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  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited March 2015

    Carol, great news! Enjoy the holiday Happy

    Annette - that sounds painful, it's good you are getting some help with it. I have a BIL who broke a finger and didn't get PT for it, and it's totally useless now - permanently closed against his palm.

    Moira - it would be great if you could get down to Melbourne! It would be wonderful to meet you. Yes - I'm happy with the way the pet photography business is growing, it's a lot of work though lol.

    Winter is here too. We are expecting a low of only 3 tonight! Yikes. I think the heater will be on tomorrow morning lol.

    Trish

    xoxo

  • midnight1327
    midnight1327 Member Posts: 1,331
    edited March 2015

    Thanks Girls, yes Moira, that exactly what it is, Avolsion fracture, the knucke looks all out of shape and fat,  i cant get to the physio til april 13th, but am on cancelation list, so could get on a  earlier one if cancelation from sombody else.  How long did yr ankle take to get better?

    Trisha  and Chrissy, it aches, like a cold tooth ache continuously, a real pain literally..sorry yr bro in law did not get treatment for his Trish,  Well today we will find out who we will be playing in the cricket, i am not understanding in the game,  Ron does try to explain, but i still get confused and have to keep asking him.  i finrd it boring after awhile.

    Have a good day girls. xxxx


     

  • Ariom
    Ariom Member Posts: 4,027
    edited March 2015

    Hi Midnight, I think I was in the Moon Boot for that fracture for more than 6 weeks and the ligament and tendon pain lasted even longer than that. It wasn't terrible pain. just pretty constant aching. I had Physio for some time after that too.

    I just got an appointment with a hand therapist for the 15th, I have a trigger, pinkie finger that is bothering me and the therapist is making me a spiral splint for it, to see if we can fix it enough, so I don't have to have surgery for it. It is caused by my Rheumatoid, so I am not holding much hope that I will escape the surgery. I have had lots of surgery on my hands and wrists.

    Trish, I would love to catch up with you too!

  • Tammy_M43
    Tammy_M43 Member Posts: 565
    edited March 2015

    Annette, I hear you on the cricket getting a little boring! Hope you get the treatment you need for your finger

  • Alyson
    Alyson Member Posts: 3,737
    edited March 2015

    This bloody disease. A young kiwi friend who lives in Canada has just found her cancer has progressed. Her stats are virtually the same as mine. I got a clearance and she is back on chemo.

    Have spent the morning looking at rest homes for MiL. DH and SiL just have to make a discussion.

    And cricket is never boring especially the cliff hanger games there have been in the CWC

  • chrissyb
    chrissyb Member Posts: 11,438
    edited March 2015

    Oh Aly, so sorry to hear about your young friend progressing.......this disease really is the pits!

    Hope for your sake that your DH and SIL make the decision sooner rather than later re your MIL.......it really is the best thing for her and it will set all of your minds to rest re her safety etc but still not an easy thing to have to do.

    I have been meaning to watch the cricket but keep forgetting that it's on.....lol.....maybe that should tell me something......or not.

    Take it easy lovely.

    Love n hugs to all! Chrissy

  • mandymoo
    mandymoo Member Posts: 632
    edited March 2015

    Hello lovely ladies,

    I am always reading everyones posts with interest and there is so much going on, that I find it hard to keep up hehe.

    Anyway, this has been on my mind and I am finding it hard keeping it to myself, although I am trying to focus on other things as life is still hectic for me. I am looking forward to Easter so that I can have those days off as I am not having family over and celebrating it at my daughter in laws place for a change. wahoo.

    Regular 6 weekly oncology appointment last Tuesday and my tumour markers have slightly increased. OK..... only 38 so not worried, only that my tumour markers have been hovering between 31 and 33 for almost a year now after them finally coming down from 498 in November 2012. I was due for my 6 monthly scans in March but because I was going so well, we decided not to bother.

    Oncologist said this may be an error because we need to allow for a certain margin of error, but I am already thinking of plan B.... which chemo I need to go on to next and where the hell is it spreading. No symptoms yet ladies and hopefully the brain is still NED. I have to wait to 5 May for next blood test results. I know that my tumour markers were always climbing about 30 points every month before and so they seem to indicate what is happening in my case.

    Any feedback as to tell me that I should not stress about this would be appreciated, as I know that I shouldn't but it is there in the back of my mind. Too scared to mention it to hubby as I am worried about his health.

    I hate living with this uncertainty at the moment.

