INSOMNIACS place to talk in the wee hours
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mags. You look wonderful. !!! Love the wigs and more importantly the clear scans !!!
Lita. Love your friends in your pic. Love to see so many smiles !! Yea.
Lovely. Thanks for posting that pic. Everyone looks happy and healthy ESP you lovely. You are beaming with bright life. Sweet. !!!! Enjoy. !
Jealous no bco sis close to me. But happy for those of you who get to meet and even some of you even plan yearly vacations together. That rocks !! That's why I love bco.
Hootie hoo
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The 6 month plan is much better for me. I love that I am getting my life back much closer to normal with every good result. Means I will be able to enjoy my summer a bit more
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Mags- what a lovely photo of you. Love the new wig and must say you look amazing, although we know all too well the story behind that smiling face. The style and color suit you.
I love that you have plans to spend time with your friends in Branson. Take lots of breaks on that 8 hour car ride to and from your home. I find I have to do that these days as my back cannot handle sitting in a car for more than 3 hours.
Lita- I am a dark brunette by nature, and went grey pretty early and was salt and pepper by the time I was 40. I started highlight and then later fully dying my hair shortly after, but went blonde. You are right we cannot carry the dark hair as we get older. I hope you find a perfect wig you like too!
Patty- hootie hoo! I have only met one sister who lives in my home state. Seems like many sisters have found ways to connect and do trips together on these threads. Hope you are doing okay friend, and feeling good today!
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Teka- great post. I am watching the extended Today Show and they are talking about all the plastic surgery women put themselves through to keep up. I will keep my midlife butt, thank you very much. No elective surgeries for me!
We are all more than enough
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Jazzy, I'm with you. I have wrinkles, but they are my wrinkles. I used to love the photos of old Native American women with their wrinkles giving them character.
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Mommy congratulations, such great news that all is well.
Mags your wig is lovely. If you gotta have a wig it certainly pays to get a nice one that suits. When I had mine I used to meet people who didn't know I was doing chemo, who would say how fab I looked. It was 100% the wig that was earning the compliments I can tell you!
JunieB (from several days ago) Well may God forgive you for not layin' down and dyin' like your neighbours stats said you should!! Keep on doing whatever you are doing that is making a liar out of those stats.
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It's Wacky Wednesday!
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Wow! You look MARVELOUS! You look better than those Hollywood folks. You can model for the wig company.
Mommy, yay to the clear scan! Now we pray for the same with Mags.
Patty! Hootie Hoo. Happy to see your post.
Welcome Ravn! Hopefully, we won't scare you away with our craziness. Lack of sleep can do a lot of weird things to the mind and body
Yogagirl, good to see you again.
Wildt, hope you can get rid of the cold before surgery next week.
Ms. Sas, thank you for changing the "thingy".
Teka, good one!
Sensi, I am the same way. Learning to say no though.
Junieb, almost there.
Hello to those I missed
Oops, back to work already.
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Hi Patty! It's great to see you! There's a few in my area (a few hours away) we're trying to get a day set up for an Indianapolis visit for lunch and get a room for the night. I can't wait to meet some BCO sisters.
Mommy, congratulations on your scan results! YAY MOMMY!!
Mags, I love, love, love your new wig. You look absolutely maaaarvalious! I've been drooling over so many wigs that TLC offers. My DH prefers my natural almost non-existent-hair so I go OH-natural. At least that's what some people say when I show up at the drive-up window with my silvery gray stubble.
Hello to everyone else! 👋👋
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Sassy, I've noticed my radiation site has a lot of oozing going on. Should I let it get some air or keep it covered with silvadene? The peeling isspreading out around to my back and up and over my foob. Peeling, peeling every where! Yuck!
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mags...you look great
Wrenchie, let me know if you meet up with folks in Indianapolis, I'm in Chicago, not to bad if a drive. If I'm free I would love to meet you :
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wenchie working on an answer, There is a perhaps a cheap way to go or a standard. Looking at products
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Wenchie, the peeling is the epidermis. Equivalent to the peeling after a sunburn. But the weeping says that the dermis may be involved. 2nd degree burns weep. The weep is called exudate. The key is to wick away the drainage. Exudate can be clean or dirty(remember the discussion from earlier) clean is no bacteria, dirty is with bacteria. Clean exudate is clear, dirty is different colors.
What I was hoping to find is that you could use an individual wrapped super absorbent menstrual product. I could not find any product in that pre-packaged menestraul line that said it was sterile. In a disaster situation I wouldn't hesitate to use that type of product as a wound dressing cover.
But you are not in a disaster, just a weeping wound. That is making everything very wet and distressing you. But it is very important to keep the area as dry as possible. A clean wet wound is an invitation for bacteria to set up housekeeping.
