Single life after a mastectomy

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Comments

  • jazzygirl
    jazzygirl Member Posts: 11,976
    edited July 2015

    June- to thine own self be true! I agree it is never good to stay in a situation that does not work for a person. I have gotten out of plenty of not great things through my life and never regretted it. However, not everyone is like that. Perceived security is sometimes more appealing than going to find what you really want in life. It is good to be able to trust your feelings. I am a dominant thinker, so that has never been easy for me for trust my feelings, but I am learning to trust my intuitions and the way I feel around people quicker these days. Sounds like you have done what works for you and it has lead you to a better work situation.

    Lilly- I don't have any experience with L or the sleeves. Fortunate to not have that issue so far, although I always worry it will show up at some point. Sounds like your L is not too bad though, only found through measurements. Have you checked one of the Lymphedema threads here too? I would not doubt there must be some choices with the sleeves. If I had to wear one here in the summer in the desert, it would be very hot too. Sounds like you need some rain.

  • milkyway2
    milkyway2 Member Posts: 186
    edited July 2015

    hi ladies

    Its been long time i msg you all .I am sorry i was away but i was not feeling well emotionally .but u guys are close to me .

    It was best evening with Enerva we spend some quality time and discuss some R rated issues .yeah we all need to have some time to laugh n share wot we feel we can understand eachother .

  • grayeyes
    grayeyes Member Posts: 533
    edited July 2015

    Enerva - Thanks for sharing the photos. It's good to see you and Milky hanging out together. I hope Milky and her children are doing all right. You both look happy and strong in the pics. Also, glad to hear you met up with your old friend.

    Melp - Congratulations on your four-year survival anniversary. :-)

    Simplicity - Welcome aboard!

    Lily - You have to wait another 4 years??? I hope I misunderstood that post.

    Jazzy - I've had a "summer cold" that refuses to go away. I hope yours doesn't last this long. I had my car fixed finally (yay!), so on to the next step which will be finding employment. We'll see what happens...

    June & BB - Hope you're enjoying the weekend.

    To everyone else who's visited here & then went on with their lives - If you see this message, I hope you're all doing well and enjoying life to the fullest.

    Adding....

    I just saw Milky's post now. Nice to see you here, Milky, and it was nice to see you and E getting together.

  • juneping
    juneping Member Posts: 634
    edited July 2015

    lily - i have LE on my fingers. i have to wear sleeves when i fly. normally i don't. it was very mild. i heard rebounding helps and i tried. my fingers went back to normal after i rebounded for about a month or two the most.

    jazzy - i have to say i feel too often too much...haha... reminded me of the book sense and sensibility. i think there's a balance but i think in our heart we can step back sometimes to look at our lives and move forward with some wisdom. i am trying....it's not always easy.....

    today met w a friend and her DH for brunch. it was quite nice. we've known each other for 10 years now...time flies. she's happily married.

    can't sleep ugh....been yawning tho. sign...probably the two coffees i had.....T_T

  • Simplicity
    Simplicity Member Posts: 723
    edited July 2015

    Hate that for you JP.

    No advice since I'm not at that stage yet. Just wanted to send hugs.

  • Simplicity
    Simplicity Member Posts: 723
    edited July 2015

    Hang in there Milky.

  • Simplicity
    Simplicity Member Posts: 723
    edited July 2015

    Milky and Enerva, y'all look lovely! Glad you enjoyed the day!

    Thank you LW :)

  • jazzygirl
    jazzygirl Member Posts: 11,976
    edited July 2015

    Good morning ladies- waking up feeling better and on the other side of this cold now. I have my MO apt tomorrow morning and Prolia shot too so I want to be ready for that next.

    Milky- nice to hear from you and sorry things have been so hard. We have missed you, but certainly understand your need for privacy during all you have been going through. Good to see you and E out playing together. We sisters here are bonded together in so many ways.

    Life- good to hear the car is fixed and that you are moving forward with looking for work. I remember you saying you found an org that helps women get back into the workforce. Wishing you the best as you move forward with creating a new and better chapter for yourself and your boys.

    June- ha, I am on the opposite side of you with "overthinking" things too many times. I do this way too often with people who disrepsect their relationship with me, trying to think through why they do things, etc. Now I just tell myself I don't like something and either tell the person it does not work for me and if it persists, I just move on. There is definitely a balance between the head and the heart that we need.

    July has been a hard month for many of us, and looking forward to the start of August and new work soon.

  • Simplicity
    Simplicity Member Posts: 723
    edited July 2015

    I can't wait for August. My one month this summer with no chemo or surgeries. (Bi lateral mastectomy hopefully in Sept).

    I have some things planned for me and my kids and have some company coming in from out of town :)

  • jazzygirl
    jazzygirl Member Posts: 11,976
    edited July 2015

    Hi Simplicity- welcome to our thread! Glad to have you join us.

    Yay for August and a break from medical care! I hope you can get out and enjoy yourself for a bit and enjoy time with family too!

  • Simplicity
    Simplicity Member Posts: 723
    edited July 2015

    Thank you Jazz & BB!