    Sorry girls


  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited March 2015

    Mandy - sweetie - it doesn't matter what any of us say - you are going to stress about this. Have you had a cold or virus in the past few weeks? Doesn't that sometimes put tumour markers up?
    That's all I've got Scared

    I've gotten myself to a place where I don't stress about anything until it's clear I need to stress about it. Of course that's easy for me to say, I'm not stage IV. It's good that you are taking things easier over Easter, maybe too you've been doing too much and are run down?
    Can you ask for the scans that you didn't have be done after Easter? That way you won't be worrying about anything over an extended period of time. Your onc should be receptive to that.

    All I can tell you with any certainty, is I'm thinking of you, and sending you lots of warm, warm ((((hugs)))).

    Get on here and vent and air your concerns all you want, it might help xoxo

    Aly - I'm so sorry to hear about your friend's progression, yes this is a truly horrible disease.
    Trish

    xoxox

  • chrissyb
    chrissyb Member Posts: 11,438
    edited March 2015

    Mandy, what are we going to do with you? I think you wear yourself out to the point of exhaustion......not good! Your markets will rise if you have inflammation or infection anywhere in your body and it doesn't have to be a bad one either. 38 is still a small number and right now I wouldn't be too worried about it but I would just watch what they are trending so that means a series of blood tests to watch and see. I would also ask about the scans you skipped as now seems like a perfect time to have them as you are going to stress unless you see.

    Good thing that you are not doing Easter at your place this year it is indeed time you had a rest. Come here often and let all those worries be aired, that way you can get support when you need it without stressing you family.

    Thinking of you hon.

    Love n hugs. Chrissy

  • midnight1327
    midnight1327 Member Posts: 1,331
    edited March 2015

    Mandy, you are in my thoughts,  But i want to see you enjoy easter with yr daughter- and try not to think about it, not easy. you just enjoy  time at easter. xxxxxxxxx  i should. take  my own advice lol, but we all do thr stress thing,   enjoy easter ya hear.

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited March 2015

    Hi Girls!

    I'm not sure that anyone in our group is triple negative, but some really promising news last night from Australian researchers. This is the link

    Trish

    xoxo

  • midnight1327
    midnight1327 Member Posts: 1,331
    edited March 2015

    Thanks Trish for that,  I am a positive breast cancer type, but for whoever is a tripple negitive, thatis good news and maybe in future for some positives, should they get recurrance or a new cancer back being that. Gosh i certainly hope not. but thanks, interesting reading and encouraging. hugs

  • mandymoo
    mandymoo Member Posts: 632
    edited March 2015

    Thank you girls, for letting me vent. Just needed to get it out there and feel much better now. I know that it is still a small number but I will be anxious for my next results. On the positive side, my lymphedema is finally reducing yay. I went to a 6 week workshop in unley which finished last Thursday and my Ldex reading went from 145 in January to 30 on Saturday. So that is another side effect challenge that I can now manage.

    Aly, my thoughts are definitely with you at the moment and sending you positive vibes. Cancer certainly does not discriminate! xxxxx

    Annette, I hope that you get on the mend soon and that this physio will help. Keep posting your funny jokes.

    Trish, I am not triple negative either, but I am so happy for those girls that are.

    Chrissy, thank you for what I was hoping you would tell me, just reaffirms everything.

    Taking Grand daughter to kindy in a minute then to Aldinga to take mum shopping and do her chores. Tomorrow I have the other 2 grand daughters as it is family day at their kindy and parents cannot take time off work. I havent been to Lexis kindy yet, so looking forward to it. Thursday is excursion day at Olivias kindy on the foreshore here.... and Friday I get to rest and get to spend the afternoon with all the family at my sons place for a lovely barbecue. I have decided not to have family over for Easter and have some time to myself yay.

    Big warm hugs to everyone else and I hope you all have a wonderful Easter

    Mandy xxxxxxxx



  • Alyson
    Alyson Member Posts: 3,737
    edited April 2015

    Hugs all and special hug for Mandy.

    I am awake in the middle of the night. Pain got to me and darling DH made me a cup of tea.

    Moved MiL into rest home yesterday which was really stressful as she really pushed me at times. I know she has moderate Alzheimer's but I got very cross when she was ordering me around. My SiL was unable to do anything so I picked MiL up from hospital and took her home to get a few things then took her into the home which thankfully is just up the road from us. Later DD and I had to go shopping for a bedspread etc as MiL needed some nice new things. My sister helped thankfully and washed lots of MiLs things. SiL will no doubt claim she had to do so much for her mother. Grrrr

    Sorry to grump. Suppose I should try to get back to sleep. I have to take more things to MiL quote early and she will be waiting.

