Sign the Petition Against the new Mammography Guidelines

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Comments

  • kww355
    kww355 Member Posts: 1
    edited November 2009

    Kelly Whyte - diagnosed with DCIS at age 42 from routine mammogram. Had I waited til age 50, I'd have been "pushin' up daisies". I wonder if this new directive was influenced in any way by insurance company lobbyists.

  • GryffinSong
    GryffinSong Member Posts: 42
    edited November 2009

    Karen Marion

    Diagnosed at age 51 because of mammogram, no lumps or dimples evident. Know several people who found their own cancer through self-exam. Lost an aunt to breast cancer because hers was not found early enough. Am particularly concerned about the recommendation to stop teaching women how to self-exam.

  • bogdany22
    bogdany22 Member Posts: 1
    edited November 2009

    I was diagnosed with DCIS at age 46 by mammogram with no signs and no symptoms.  Bilateral mastectomy.  The pathology from my biopsy showed one of the most aggressive forms of DCIS.  I am thankful for early detection.

  • cubbietoby
    cubbietoby Member Posts: 1
    edited November 2009
    My first mammogram was when I was in my early 40's, and it showed up as having dense breast, and each mammogram that I had showed up dense breast.  In the beginning of Nov. 2008,  my right breast looked like an orange peal and my nipple was inverted, so I had another mammogram done along with a sonogram and a biopsy, which showed up cancer in my right breast.  Before my surgery, I had a CAT SCAN and a MRI done.  The MRI showed up two spots on my left breast and more growing on my left breast. On Dec. 23, 2008, I had a double mastectomy.  I feel that it is very important that women should get mammograms done as early as 40 years of age and up, and if there are any signs of dense masses in the breasts, there should be further tests, like MRI's and biopsy's to make sure there is no cancer.  I feel it's cheaper that way then to wait til they are 50, because once the cancer is there it will cost more.  The mammograms never showed up with me because the cells were lined up in such a way that it never showed up.  That's why I feel that if there were MRI's and biopsy done earlier, it might have been caught earlier. My cancer was over 5 centimeters big by the time that they caught it.Cry
  • sockmonkeylover
    sockmonkeylover Member Posts: 6
    edited November 2009

    dx age 44 with mammogram.  No family history, no risk factors except being a woman. If I followed the new guidelines, I would probably be a stage 3 or above at diagnosis.   Mammogram saved my life!

  • lowlagraham
    lowlagraham Member Posts: 1
    edited November 2009

    Carol R. age 58 Had yearly mammograms but (found lump myself) -- Grade III Triple Neg  I'd probably be dead now if new recommendations were followed 4 years ago.  Fast growing tumor...had MRI, PET, dose dense chemo and radiation.  Thanks to our wonderful health care I started chemo 1 month after lump was discovered.  I don't want government dictating what treatments we get and how long we have to wait and I'm afraid that's exactly what we'll get with government run healthcare!....cost containmnent and rationing vs. saving lives!   Insane!

  • Debrakuhlmanrn
    Debrakuhlmanrn Member Posts: 1
    edited November 2009

    I am a Breast Health nurse and I am appalled by the new recommendations  We need to stand together to have them rescinded. 

    Debra Kuhlman, RN, BSN

  • gjaillier
    gjaillier Member Posts: 1
    edited November 2009

    What an outrage!  I know many people who have been diagnosed with breast cancer, and almost all of them were diagnosed before age 50.  I have a daughter who is higher-risk by default, given my diagnosis.  She needs to have her first mammogram by the time she is 30, in my opinion.

  • pimitchell
    pimitchell Member Posts: 1
    edited November 2009

    Pam Mitchell

    Diagnosed IDC Stage I, grade 3, ER+ at age 43.  Found through a routine mammogram.  No lumps/visable signs.  No family history.  BRCA 1&2 negative.

    LISTEN. . .

  • pink22
    pink22 Member Posts: 1
    edited November 2009

    Found lump in breast at age 35. Went to doc. who said she felt like it was nothing..I insisted on a mammogram, even though insurance would not cover it..Two days later was diagnosed with stage 1 DCIS with aggressive cell growth.. Surgery, radiation,chemo... I would have been DEAD, if I had waited to Forty. These new recommendations are telling me my life is insignificant...as long as insurance companies save money. SHAME on them. BRCA 1and2 NEGATIVE

  • Roninpt
    Roninpt Member Posts: 3
    edited November 2009

    At age 43 tumor found on mammogram, circled but radiologist either missed it, or thought it wasn't big enough to comment on.  One year later, the tumor was invasive and I now have mets. I was at moderate risk for BC, and had my baseline at 35

  • bayratt
    bayratt Member Posts: 1
    edited November 2009

    Holly Pietrowski   age 49, family history, having mamo's since age 36. Lost a grandmother, and great aunt to BC. Also a friend at the age of 34. 50 is too late! If not for my mamo and the early detection I hate to think what would have happened.

  • anm1024
    anm1024 Member Posts: 1
    edited November 2009

    Andrea M.

    It is outrageous that we even have to fight something like this when we all know that breast cancer and cancer in general is on the rise! We should be lowering the age to 30 rather than raising it to 50!

