Any ladies from WISCONSIN??
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THANK YOU !!!! the Kathys house would be so great and enable me to use Dr.Hijjawi. You gals are amazing !
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well crap...my medical coverage doesnt work with Froedtert. I did find out that my lumpectomy is considered a partial mastectomy so if i opted for just some recon it would cover for that and also on the healthy boob to make them symmetrical. I had read on another website that the federal mandate didnt include SSI medical assistance, but spoke with a nurse through my carrier and she said that i would be covered. She directed me to a list of providers . Can anyone give me insight into UW Madison or Gunderson in Lacrosse doctors that do good recon. jobs with implants?
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just followed a link from BCO to curediva.com...WOW they had tons of pre, during and post surgery and treatment items of pink sisters....they even had stick on fipples or full actual prosthetic fipples. I bookmarked several items including the "marsupial drain pouch". it hangs kind of low but probably would still be a good item to have. I liked the shower shirt but i have really long hair so i just plan on going to my regular salon and gettting washed/braided....every 3-5 days until I can get my arms above my head....hmmm kind of sounds like i am going to actually take a surgery route afterall.
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Here's a doctor that was second on my list when I was looking. He is supposed to be great and has done over 800 diep flap surgeries. He works out of Elmbrook Memorial
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blue, some surgeons won't let you shower with drains in. Some do. And you will have drains if you do the BMX. I have seen the fipples in a specialty store near me. Knuepple. LOL Knuepple Fipples! LOL
Just go the the preparing for surgery boards for what really works. My surgeons office gave me 2 cami's to wear after surgery with the drain pouches included. I wore those for 2 years as I was TE'd, filled, removed TE, filled, removed TE, filled, and implanted! LOL they come with two puffy foobs that you take filling out of ( or add back in if you should be so unlucky)to balance yourself. I had a half filled foob on my right side for those 2 years so that was handy.check to see if your team offers anything like that. I have 2 cats so i wore my Cami with the puffs even at night more for protection if the cats jumped on me while sleeping. A lot of the ladies on this board had their sx done in Madison so i am sure they will fill you in on Drs. Much love.
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after my lumpectomy i came home with a stretchy elastic tubetop type binder....under which i was wrapped with ace bandage so tight i couldnt inhale hardly at all. The tube top had a pretty design, but i was glad to see it go....LOL I am fairly certain at this point im leading towards implants of i do the MX. whippetmom gave me her insight and suggested a set of 800ccs .If anyone has a this size or knows someone that does...i would love to see before/after pics...right now i have a 40 A bra i bought online according to their measuring system. I have to put it on the last notch on the band as i gained weight when on tamoxifen. Mostly i wear sports bras from walmart. But after implants i want to get some pretty bras...ive never had nice perky boobs so couldnt fit in them before.
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Just came from seeing my BS. I asked about fat grafting and she says that she doesnt recommend it with my DCIS as there is reason to believe that it could FEED any remaining cancer cells not eliminated by my radiation. Also she feels a mastectomy would be difficult with my having had radiation...not that it couldnt be done but may be pretty difficult. SHe suggest I try a small implant to fill in my "dent" instead. SO I have appt in about 10 days to see a PS. In the meantime if anyone else has heard about fat grafting possibly feeding a cancer i would like to hear about that and/or if anyone knows about any studies i could read on it. Thanks
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Just talked to my insurance and they will cover my mammo even though it hasnt been a full year yet. Also they will cover an MRI if the doctor orders it. Talked to the nurse at UW Madison and she seemed a bit annoyed that I was requesting one. Said she would talk to my doctor and see what she says. If she refuses to order it then Im changing doctors asap. Has anyone been to ST. Marys in Madison?
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blue I wore a 44 or 46 C before my BMX. I wear a 42 B now. I have 750 Mentor Saline Med profile. I don't have pre pics. They were filled to 850 on right side and 800 on left. Of course when they took out tissue my right had more grams removed so that makes sense. I needed the large size cause I am not thin. Uhum. More fluffy. Real fluffy! LOL.
