Great saying about depression
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Diane- Way to go for making a change for the better! That has to feel pretty good! I wonder how many patients suffered in silence? Good for you for speaking up and demanding changes! Sorry about the jury duty. These days I'm not sure I could remain alert during an entire trial. I can barely follow the plot of Law and Order sometimes. Maybe you should have dozed off during jury selection? That might have gotten you excused!
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Damn! Well it's too late now...next time I will snooze during the selection process.
I think many patients complained but I am sure many said nothing. I am a big mouth that way.
Kate I just perused your pics on FB..your family is gorgeous. You guys look like you have a lot of fun together.
Diane
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Oh and the other thing with the long chat with my onc (since I send him so many email questions) we addressed all my concerns regarding Tamoxifen, menopause and recurrence.
It was nice that he sat with me for so long and explained why he doesn't order tumor marker test, FISH test or PET scans etc. The reality he said was because my prognsis was so good and my blood work continues to be very good. He explained exactly what in my blood work he checked and why. It just really gave me a comfort level that no one else could have given me. After my next three month appointment ...we go to every 4 months and I feel good about things for the first time since completing chemo!!
Diane
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DiDel: I have always been the squeaky wheel--if we don't speak up how are we ever going to be heard? That is just wonderful that you helped facilitate such positive changes that will benefit others. Sorry about jury duty. Ugh, I cannot imagine having to go in and suffer through but maybe it will be interesting or so cut and dry that it's over sooner rather then later. Congratulations on the positive feedback from your Onc--such great news!!!
Barbe: I am beginning to feel like a hypochondriac too and how can you not when it seems to be always something that hurts or feels wrong? I hope things work themselves out so you are no longer uncomfortable.
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Bowels is my go-to diagnosis first always. A bunged up bowel is NO ONE's friend!! But, I also do cleanses and make sure I go at least once a day to keep things moving. When I do miss a day I treat it aggressively. So, I do know that my pain isn't from a full bowel. Surprisingly, it has felt a bit better in the last 24 hours since taking the bladder relaxer. I only got up once in the night to pee, and very late in the night, too. That's a benefit right there. I don't know if the improvement is pyschological or not, but at this point I don't care!! I now take 13 pills in the morning and the same at night + stool softener/laxatives. That's a lot of chemicals going through my system....
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Oh Barb!!! So sorry for all that... my friend has recently been going through all sorts of bladder GI difficulities so much so she went to the ER but they couldn't find anything ... I'll have to ask her about a bladder relaxer. All that down there does need to be working to feel OK that if for sure.
Well, on the bright side with all the meds you take and trying to keep remembering everything about the pills is probably great brain and mind exercises
. Diane - Ugh sorry for the jury duty - sounds dreadfully boring. Hope you at least get someone cute to look at during the trial... Any chance they will settle and you will be off the hook?
Kate - Wow getting out this soon!!! That is so wonderful! You sound better... so you are really liking the results so far? Hope so!!!
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In Canada we get something like $8 a day for jury duty. May be more, but I don't think so! Old rules and all.
Stanzie, there is so much that can go wrong in our guts that it's scary. Has your friend looked into diverticulitis? Prolapse of an organ? Bladder infection? Kidney stone? Fibroids on uterus? or ovaries? etc.....
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Just wanted to check in! I have been crazy busy but I am reading everyone's posts just no time to comment on everything!!! Hang in there Barbara!
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I was feeling better and then last night started to feel crummy again. I absolutely love the results as far as the breasts but am still having issues with numbness/soreness on the underside of both arms from armpit to elbow. Last night it was hurting so bad I couldn't stand to have anything touch it. It doesn't appear swollen so not sure what's going on. (Of course, I start to freak out and think it's LE or something!) That bad thing about doing surgery out of state is you can't just pop into the PS's office and make sure everything is o.k. Not even sure who I should see her in AZ about it or if I just need to give it time. And not sure if I should be babying it or exercising it. Guess I should email the PS. So kind of down today and it's Memorial Day weekend. Big weekend for pool parties which I'm not exactly ready for and can't swim because of the incisions. Think I've got some cabin fever going, too. Too many days locked in the house.