    My kids are 21 Tuesday (last chemo day!!) boy, 17 girl, and 14 boy. Bit of an advantage since they're of ages they can help out.

  • jazzygirl
    jazzygirl Member Posts: 11,976
    edited July 2015

    BB- you make a good point that people want to help us, even sometimes older children. I think it is natural to protect one's children from the harsh realities of cancer treatment so they don't feel afraid. I think your sister gave you a different perspective with your older son and it helped. I am sure it bonded you in special ways as a result of that.

  • milkyway2
    milkyway2 Member Posts: 186
    edited July 2015

    I agree with you BB now i have learned that lesson .i cant trust my own kids everybody should open our eyes .nothing s forver time will tell who will stay with us because life s unpridictable .

  • Simplicity
    Simplicity Member Posts: 723
    edited July 2015

    Hate to hear that BB.

    Just be there for her. Maybe send her a message, email, text letting her know what you CaN do for her & when? given all you have going on as well, I'm sure she understands.

    Im sure were all familiar with the 'dont know what to say or do' feeling. I know fighting cancer, sometimes I just wish people would come by & sit, bring me a dinner I love (far & few these days lol), or just a simple call or message to let me know they are thinking of me. Some sort of acknowledgement they are listening, watching, reading.

  • jazzygirl
    jazzygirl Member Posts: 11,976
    edited July 2015

    BB- I am going to be in your pocket tomorrow when you go to talk to the lawyers about getting what is rightly yours. You, Life and Milky have certainly all been put through so much with your exs. Can you take your mom with you, even to sit outside during the apt with the atty so you have someone there for moral support? I hope the atty can give you some good advice.

    And I am very sorry to hear about the woman who unexpectedly lost a child to the bee sting. That is a terrible tragedy. I felt the same way with the friend who just lost her 27 year old daughter recently and very unexpectedly. Maybe just offer that place of private PM-ing if she needs to talk? My friend asked us not to avoid her or to not let her talk about her daughter. I am going on Thursday to see that friend along with our mutual friend to spend time with her, as she is wanting that from us now. Sometimes a hug (even a cyber hut), knowing people who care, etc. makes all the difference. People just need to feel connection with others after loss.

    Although I always hope for the best every day, I do realize more and more as time goes on that there is no guaruntee of anything. That things may be good one day and bad the next. I never assume anything anymore, nor do I take anything for granted.

  • jazzygirl
    jazzygirl Member Posts: 11,976
    edited July 2015

    My epiphany today is that anything is possible when your health is good. I went to the MO's office today and met with the CNP on my last follow up apt for this 6 month check up. We had a good conversation, preliminary blood work looks good and she said liver enzymes won't be available until tomorrow (they have a lab there, which makes for faster results). Also waiting on my lipid profile from my PCP visit last week. Few more days to find out if everything is a-okay inside and out.

    I had my Prolia shot while I was there today and sat in the infusion center, which many of you are familiar with. It made me think of all the people who have gone there for medical care who have not made it through. I felt sort of humbled by that experience sitting there today and thinking about that. I am grateful for everything, and I take nothing for granted.

    Getting refocused on the work opps again. I am crowning August the find new work month for all those here looking for new or better work opps!


  • jazzygirl
    jazzygirl Member Posts: 11,976
    edited July 2015

    BB- never hurts to meet someone for coffee first? That being said, I think one has to be really up for meeting strangers and making conversation. Trust your heart to be sure you are ready to do this?

    Wishing you luck today with the attorney conversations.

    The company here I won the award with in June told me a contract was coming a couple weeks ago and that there might be a possible project coming last week. But after checking in yesterday, still no progress there. This is not my target type of work (government), and told them I would keep in touch on my availability. I can still do work for them through time, but think I am wiser to not expect anything here for awhile as what they are saying and what is happening is not one and the same. Following up on a few other things locally with current and possible new clients, but found something yesterday that is out of state that is sort of my perfect arrangement. Work remote, subcontract opportunity and travel once a month. So we will see what happens! I needed to get past my check ups to be ready to start something new. You just don't want to get going on something new and then have to opt out right away. Time to get back in the saddle.


  • juneping
    juneping Member Posts: 634
    edited July 2015

    jazzy - what's prolia shot?

    BB - wish you the best....regarding online dating. I don't have that urge anymore but I sometimes missed that deep connection with another human being. And sex as well. Sigh....

  • jazzygirl
    jazzygirl Member Posts: 11,976
    edited July 2015

    June- the Prolia is for bone health. I am on one of the aromatase inhibitors for five years, and can impact you with bone loss. I was very slightly osteopenic coming in to all this, but my last bone density test in December of 2014 has me steadily getting worse and heading down towards osteoporosis. Like many things, osteoporosis seems to be familial, and think that is why I was already slightly osteopenic coming in to this. My mother had osteo and ended up with a broken hip, leg, and osteo of the teeth (causing her teeth to some of her teeth to fall out) toward her final years. So I know where this goes. Keeping cancer risk at bay is a good thing, but ending up with broken bones as an SE is NOT a good outcome.