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MOonflwr: LOL Fluffy! i like that term...sometimes i say im just undertall (like Garfield). I really would like to lose weight , its just so hard with a messed up thyroid and gaining on Tamoxifen and not working anymore. I wish Spring would come so I would be more motivated to get outside and walk or go to the finess center. I have an appt with Affifi at UW on 2/7 and an appt with King at St.Marys in Madison on 2/19. Hope to hear back from my BS(Wilke at UW) that she will order the MRI before i see the PSs.
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I just started my Live Strong program at the Y. I think I can handle it. So far. We'll see. But perhaps it might help me lose even a bit.
I hope you get the info you need from your appointments.
Take care. Much love.
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Im REALLY upset right now...ive read my pathology report numerous times and only now getting a clue to what a lot of it means. Theres NO mention of HER2 positive or negative. Theres NO mention of the oncotype either....Should I assume they didnt run the oncotype test? I am feeling like I wasnt given the information I needed nor had the info explained to me so I COULD DECIDE ON MY TREATMENT....that basically my BS chose what I should do/did in regards to the lumpectomy and radiation...i dont know if she had me do both of those because its her normal way of treating my specific condition or if it was based on info in tests which are not on my path report or both. I know I trusted her as a doctor and a woman to take care of me and now I feel like i was treated as some sort of person incapable of deciding want I wanted to do for treatment and like I could never understand the options or something like that so she had to choose for me. Im SO upset right now.
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blue. Take a deep breath. Check for a FISH report in the Path. That's for Her 2. The onco type test is not on the path immediately as the tissue is sent out for testing and can take a month or so. And if the report on Her2 is positive they won't even do the oncotype test as the tx for Her2 will "Trump" any onco number.
It took me A long time to understand mine.
After a lumpectomy rads is the standard of care.
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there is no FISH information on the report...as for radiation being standard...well i dont agree....had i known all this pathology info, which they had from my original biopsy, I likely would have done a mastectomy and not done radiation nor would i have done the year of tamoxifen which was hell on me. I wasnt given my pathology report from the biopsy nor the er/pr + OR grade 2 info until AFTER i had the lumpectomy and was into radiation. I feel like my chpoices were taken from me.
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I am sorry you feel like you had your choices taken away. It's hard not to know all you need. my biopsy report is so different from my path BMX report. I would have had a 1.6 tumor of Her2 Any left if I hadn't had the bmx. But that was exactly what my Mom had gone through No one else would have that decision with the info I had. Just that I made it because of my Mom. They actually told me lx was the .way most would choose. Hugs Blue.
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My sister lives in Kenosha and belongs to a support group called Circle of Hope.......they have been an amazing support for her........I was diagnosed in 2008, she was diagnosed in 2010...........I live in Oregon........so I supported her as much as possible long distance.......but this group is wonderful.....I met them all when I visited a year ago.......
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apparently my tumor was never tested for ONCOTYPE either...at least its not in my pathology report. I just read online that the test has been availble for a long time too. And there is no info on the report for HER2 either....Now theres no way for me to find out what that score was either. When I asked for my path report they sent me a copy of it so im assuming if i had the FISH or oncotype tests done the results would be in there.
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Has anyone here had hiperbaric chamber oxygen therapy for healing problems after rads and placing an implant?
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Blue, I don't think any on the WI board had to have HB tx. But you should search for it. A couple of the surgery boards and the exchange boards have had wound vacs discussed. I think there is one person on the exchange board who still is on the wound vac now. They might be able to answer questions.
As to the path report, are you sure you have the final copy? Sometimes it takes a while to get all the docs reports together. You know blue if you want I could have a look at yours if you want to meet for lunch or dinner or just coffee. I live in Port. You are maybe 30 minutes away. I can bring mine to compare if you think that would help.
