2010 Sisters

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Comments

  • Elisimo
    Elisimo Member Posts: 1,262

    Well, got the results from the biopsy on the rash I had early in Sept and the results are that I have deep subderminal vericose veins.  I should start wearing support hose when I have to be on my feet for extended periods or whenever I fly!  No way that is going to happen, I love my flipflops!  I only have 3 pairs of shoes that are not flipflops.  I need to use the cream they gave me whenever the rash breaks out for 3 days after the rash goes away then stop using it until it breaks out again.  So nothing serious on this one. Nest up is the MRIs one for the chest that was done on Friday and then the whole body one that will be on the 17th. Then the CT and more lab work.  Does this ever end?  I need to get away so I think I am headed to Florida in November for sure.

  • FireKracker
    FireKracker Member Posts: 5,858

    AJ- I wore support hose when i was pregnant and when i did danced all nite....they work.really they do.

    I hope you will at least try them....I also have Vericose veins..

    does it ever end?????I hope so.

  • torigirl
    torigirl Member Posts: 748

    Sounds like my sisters here are chugging along just fine...GREAT!  GREAT!  GREAT!

    Can't believe it's October 1st already!  I love October (because of Halloween..NOTHING else)

    Hubby will be home on Sunday!!!  Yay!

    Prayers for us all...

    God bless!

    Tori 

  • shells43
    shells43 Member Posts: 499

    Woo hoo for yoo yoo!!!

  • Elisimo
    Elisimo Member Posts: 1,262

    Maybe when it gets too cold to wear flip flops I will try them!

    My varicose veins are deep under the skin and are not visible on the surface.
  • FireKracker
    FireKracker Member Posts: 5,858

    Hi all my sistas

    Torigirl----I bet you are on pins and needles for hubby....enjoy the time together.

    AJ----im glad you are thinkin about the support hose.My veins just became quite visible.

    I love the fall and October used to be one of my fav.months....i hate all this pinkwashing.Its just a marketing ploy to make people rich..

    find a damn cure/vacine.

  • barbaraa
    barbaraa Member Posts: 3,548

    Hey guys, AJ is coming to FL! Shelley, we need to get together!

  • shells43
    shells43 Member Posts: 499

    When?? When???

  • Sherryc
    Sherryc Member Posts: 4,503

    Went to the MO Friday and had a very good visit. Told him it was amazing how far I have come in a year. This time last year was in a tremendous amout of pain. Now pain free. I had a colonoscopy recently and had a pre-cancer polyp. He was not happy about that and gave me the lecture of how important it will be for me to keep up with my colon screenings from now on.

  • Elisimo
    Elisimo Member Posts: 1,262

    Yes, I am heading to FL in Nov. (9-13) to see BarbA and hopefully Shelley too.  I can hardly wait! Told onco that all test had to be done before I went or else they would have to wait until I got back because I was not scheduling anything for those days and that I was going to be long gone from Cary/Raleigh and all things medical.  He said "Good for you."!  He keeps telling me I plan too much for even a health 20 year old to keep up with and I need to slow down and realize I am physically not a kid anymore.  He also says that mentally there may be a question about my age.  I love my onco, he makes me laugh a lot when things are good and shoulders to cry on then they are not so good.

    Joy and blessings to all, AJ 

  • shells43
    shells43 Member Posts: 499

    Yeah Sherry on your good reports and being pain free!! I haven't had one of those lovely colonoscopies yet, I have a few years yet....not looking forward to it either.

    AJ & Barbara!!!! Nov 10th I have a concert at Lakeland Airport (Sun-n-Fun) for Veteran's Day, complete with flyovers or something crazy. It will be all patriotic music. If you can come let me know and I will get you discount tickets!! Otherwise, I will head your way!

  • BoomersMom
    BoomersMom Member Posts: 28

    Hello!  I'm two years late to the party.  I was diagnosed in September 2010, so I've been dealing with this for over two years.  Time flies or drags, depending on what treatment is going on.

