Great saying about depression
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MBJ - Wow ! That is amazing you do all that. I don't think I would have the patience to do all that and yes I'm also vain especially about my hair - a true Leo with strong attachment to my Mane! I even hate the patience it takes to blow dry my hair not to mention the flat iron..... I used to have such easy hair actually didn't even have to brush it when I woke up it just was perfect - didn't even appreciate it!
Barb - I agree as we get older our hair does get dryer so not washing it as often does help.
I was talking to a friend last night who said she too had really frizzy hair and now uses these Deva products which are more about putting moisture into your hair to calm the frizz. No shampoo just this conditioner ( not sure if it lathers or not) and you either leave some in or put a bit more in after your shower. You are not supposed to dry with a regular towel but use a micro-fiber towel and scunch it dry. Her hair looks great and is very soft - no frizz but it is very curly. I like curly but not sure if I would want curly all the time and would have to let all the stuff I've done to my hair grow out.
I have had my hair straightened in the past and it worked great and then don't wash it very often. However now reading more about the straighteners I've thought about looking into other things even though my hair guy said everyone who has the Keritan hair straightener loves it so trying to decide..... Thanks for the info.
As to whether doctors know about natural supplements I have run into some who do and some who don't. Barb - you have so many things to be concerned about with reactions I certainly can understand your warriness and yes I have read about Grapefruit - and also struck me as odd as it seems so harmless but ???
What does Milk Thistle do?
I may have already said this but I'm trying to find some really good ( not a fortune) probiotics as everything I have read makes so much sense about that. Sorry if this is a repeat.
Kate - sounds like a glorious Mother's Day! If you can take pictures of the hats or at least your's I'd love to see!!! Sounds fun. My kids and a friend and her son are coming over and my ex and the kids have made dinner - so no cooking YAY!
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Hope everyone is having a wonderful and relaxing Mother's Day!
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One word of warning... I have read that those who are ER/PR positive should not take milk thistle due to it's estrogenic effects. I had bought some thinking I'd give my liver some extra support, only to read that it was contraindicated for hormonal cancers. Just do your homework before taking something new...
Diane ~ yay on the nips! I can't wait to have mine done down the road.
Kate ~ it's so not fair that you have to deal with insurance and inept office staff on top of everything!MBJ ~ I always love your hair tips:-) Are you happy with your healed nips?
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Wow, I didn't know what specifically Milk Thistle would do, so I just googled here. Here is some info from the Unversity of Maryland Health Center website:
(as I take both anti-anxiety AND anti-psychotic drugs it WOULD have been a problem!!)
Precautions:
The use of herbs is a time-honored approach to strengthening the body and treating disease. Herbs, however, can trigger side effects and can interact with other herbs, supplements, or medications. For these reasons, herbs should be taken with care, under the supervision of a health care practitioner.
Milk thistle is generally regarded as safe. Side effects are usually mild and may involve stomach upset and diarrhea. Some people may get a rash from touching milk thistle plants.
Milk thistle should not be used by pregnant or breastfeeding women.
People with a history of hormone-related cancers, including breast and uterine cancer and prostate cancer, should not take milk thistle.
Possible Interactions:
If you are currently being treated with any of the following medications, you should not use milk thistle without first talking to your healthcare provider.
- Antipsychotics -- includes butyrophenones (such as haloperidol) and phenothiazines (such as chlorpromazine, fluphenazine, and promethazine)
- Phenytoin(Dilantin) -- a medication used for seizures
- Halothane -- a medication used during general anesthesia
Milk thistle may interfere with the following medications, because both milk thistle and these medications are broken down by the same liver enzymes:
- Allergy drugs -- such as fexofenadine (Allegra)
- Drugs for high cholesterol -- including statins such as lovastatin (Mevacor, Altocor)
- Anti-anxiety drugs -- including alprazolam (Xanax), diazepam (Valium), and lorazepam (Ativan)
- Antiplatelet and anticoagulant drugs (blood thinners) -- including clopidogrel (Plavix) and warfarin (Coumadin)
- Some cancer drugs
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Notice it says NOT to take if you've had breast cancer!!!
SEE...this is WHY I don't "do" supplements!!!
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Yikes - that says a lot.... I am pretty careful with the supplements I take but now seeing this I think I'll go back over everything just to make sure.... I'd rather be safe. But then some breast cancer patients are negative for the hormones - I for one am positive for both so I will pass. Thanks for the info. I love how this forum gives us all such access to education from each other and from the internet.
Hope everyone had a great Mother's Day!
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What I did was google "milk thistle and interactions" and picked the first link. There were thousands of links......
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Today is the day two years ago that I found my cancer. The sun is shining, the sky is blue with white puffy clouds and I am miserable. How do I forget?
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veggy you will never forget........ but hopefully the sadness, anger, fear and all the other emotions that are a part of this whole process will start to soften and not be that intense. Are there things that you learned about you like what a warrior you are, or the tender support you got from someone to remember?