Scratch that till the weather improves. I was thinking of another city near me. You are actually West of Madison? That's a bit farther. LOL I could still look at it if you want to go over it by phone or you could scan it and email it.
Much love. Thinking of Fuzzy and Badger too.
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I have blue. PM me! (c:
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hi all, haven't been here for a while, where was I? LOL
Thinking about summer, and blueberries, and DH mowing the lawn. ♥
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Hey Badger! Missed you. How's your Mom doing? Bet your glad she's not here yet. LOL
They found the Stradivarious today. Unharmed. That's pretty neat.
Much love to all on the boards.
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Hey Monica! Mom's freezing down in FL so imagine how cold she'd be here now. All bundled up in Lands End fleece, just like me. I told her last week - see why I didn't want you to move in February? The end of March will be dicey enough.
I heard about the Strad. thank goodness. Ed Flynn and Tom Barrett were on NPR this afternoon.
Mary, have you ever played a five million dollar violin?
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Its PS first time day...im so nervous now that its here....only slept 2 hours...been having lots of nightmares the past few weeks....breathe 1,2,3.
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Hey WI girls, I haven't been on the boards for a while, although I have occasionally read the active topic titles. I mostly took a break from cancer & LE until God apparently felt I needed a reminder. I feel like I need to tell someone, so I picked you. For about 8 weeks or so, I've been having tingling along the right side of my face, mostly in the cartilage part, which freaked me out... Cause who has ear issues there? So I finally went into the onc for advice/questions. I was afraid it could be a tumor... He said that he's seen bone mets start with facial numbness, although not usually how I describe. He's not an alarmist, but also said he's not comfortable with the "wait and see". It's times like this I am reminded I had CANCER! not cancer.
So today I had my first imaging done since before the BC... A brain MRI. Now I wait until my appt. on Wed. to find out. You forget how hard the waiting is. It's better this time, cause I am less freaked out by the thought of cancer and and the same time worse cause I know what it would mean if it is. So... If you're religious, please say a little prayer for peace while I wait... And if you're not religious, send positive thoughts my way. Hopefully it's nothing but a slipped disc or pinched nerve.
And by the way... I am so done with this weather!!!! (Just had to throw that in there!)
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GottaLove: Im so sorry that you are having this scare...i feel kind of stupid now for complaining about my issues. I started this thread in 2011 and Im so glad you found it and have been here in the past and are coming back here for support now. I will say some prayers for you.
The PS i met with today says i am at high risk for complications if i try to do reconstruction after the rads i had. He said he could do a bilateral lift with a small implant for righty, but I would have to be willing to deal with a major surgery and possible problems.
With all i have read i should have expected him to say that, but it was still disappointing none the less to hear. I see the second opinion PS on 2/19.0 -
((GottaLoveNED)) sending both prayers and positive thoughts! Waiting sux. In your pocket for Weds.
((Lisa)) all of our concerns are valid! Good luck with PS2.
So happy they found that Beloit baby!
and for the record I too am DONE with this cold. ♥ to all
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prayers said, candles lit! For Gotta and Blue. Gotta, I hope maybe it's just a weird thing of maybe hormonal tx?
Glad they found the baby too.
Oh. Count me in on the done with winter group! LOL
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gottalove, I hope to hear that there must be some other explanation for it - horrible to have to wait.
Blue I see a ps on Monday (Dr Hijjawi). I'm afraid to hear the same thing. And if there is nothing he can do fairly soon, then it's highly likely I won't be able to have him do anything because of insurance changes. Soooo - I hope he can fix me, but if he says he can do wonderful things but not until next Fall - then I will be very depressed! Unless some miracle works out with our insurance.
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Wisconsin ladies - my friend in WI just shared this on her FB page.
How dreadful for that woman to be subjected to such treatment in a place of business!
Do any of you know the place?
http://alisonziebell.blogspot.com/2014/02/well-its-740pm-and-i-am-beyond-ready.html
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