    Hugs to all.

  • chrissyb
    chrissyb Member Posts: 11,438
    edited April 2015

    Oh Aly, what a day for you! I'm sure all the stress that has gone with getting your MIL organised has contributed to you pain levels and I do so hope that once she is completely settled you can get some rest. Try not to get too worked up over SIL, you know what she is like so just try to ignore her.

    Hope you managed to go back to sleep lovely.

    Love n hugs. Chrissy

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited April 2015

    (((hugs)))) Aly - I can hear your frustration. Hope your pain has eased somewhat by now and you were able to get some sleep. xoxo

    Chrissy - you are either up very early, or up really, really, really late lol.

    Trish

    xoxo

  • mandymoo
    mandymoo Member Posts: 632
    edited April 2015

    oh Aly, what a stressful day you had. My heart goes out to you and I wonder if your SIL was unable to cope with all this? just a thought. I hope that you sleep better tonight anyway (hugs) xxx

    Well, Easter is almost here and I suppose that you will be busy with work Trish? or are you going to take some well earned rest hehe xxx

    To all you lovely ladies, I wish you all a very Happy Easter, and good health too.

    Warm hugs

    Mandy xxxxx


  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited April 2015

    Mandy, as of 3.30 this afternoon I'm having 10 whole days off lol. So far all I have planned photography wise is a dog show on the weekend after Easter.

    I'm not sure what I'm going to do with myself all that time, well apart from doing the accounts for the business, I've been a bit slack in that area lol, so have to catch up.

    Trish

    xoxo

  • carlaau
    carlaau Member Posts: 3
    edited April 2015

    Many thanks, ChrissyB.

    Apologies for the delay in replying. The last two months have been a bit of a blur. I had my surgery - wonderful surgeon! And, thankfully clear margins and lymph nodes, so referred to radiology and follow-up hormonal treatment. Coming up last week of radiation - pretty much knackered, but looking forward to break over Easter. Looks like next step will be Arimidex.

    Shortly after my diagnosis I reached a point where any information on breast cancer just felt too much - hence the delay in me getting back to here. I varied between disassociation and sobs - with a bit more of that post surgery! I think it was my breast care nurse who said it would feel easier once I got into treatment mode, and funnily enough, it was. I still have the odd moment/day where the wobbly boot comes in but going okay.

    Lately I've been far more comfortable reading, reading, reading to learn more about this illness. I don't doubt you all will see more of me in future!

    Best xo

  • chrissyb
    chrissyb Member Posts: 11,438
    edited April 2015

    Trish I was up really, really, really very late........just one of those nights.......lol. I must admit that I'm sort of getting used to them and if I can manage two or three hours in the morning I do just fine. Yes, yes, I know it's not the ideal but I am getting better at sleeping I promise! Yay you!!! Getting ten days off has got to be a shock to your system! Talk about me not sitting still, I think that's a little like the pot calling the kettle black......lol......you are always on the go and well deserve the break!

    Busy day today for me, got my three hours sleep this AM and then got up in time to shower before the lass who does my floors for me came. It was her last day for a couple of months as she is having a tummy tuck done on Tuesday next to get rid of masses of skin that was left after a huge weight loss. I am going to miss her not being here but I do so wish her the very best. When the cleaning was all done I high tailed it off to Clare to pick up some time books and a spread sheet journal..........I have some how gotten myself appointed as the treasurer for the Burra Railway Station and B n B.........not sure how that happened but here I am.

    Tomorrow is my day as volunteer at the Station and then the kids will be up for the day on Saturday and after that the days are all mine until next week......lol.

    Mandy, Trish, Aly, Carol, Tammie, Jenn and everyone else I have left out, I hope you have a wonderful safe Easter!

    Love n hugs all! Chrissy

  • aussie12
    aussie12 Member Posts: 421
    edited April 2015


    Hi all

    Chrissy and everyone I hope you all have a great Easter. Luckily It's my Sunday off so all the family are going to my Dad's farm for the day, I haven't been their for ages.

    Carol

  • mandymoo
    mandymoo Member Posts: 632
    edited April 2015

    Good morning lovely ladies and happy easter!!!

    Well yesterday went just too fast for me. I visited a couple of neighbours in the morning for morning tea as I have been absent for a while and I do miss them. Then I was in the kitchen making 4 different salads for the family barbecue.... I am just too fussy and fart arse around trying to make everything presentable like My Kitchen Rules and all those other shows hehe. Then off to son's house for family barbecue and got home exhausted at 9pm hoping we would not hit any kangaroos on the way home and thankfully we saw none.