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Kate, it would be normal for your underarms to be numb still from the lipo and the doc messing around. Didn't you have that the first time? It sounds more like the pain from sentinel node biopsy!
I have truncal LE and I hate something touching that spot, too. Is there a therapist you could go see just to ensure range of motion and have someone check it out? Even if just to ease your mind. Mild stretching/reaching can't hurt it, I wouldn't think, but I wouldn't 'exercise' it yet. There is still so much healing that has to happen first. You are just trying so hard to get back to pre-surgery levels you're making it hard on yourself!
Get OUT of the house and get some retail therapy done! Even a new pair of sandals....
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Kate: Why not also contact your BS, mention the SE's your having and ask to see a PT just to be sure it isn't LE? I agree with Barbe, too, time to get out of the house and at the least feel the sun on your facel Sorry you won't be able to swim yet. I went through the same thing all last summer while having one TE. Totally sucked not being able to have a summer. Hugs!
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barbe- I just checked out the LE therapy thing and found out there is a great place only 15 minutes from my house. I'm going to see how the weekend goes and call on Monday if it's not appearing to get better. I did email the PS in Miami, too. I've started doing the stretching exercises they gave me after MX. Love your idea about new sandals! Did I tell you my DH built me a special cabinet that he got from Ikea that just houses my flip flop obsession? LOL! The great thing about AZ is you can wear flip flops year round!
MBJ- I know! I need to get out. Just found out a friend of ours is playing a gig at an outdoor bar Saturday night so maybe we'll venture out for that. It's only 10 minutes from our house so if I get tired we can get home quickly. Usually when he plays the whole "gang" shows up so it could be fun.
Today is my DS's last day of middle school! My "baby" is going to high school next year! God, I feel old!
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Well...what colour did you buy??? Doesn't help you just to talk about it!! You NEED new sandals for tomorrows gig!!!!
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barbe- LMAO! You caught me! Haven't moved from my house! Did manage to take a shower (for which my family thanks me) and throw a little make up on so that's something. First day without my "compression garments" (just a fancy word for girdle) and my inner thighs feel like I've been bike riding for 20 miles. (Not that I would know what that feels like!) Kind of thinking I'd curl up on the couch with a chick flick until my DS gets home from school. I know, I know, not as exciting as new sandals. Tomorrow, tomorrow, there's always tomorrow. It's only a day away......
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Oh I don't know curling up on the sofa with a good movie sounds wonderful to me! Can you tell if they lipoed a lot? As in did it make big changes all over? I know you are still in pain and recovering but you do sound happier with your results.
I have been reading a lot about LE and still confused about a lot of it. Barb - what is trunkal LE? It is just that it went to your body rather than your arm and hands? Seems like there is still a lot they don't know and understand about it. Does having an auto-immune disease make you more suscipital?I know I didn't spell that right but can't seem to correct it this morning..
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**This helps me mor than I can ever say-you have a wonderful and understanding husband~
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Hi, ThsTooWillPass: Welcome to the group!
Kate: Get some of those sparkly sandles or thongs for a night out-sounds like alot of fun!!! I just found out about something called Myomin which is a Chinese herbal remedy for uterine fybroids, vaginal dryness, endometriosis, weight gain around the waist and it supposed to balance our hormones. Here are some reviews on Amazon:
I was plagued for over 20 years with fibroids and Barbe & Kate, it's also good for inflammation in the body!
I think I may have to try this.
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More info on Myomin: http://www.healthegoods.com/myomin-120-capsules-chis-enterprise.html
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Stanzie- The results from the lipo end of the fat grafting were not as dramatic as I had anticipated unfortunately. (Big disappointed sigh!) I do have to say my stomach is a bit flatter but I think he took the most from my thighs and I'm not seeing any difference there. (Another big sigh!) I'm always looking for the magic bullet when I know what I really need to do is exercise but, hey, I've avoided it for 50 years so far! JK! This whole BC, fibro, menopause, depression thing is really wreaking havoc on what used to be my skinny body. Going to have to change my mind set now. The thing with lipo is once they remove the fat from that part of your body if you gain weight it has to go somewhere. Somewhere even more undesirable so I'm really going to have to start being more disciplined about how I take care of myself. (Like less days curled up on the couch watching movies!)
