some Blood work and Vitamin D test..........nothing unusual that I don't get from my PD......
Good Luck tomorrow....Why don't you ask for a DX Mammo you get the answer before you leave....
Now when I make my app I say it's DX Mammo so they schedule me in the morning when the DR can read the result.......Little white lie and I don't feel guilty about it
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The last time I left the imaging center without getting the results was the one that identified my malignancy. Since the DX I have not left center without seeing the Dr. first. The last time he even sat down and chatted with me about his respect and admiration for my surgeon.
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Mimi, I have heard the nasty flu is going around here as well. So glad I got my flu shot. Keeping my fingers crossed that it works. Maybe you can get your tree and decor up this weekend. That will get you in the spirit. It definately helped me but these record temps will have to go away once we get close to Christmats. Good luck with your appointment. You would think once we have been diagnosed they would understand the urgency of getting the results back. I know if I had to get any more mammos I would definatately go to the place that would do this, just like when I went for my followup mammo that started this fun.
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Morning gals.... Tigger, you are like me! I always check to see if anyone has posted, and if it looks kind of lonesome here, I just go on, Ha!
We just give money, and gift cards now.... Especially with the postage rates, etc. And I think our older Grand-kids like that a lot better. I wouldn't have a clue what to buy a 25 & 27 year old.
Hell, I don't even know what to buy my Daughter's unless they tell me what they like. Tigger, I got my flu shot also, and they threw in a Tetanus shot so the other one wouldn't be lonesome. I have HAD a pneumonia and a shingles shot, but my neighbor, who is 88 just got shingles, and she HAD her flu shot the same time as me!!! Man, that blows that theory out of the water. She has a "mild" case, but STILL!!!
So Granny, where ARE you??? You had shingles, I remember! The Doc told my friend, that stress can bring them on... Does that sound right? Lore knows YOU never are stressed, right? Why are you laying so low little Princess?
I got the results of my blood-work also...and all is good! I mean even the cholesteral is only 172. Vit D is 35 I think, and the tumor marker test hasn't changed. Thank God I escaped having to do the colonoscopy again. I did the card thing....... I would just love to lose weight!! and double !!. I think if I had someone here, to do it with me, I could....(again) And Granny, I don't want to hear a word out of you. YOU who weighs as much as a bisquit, with ALL her clothes on, WET, does not need to respond. I went to WW one year, and it was great!!! I need to find a close girl-friend... that will go with me.
Chabba, yes... If you go for a diagnostic, they will let you know right away. The waiting IS the worst. And your mind just takes over, thinking all sorts of things. We girls do NOT like to wait.... for ANYthing. Ever.
Sheila... Where is your h? Did you lose your h somewhere? Ha, ha! My one gal-friend here, spells it Sheilah.. ONE of you are wrong.
I'm going to ask her Friday if she will be my partner in joining WW... She has also complained about her extra "fluffiness."Mimi! Oh just go buy the damn tree anyway! Sometimes we don't have to ask...... Most of the time we do, just to be polite, but when those guys shoot down one of our thoughts, the only thing to do is take matters into our own hands. Sometimes I buy stuff on-line...I have my own account, so THAT helps. And when the thing comes, if DH isn't here, I sneak it into the house! YES I do! Or if he is in the other room, I sneak it in, hold it behind me, and run to the bedroom, and throw it in the closet, and open it when the coast is clear. A girl has to do what a girl has to do.
A DRILL???? Can it be converted into a vibrator??? (just kidding)
Mini.... I love your "name".... My Mom was named Minnie Lee.... So whenever I can see your name, I will have sweet thoughts. I know, it's probably not your real name, but I like to see it here. No.... I'm not done decorating either! In fact I haven't even started.... But I'm going to make a huge wreath, of these big bows my Daughter made, red silk flowers, and stuff like that! And hang it on my front lattice work. I'll take a picture!
Okay friends.... time to go do SOMEthing.... Love seeing you all here.... finally.
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My mammo appt is at 1:30 today and my med onco appt is at 2:30... the med onco is the one who scheduled my mammo for today, so I have no way to say it is dx. they always say it is routine now which is why I have to wait a yr and a day to have one done. Like this yr it's on Dec. 4th and if all is well next yr it will be on Dec. 5th. Each yr it will be a day later... Ugh!!! So ridiculous!!! I also think there isn't always a MD available to read the mammo when we get them done he is busy doing other things. thus we have to wait on the results... even when it is a dx mammo. I know I did the last time I had a dx mammo done. The wait is what kills you and stresses you out.