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Yes, I got tons of support from people I thought didn't care (much). I know I should focus more on the positivebut today I remember the sick feeling I felt and how scared I was 2 years ago. Hopefully tomorrow I will shake this feeling and enjoy the beauty that surrounds me.
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I totally get it. I am not at two years and while it is not as intense it still makes me sad, angry, anxious and a host of other things. I wasn't putting you down at all. I am still a mess a lot of the time.
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No aren't supposed to forget it!! How could you possibly? I want to remember that feeling so that I know nothing else (almost) could be worse. It gives me perspective. God bless.
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My revision surgery is scheduled for this Friday and I just got a call from the PS's office. They had ordered pre-op tests and said something was detected on my chest x-ray. She said the report stated "Probable right nipple shadow is noted which is overlying the right ninth posterior rib noted on the front view". I am so scared that it is a recurrence. Any insight anyone?
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I got myself busy making dinner. Enough of the pity party... time to shift gears. My problem is that I want this to be over now. I want to be myself again.I know that isn't going to happen any time soon, but I am all out of patience. I had to be patient for my son (asperger's syndrom) and all of his appointments, patient with home schooling 2 boys, patient waiting for test results, patient waiting to heal, patient for the scars to heal and fade, patient to get my energy back, patient with people, and now patient with myself trying to get over all of this. I go to support groups and I have a counselor. I take medication. Most of the time I feel so hateful and scared. I come here and I feel more secure and sane (?). My feeling are validated and understood. Sometimes I just need a hug. Sorry for venting.
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Veggy don't ever ever apologize for venting here. This is the safe place to do it. BS sucks that is all there is to it. I hate what it does to us physically and emotionally. You are validated because everything you feel is real and we are right there with you.
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Kate, shadowing is common in lung x-rays and can really scare the crap out of you!! It can be gas, air, movement, depth of x-ray, etc. What are they going to do about it? Do you have to get another x-ray?
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Kate, did whoever read the x-ray know that you have implants??? Do you have a clip in the breast at all?
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barbe- Waiting for a call back from the doctor's office and my BS's office. So relieved to hear all the things it could be. Not sure if they knew I had implants. They never asked nor was it on any of the forms I filled out. I did have some clips but assumed those had all been removed when I had my MX. Am feeling a lot less apprehensive after your post, though, so thanks for that. Not if the damn doctor would just call me back.
veggy- I've run through ever gamut of emotions through this whole thing, too. Guess I'm still mourning my old life of being care free. We all can relate to what you're going through and even though we know it's all normal that doesn't help when you're in the thick of things. We are irrevocably changed by BC and our new normalcy is slow in coming.
This was posted by BCO and I thought it was a great analogy-
"Living with the fear of breast cancer is having a whale move into your living room. One day, it just appears and is always in the way. Over time, the whale can get smaller, but it never quite goes away. Maybe, sometimes, it gets down to the size of a magazine rack and once in a while you bump into it. Sometimes, it swells up in your face again, like when you have a mammogram and they call you back for extra views."—Barbara
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Kate: I am really sending you some good mojo that this is nothing (barbe's right it could just be nothing at all) but I am glad they are being very thorough. Just keep picturing the outcome that you want and the lack of pain you are hoping to be relieved of. Big, big hugs.
Veggy: I think we all have good days and bad days and we will never be the same but hopefully we are stronger, have better friendships, have more value for life. I tell you, I now cry at the silliest times: riding a bike, seeing a sunset, and yesterday, at a baseball game singing the national anthem. We are so lucky to be alive and though sometimes it's really difficult, I think we have to start each day with hope for a better day. Anniversaries of our BC just sucks and I hope you can enjoy the beautiful weather and the rest of the week and the next few months and then years, too. Hugs!!!
I don't have a hormone positive BC so I guess that is why it's okay for me to take Milk Thistle.
As for not washing my hair--it's really, really, oily and not only do I have chemo frizz but when I wake up, my hair stands up and out like bride of frankenstein or a finger in the light socket. Also, I have terminal night sweats since chemo, so washing my hair everyday with tons of products is my cross to carry. It could be worse I guess, some of us don't get our hair back.
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MBJ, maybe your hair is oily BECAUSE of the products!! Have you ever tried just wetting it down in the shower without using any product.The residue from the day-before product will still be there and the water would activate it. Give it a try, humour me, let me know!! You may still need the frizz control, but maybe not all the other stuff that builds up on the hair.
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Barb- LOL - you so remind me of someone, just can't think who it is..... If MBJ is going to try it to humour you I'm thinking it will be on a day she doesn't plan on leaving the house! Just in case, you know...
Oh Kate!!! I'm sure it is nothing as well, but still scary ! Hope you get answers quickly. Also hope once you are in Fla your hubby can take over with insurance stuff and nonsense so you don't have to get stressed about anything before the surgery. How long with the surgery be? Thinking of you!!!
