Sign the Petition Against the new Mammography Guidelines

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  • roxierox10
    roxierox10 Member Posts: 1
    edited November 2009

    Signing for my mother Margo Michelle Smith (age 43)- Diagnosed 10/7/09

  • friscosmom
    friscosmom Member Posts: 15
    edited November 2009

    Diagnosed at age 42, lump found by self exam.

  • wendi60
    wendi60 Member Posts: 1
    edited November 2009

    (dx-  age 37)  I have a family history of bc so I had a baseline mammo at 35 they told me not to have another mammo until I was 40!!! I found a lump and went to dr he sent me for a mammo and it showed up I had 4cm by 3cm and 4cm by 4cm hi grade dcis with comdia nerrose. the dr told me it would have spread with in 6 months. Now my daughter has to start her mammos at age 27 and I will make sure she gets them.

  • clabudak
    clabudak Member Posts: 1
    edited November 2009

    I am an MRI tech who has done mammography for years and now perform breast MRI daily at my worksite. I see every day the difference early detection makes in the outcome of early detection of breast cancer.  I've seen enough young victims of breast cancer to know first hand that we need to keep our guidelines the way they are.  We will lose many young women to breast cancer needlessly if we change the guidelines to age 50.  This travesty has more to do with money than with sound medicine.

  • jazzid
    jazzid Member Posts: 6
    edited November 2009

    Diagnosed at 49, found on mammogram, spread to 3 lymph nodes...  had I waited until 50 it would have probably spread beyond my nodes...

  • startrecovery
    startrecovery Member Posts: 1
    edited November 2009

    Jennifer B

    I was diagnosed with breast cancer at the age of 37. I had a 2 year old and a 5 year old. I thought that I felt something different and my doctor did not feel anything but ordered a mammogram. I was lucky, I had dcis with microinvasion (stage 1). I was er and pr negative. It was high grade with necrosis. My oncologist said he was 70% sure that if I had waited until I was 40 to have a mammogram, it would have been full blown invasive disease and in my lymph system.

    I choose a bilateral mastectomy.  I gringe every time I hear about this report. They should not put a value on human lives like that - come and meet my children and see how happy they are that they still have a mommy.  

    Jennifer 

  • kimmy1
    kimmy1 Member Posts: 12
    edited November 2009

    Kimberlee Wilkins, Diagnosed at age 38 found the lump myself confirmed with mammogram and MRI - was stage 3 at detection. A self check exam and mammo helped save my life. It was already in 4 nodes. If I had waited 12 more years until I was 50 ........ I probably wouldn't have had 12 years! A double mastectomy, chemo and radiation has given my children their mother.

  • fire
    fire Member Posts: 9
    edited January 2010

    Esfir Shrayber, diagnosed 7/2006, age 48.

    I was asking for years for digital mammogram - having family history, lumps, dense breast, breast discharge, pain, change of size.

    Kaiser Permanente San Francisco was refusing my request for digital mammogram stating

    " cancer fobia' .

    When finally was  diagnosed - was found one tumor 4 SM, second - 8MM, and the third tumor in lymph node - 1 SM.

    Stage 2, grade 3, 1/12 lymph nodes. 2 surgeries, chemotherapy, radiations.

    If found yearly -  I would not sick like now- million side effects,-pain, legs crams, numbness and pain, weakness, weight gain, bad memory, bad vision, hot flashes, tired...

    I'm against new Mammography Guidelines.

  • lyambra
    lyambra Member Posts: 1
    edited November 2009

    It's ludicrous.  I had fibrocystic breast disease prior to cancer.  Did not think anything of the "new" lump.  Mammogram saved my life.

  • georgiawoman
    georgiawoman Member Posts: 1
    edited November 2009
    The yearly mammagrams is the best thing that any woman could do for herself. That is the one thing that I feel every woman should do if she is at the age of 45 and over. This is the one test that I look forward to getting every year. The reason for that is because I had a grandmother that had breast cancer and lost both of her breast when I was a little girl. I would not want any woman to have to go through what my grandmother had to go through at all. So getting a yearly mammagram is the best thing that has come around in a long time for women.
  • winerymom
    winerymom Member Posts: 1
    edited November 2009

    Diagnosed the same day the new guidelines were announced.  DCIS at 44, I am the reason to get early mammograms. 