Of course, it's 11pm. no pharmacy is open. What to do when given NO guidelines by your doc and left to totally figure it on your own. (did that sound pissy, yes). First, if you have any dry sterile (non- adherent)dressings apply it directly to the wound. Then take a pre-packaged super absorbent menstrual pad and apply over that. When applying the menstrual pad do not touch the side that will be in contact with the sterile dressing. This is NOT the best situation, but it is doable in the middle of the night.
Check in with your local pharmacy in the morning. Curad is a good product. Don't overbuy. You may only need one box or less than a box. If the price is higher, just go with it. This post is specific to the problem of getting through the night. The next post I'm going to get pissy on a soapbox.
Curad 10 count per box--------likely available at local pharmacy Price 6$ per box. But that may be a smoke screen b/c that was an online price
McKesson essentially the same product as Curad, Price is 33$ /dozen
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Wenchie. I ended the post re:radiation "burns" by saying that I understood what that RO was saying that a radiation burn is not a thermal burn. But if the wound presents "acts" like a thermal burn treat it like a thermal burn. Your question about the area being very wet is classic to what others have said. Which is what gets me very pissy about how to manage radiation wound care. Never heard a story yet where any guidelines were given.
The very first principle that nursing students learn is "Intact skin is the first line of defense of the body". How we manage skin that is breached, damaged, impacted will affect how healing occurs. (pounding the keys).There are many numerous products on the market for the care of your wound. They are generally only available by prescription b/c "someone" with knowledge of the presenting wound makes a decision based on observation of the wound which product is best.
Super absorbent materials were first developed for Hazmat type spills i.e oil. Then it was seen that superabsorbent materials had other uses i.e. diapers, menstrual, and wounds. The key for wounds is non-adherent on the surface that touches the wound surface. Reason: if the dressing is adherent, it will pull off newly formed skin. Which is a no no, since the point in healing a wound is to allow skin to regenerate.
Sorry, you are having to deal with this without clear guidelines. Tell your doc, he may appreciate my wound care instructions and I'm flattered, but I think that the RO governing body would serve their patients better by developing a national guideline.0 -
Wenchie, call me, It's 12 mn here. Not sure your time. I think you have my number? I sent my # by pm
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Wenchie went back to your original post. The use of silvadene is tricky in that you have to make a decision as to when to stop. Tomorrow when you do the shower routine. Look in the mirror in the best light. If you can see skin covering an area do not put silvadene on that area. If you see what appears to be open area, put a very thin film of silvadene with a non- adherent dressing. Likely within a few days you should be able to move to a dry sterile dressing.
DS got a burn one time at FSU---------4 hours away Ugh. The school clinic did a great job over maybe 1-2 weeks. But when he got home, first thing was the dressing came off and I washed it. He looked at me so strangely. I said what's the problem. He said they were much more gentle. Poor kid. I was effectively debriding it. The silvadene was negatively impacting the good skin b/c it was outside the burn margin. You can tell that b/c it turns it brown. That skin came off with the debriding. But it was okay. Then the decision of what to do. More silvadene or just a dressing. The decision. In his case, it was now time to move to the next step. No silvadene and a dry sterile non-adherent dressing. Each time you move to a next level of management is a risk. In his case it was the right move. But had it (the wound) shown me something different the next day. The treatment would have been modified.
Wound care is much an art as it is science...........your eyes on it each day are the most important b/c you will see the changes that no else has seen.
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waving hi
Hootie hoo
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eitooh -ooh yttap
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Sassy, thank you so much for all your help. My wound is feeling and looking much better after my morning shower routine. The exudate is clean, no signs of infection. I have an appointment for my port flush first thing this morning so I'll have the nurse on duty look at it and if possible get my MO to take a lookie see. My skin check with my RO is on 4/19 so I'm going to have it moved up ASAP. I'll definitely tell him that they need to get a much better guideline for those of us that don't breeze through the skin SEs to follow. I'll keep you posted.
Susan, I'd love to meet you too! I haven't heard a peep from the 2 gals in awhile and I'm praying their treatments are going well 🙏🤞
I'll check back in when I'm back home from my port flush and running my errands.
Healing hugs to All 🤗🤗
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Dang it, can't I enjoy Spring without coming down with a slight cold.
Even though scan results were good, my MO wants me to see my BS earlier than my appointment was scheduled for because of one of the axillary nodes in the armpit area grew a tiny bit. She thinks it's because of the Sweet's Syndrome that I had problems with that is causing minor boils to crop up. I have battled with this ever since I was a teenager and I told her from the start that I am prone to them because my father and older sister had the same problem, had to remind her of that again. My BS is well aware of the issue with the boils, so I think she will call it minor and let me move on from there.
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Wenchie, fiddlesticks
last night I was too late. This morning I'm too late. Good luck. Mommie nice attitude
Mags love the hair, hope visit was good yesterday with pastor. Mine went well with PCP. The Medically Necessary documentation is a little more complicated. Each dx has to match up with exact work needed to be done to meet IRS deduction requirements. The contractor will be here at noon.