    I was 30 when diagnosed, and now I'm 32.  I am the daughter of a woman who died from this disease (when she was 40 and I was 7).  I really wish my dad still had her medical paperwork so I could have known her stats.  I'm not BRAC positive, but obviously there is some genetic link between her and I.

    I just entered therapy for the first time since being diagnosed, and hopefully this will make my depression go far far away. 

  • shells43
    shells43 Member Posts: 499

    Hi BoomersMom- welcome! You might be the youngest one on this thread. This is a great bunch of ladies here, I'm sure some will also welcome you. Looks like you just had some surgery, how are you feeling?

  • BoomersMom
    BoomersMom Member Posts: 28

    Hi!

     I'm still sore and having pain on the affected side, which of course, is making my brain think horrible things.  (Man, I hope therapy helps.)  I'm feeling pain in my right shoulder blade and shoulder - good times!  Plus, between the pain meds and the anti biotics they sent me home with, my stomach has been downright cruel to me this past week.  Any tips on how to cure a violently ill tummy?  :(  

     I wish I could move on with my life.  I constantly feel stuck in Cancer Land.

    Lara 

  • shells43
    shells43 Member Posts: 499

    Oh man. Tummy trouble is terrible. Pain meds always stop me up so I took stool softeners with them. I don't know if that is what you are experiencing or not. You dx line looks like you had the full slash and burn treatment, followed by the bmx and reconstruction. You've definitely been through it, and I know I had dark thoughts well after treament had ended. I couldn't sleep which made things worse. Finally I had to get some Ambien from my doc and after I slept for about a month I started to feel much better about life and myself. You can really get run down if you aren't careful!

  • Elisimo
    Elisimo Member Posts: 1,262

    Hey there BoomersMom.  Sorry you have to be here, but gld you found us.  Cancer Land is no school field trip, but here you wil find lots of support, encouragement, new friendships and lots of information.  I am so sorry you have had to deal with so much by yourself.  I have not had the tummy troubles you are having so I am not help there.  I generally have the opposite problem, the same as Shelle.  Now that you have found the discussion borad check out the active topics and there will be one or two that fit where you are now in this difficult journey.  Do keep stopping in here and keep us updated on your progress.

    Hugs, AJ 

  • Elisimo
    Elisimo Member Posts: 1,262

    Where has everyone gone?!?!? Sure is quiet around here.  Time to wake up! We have a new sister that has joined us.

  • Sherryc
    Sherryc Member Posts: 4,503

    Boomersmom glad you found us here.  We are lumpectomy buddies.  I ultimately went with a BMX in March of this year.  Last year this time I was in so much pain caused from rads.  Had to spend 3 months in PT to get my pec muscle and range of motion back.  Once I started TE expansion I have a had a relatively easy time.  I had no problems with my exchange surgery.  But i have to say that since my BMX it has done wonders for my worries.  With your mom dying so young from this disease I can sure understand why you are having a hard time.  I hope the therapy helps you out.

  • BoomersMom
    BoomersMom Member Posts: 28

    Yeah, her anniversary coming up hasn't been easy.  Two years ago when her anniversary rolled around and I was knee-deep in chemo, it didn't affect me so much.  I was all, "Her cancer isn't my cancer."  Now that all the treatment is behind me (God, please let this be true), her death is affecting me more than it has in a long time.  I have to get it out of my head that I'm just like her, y'know.  Pretty sure, though, if my mom was still around, I wouldn't be so completely terrified at my own cancer.  I'm 32, and I want to start a family, and now I'm wondering if delaying Tamoxifen for a pregnancy is going to put me at jeopardy.  It's not effing fair.  My friends my age are all starting families and getting married, and I'm getting cancer.  

    Therapy is helping.  Group therapy never worked because I was always the youngest in the group by at least 15 to 20 years.

