INSOMNIACS place to talk in the wee hours
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Mom does mean well but she doesn't always understand that what was popular once for kids may not always stay popular.
Hubby liked my idea of prowling the thrift stores for the Harry Potter books
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My PS office called to set up an appointment for a skin check and see how my incision area is holding up. He warned me he may have to take a little saline out of my cancer side. It's been feeling pretty tight around my TE but I was told to expect this with radiation. I'm excited to see him! I haven't seen him in 6 months and I miss his humor.
It's nap time for me I think, to much fresh air toda 😴
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Are we talking about follow ups after treatment? Mine has always been every six months. My sister had it every three months, then went to six months about a year ago.
My MO told me I will continue to see him once a year after I am past the five years for any signs of late reoccurrence. I went down to yearly with the BS as of last summer so I did not have to see her in January. I will see her again this summer. She is my least favorite and am ready to move on from that one.....
My 5 years is this coming November, will be on the AIs through next March so I expect to be seeing my doctors this summer and next January and then not sure after that.
It does really can vary depending on your dx including type of cancer, stage, etc.
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Jazzy, yes, the after treatment follow ups. My MO told me I was free to fly away after my appointment on 5/23. My RO thinks my MO misspoke, and that MO made no mention of ending follow ups in his very long winded note to my RO. RO thinks that MO was thinking of someone else? We'll see. To many ROs and MOs in here LO-
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Mommy, I didn't even get Nancy Drew books...I had to read my aunt's hand-me-down Trixie Belden mystery books (from the 50s). Ho hum. They might be quaint today, but they certainly weren't cool back the late 60s when all the kids were trying to be "hip" and "in." You did not want to be caught during free reading time in class with a Trixie Belden book on your desk. "Gee whiz, where did you get that ol' book from...the thrift store?"
When I was in grade school, everyone was reading The Lord of the Rings, Catcher in the Rye, and One Flew Over the Cukoo's Nest. (I think your nephew may have more than a couple years to go b4 he's ready for those, unless he's a very precocious reader.)
Buy the young man what HE would like that's appropriate for his age. The Hardy Boys....geeeees!
In 2017?
Need I say more?
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I read Hardy Boys and Nancy Drew in the 40's and 50's. Even then they seemed dated. What was a roadster? I puzzled over that one until I figured it out from context.
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Wench- agreed about too many oncologists and not always on the same page. My RO and MO were in different states, that was fun.
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I love mysteries and read every night. Might have started way back when with the Nancy Drew Series. I wish I had the whole series of both of those.
About 10 years ago I started donating all my books to the hospital for their lending library. I had hundreds. Now I'm a Kindle lover. So much easier to carry in my purse everywhere I go
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Lita, my mom tried to force me to read the Little House series by Laura Ingalls Wilder in the '80s. Can we say boring? Never read one single story. Would hide them as soon as I got them. Every kid I knew was into Star Wars at the time.
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I'd only read books about horses so they are the only books my mom ever bought me. I still have my original Black Beauty, My Friend Flicka, Misty of Chincotique Island and Black Staliion books mom and dad gave me. No Little Women, Nancy Drew or Little House books for this horse crazy kid lol
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Wench- girls and horses. I used to ride when I was young until I had an accident (not a bad one, but messed up a knee for a bit). My parents put the cabash on my lessons, but took up riding once I was an adult. Not seriously, just when on vacations, etc. But the horse books, plastic horse toys, you name it were a big thing for me.
I love horses but won't ride these days, with these creaky old bones. One of my friends has a daughter who rides and is all things horses. So cute to watch. Them were the days!
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I remember those special horses they used to sell at hobby shops. I had a few of those...forgot the brand name.
I tried to read Little Women once, but the writing for me at the time was too stiff. I read King of the Wind also by Marguerite Henry about the Godolphin Arabian who was Man of War's ancestor. Yep, it was horse books, dog books, Wolf books, and any animal books for me too. I loved Wind in the Willows with Mr. Toad.
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I went through all the Nancy Drew books by the time I was 10. I started reading when I was 4. We didn't have a lot of books, but we were always at the library. Even on Sundays, our church had a library. All of us were avid readers. Then I was on to Elizabeth Goudge and Daphne du Maurier. I was always a devout Anglophile, even had English pen pals. (I still love all things British.) My two older sisters go through (literally) grocery bags full of paperbacks from the used bookstores, and my younger sister is a librarian (masters degree in library science). I have had to give up books, as I have problems focusing (both mentally and visually). Maybe because of the strong narcotics, I don't know. But I miss the days when I could curl up on the couch on a rainy Saturday and read a whole book. Nowadays I settle for Facebook and twitter, and if an article is too long, I have to skip whole paragraphs. (There's even a new anagram for that: tldr which stands for too long, didn't read.) I do better with my iPad than paper books, something about the backlit screen. And now that I have detached vitreous in both eyes, it's very distracting, akin to having great big gray dust bunnies floating around. The one in my left eye always tricks me into thinking a cat is sneaking into the room.
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if it is a book, I'll read it!