Sheila my med onco has never done the tumor marker tests he doesn't believe in them. All he does is a CBC...not really sure why he even does that one? anyone know? maybe just to check to see is your WBC count is elevated? however if you are sick with a cold, flu, URI, UTI you could have an elevated WBC, so I really don't see the point in it. Oh well.
My Rad onco was the one who did the tumor marker tests and I was suppose to have seen him in July but I cancelled and have not rescheduled. Don't think I'm going to either. That was the only thing he did differently than my med onco. Oh and they kept measuring my arms to check for LE... as if I couldn't tell if I was developing it since I'm a nurse... REALLY!!! LOL my arms did get a little bigger when I gained some weight haha!!! but they also shrank now that I'm losing again. So happy!!!
All kidding aside I got really tired of going to 3 or 4 different Drs. every 3-6 months. It was getting a little ridiculous and now that I'm on 3rd shift I sleep during the day so it isn't as easy to get up and go to the Dr. anymore. I've yet to schedule an appt. to see my breast surgeon this yr (he wanted to see me for follow ups for 10 yrs, Not sure why though he never explained that to me and all he does is check my breast when I go in... hmmm). I also haven't seen my GYN this year, but he doesn't really do anything either since I had a total hysterectomy 11 yrs ago. He does check my bladder for drop and the back side (lol), but usually defers the breast since someone else orders my mammo's. haha!! Don't know what the point in going to see him on a yrly basis is either. But guess I'll make an appt an go anyway. O.k. rant over
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I have had diagnostic mamms and I do not get the results right away. I have been told, "We don't do that here. There are other images to read & the Dr doesn't have the time to pick & choose certain images to read immediately." Just because it is diagnostic doesn't necessarily mean you, as the patient, will get the results then & there. Your MO/RO will, of course. I call 2-3 days after for the results & still get the letter in the mail also. Personally, I don't like the wait due to the stress, but, with no offense to anybody, I'm not sure I would want to have someone hurry to read it just to give me the results immediately. Or, I feel they would maybe hurry. (I'm like that.) I have known sisters to have gotten the results as they wait, they go home relieved & the next day are called & told the Dr. saw something suspicious on further review. They went home feeling good & then have that happen.
I'm not saying this happens every time, please don't think that. It has happened is all I'm saying.
We all feel differently about this & this is how I feel.
Hugs!
"Now I try to embrace life instead of just walking through it" ~ vivre ~ lumpectomy SNB~Oncotype DX 14~finished Rads x33, 2.19.09~Aromasin started 2.20.09
Dx 11/5/2008, IDC, 1cm, Stage I, Grade 2, 0/5 nodes, ER+/PR+, HER2-0 -
My mammo is Thurs. Tis the season.
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Hi everyone, my visit went well and as luck would have it my Med Onco went over and looked at the mammo himself. He came back and told me that it was fine with no changes from my last one. I'm very happy! So all is well.... I actually got to look at the mammo up on the screen before I left there to go to his office anyway. The tech showed me where my staples were and we counted them (all 12 of them) and I knew already that my mammo was fine. She had told me it looked good and showed me where my scar tissue showed up on the mammo. It was kinda neat. LOL!!
Good Luck Mini!! I'll be thinking of you on Thursday
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pretty dog, chevy!
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gee i take i day off and look everyone shows up....nice to see all of you.
Chevy--ya know what????i just gained 4 lbs....my dr was sooo excited....im gaining weight.Thank You God.
i finally broke down and im goin for pt for this kantalope.its goin down but its still swollen even tho im takin real good care of it so im goin friday.
I have no plans for Christmas...everyday it changes and they can all do me a favor and leave me alone.
next week i have to see the gastro dr along with the onco....still have to go for my mammo but not when this kantalope hurts.hell no....
nice to see this board active again...
Chevy---can i come to you for christmas?
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Last chemo tomorrow! Yippee!!!! Ready to move on to the next part of this journey:-)
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Mimi- such great news:)))))
Granny- i was all bah humbuggy a few hours ago....teetering right now
Today truly was a WAD of a day....it just simply exhausted me being me today and by the end of the day I must have looked it in the eyes as way too many asked what is wrong.....I could not answer.....my eyes never lie tho- damn things gotta get sunglasses I guess:)
Hope all are doing well...0 -
Happy Dance for...Renee and 301724....lalalalalalalala
(((((Annette))))) (((((Val))))) ((((Granny))))
{{{{{{{SISTERS}}}}}}}}
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