She's here.................BBL
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Yep
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Mommy- good to have the nodes checked out for any changes. I hope there is nothing of concern there. Feel better from your cold.
Patty- hi friend, how are you doing today?
Wench- sounds like you are feeling a bit better.
Hi Sassy!
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Drinking lots of Gatorade. It's my go to for colds
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I'm finally back from running around, it's now my nap time. I'm beat! I had great blood flow through my port this morning. Yay me! I usually have to sit there and let the meds do their thing to get blood flowing again. Now I know there is a first time for everything!
Sassy, you're never to late! I had the MO nurse check my Booboos out and she told me to do the same as what you told me to do. Keep it dry and clean. Luckily I ordered a 50 count box of Curity non-adhesive sterile pads when I started to have problems. I rolled a white t-shirt up and stuck it up under my arm to hold the pads in place. People looked at me funny while I was doing my garden shopping but I just don't care anymore. Besides, I'd rather get odd looks than to have my taped together pads slip out and fall on the floor. That'd be like having my skirt tucked into my panties or toilet paper stuck on my shoe!!
Mommy, take care of yourself and keep up the great attitude! Praying the swollen lymp nodes are just part of the Sweets Syndrome, which I've never heard of before. That's like when I tell my surgeries that I had as a child to a nurse taking notes. "Yes, there is such a thing as Cat Scratch Fever and it was horrible"
Until later
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We got our first thunderstorm of the Spring a bit ago. Poor Jackson was going crazy
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Wenchie whopdedoandcakebutter. The transition. Often made it with patients, but when I had to make it with DS, as to whether this day was the right day to make the transition. It was. But just as well couldn't have been. That's why I said it's just as much an Art vs. a Science. Your eyes, doc eyes, nurses eyes ...directly on the wound are better than anything. Then all the knowledge plays ping-pong in their brains. I never used that phrase before, but that is what happens. The Hmmmm moment, or let me think about this for a few moments. Then based on the knowledge accumulated over their lifetime, they then say "I recommend you do this" or "I order this" etc.
There is a thing called functional research with MRI's. They put folks in MRI's,and depending on the research, they look for the different parts of the brain that light up.
What tangent am I off on Hahaha. Glad it's better.
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Wenchie, the rolled t-shirt is a great idea. Because you were describing wet draining wound. Someone that didn't have access to dry sterile dressings. But access to a washer & dryer could decontaminate dressings by using Clorox in the wash. Clean anything on a wound is better than nothing.
But then I have modified my thought on the whole wound thing. Donnie and I are coming up on 5 years together in May. I have seen him cut hunks of skin off, slices till I think I see bone. Slice 3 inches long on the thumb pad. All the time. Wounds to numerous to mention. He manages these wounds by duct tape or black electrical tape. Thinks I'm crazy when I ask if he used soap and water when they occurred. He heals beautifully. No redness, swelling , or drainage. No infection and he is working in dirt and gruesome bacteria sources. Interesting.
Hahah he should be studied ------------bc of strong immune system---------hasn't had medical insurance, and super rarely gone the medical route
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Hella windy here tonight. Dog refuses to go out and do business...don't blame her. Scary out there. Just rescued my little Olaf statue b4 he topples over from the near hurricane winds.
They say it will continue to be bad. Expect power to go out any minute...
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Having multiple near anniversaries, Crani was March 28th, 2012.......... Hired Donnie( we guess around May 1st) The Handy Man who became My man. Another thing I never said, but I like it. The Handy Man who became my Man.. Our May anniversary of 5 years isn't quite here yet. Why the thought?
Dini. Dini came with Donnie in December 2012. Except it wasn't planed. I didn't know much of Dini. There was a freeze predicted for Florida. I then learned that Dini was an outside dog. I wouldn't have that in a freeze. We brought him over. Donnie told me he had fleas.. Worked that with the vet -Capstar----But they didn't tell me it really took 24 hours. After letting him run the house, I realized he was still infested. He went into the garage. Light on with a radiant thingy and blankets. Had to do the whole house thingy. Dini when he came was scary. Seriously, scary.
Dini improved substantially over time. Haha so did Donnie. Donnie needed to learn about animals. Dini needed to learn how to trust, how to sniff and trail, how to be a regular dog.
Dini has been a regular dog for a few years now. It took awhile. He was so afraid of love. Thinking of his reactions tonight...... He no longer has the ticks of a nervous dog i.e. the lick lipping. The aggression is gone by several years. He gets to choose wherever he sleeps. He gets to choose how long he wants to stay outside. Donnie runs both dogs in an area that is free off leash. Sniffing and marking. A dog's dream.
Dini, I brought him in, scared as hell. Now the danger with him is in the wagging. He wags his whole body when he is meeting folks. I warn them to lock their knees b/c he can knock them down. Isn't that just a happy story
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