2010 Sisters
Comments
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Amyjo and DM you gals have a great time on your trips.
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Hello Ladies, YES what a year it has been...and without you all I would not have made it to this point...it made me cry to read your posts...YES we have been thru ALOT...I unfortunately had no family support only my husband and my tabby cat who was always waiting for me after chemo or radiation...with a sit in my lap and encouragment to keep going on...many times he was in my lap all afternoon as I checked the computer talking to you all I guess we are ALL lucky to have had eachother...BLESS you all for your help and encouragement...I will pay it forward, H. CATH
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Yes this last year has been quite a year. Mine started in July with ? mammo. Still have more surgery to do and will be glad when it is all over.
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Hello ladies,
I just got back from the onco office and long story short. Pain issue is being resolved and I will only see my onco and not his NP and all my appointment are to be scheduled when he is in the office. The one nurse that did not follow through on my call for a new script and questions about increasing dosage is in big trouble with not only my onco, but with all the other chemo nurses and their supervisor. 2 of my favorite chemo nurses gave me their extensions so I do not have to use the general line again. I am to let my onco know if the pain is not better in 48 hours and he will get me an additional script no matter where I am. After looking at my leg, ankles, and feet and asking a ton of questions, he thinks the swelling is from too much caffine so I need to lay off Starbucks and Mt Dew for a little while. He did say I could still have my green tea, but just 1 a day until the swelling is under control again. He also told me to get some rest and enjoy my trip to see the grandchildren and he would see me again when I get back, before I have my next treatment. I feel better now. Off to take a nap.
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Amyjo glad your onco is taking care of your pain issue. Hope laying off the caffine won't be too much of a challenge. Sometimes that can be hard.
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Sherryc - I have had to completely cut out caffine before and that was really hard, at least now I can still have a little. I just cannot OD on it.
Hope you have an easy go with the surgeries you still have to have. ((((((((((HUGS))))))))) 0 -
2 sistas goin on vacation YAY..well deserved.have a great time.
last year at this time i already had 2 messed up surgeries....lookin back now if i didnt have you wonderful sistas here to guide me to find another Dr.bring a tape recorder etc.where would i be today??????thank you everyone.I love each and every one of you.
It raining real hard in NJ.and right now we are having a solar eclipse.
just take it easy everyone and breathe...God bless all of you.huggggggggs K
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I just read this study linking elevated CRP blood levels to breast cancer outcomes. I will be asking my doctor to test this along with my D3 levels. Another good reason to focus on anti inflammatory diet and fish oil supplements. It irritates me that our Oncs don't advise about these lifestyle things that are obviously very important. Here's the BCO link (sorry linky thing won't work)
http://www.breastcancer.org/symptoms/testing/new_research/20110603.jsp
My "vacation" to date: Twenty hours of non stop travel (Is this India yet?) to arrive at our house with: no water, no heat (needs water), yes it's 50's at night, no internet, no phone, car won't start and I have some kind of &^%$# flu and am nearly coughing and blowing myself away. Today DH piled us in the rental car we had to return, and took us to a hotel for a night. We have lined up the plumber, mechanic and cable guy for tomorrow. I can't believe I am saying this, but I am SO glad DH wouldn't let me knock down the old outhouse!
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DM - At least you are finally there! So sorry to hear that your beautiful summer is starting out so yucky. It will all be better soon and all of you can relax in your own home and start the remodeling that you wanted to get done this year. I am so looking forward to seeing pictures of the new and improved house. Sent you a letter today from Oklahoma. I will try to get some pictures posted as soon as I can.
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Oh, Karin, I hope you feel better soon! Amy Jo, have fun and enjoy your grand kids!
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DM- sounds like my kind of adventure...I hope the summer is special and fun:)
AmyJo- hate that you have pain..... and hope you are finding some relief
To be frank, the only good thing I can find from BC is *meeting* all of you wonderful dearhearts...and other kind souls along the way. Given my druthers, I would rather have met you another *way*
I saw my BS this week for what I thought would be my followup mammo ultrasound and she decided to wait until December saying that the lymph nodes following surgeries are often inflamed and she likes to let things settle. Huge letdown for me but then she had me work with a prosthetic boob filled with the kinds of lumps that can occur and we need to watch for...small hard pebble like things...she had me feel my alloderm/muscle spots so I could differentiate what is expected while healing from a potential problem. She was thrilled with progress thus far (after a heated discussion on my taking DIM/Grapeseed extract as opposed to AI) and said my next visit with her will be in a month or two for tattoo with artist (the artist does it in the BS office)- that was exciting looking at the skill level of this woman, who had BC herself....which puts a whole new spin on it.
