Australian Sisters
Comments
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Yay Mel!!! The time seems to have gone really quickly but for you probably not so much. Yes, do let us know how the visit goes and wether you have an exchange date and when.
Sue, last Friday my left foot shot out from under me and I went down on the right knee. Hurt like hell when it happened and I'm afraid some very unlady like language passed my lips at the time but the swelling has almost gone and the bruise is dissipating so all is good.
Love n hugs girls! Chrissy
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Ouch !!!! Hope it didn't damage the replacement bits
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Sue, I am due for my twelve month check up at the end of next month and I have to have an X-ray prior to the visit with the doc so I guess that will show any damage if there is any. I'm hoping not as I don't think I could do a replacement of the replacement........that would really screw with my head.......lol.
Love n hugs. Chrissy
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Chrissy, ouch! Fingers crossed that it is just bruised.
Mel, great news
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Tammy, hubby has signed himself, me and our daughter with Down Syndrome up for the 4k Mothers Day event. Well just be walking though... Rachael doesn't move fast
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finished with surgeon a while ago. He likes how my right te is looking said its excellent! Put my operation down as cat 2 which means it will be done within three months!
pleased i have a timeframe to look forward to!!
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Nearly finished all my poppies. One ore to do. Think it's number 12.
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Beautiful poppies, Alyson!
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Jenn, I may be walking with you giving my progress to date
Alyson, clever woman
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Hello lovely ladies, I hope that you all enjoyed Anzac Day, I certainly did as my football team won.....only just.
The last blood test showed liver enzymes high in AST and ALT as well as LD ... I refused another blood test as I am due for another one at the end of this week anyway which will also show my tumour markers. I will get my results on Tuesday May 5th and I will be bringing my bestie with me so that we can go out for lunch after that.
Girls I am also going in the Mothers Day Classic here in Adelaide although it is only the 4Km walk, come hail rain or shine hehe.
Alyson, you are so clever... Those poppies look just beautiful
Melp, let us know when you have news of your op xxx
oh, Chrissie, I hope your dickie knee is feeling better and that it does not need replacing again.... I am keeping my fingers crossed, xxxxx (just watch your step young lady hehe)
Well, housework awaits, so sending everyone warm hugs xxxxx
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Hi all! Have had a quiet weekend here, getting set for the next two which will be mad! Next weekend is the annual Antiques Fair here in Burra and the following weekend we are having a big fundraiser for the Heritage Railway Station so I will be busy in the kitchen cooking for that.
Mandy, I don't know how you do what you do, I am exhausted just reading about it! Oh bummer on those test results........I do so hope the markers are good and your liver was just reacting to something else. Keeping my fingers crossed that you can smile when you get the results and then enjoy the lunch after.
My knee feels fine so I think it was just bruising.......thank goodness! I have been working on completing the crochet blanket for my SIL, the one her Mum started before she passed and I can now say that I only have one and a half sides to complete the finishing row! Yay!!! It is huge!!! It fits over my king size bed with comfort so it will definitely fit her queen size one. Next problem is getting it back to her as she lives in Cairns.
Hoping you are all well.
Love n hugs. Chrissy
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I know it's late in the day (8:05pm) but I just remembered that today is the 20th anniversary of the day I was told I had BC. I had the mammo on the 24th and then had to wait through Anzac day, as you all know a public holiday here, to hear the bad news. All my tx was done locally in our small town hospital including the mastectomy by a general surgeon. I was one of the first to have chemo done there instead of going to Brisbane where it was usually done. I had 13.5 yrs free before being dx with mets to bones and am now 6.5 yrs with that and 17mnths being treated for mets to liver also. The aromatase inhibitors gave me such bad arthritis in my hips I had my right one replaced in February and will get the left done on June the 12th.
Along the way I have had a colostomy done due to a perforated bowel and then had it reversed 7 months later. This led to a few digestion problems that have left me half the woman I was back then, after losing 50+ kgs. I always thought that there weren't any sympathetic designers for larger sizes but now I find that the smaller sizes aren't all that inspiring for older ladies either. I don't go into many boutiques these days as I don't want to spend a lot of money on things I might not need much longer. I will have to soon though, as my niece is getting married 4 wks after my hip op and I want to look nice (not the dead woman walking look) for my family and maybe my last major family gathering.
My Onc here (visits for a day and then goes back to Bris) used to express surprise that I had lasted as long as I have, which I didn't find terribly comforting each time he said it! Maybe he knows more than he's willing to tell me....and I won't ask him in case he actually does!
That's my update for now, fully realizing that I am half way through the 13 yrs I got the first time around.
Hugs to all enduring hard times and hope that there is such a thing as a 'spontaneous remission' for all of us.
Sheila.
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Sheila that is such a great story of survival. Your doc is probably just delighted as I know my BS is at the fact I am fine.
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Sheila, such inspiring news....here's to the next 20 years.... Keep going girl!!! (((hugs))) xxxxx
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Yay Sheila!! Congrats girl!! It's such a lovely thing to say that it's twenty years since dx and six and a half and counting with mets!!! I know the road has not been easy but I think your doc is just happy to see you still here and doing so well........mine does the same thing each time I see him and like you, I'm not sure how to take him.
Enjoy your shopping for the wedding and have a really good time.
Love n hugs all! Chrissy
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Thanks for all your great supportive vibes girls
I would have bought a cake with 20 candles if I'd remembered earlier in the day. Boy...that would have confused the folks at my daughters care-home!We spent the day with her shopping for a TV for her room so that she can 'retreat' when she needs a little space. I hope her older brother can install it some time this week as it's frustrating when you know something good is coming but have to wait unduly for it to arrive.
