Sign the Petition Against the new Mammography Guidelines
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ILC at age 45. no family history. these new guidelines are crazy!
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At age 55, my breast cancer was found by mammogram - could NOT be felt by my doctor. It was very aggressive, both ductal and lobular and I had yearly mammograms. Even so, there was lymph node involvement. This was 18 years ago; I had chemo, followed by Tamoxifen for 5 years and thank God, I've had no recurrence.
I am a strong supporter of yearly mammograms and believe they should be started at age 40. Had I not had one, I would not be alive today. They can SHOVE their guidelines as far as I'm concerned.
Omaharose
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Kathleen Blake, dx at age 48, stage 3a, no family history. 4 additional tumors found after mamo and mri.
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Diagnosed by mammogram at age 65. IDC.. Had mammograms every years since age 45. Had I skipped a year, my tumor would have been bigger and perhaps spread to the lymphatic system. No family history.
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Christy Donley, dx at 50, stage 3 ILC
Sister: Susan Hayward, dx at 45, stage 3 ILC, died at 52
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Diagnosed at age 50 as a result of BSE.
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Diagnosed with zero stage DCIS at 53- am blessed that it was caught early. I have regular yearly mammograms which I started at age 40.
I am posting today for my friend was was 33 when diagnosed and passed away at age 35 and all of the women I have met since being diagnosed who are experiencing the same things that I am.
God Bless all
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Estala Emmanuel, diagnosed 4/9/08 at age 57 during annual mammogram. At Stage I Grade III and undetectible to the touch had the 2 year guideline been in place I might not have had only a 1.3cm lump and DCIS.0
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I began my mammos at 40. I discovered a small lump @ 45 during a self exam. Ruled out as a concern. At age 50 mammo's disclosed that my breasts were becoming very dense.....at age 55 I was diagnosed with DCIS right side stage 2-3 cancer. Right mastectomy was ordered with chemo and radiation followed. I had exams every 6 months from age 53-55 for 1.5 years to monitor breast changes. Within last 6 months my breast had showed significant change to warrant a biopsy. No family history, excellent health my entire life, never smoked. Thank god for my medical team.
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I started receiving mammograms at 36 (because my company offered them free annually for women 35 or older). At 37, my mother was diagnosed with stage IV cancer at the age of 64 and died less than a year later. Because of my mother's diagnosis, I was then receiving ultrasounds as my mammograms showed nothing due to dense tissue.At 41, I had an ultrasound biospy (benign) followed by an MRI-guided biopsy for different suspicious finding (benign) followed up 3 months after that by another MRI-guided biopsy for yet a different suspicious finding (also benign). I was told to come back in a year. When I did, the mammogram (which normally revealed a solid white film) revealed multiple calcifications. Biopsy of six sites (there were more) revealed DCIS. Because I had multiple sites, I opted for a bilateral mastectomy. The pathology revealed that the largest was 1.5 cm, with malignancies in five of fifteen cross sections. Even though my mother had breast cancer (she had no history), I don't believe that I was a particularly greater risk. 70% of all diagnoses reveal no history. Most alarming is that premenopausal women make up less than three-quarters of all diagnoses of breast cancer, yet they tend to be more aggressive. Coupled with these women not being screened (especially if 50 is the new 40), there will be a rise in more advanced cases. Premenopausal women should have mammograms and/or ultrasounds.
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Diagnosed with breast cancer at 49 from a mammogram. Best friend diagnosed with breast cancer at 45 from a mammogram. Many friends, (to many to mentioin) under the age of 50 diagnosed from a mamogram. We need to keep checking women starting at 40!!!
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Not diagnosed yet but first routine mammogram at 41 shows fibrous dense tissue that will most likely progress to cancer. Lucky I found out early at 41, I changed to an organic diet, on major antioxidant therapy with Univera Ageless Extra, and am getting routine Mammograms every 6 months to make sure if it changes to a tumor that I can get it the attention it needs immediately. I would not want to die in my fourties and leave my 4 kids motherless as my mother before me who died of cancer at 33 years old with 5 kids. We had a horrible life as motherless children thrown around from home to home, split up and abused because no one really could care for us. Had she lived my life would have been so much better! I WANT TO LIVE AND I DON'T WANT TO DIE EARLY BECAUSE YOU WANT TO SAVE MONEY TO BE WASTED ON FRIVOlOUS EXPENSES.