  • mrsdeg
    mrsdeg Member Posts: 1
    edited November 2009

    I was diagnosed at age 43 after I palpated a lump in my left breast.  I had had my annual mammogram 6 months prior...

    To save 1 woman with a mammogram is saving 1 wife, 1 mother, 1 daughter, 1 sister... I believe it is worth it to do mammograms beginning at age 40, or earlier!!!

  • 627pamela
    627pamela Member Posts: 1
    edited November 2009

    It is mind boggling to read about the recommendations.  It was a routine mammogram that found my breast cancer.  It was a mammogram that I scheduled precisely one year (to the very day) from the last one.  Coincidence, but thank God, because in that one year, I had multi-focal breast cancer.  For those of you who don't know, it merely means that it was in several spots so lumpectomies (of which I'd had 2 that summer) would have had to have been repeated.  In one year's time I went from a clear report to having a bilateral mastectomy.  I was 48.  If I had to wait until I was 50, at the rate that the cells were changing, it might have become invasive.  I had no history of breast cancer in my family nor do I have the brca gene.  I'm thankful this Thanksgiving for my vigilence so that I can spend it with my husband and children.  These recommendations are ridiculous.

  • Curley
    Curley Member Posts: 1
    edited November 2009

    Diagnosis: 14/4/2007 at age 47, IDC, 5cm, Stage IIb, Grade 2, 1 node, ER+/PR+, HER2+

  • Lizzy1214
    Lizzy1214 Member Posts: 1
    edited November 2009

    My beautiful sister dx at age 44 and my bff dx at age 43 - 6 more years and I would have lost them both.

  • Laylasmom
    Laylasmom Member Posts: 1
    edited November 2009

    Diagnosed at 57 through routine mammagram. BRACA 1 and eraly diagnoses made all the difference in treatment and outcome.

  • brenda63
    brenda63 Member Posts: 7
    edited November 2009

    My Doc wanted me to have my first mammogram at 40 and I didn't think I needed one so I didn't get one. Every yr after that she kept telling me to get one. I gave in at the age of 45 and I had breast cancer. If I would have gone the first time it wouldn't have been invasive. I was still very lucky. The new guild lines could kill a lot of women. Why take away what is working to save lives! It doesn't make any sense!

  • pam2277
    pam2277 Member Posts: 2
    edited November 2009

    Thankfully I do not have breast cancer.  However, I have lost two friends to breast cancer and another currently in the battle.  The new proposed guidelines are totally out of line! 

    Pamela S. Birt

  • pam2277
    pam2277 Member Posts: 2
    edited November 2009

    Thankfully I do not have breast cancer.  However, I have lost two friends to breast cancer and another currently in the battle.  The new proposed guidelines are totally out of line! 

    Pamela S. Birt

  • Surthrivor
    Surthrivor Member Posts: 1
    edited November 2009

    Michelle Long - dx 2005 at age 45, no family history, nodule too small and too close to chest wall for palpable detection - had already spread to lymph nodes. My prognosis was good because of early detection by mammo! Mammos are vital to detection for women in their 40's. Look at the big picture. Many women in their 40s have young children. If young women die to save insurance companies and government the cost of early detection, who picks up the tab to take care of these children? This would cost more in the long run. Why is the rate of bc deaths considerably higher in the black american community? Because they often don't get the mammos they need for early detection.

  • tradenitin
    tradenitin Member Posts: 1
    edited November 2009

    Don't go backwards in progress because we can't go backwards in time when we are dead by 50 from this cancer.  I also am not buying the 1 out of 1904.  I know too many 40somethings with breast cancer for this statistic to be correct and so does everybody else!  And if it is correct, I would happily go through screening to save another woman's life, I'm sure alot of women would.