    Up early this morning and we are going on an Easter Egg hunt with 4yo GD organised by the local businesses so not sure what time we will get home. After that, hopefully I will be in front of the TV watching the footy with a nice hot cuppa.

    Trish, enjoy your rest, I always look forward to it as well because that is when I get to sort out our bills and re organise the house.... very satisfying.

    carlaau, nice to hear from you and yes, this is a roller coaster journey with mixed emotions and lots of ups and downs and self discovery. :)

    I hope that everyone has a wonderful Easter and eats lots and lots of Easter eggs, I know I am hehehe

    Warm hugs

    Mandy xxxxx


  • Lucy55
    Lucy55 Member Posts: 2,703
    edited April 2015

    Wishing you all a very Happy and Safe Easter.!!

  • Jennt28
    Jennt28 Member Posts: 1,095
    edited April 2015

    Hi all and Happy Easter!

    Trish I hope the Femara treats you kindly. It makes me hurt in the mornings but apart from that has been OK.

    Aly - where did you choose for Mum? Mine is in Mt Eden. They seem to be looking after her well but aren't so great at communicating with me :-/

    Mandy I hope your test result was a silly glitch that means nothing.

    And I hope everyone else is going well...

    I went and cried all over my dr last week after feeling sad and teary and stressed for weeks. He listened to my symptoms and sent me home with an anti-depressant. It has made a difference already...

    Jenn

  • Alyson
    Alyson Member Posts: 3,737
    edited April 2015

    Our Easter has been shattered. DH's cousin is the first (and only so far) road fatality of the holidays. It was her mother who died two weeks ago. Yes I know she is a cousin once removed but the cousins were brought up together as my MIL and her SiL where both widowed early and DH and his siblings regard their cousins as older sisters. Jacque was so looking forward to a holiday as she had been Joyce's main care giver. The girls were in one car and the boys in the following vehicle. So her husband and son saw it happen.

    We are also trying to move MiL's stuff out of her house. I can't believe how much there is. And it is being complicated by DH's brother who lives in Spain and wants to keep everything. It's not much to store he says. Grrrrr. He is so unrealistic.

    Jenn she is in Eden Village in View Rd. It is really lovely but too early to say how communications etc are.

    My back unfortunately is a real problem. So many discs have collapsed and vertebrae not good. Never mind shouldn't complain too much.I have gone to bed and DH who is so tired trying to move stuff has gone out for a take away meal as neither of us have any energy.

    Sorry to be such a wet blanket.

    Hugs to all

  • aussie12
    aussie12 Member Posts: 421
    edited April 2015


    Alyson what horrible news. You just don't know what is going to happen from one day to the next.

    Hope your back is better soon.

    Carol

  • Ariom
    Ariom Member Posts: 4,027
    edited April 2015

    Aly, I am so sorry to hear of your loss, that is just tragic news.

    Sorry to hear of your back issues. I understand how difficult and stressful the clearing of a house is, we have done it twice, for both our Mothers. For me, the moving of our Mothers, a few years apart, to Nursing home care, was naturally difficult, but the positive aspects of excellent care and the settling in and acceptance by them both actually surprised me. It was most definitely the right thing to do. I do hope your MIL has a similar, positive experience. I hadn't realized how much stress there was on us prior to the move and the relief we felt when we could relax about the constant care issues, made a huge difference to us. Fortunately, although hard to do at first,it was a win, win situation.

    I wish you all the best and hope you and your Husband can get some rest and feel better soon.

  • midnight1327
    midnight1327 Member Posts: 1,331
    edited April 2015

    Sorry Alyson about the tragic news you have had this weekend. please look after yr self and take care of that back.

    Hope everybody had a good easter,

    Carol hope yr day at farm was lovely and Mandy hope yr weekend was special with yr daughter.

    Carol, i thought you had said, you were going to farm for a day, now i cant find it where it said, correct me if i am dreaming. lol what a dick, i am. lol.
     HAPPY day all.

    ALYSON, take care. xxx

  • chrissyb
    chrissyb Member Posts: 11,438
    edited April 2015

    Aly my heart felt condolences to you and your family..........such a tragedy! How shockingly awful for her son and husband to have witnessed it all...........I have no words.

    Love n hugs. Chrissy

  • Jennt28
    Jennt28 Member Posts: 1,095
    edited April 2015

    How terrible Alyson...

    Jenn

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