Mags, have you thought about audiobooks? I listen to them when I drive or can't read a book for whatever reason. Tons of free ones out there to download.
I can't sleep if I don't read something. Even if it is just a pamphlet! I can't get my brain to stop if I can't read.
Audiobooks also work, especially if the narrator has a soothing voice.
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Nothing puts me in a good mood like a book. Plus it helps me relax before bed
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DD has a very long commute and listens to audio books in the car. She greatly prefers them to reading. I'm so visual, audio books aren't really appealing.
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Wren, I am the same way. Having been a graphic artist, having spent 30 years hanging around print shops, inhaling the fumes of printers' ink, I find the printed word on paper irreplaceable. I think I am just grieving that loss, much as I grieved the loss of my breasts, and the component of my decision to not have reconstruction which was, the real thing or none at all.
Finished off the week with still no word from the oral surgeon with a date for my teeth extraction. My fear is that if it can't happen before May 2, when I have my MO appointment, I may miss my window entirely. With scans showing 20% progression, he might say we can't wait to start another treatment plan, and put the dental work on hold. I would have to veto that. The spots where the teeth are broken are actually cutting the inside of my mouth. I took my cuticle nipper and broke off the worst two spots, but I have another coming up. If my mouth is dry at all and I try to move it - talk, or eat, or even smile! - it catches and tears. I've started wearing a mouth guard at night because of the sharp edges.
I think I've ranted on this thread about the surgeon who did my mx and left plenty of skin so I could reconstruct, in spite of my telling her clearly, and with witnesses, that I would never reconstruct. I had given it a lot of thought, talked it over with DH, and was adamant about my decision. As a result of her decision, a have huge saggy bags on both sides. I've developed fat necrosis, had to have additional biopsies (since the right side was prophylactic, there could have still been breast tissue). I never had a surgical follow up; 3 weeks after the mx, she did my port placement surgery, guess she felt that was sufficient follow up, except that I never actually got a chance to talk to her. Then I went right into treatment and have been on the hamster wheel ever since.
DH and I have discussed it, we're not the litigious type, but it has bugged me that I never made my displeasure known. The other day I called her office. I asked if I could leave a voice mail, and the receptionist pressed me for details, so I told her the whole story. She sounded very sympathetic, told me she took notes of it all and promised to convey it to the doc herself and be my "advocate". She asked how it could be made right, since I didn't want to go through any additional surgeries. I said I just wanted the doc to tell me why she went against my clearly stated wishes. Really, I want her to admit she was wrong. I'm not going to sue her, but she needs to LISTEN TO HER PATIENTS!!!!! What is so hard about that?
Ok I had no intention of writing a meganovel, but I have one more thing. So happy I have a PCP who does listen! I saw her this week, and we discussed my ongoing battle with chronic fatigue, which I had before cancer treatment. I said I have so much I want to get done and don't know how much time I have (not that anyone ever does, but sometimes it's more clear than others, if you know what I mean). So I asked her if she would prescribe something that might help. I suggested Adderall, since I was a little familiar with it - both of my sister's kids had been on it for ADD-ADHD years ago but I'd never tried it before. So she wrote me a script for it, told me to start out with 1/2 tab to see how I did. Tried that the first day, but didn't feel any different. Next day took a whole one. This is my third day on a whole one and it's a new world. No more napping! I haven't tried to do a lot, I think I will still need to build up my endurance, but I'm very pleased. I'm even going to try to make it to church tomorrow! (Maybe I'll even try to read again!) I still have to be careful about not overdoing, I know. But it's definitely better.
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Well I got my nephew his birthday gift of his first Harry Potter novel. Couldn't find it at the thrift stores around here so I made a fast trip to Barnes and Noble and got it. I know he'll love it
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mags, happy you got some energy back. Hope you make it to church tomorrow:
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Lita, I love Mr Toad too! Are you thinking of the Bryer horses? I had a box full of them and wish I still had them!
Mags, yay for energy! I hope you can make it for church tomorrow. I'm going to try to make it to church myself in the morning. I too have had several teeth break off since my chemo. I have very soft teeth so I was expecting it to happen. I think I'm going to visit Clear Choice to see what they have to offer and at what price. I had 10 pulled a few years ago and I have my partials but I haven't been able to wear my partials since I had chemo.
M0mmy, I bet your DN is going to love his Harry Potter novel too.
Jazzy, my horse is still in Texas, she's not really mine anymore but I still call her mine. I know where she is and I can ride her when I go home to Texas. Missy has been with my best friend for 15 years (I sold her 3 years ago) and Missy will always be with her unless I buy her back which might be when sheand I are both to old to ride lol
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Hi everyone, Glad we all talked about credit, and cyber safety. I picked up a lot of tips.
There is a new search engine available that doesn't have ads or keep your information, or sell your information like Google does. They also don't censor query responses as google and Bing(Microsoft) do.