My Maternal Aunt just had a double masectomy and is recovering from her cancer we hope. My father dying of cancer at 65 and my mother died at 33.
We pay a huge load of money every month for our medical and dental insurance. I think close to $1500.00 a month comes out of our pocket for insurance payments. I think I have the right to get screened at a reasonable age for cancer.
How could President Obama and his cabinet and congress allow such a terrible thing to happen. What a very, very dangerous and careless decision to change the age to 50, most people would be stage 4 by then! Hey Mr. President men get breast cancer too! What if it was you?
Why don't you pay attention to the FDA either and give them the budget they deserve to do their jobs right and tax the BIG Pharma in this country instead and start allowing alternative medicines and treatments with machines that really work and have been proven to work instead of killing more people with useless worthless chemo.
Chemo is a killer. Why don't you tell people the truth. Only 2.1 percent of chemo patients have a 5 year remission. Those statisitics are horrible.
Oncologists make a ton of profit of chemo yet won't take it themselves because they know it is worthless. But they allow us to be poisoned with it legally.
Why are you allowing modern medicine to ignore the studies that people have spent their lives proving that cancer is microbial in nature? There is so much that can be done that we are ignoring and covering up. Arresting good people who want to do the right thing and solve the cancer issue.
Why are you allowing sensless suffering by not approving excellent working non-toxic treatments to be studied? There are countless non toxic treatments that work and yet none are supported by our government!
Why doesn't our country tell people about what really works and approve the treatments that really work for Cancer. We know they exist!
Why don't you pay attention to how you are allowing our country's water departments to poison us with flouride in our water.
Do the research and find out what is really wrong with this country and tax the people evenly, studies have shown you would make more money for our government if you made taxes a flat rate for everyone. Be the true leader we need in making good healthy choices for your country and listen to your people!
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Kim F. - dx with my annual mammogram at 40 and if I would have waited 10 more years who knows if I would be around. For the sake of my nieces and other girls in the future, you should lower it to 35 because by the time you find a lump, it's usually not a good sign.
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Patricia B. - dx 47, found on self exam, Stage IIB, herception, carbo + Pax, partial mast. followed by radiation. On Arimidex for 5 years. Next mammo 12/9/09,hope it's still clear! (I was 5 months late for annual mammo. when the lump was found.)
These new guidelines are the worst that could be for women! I know 5 women dx before 25 yrs old, 3 of which are deceased. None had a family history & all had to fight hard to get a mammo at the time the first lump was found. Much more cancer can be found early & thereby treated with a better chance for success. I feel all women should have a baseline mammo. much earlier, then start again by 40. Until there is a better way to find it, mammo's ALL we have.
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My cancer was dx at age 33, due to BSE. The lump I found was a lymph node - grew 2 cm in less than 4 weeks. Mod rad, 5 rounds of chemo, 6 weeks of radiation, then I refused McFud chemo. Thank goodness for insurance coverage in 1987 - I'm still alive. Now what? Women in situations similar to mine back then are left to die? This is unconscionable.
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I was suppose to get a mammogram at age 41 and dismissed it because I thought I was too young to need a mammogram. 2 years later, I was diagnosed with breast cancer that I had waiting to be discovered for at least 7 - 10 years in my breast. Had I had the mammogram when I should have, my tumor may not have become a 1.8 cm size with the tumor grade of 3 and also invasive.
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A screening mammogram found my cancer. A screening mammogram saved my friend Deb's life when she was 44. Kathleen Kolb
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Diagnosed with IDC 2cm ER+ PR+ 4 yrs ago. No lymph involvement. I am 66 and have been having mammos since I was 38. I've never been bothered about having a false positive. Never missed my January date with the machine, and for that, mine was found early. Only lumpectomy and radiation. I know every bump and knot in my boobs and will keep on checking inbetween mammos. I don't care who or what your situation is, get tested,tested,tested! it saves lives!