  • KOG
    KOG Member Posts: 1
    edited November 2009

    I was diagnosed at age 60 as a result of a routine mammogram. I was already 2 months late due to having moved to a new city. Although my cancer was very early and treatment was relatively easy, my cancer was very aggressive. I do not think the outcome would have been as good if I had waited another 10 months until 2 years passed between mammograms. I feel very strongly that I will still be getting mammograms after age 75, since I have a lot of longevity in my family.

  • Sparrow2
    Sparrow2 Member Posts: 1
    edited November 2009

    Sonja (Riddle) Helfenbein-I was dx. at ages 36 (in 1979) & 65 (in 2008) with IDC.  No family hx.  Cousin, with stomach CA, died @ age 36, because she ignored signs & didn't get any medical help until too late.  She died within 3mos. of dx.  We need early intervention & dx. to save our loved ones.  The gov. task force has gotten this wrong!!!  Next, the insurances will refuse to pay for breast exams before age 50???

  • pazminos
    pazminos Member Posts: 1
    edited November 2009

    I was diagnosed at 40 when I had my first mammogram. DCIS  Stage  0 and Grade O . ER +/PR +HER2 -   Neg- sentinel bx .No family history ,No signs or symptoms .Now on Tamoxifen for 5 years. Early detection is VITAL.

  • Fuzzy1
    Fuzzy1 Member Posts: 1
    edited November 2009

    diagnosed at age 43, no family history, stage 1, nodes neg.

    Take your health into your own hands...... Early detection, early detection. EARLY DETECTION!!!!

  • fariyal
    fariyal Member Posts: 1
    edited November 2009

    Fariyal Ahmed

  • mlg65
    mlg65 Member Posts: 1
    edited November 2009

    dx age 40, dcis stage 2, 6 months chemo, 6 weeks radiation, bilateral, total hysterectomy, early detection is definitely a life saver.  We need to keep early age screening!!! 

  • jenno
    jenno Member Posts: 1
    edited November 2009

    For Mum, diagonised at 50 & again at 65, lost her at 70. I'm 45 now & have had yearly mamo & US since my late 30's with nothing too serious.Every year I have to pay for the privilage of these, for peace of mind. Why can't they lower the age of the "breast bus" or have more bulk billing in the country area's. There is now way I could or would wait till 50.

  • suechenwenny
    suechenwenny Member Posts: 3
    edited November 2009

    Wendy Brzezicki -Age 37 @ Diagnosis in Sept, 2006.

    Gynecologist told me I was too young and didn't need a mammogram.  I went anyway, the mammogram showed the cancer.  Dx with stage II IDC, grade 3, 1(sentinel node only) out of 8. ER+/PR+, HER2-. ...metastasis March 2009. BRCA2 positive.  Oncologist told me if I had originally waited until 40 for mammogram it would have been too late.  Could not feel the lump only seen on the mammogram.  Although I went prior to the recommendations, had the recommendations been 50 years of age it wouldn't have even crossed my mind to go at 37 then my 2 children wouldn't have me.

  • carol1216
    carol1216 Member Posts: 1
    edited November 2009

    if i would have waited till age fifty i would have been walking around  with cancer for five years. it was caught at age 45 during a yearly mammogram. i have been cancer free for the last three years because it was caught early. breast cancer does not run in my family.

  • kecparker
    kecparker Member Posts: 1
    edited November 2009

    Kathy P - dx at age 49, stage 2. Sister dx at age 43, stage 3. She died in 1999. 

  • cmtoo13
    cmtoo13 Member Posts: 1
    edited November 2009

    signed, Carmen Millet

    age 36

  • SurvivorDec2007
    SurvivorDec2007 Member Posts: 1
    edited November 2009

    Although I was 65 when I was diagnosed, I believe we need a baseline so the Dr. can watch changes early. I have been told by Drs that many women have been diagnosed when they were in their 40's. Waiting til they are 50 would have been too late.

  • kathleenakelly
    kathleenakelly Member Posts: 1
    edited November 2009

    Kathleen A. Kelly

    age: 62     diagnosed 10/08: rt breast ca, stage III w/8 of 11 nodes positive    surgery, chemo, radiation completed 8/2009 

  • kiwilou
    kiwilou Member Posts: 1
    edited November 2009

    Newly diagnosed poorly differentiated breast cancer and now receiving chemo. Have had mammograms since age 40. No family history of any form of cancer!!  I am the first. Tumor detected on mammogram, 1.7cm size.Due to its location it was not palpable by myself or the surgeon. Now my sisters and daughter will be more diligent with their mammorgrams. My niece had her first mammogram this month at age 43yrs old. Two small lumps found and excised. Were benign. She feels great relief to have them removed and will now get her mammogram yearly. So what is low risk? To me there is no such thing. All women are at risk whether there is family history or not, and at any age. Some women are higher risk than others but none of us are low risk. I am proof of that!! 

  • judig
    judig Member Posts: 2
    edited November 2009

    DX age 44 found on routine annual mammogram - 6 years later would have been too late 

  • leeannarmitage
    leeannarmitage Member Posts: 1
    edited November 2009

    At age 42, a mammogram saved my life. No family history. Early detection is vital to our fight.

  • Jenpetranto
    Jenpetranto Member Posts: 1
    edited November 2009

    Diagnosed 1 week ago with DCIS - High grade at Age 35.  Found a lump and went for a mammogram!  Based on new recommendations, not only would I not have done a self breast exam, I never would have considered a mammogram at age 35!  We need to take charge and fight back.