DuckDuckGo.com
Shopped for tile today. Think we did well. A speckled white, gray, black granite for the shower. White marble that has a grain of the brown and the gray is a shade of blue gray. Goes very nice together. Then a complimentary marble for a breaking thing. It will be 3 inches wide once cut. The store was absolutely huge. Called Floor and Décor. They are in 17 states. Lot's of staff to help with coordinating selections. My gal was Elsa. She never heard of Sound of Music. Long drive 50 minutes, but anything local didn't even come close to all the thousands of different offerings. We only hit probably 30 % of the story. Plus, made out like a bandit on costs.
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Harry Potter, I have all my copies. Each read twice. All the CD's and video's all viewed many times. Always wonder about adults who thought I was strange as they thought them children books. Depending on the person, I would just smile and think many different thoughts about them.
Reading life long passion. Even full scientific studies were consider fun. Now processing differently.
Jazzy I think you wrote the abbreviation. TLTR. Perfect for my brain now.
HIHIHIHI Beatmom. Phyllis often mentions you. Appreciate your note while I was gone.
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This is a secret breaking post about Mags
Our Magdalene, is a graphic artist as she stated. But what she didn't say is she is a "Stunning graphic Artist".
If you can call her and talk her into showing you her stuff, you will be blown away by the beauty.
Shssh, don't tell her I told you
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Sassy, that sounds like my kind be of store! All the stores around here offer the same thing but at different prices. I got the exact flooring I wanted for our guest bathroom at an auction last year. We paid $12.50 for a 20'X20' room. Can't beat it if they have what you want there. It's laminate so no where near as nice as what yours sounds like. Our guest bath is on the upper floor. I think if we put granite or marble down our guest bathroom would join us in the living room! I can't wait to see pictures!
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Wench- what a beautiful girl. I bet you miss that darling horse. I never owned a horse, but wanted to.
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Mags caught this line " I find the printed word on paper irreplaceable. I think I am just grieving that loss, much as I grieved the loss of my breasts, and the component of my decision to not have reconstruction which was, the real thing or none at all." Well, they aren't as perfect as they ought to be, but even though my doc would be at the bottom of the list of docs that did good foobs. Foobs have a place, if they stay in place(versus the armpit). Just to add a different point of view. But baggies aren't the usual way to do it. TE's can be introduced successfully years later. Technically, it was a failed surgery(legal/medical) term. If you choose to have a revision to get the baggies revised or continue to reconstruction, insurance should cover it.
Tell that oral surgeon he may be jeopardizing your life expectancy if he doesn't get off his duff and make it happen. Making that up, but sometimes/oftentimes docs don't get the urgency and immediacy of needed ACTION. You also, could talk with the office manager, they are the ones that set the schedules. She in turn can put the pressure on the OR scheduling folks. I bet if you tell her your tale on Monday morning, she gets it done.
Going to look into Adderall. Thanks. Gary my counselor was convinced I was ADD-ADHD b/c of the intake interview and me. Do you now sleep better at night?
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Mommy, YAY the first installation of HP. How old is the nephew again? It's near 20 years old now. It's the best.
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WenchLori: thank you for the photograph of Missy--she must be a respectable age by now. (My horse lived to 27 or thereabouts. I miss him to this day.)
Sassy: you only read your copies twice?
As for me, I'm thinking I want to do a double major at the local community college: Business (Computer information Technology track) and Computer Information Science (Networking track). I've already got a Bachelors and Masters degree from elsewhere so placing out of (I hope!) all the Gen.Ed. requirements.
But both subjects will be useful in whatever I choose to do in future....and moving on from this [beep] cancer diagnosis. I haven't had a true nightmare since last November. Too tired. Too used up all my anxieties.
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Aw Sassy, you know I'm not shy about sharing my work! You can see it on Google+. It's public, no need to sign up. Here's the URL:
A little background: several years ago, DH and I attended a small church whose limited budget left little room for luxuries like artwork. When the pastor found out I was a graphic artist, he enlisted me to help him illustrate his sermons. He would throw out some ideas, and I'd send him something for approval. Sometimes our ideas didn't mesh, which is why there are some titles with two different pieces of art. In the end, I'd give him a Power Point file with the main artwork as a title slide and a secondary page for his sermon notes, which his secretary would fill in for the presentation. Many churches are using this format, in fact there are companies that sell packages of artwork like this.
Our compact broke down eventually as he began to "borrow" sermons or sermon ideas from other pastors and expect me to duplicate their artwork, which as a professional I knew to be copyright infringement. I drew the line there. My artwork had to be completely original. Wherever I used photos or artwork that I didn't create myself. I made sure that it was in the public domain. Since there was no profit for me, my hands were clean. But when he asked me to copy other people's work, I ended the arrangement.
I hope you enjoy them!
DH, DC, and I went shopping at Big Lots, then dinner at Applebee's, then more shopping at Charming Charlie's. The most I've done without a wheelchair in months, maybe years. Off to tak a shower now, still hoping for church tomorrow.
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Mags WELL DONE on getting your feelings expressed re your surgeon's failure to listen to and to accept your decisions. Sounds like you got a very good intermediary to hear you and, as she said, advocate. I sincerely hope you get a satisfactory acknowledgement / apology. Even if you don't at least you can have the satisfaction of knowing that your experience has been made known to the surgeon, whether or not the surgeon is big enough to apologise.
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