Next up is NIPS surgery on Wednesday....hoohaw...
I will tell you, I have been so damn down that I am completely exhausted...after the whole escapade of last weekend with both sons in surgery it was like something *broke* in me...I wasn't great in my mind to begin with but really trying to pull myself up and that just hit me like a ton of bricks...
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DM-Sorry you are not feeling well and have had a crumy start to what I know will be a great summer for you. Hang in there, plumbers etc will do their magic on your house and get everything running.
Amyjo have a great time with the grandkids
Annette sorry you are feeling down but you did have a very stressful weekend last weekend with your boys.
DH and I took on a majoy project this morning. We live in a house that was built in 1884. It has a huge porch on the front that wraps around the entire side of the house. Our house sits on a corner. Because of our huge oaks and pecan trees and the traffic the porch and siding can get pretty dirty from time to time. We got the pressure washer out and cleaned the porch, the railing, the siding and the furniture. We are finished and worn out.
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Sherry- finished and worn out from good old fashioned work,,,not a bad thing at all...your home sounds so cool
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Annette it is cool but lots of work to keep up. Getting to a point we don't want all the work it takes any longer. When the real estate market and economy get better we are going to sell it and built a place in the country. Smaller and less upkeep, but have to have plenty of room for a vegetable garden which I love to do.
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Okay, took the ferry back to our island today after lining up a plumber. Three hours of testing electric connections and everything resulted in zip. His next move was to pull the pump up out of the well, a huuuuuge job. He then unscrewed the lid of the water tank and accidentally bumped the float sensor and hallelujah, the sound of water rushing in! I nearly kissed him I was so happy. I unplugged every conceivable cable conncection and reconnected, now we have internet. DH is working on the internet phone as we speak. The car is jumped and running......but the brakes are rusted and frozen, so it won't drive. My flu/virus whatever is better. I slept about 15 hours yesterday, I guess that did the trick. I'm going to go jump on the car now and see if my heft might loosen something up! I told DH that I am going to hit our own personal "reset" button until everything is working smoothly.
amyjo- How is the pain? Or are you too busy with your grandkids to notice? Hope you are having a wonderful visit.
annettek- I'm so sorry about surgery on both of your boys. Wow! I am frantic when my kid is down with a virus. Be good to yourself and try to relax and rest. You probably don't realize how exhausting a mother's worry is.
sherry- We are headed for the same "fix it up" mode. I am going to see if I can chase some of these spider webs and spiders out of here momentarily. My son has been clearing all the fallen pine cones from the yard. So much to do after being away.
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Wow, DM you had a pile of doo doo to deal with and managed to dispatch it quite well. go gal!
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DM have fun with your house this summer please post some pictures. I have had fun redoing this old house over the years. It is kinda divided in two front and back. The back part is where everyone seems to have really lived over the years before we bought it and it had been kept up really nice. I was lucky that the previous owners had just remodeled the kitchen so I did not have to do that. Although the ceiling now needs painting. The front part we have had to competley update with sheetrock, paint, wallpaper and redoing flooring and adding an addiditonal bathroom. Thankfully we are finished with it now. But there are things I would like to do in the part of the house we really live in so I just have to pick my projects. It is a never ending thing living in an old house. Have fun this summer
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Thank you to everyone that has asked about my pain issues. The onco upped my dosage of the pain patch and that has done the trick. Pain is so much better that I can do a lot of things that I could not do last week. I have really been able to enjoy the grandchildren the last few days. I even actually put on a swim suit and got in the pool here at the hotel and played with the girls. I have not had a swinsuit on or been in a pool in over 25 years! I was a little self concious, but DH said I looked better than he expected and that I did not look too dumpy, that was after I told him I felt like I looked like a fat dumpy old lady. He is a dear man and I love him. He did say I should swim more often now that I was finally brave enought to put on a swim suit.