  • MzDoris93207
    MzDoris93207 Member Posts: 1
    edited November 2009

    I had a lumpectomy in June 1995 which was too small to be felt, even by the surgeon, and was detected on a mammogram.  I was 51, no cancer found in the margins around the tumor, or in the lymph nodes.  I had taken estrogen after an earlier hysterectomy.  I had quit taking it after a previous biopsy for something suspicious in the breast detected by a mammo.  I had radiation treatment. In May 2007 I began noticing warmness and changes in the nipple area and the breast.  After nothing was shown on the mammo I kept after my doctor, mainly because of the IBC info sent around by email.  He sent me to a lady surgeon who was specializing in breast issues.  She had me have an MRI, which showed "something suspicious" yet she couldn't find anything with a needle biopsy, so suggested exploratory surgery.  I opted to have a bi-lateral mastectomy in October 2007, since this was already months later.  They found it was an angio-sarcoma.  I went to the UCLA breast center and they referred me to a sarcoma specialist at UCLA, since it was not a breast-cancer, and is found in only 1-10,000 patients.  He suggested I have a CAT scan every six mos., and my doctor check me for lumps every 3 mos.  The interesting thing is that this was caused by the radiation therapy, even after 11 yrs.

  • maeve28
    maeve28 Member Posts: 1
    edited November 2009

    We must keep early and  annnual screening.

  • KCooper
    KCooper Member Posts: 1
    edited November 2009

    My grandmother died of BC and my aunt had a double mastectomy in her mid 40's. I have a very good friend (43) who was recently diagnosed at a very early stage, and we shudder to think what would have happened if she couldn't get a mamogram until age 50.

  • elf_song
    elf_song Member Posts: 148
    edited November 2009

    Eunjoo Russell, I was diagnosis at age of 36 on 2008 and I did Breast Self Exam and found one lump.. However, when I went in for the Mammogram, it did show two lumps..  The lupm I found from BSE was DCIS and seond lump found from Mammogram was IDC.. I had mastectomy on left breast and I went thorugh 16 weeks of chemo and 7 weeks of radiations..  If I didn't do Breast Self Exam and Mammgram until age 50, my diagnosis could be worse and I may not have chance to spend rest of my life with my two boys ( age 2 and 3 )..  In my opinion, it is very important to do both it doesn't matter how old you are and if you have a history of Breast Cancel in your family, you have to do Mammogram even earlier than age 40..  

  • cinwhite
    cinwhite Member Posts: 1
    edited November 2009

    Cindy W. - At age 47, I was diagnosed with non-invasive DCIS, which showed up on a mammogram.  No telling what could have happened if I didn't get it diagnosed at that time.  I was lucky it was caught early.

  • MadonnaWood
    MadonnaWood Member Posts: 1
    edited November 2009

    If I had not done BSE, my lump which was already almost 3 cm and in my lymph system would have waited an additional 2 months to be discovered.  My 4 children and 7 grandchildren might now be without me because of this.

  • TorontoKaren
    TorontoKaren Member Posts: 1
    edited November 2009

    3 palpable lumps at age 37, but detected at at 40 when they finally did a Mammogram.  I never would have lived to 50.  Alive now, 6-1/2 years later due to earlier screening and BSE.

  • whitecotton
    whitecotton Member Posts: 3
    edited November 2009

    I was 44 found lump from self breast exam had first mamo after I found lump. Momo showed no lump but did show suspicious, had ultra sound and it showed a 2 cm tumor. Had surgery and they found a 7cm tumor.and it was in the nodes. I am glad I had it young so my three daughters do not have to worry about waiting until they are 50.

  • 131mom
    131mom Member Posts: 4
    edited November 2009

    Cindy Hovanec  - 37

    Diagnosed as result of my first mammogram in July 09. No family history, nothing wrong, just going because my gyn gave me rx for it, because she felt waiting til 40 was not early enough. Original diagnosis was DCIS. Had bilateral mastectomy in Oct & pathology report showed microinvasion at the margins in upper chest wall, grade 3. Luckily lymph nodes were clear.  I got very lucky to have caught it early.  My gyn saved my life.