Sheila.
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Shelia,
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Aww gee, thanks Tammy
Sheila.
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you're welcome!
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Hello Girls
Sorry I've been MIA for a while. Life is busy, photography is busy, but I've been having problems with Femara
It only took four weeks for my brain to turn to mush. The scariest thing for me was I was having what I'm calling "waking dreaming". You know when you wake up from a particularly vivid dream, and you spend some time trying to convince yourself it was only a dream? Well I've had that happen while awake, at work. So have stopped the Femara for now - will be seeing my onc in a couple of weeks. I may try a half tablet before I see him to see how that goes. I'm pretty disappointed, as I wanted to get a few years from the Femara if I could. My only other option now if half a Femara isn't going to fly, is to go onto Tamox - and the onc said that was 20% less effective for post menopausal women - and if I get bad ses from it, what's the point?
I know - I'm feeling a little down and negative at the moment. I'm starting to think I should just go for quality of life and know that the cancer could very well come back, and I'll have to deal with it then. But I really need to work for a few more years before I can afford to retire, and these tablets aren't making that very easy for me to do.
I'll pick myself up eventually
Trish
xoxo
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Hi Trisha Anne, I hope you don't mind me butting in here. I too have recently had to come off Femara (Letrozole) and Zoladex injections after 6 months due to terrible side effects. Even now after 2 months I still have numb fingers and tops of my feet. It affected my heart, blood pressure so badly I actually had to take a week off work. My Oncologists have put me on Tamoxifen and after 2 weeks am not really noticing any side effects apart from hot flushes, which I think may just be a tiny bit worse than when I was on Femara. I don't seem to have the terrible aches and pains yet? I was so heart broken that I couldn't tolerate AI's as I heard they are so much better for those of us with Lobular, compared to Tamoxifen. However my Oncologist tried to explain to me that they don't know for sure yet, and said that in the long run the outcome is the same, I didn't really understand his explanation but he did say that and my daughter was there as my witness. So I have to put my trust in them, which isn't easy for me. They also told me I could take no medication as Tamoxifen was only giving me a 6% benefit of the cancer not coming back??? My Head Oncologist said if it was her, she wouldn't take any medication as she hates taking tablets? I just get the feeling that it's a bit like a lottery and a lot of it depends on luck!
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Hi Fizz good to see you over here. These are great girls with a wealth of knowledge and experience.
Exhausted tonight after a wonderful day. Went with a friend to visit another friend who has moved about two hours away. Back now really sore but it was fun.
Trisha hope you get things sorted soon it's not great feeling spaces out.
Big hugs
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Oh dang Trish!!! I was hoping that Femara was going to treat you well but obviously not. I have hear a few of the American girls say they were taking half dose and SE were a whole lot better and way mor manageable and according to them, the protection is much the same for them. Here's hoping the half dose works for you as I fully understand the no meds and waiting for the other shoe to drop........been there, done that and quite frankly, it's so much easier when you know it's back so you can deal with it.
Hi Fizz and welcome! NZ girls are always welcome here. You are so right when you say that it's seems to be all a lottery.
Aly glad you enjoyed your day but time now to rest.
I have just returned from taking my SIL back to Wallaroo after our annual Antiques Fair weekend. The weather was perfect and the visitors many so over all it was a really good weekend. Mind you, I'm pretty bushed right now and am looking forward to a reasonably early night ss tomorrow I'm off up to Port Pirie for our monthly BC group meeting. Thank goodness it is only an hour and a half drive away.
Take it easy all!
Love n hugs. Chrissy
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So sorry the Femara didn't work out Trish :-/
I've been taking Zoloft for a number of weeks now and the amazing thing is that all my shoulder and foot pain that I thought was from the Femara seems to have gone. Or maybe I just don't care about it anymore ;-)
Jenn
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trish shame about the femera I didn't want to take it because all the girls in my group that were on it had horrible side effects so I took tamox for 5 years and took natural Indoplex which helped with the side effects enormously.. I am big believer in daily exercise and meditation good food and a small aspirin to help. Hi to all the other girls
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Thanks girls, good advice from you all - as always
I'll try the half dose until I see the onc, and then take if from there. If it's going to be Tamox, then so be it. Feeling more positive today
(((hugs)))) to you all
Trishxoxo
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Trish - how did you go on Aromasin? I forget. I'm finding it great.
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Sue, the Aromasin worked well for almost three years, then I lost brain function on it. It happened quickly on Arimidex and now Femara, Aromasin just took longer. Aromasin has also given me a few bald patches, mind you that wasn't as worrying as the mush for a brain lol.
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Hi Trish, sending you hugs as there is nothing worse than having those horrible dreams or not sleeping at all. I hope you can find an alternative treatment.
I saw my oncologist yesterday and yes, tumour markers are still rising, but thankfully pretty slowly, so stay on the same regime for the time being. Just playing the waiting game until symptoms arise as scans will probably not pick anything up yet. So next blood test in 2 weeks and then tumour markers test in 5 weeks time (dealing with the phlebotomists is another problem, some refuse to take my blood and the others, just give me a scared look, ..... maybe they need more training or look for another job hehe). Living with cancer sucks!!!!
Hugs to all xxxxx
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Trish - it's interesting how we have such different reactions - hope they can find something that will not affect you too much.
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