The youngest GD has learned how to swilm in the last 2 days, thanks to Grandpa. Now we really have to watch her as she just jumps in the pool with no one there to catch her. Comes up sputtering and laughing thanks to arm floaties. Not bad for a 3 yr old. The middle GD just wants to be around us and do whatever we are doing. She is so sweet and wants to just cuddle as much as we will let her. The oldest one was needing some new clothes so we went shopping and got her 2 skirts, 3 shirts and 2 pair of flipflops - one for everyday and one for church or times when she wants to dress up. The child is 11 yrs old, 5' 5 1/2 " tall and wears a size 10 1/2 shoe! She is taller that me and her mother, she is almost as tall as Grandpa who is 5' 9". She does have a very tall Dad and took after that side on the family as far as her height, but she looks so much like her mother that at frist glance I sometime get them mixed up! Enough about me. I hope everyone is haveing a great weekend and enjoying being with family and friends. I will try to catch up with everyone later. Off to bed for now.
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Amyjo so glad the pain is better and you are able to enjoy the grandkids. Sounds like you are having a great time.
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Hello 2010-ers.
I was diagnosed Oct 2010, but I only discovererd this site April 2011. I've been doing a lot of reading and learning here during the past month and a half.I had a BMX with immediate reconstruction on Oct 12, two weeks after diagnosis; hysterectomy Dec. 30; implant exchange Jan 12, 2011. (I will soon have my implants taken out. yup.) I was fortunate to not have to do chemo.
I feel like I have handled everything great so far. But also like I am just now coming out of a fog... like it all happened to somebody else. God kept me at peace through the all the surgeries and recoveries. I feel a little lost at times right now...not sure why. People have asked me if I'm back to normal now. I say yes, I guess so. But it's a new normal, different, and I know they don't understand that.
I read several posts on this thread, but the sheer quanitity of them overwhelmed me a bit, so I skipped to the end here, just to say hi and introduce myself. I'll ad this thread to my "favorites" list.
I wish all of you the best. ((hugs))
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faithroad - welcome to the group. sorry you have to join us but glad you found us. We all have been where you are now and it does take some getting used to and there is a sense of loss that will come and go and may even bring on unexplained tears from time to time. Know that we are all here for you so just jump in and ask anything you want or say anything that is on your mind and we will be here to listen and tell you what has and has not worked for us. We are all here to support each other and give encouragement and friendship and love to each other. Wishing you the best and praying that you will find peace in whatever situation comes your way. Remember that we are always here for you. {{{{{HUGS}}}}}
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faithroad glad you found us here. I know I have seen you on some of the othe threads. But this thread is great. You can ask questions, whine or just see what is going on.
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Welcome faithroad. This is a fine group of folks. We chat and even get silly sometimes.
DH and I went on a dinner cruise last night. Here is a pic.
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Barbara - Dinner Cruise! How fun!
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Wow Barbara, Dinner Cruise, like the pic of you and DH
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welcome faithroad....sorry you had to join us but glad you found us...you mentioned you need your implants out...are you having problems with them? You were diagnosed right around when i was....pretty crappy fall of 2010 if you ask me!
barbara- love the pic
Amyjo...glad the pain is being eased and you can concentrate of cool stuff- like playing with your grandkids and looking good in a bathing suit:)
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Annette - yah, last fall was really hectic for sure!!
Implants just didn't work out good for me due to both financial reasons and comfort reasons.
I've recently been informed that my insurance is changing and deductibles will go up and I'll experience pay cuts next year. Implants need maintenance. (MRIs to check for leaks, and replacement surgery when they get old and/or leak.) I don't want more surgeries and I can't pay for all the deductibles needed for maintenence. IF they were super comfy and wonderful looking, maybe I'd try to find a way. As it is, they're not worth it. My PS made me larger than I wanted and two different cup sizes. I haven't found a bra to fit both sizes, other than an exercise bra. They are heavy and super tight. I feel like I have a couple of rocks stuffed in my chest. My stretchers were more comfortable. I don't want to be stuck with these for the next 10-15 years.
I don't feel like I have a lot of choices. It just is what it is. It was hard to decide what to do, but now that I've decided, I'm ok with it.0 -
I HATE insurance companies.
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I worked for insurance companys for many years....they suk!!!!!0
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Hey K where you been? Missed you!
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