MBJ- The Myoomin sounds intriguing. I'll have to go check it out!
Today is the first day of my DS's summer vacation! No alarm clocks for 3 months (unless I get a job, of course!) We, a family of night owls, are very happy!
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Kate: I am a nightowl, too. Enjoy your family time and I hope you do eventually see a difference once the swelling goes down.
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MBJ, keep us posted on the Myomin...sounds very, very promising, but I'm always nervous adding yet another pill to my pile! I take 11 pills in the morning and 13 at night. Only 2 of those are over-the-counter!! (Sennokat-S) I hate to imbalance anything with another drug....sigh. I also take Oxycontin throughout the day for breakthrough pain. It's getting ridiculous!! NO!!! It already IS ridiculous!
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barbe: I am concerned that you are taking so many medications! I take alot of pills but they are all supplements except for 2 and mostly they are to rebuild what chemo destroyed--i.e. hopefully they are temporary. Yes, I am considering taking the Myomin to address a life long hormonal imbalance but my goal is to get my pill intake down to 3 or 4 supplements only. Have you ever considered getting a second or third opinion and maybe finding someone who will address the issues you are having and not just medicating them? I know that it isnt any of my business but I just wonder if the probelms you are experiencing is maybe due to all of the drugs your dr has you taking. My concerrn is that the drugs mask and complicate other things. Just want you to feel your best. Hugs!
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I don't mind your input at all, that's why I even mentioned the amount!! They are from 3/4 different doctors and I make them ALL look at what I'm already taking to see if there are any contraindications or red flags. They are for my heart, my arthritis, my FM, my stress, but mostly my pain! I take 3 different heart medications alone. I just got a new one added on Tuesday!
I have a rheumatologist, cardiologist, urologist, nephrologist, oncologist and my PCP.
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Wow, that is just so much to take. I remember mentioning I was going to try a "reset" with my body temperature to see what ailments this clears up. I will keep you posted to see if it works. What is your heart doing?
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For anyone interested in fixing their low body temperature and chronic illnesses this is the article:
http://www.fixlowbodytemp.com/papers/LowTemp.htm
http://www.fixlowbodytemp.com/papers/Cancer%20Another%20View.htm
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I have angina so I take Tiazac which opens up the arteries. I have to take it at night as that's the most dangerous time for my heart. I also take an ACE inhibitor (which I now find increases my odds of recurrence by like 56%!!!) for blood pressure as well as a dieuretic (water pill). Then I take medication for gout and another for my bladder to relax spasms. That's 5 pills so far.
Then I have Celebrex which I take 2 times a day for FM and another drug for stress. That's 7 pills. I also take Hydromorphone (2 different strengths to equal 9 mgs) and oxycontin for pain 2 times a day, so that's 9 different medications a day!!! I then take Sennokat-S (2 of them) every night. I'm missing a couple of pills, but you get the idea...right?
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Oh ya, forgot about Tramadol too! (for pain and inflamation) twice a day
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Barbe: If you ever decide to get off of the pill wagon I highly recommend speaking with Steve.Richfield@gmail.com. He is the author of the links I posted above and though he is a bit excentric he is highly intelligent and has arrived at many of his opinions by trying to get his own helath problems in line. I have a friend in the UK who has had amazing results by doing this. I am working with him to attempt to "reset" my body temp and though it isn't an easy course I am hoping to eliminate the majority of symptoms I have remaining after all of this crazy BC and it's side effects. .0
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Barbe: Sorry I should have clarified. According to my friend who has done this, resetting the body temp to 98.6 F eliminates many of our body's ailments. Because the body works best at this optimal temp, many of our ailments disappear. Because I have been testing my body temp at all times of the day I can now readily tell when my body temp is low because that's when I am in the most pain. I literally cannot move and I am in so much pain yet when I can heat my body up to the proper temp, the pain disappears. Since many of your (and my) ailments are due to inflammation these go away at 98.6 F. The longer we are at a lower body temp the more airlments appear. You mentioned before that you are always running hot. Did you ever test how hot you felt with your actual temperature? I find when I am at my hottest my body temp is actually starting to crash!
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I really should check that out. I'm sitting here in my office at work with a floor fan right beside me! I sweat just sitting still, how could my temp possibly be low? help!
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