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Allan S. - My partner was dx 2 yrs ago at age 47. This has been the hardest period of both our lives and is still an ongoing battle. She remains cancer free at this point, but is on Arimidex for 4 more years. She had delayed her mammogram by months due to having back surgery at the time and unable to go for one. Found a lump & got in for mammo, dx with invasive dc, stage 2b. Had chemo, surgery, radiation & 15 months of Herceptin. Had she not been able to get the mammo when she did, she may very well not be alive today!
That is not a thought I would want for anyone out there, we have to make sure these guidlines are not allowed to influence coverage. More testing needs to be done, not less. I have 2 daughters that I will always be concerned with their future if this does happen. Why is there not a test like the PSA for men that could detect Breast cancer? It can't be that hard to develop.
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I am outraged by the new guidelines. Mammograms definitely save lives.
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ChristieB 40, no history
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Anita DeWitt
dx at age 27
when my son was 4 years old...
9 years out
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I was diagnosed by mammogram at age 39, my only family history was a first cousin (age 40 at diagnosis 1 year prior to my diagnosis- who found a lump by self breast exam - she required chemo and radiation) due to my early diagnosis (because of mammogram) my nodes were negative. Please Please do not change the recommendations!!!!! Both mammography and BSE are vital to younger women. Karie Lundin RN
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Michele Natale
DX age 51 stage 1, by Mammogram (no palpable lump)- no family history
mamo at age 50 didn't show anything.. who knows what it would have been if I had to wait the two years (age 52) for my next one..!
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Kamila Hafenrichter
On my behalf and also for my MOM, she was diagnosed at age 46 and past away at age 49.
Because in Europe the mammogram screening starts at age 50 !!!!! so her lump was never detected. When she discovered it herself it was 5cm !!! and a year and half after her first chemo it showed on her livers, then bones and last on her lungs.
I HATE this CANCER !!!!!!!!!!!
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My mammogram this April was 6 months overdue -- a scheduling mixup caused by a 6-mo callback to monitor the left breast. Somehow my right breast went 1 1/2 years before another Xray. They found two masses which were not detectible by physical examination, tho one was almost 2cm and one close to surface. One was barely perceptible on Xray and was better seen by ultrasound. After surgery, I learned one mass was much greater than images had shown. Thanks to the Xray, however, both were detected early, still at Stage 1 and before spread to lymph nodes. This is CRITICAL -- EARLY DETECTION not only saves lives -- reason enough for annual mammos -- but it also reduces pain, suffering, and $$$ cost. I was spared the full axcillary dissection, radiation, and chemo. Believe me, I know I am lucky in that regard. My heart goes out to all the women who must endure it. I still have to deal with aftereffects of a mastectomy, pain in arm and breast, limitations, and the very scary possible side effects of my hormone therapy (arimidex) My opposing breast (left) is so large they have difficulty Xraying adequately -- it's filled with calcium deposits. Extremely doubtful a cancerous lump would be detected by self-examination until it was well advanced into more lethal stage. It's frightening to think of having to wait two years between Xrays. I am absolutely against the new guideline. Timely Xray saves LIVES and reduces treatment needed even when cancer is detected. NO to these new guidelines.
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I was diagnosed both times through early detection from a mammogram. I was 40 yrs. old the first time and 50 yrs. old the second time.We must not listen to these new guidelines. We must educate women, so they know this is from an early study, where they originally concluded that mammograms should start at age 40.
I am really starting to believe this is a political ploy. Women must come together to voice our opinions regarding this matter.
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My sister passed away at age 46 (diagnosed at 35). I was diagnosed at age 42 in 2001, a year before my sister died - mammogram did not pick up the malignancy - sonogram did (my GP saved my life by insisting I have a sonogram). A third sister was recently diagnosed at age 62. Two of us tested negative for BRCA 1/2. The sister we lost was never BRCA tested. Routine mammograms and sonograms save lives! Guidelines should not be changed. Early detection is the key to surviving this disease.
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Robin Walsh, diagnosed July 2009, Stage 4 with bone mets. Good news, however- I am NED as of october, 2009!
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Sharon Heimerl - Lets see, I was 43 when I found my lump through self examination and followed with a mamagram then surgery then chemo. It has been over 10 years and I am still here - but now in the last 3 months, with bc mets in the spine. I think I would be long gone if not for self examination and mamagrams. I am 55 and with treatment - I expect to see another 10 years.
If I followed the proposed new guidelines - my son would be visiting my grave.
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