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Barbe: Are you kidding me? I have been dealing with this for over a year now! I towel dry my hair and it sticks straight up and out and when I get a hair cut I know my stylist is always going, hmmmm. It can take a couple of years before it grows out normal, from what I hear. I have tried eliminating products, using conditioner only instead of shampoo, going without rogain or the 183 topical. It all resulted in super frizzy, cowlicky hair that looks like animal fur. Ugh, I wouldn't wish this on my worse enemy. Didel-where are you? You know what I am dealing with first hand. Oh yeah, if I don't use the topical 183 & rogaine, I end up with fistuls of hair in my hand and brush. If I don't use the serum, I still get frizz, if I don't use the gels it has no oomph. Believe me, I do try many things. No one wants to use this many products, believe me!
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So finally heard from the doctor last night at 6:00 p.m. He said the PA in Florida got me all worked out for nothing. He said the shadow on the x-ray is right where the nipple is and it shows up differently because there is a thickening of the skin. (Maybe because I had NSM?) He said there is nothing to worry about, it's not in my lungs, but if I want to get it rechecked after I recover he would do that. He said I should go ahead with the surgery. WOO HOO!
MBJ- I have the same kind of hair yet no chemo. There is no way I could just air dry my hair. I just use one product, Moroccan oil, and luckily that works for me. I have to flat iron it, though. I just got a Brazilian blowout and the results are amazing. No frizz and I can blow dry my hair in half the time. It's expensive (though I found a special for $99) but it lasts about 3-4 months. And it doesn't damage your hair. It actually makes it better.
Stanzie- They told me the surgery will last 5-6 hours since he places the fat grafting drop by drop rather than big globs like most do. I think this recovery will be a little more challenging. Oh well, no pain, no gain. (Except I'm doing this because I'm in pain!)
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Kate: Yay for you!!!! I knew it was nothing! What a relief that you can now move forward with this. Any news about the implants yet?
Long efore chemo when I used to live at the beach I used to home straighten my hair and it worked great. My stylist told me she could do a new, non-toxic process that is somewhere between a Brazilian and a Japanese straightening system but the initial cost is $300 (the product itself is expensive) and I am sure I could then convince her to let me keep the product and then re-use it at a lessor cost, but still, it is pricey. My fear is my hair will also be flat after having it straightened, so I am not convinced that I would be happy with the investment, though it would be great to wake up with straight hair. It won't get rid of my new chemo cowlicks, though
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I too have had my hair straightened and my guy now wants me to do the Keretin process and it is about the same price but he said is much nicer to your hair and lasts longer. The only down side is you can't do anything with your hair for I think 3 days and at that point it is very straight and very flat so trying to find a time where I won't be seen except by people who I don't mind seeing me that way. Then apparently if fluffs back up. The other one has worked well for me and lasts usually about 6 mos and my hair grows extremely fast. I think with the cut I can hide it better.
MJB - I do understand you being careful about your hair with everything you have been through. Will you always have to use the Rogaine? I've heard once you start you have to keep up with it but I may be mistaken.
Oh, Kate I have a friend who uses Moroccan Oil but she couldn't remember where she got it. Where do you find it. Her hair is so soft!
BTW - Thank Goodness it is nothing Kate!!!! Whew!
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I have been of on this board for a while, so glad to see everyone doing well.
A year ago today was my BMX, as a friend told me it is good to be able to look at it from this end instead of the other now.
The only supplements I am taking are 1 a day women's, D3 5000iu and Acai 1000mg. I have cleared all with my Dr. Since I have been using the Acai I do feel energized. I have hypothyroid and low energy because of it. It should also help with the osteoporosis and cholesterol problems I am having with taking Femara right now.
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Stanzie- The Brazilian blowout is like the Keratin but you don't have to wait 3 days to wash your hair. I use a generic Moroccan oil and I think it works just as well as the real stuff. It is called one 'n only Argan Oil Treatment. They sell it at Sally's Beauty Supply. Do you have those there? Anyway, it's only $10 and lasts forever because you only need a tiny bit.
mjbmiller- I had my cancerversary in March and it was kind of a rough day for me. It brought up a lot of emotions. Hope you are doing o.k. (((hugs)))
MBJ- No news yet on the insurance stuff. United Healthcare called me to say they were finally able to get ahold of someone in the PS's billing office and basically tell her what she was doing wrong. Hopefully, she'll submit correctly and it will get approved before Friday. If not, is it bad to bounce a check to your PS? (JK)
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BTW, I passed my test (I studied real hard!) so no more UTI and surgery is a GO!
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Kate: I know that it will all work out. Crossing my fingers everything goes smoothly from now on until after you heal up from your surgery.
Mjbmiller: Cancerverseries are rough but it is good to be on the other side of it. Hugs!
Stanzie: I had a client do the Keratin one, 3 days of hair hell. She was happy with the results though.
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oh, why hair hell???? Yikes.....
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