    Lara

  • Elisimo
    Elisimo Member Posts: 1,262

    Boomer - I know how worry can affect every area of your life.  I learned something that I wish I had remember when I was your age and that is "life is short so eat dessert first" way of living.  Do what you enjoy and brings you happiness and try to let tomorrow take care of itself.  Who know what may happen today.  We could step off a curb and get hit by a bus and that has nothing to do with whatever disease you have or don't have.  It was a hard lesson for me to learn as I am more than a little stubborn on some things.  Anyway, do not try to second guess what your heart or body is telling you.  Just do what feels right for you and let everything fall into place.  You may get a richer blessing for just living each moment as it comes.  I really wish I could meet you and visit with you.  You are a little younger than my youngest daughter so my maternal instinct wants to just hug you and hold you for a little while and tell you everything will work out better than you can imagine.

    Love and hugs, Amy Jo

    PS. A lot of my daughters friends call me Mom2 because I manage to sort of adopt them all just as they are when they enter my life.  Last count I had 37 daughter2s and 34 son2s and I have lost count of the grandchildern2s.

  • annettek
    annettek Member Posts: 1,160

    Boomers mom- I hate that you had to find us but am glad you did. I was resistant to talk therapy but this board helped me soooooooooooo much...opened my mind and tore down some of those horrible walls breast cancer throws up around us....it does get better I promise...yes it sucks sometimes- it makes you scared angry etc etc all at once and that is just normal - tbc can bring the strongest woman to her knees- figuratively and in reality...but the further you get from this latest surgery...the better you will feel...I'm one year out from getting the tats on my new nipples located on the new breasts and I swear..there are moments even days I forget....Something I NEVER would have believed possible...other days it just sucks...but you know what? Not everyday before bc was great..I have to remind myself of that sometimes and when I find myself in my big old pity pot stirring it up...well...I gotta force myself to grab hold and climb out....sometimes with a lil help from my friends:)

    Big hugs to you and everyone here

  • Elisimo
    Elisimo Member Posts: 1,262

    Hey everyone - I got the result of the chest MRI and is showed no significant changes so the BS said that I was a walking miracle.  At the beginnig she was not too sure she would see me 6 months later and here it is 27 months and I am looking good and she expects to see me for many more years to come.  She never said anything about this to me before and she was so happy she was almost bouncing around the room!  Made my day a lot better.  Had the CT and more labs so I will get those results next Wed.  I got really sick this time from the contrast. They kept me there all afternoon until I finally convinced them I was OK to drive home.  They gave me about 30 minutes then called the house to be sure I made it.  I just love those people at my cancer center.  Let the good news keep coming.

    Joy and blessings, AJ

  • annettek
    annettek Member Posts: 1,160

    Amy!!!!!! Yes yes yes yes yes- doing the happy dance for you buddy

    Big hugs

    Annette

  • Elisimo
    Elisimo Member Posts: 1,262

    Thanks annettek. BTW you are an inspiration and encourager to us too dear friend.

  • BoomersMom
    BoomersMom Member Posts: 28

    Annette, thank you.  I'm trying to live by your advice.  

    *hugs*

  • omaz
    omaz Member Posts: 4,218

    Yay AJ - that is GREAT news!! 

  • shells43
    shells43 Member Posts: 499

    Hey Omaz and Annette! Good to see you gals! AJ-woo hoo! That is fantastic news! Glad your treatments are working so well. The world needs you around a lot longer!! :P

  • omaz
    omaz Member Posts: 4,218

    Hi  Shells!

  • BoomersMom
    BoomersMom Member Posts: 28

    I had my second therapy session last night, and I swear, I'm cycling out of my most recent depressive period.  I'm a lot more functioning than I was several weeks ago.  I can tell I'm better because I heard of yet another friend's pregnancy and didn't have a massive crying fit because of it.   I'm 32, and I really want to have a family, not just this disease.  

    One day at a time.  Sometimes it's going to be one hour at a time.  

    Boomer's not my only constant companion.  Depression is.

  • BoomersMom
    BoomersMom Member Posts: 28

    AJ, your news is fantastic.  I actually just let out a "woohoo" at my desk here.