    My MO suggested we watch to see how things go, and that if things moved in the wrong direction, there is a shot you get 2X a year that helps with bone health. I had my first one in January, and second one yesterday. I have not really noticed much for SEs with this, although it can give you "flu like symptoms" the first few days. They use a stronger version of this drug (denusab) to help treat bone mets/cancer. It is a bone builder in that situation too. I have talked to a few other women here who are doing it, and it helps to stop the bone loss and/or even help it to improve! There are a lot of other bone building drugs that have worse outcomes. My MO's office said many times you have to try those first and Prolia is a last option. However, the insurance companies are more inclined to approve it for cancer patients.

    I will re-check this in December and we will see how much the first year of this has helped. I do weights at the gym and other weight bearing exercise too for bone health. Lots of CA and Vit D too.

  • jazzygirl
    jazzygirl Member Posts: 11,976
    edited July 2015

    BB- definitely ask for one BB. I know you are on AIs too, and this is one of the worst SEs of this drug. We need to keep our bones healthy! My PCP says she thinks osteoporosis will be an epidemic for aging baby boomers, and this was said before I had bc and went on the AIs.

    When I did on line dating, I usually showed a profile pic and something showing me doing an activity, like bike riding. I think sometimes people do that to show their entire physique.

    Wishing you luck today with your apt. Let us know how things go?

  • jazzygirl
    jazzygirl Member Posts: 11,976
    edited July 2015

    BB- well, perhaps not the outcome you expected, but also better to find out you need some specialized legal help. I think you said your husband moved overseas (or back overseas), which would make the whole thing complicated. Hoping the new atty can help you.

  • jazzygirl
    jazzygirl Member Posts: 11,976
    edited July 2015

    Saw my blood work results today on line in the portal. My Vitamin D is not as good as it has been, my LDL is slightly elevated and my fasting glucose was just over 100. Good info to help me improve on my diet and supplements. I was worried my cholesterol might go sky high on the Prolia, but just need to focus on LDL. No cheese for me!


  • jazzygirl
    jazzygirl Member Posts: 11,976
    edited July 2015

    Peaches at the farmers market today.

    image

  • Enerva
    Enerva Member Posts: 2,985
    edited July 2015

    nice jazz. I am on the train. Ll be home soon.

    can't wait for tmw Friday then I ll go away .

    I have been looking for a few things to brings along . But I have yet to do laundry and pack a suitcase lol

    hope every body is ok love the peaches jazz

    bb I am sad that things ll be so difficult for you to get lawyer help. I watched a movie with Kevin cosner a few nights ago and it was so strange to see how old he is now a days. Time is not forgiving any of us lol

    weather is great. Hot hot hot hoping it stays.

    I ll check my lottery t hope we can stop the worrying about work n start enjoying life .:)

    sending you all hugs

    I am on the train n need to log in from home when I get there.




  • jazzygirl
    jazzygirl Member Posts: 11,976
    edited July 2015

    Enerva- love Kevin Costner. Dances with Wolves one of my fav movies. He is like 59 now, and think he still looks good, but when he is with his young wife, you notice the age difference.


  • Enerva
    Enerva Member Posts: 2,985
    edited July 2015

    I still love him same with Robert retfour lol not sure how to spell his name but to se two and off course Patric s from the movie gosht and dirty dance lol he is gone now but those 3 man are my favorite from back in my days now only channing ha ha ha

    hey the movie I watch is called black and white. Nice movie but yes he looks much older now HeartI ll date him still though lol

    I never told you but my ex looks like Patric s lol Humm no wonder I was so gogo gaga ha ha ha still if I see him my heart bits like it is going to explode hahahahah

    I have to tell u all I had dinner with him and his mom lol yes yes they invited me over to dinner and off course I went just to test myself and I had a great time but I kept my distance and he knew it so he did not insisted but he acted really nice I guess he does know what he lost now.

    This week I got a msg that he was coming to town and that he will love to stop by. I said ok let me know then two days later he texted saying change of plans so won't visit. I was not even bother it like oh well what should I spect lol

    so yes I guess that is that

    Not going back there. It's nice they keep in touch but I won't get all excited cuz it's something that is just not strong enough on his side so be it.


  • jazzygirl
    jazzygirl Member Posts: 11,976
    edited July 2015

    Enerva- dinner with your ex and the mom sounded okay. He sounds like he is undependable though.


  • Enerva
    Enerva Member Posts: 2,985
    edited July 2015

    Yes he is.

    Happy Friday 2 days for my trip lol

    Saw this in another tread hope you guys like it.

    image

  • jazzygirl
    jazzygirl Member Posts: 11,976
    edited July 2015

    Safe travels Enerva. Nice post too!

  • jazzygirl
    jazzygirl Member Posts: 11,976
    edited July 2015

    I got a letter from them today telling me I am overdue for a visit with my MO. However, I had an apt there on Monday and was told I was not going to be seeing him anymore for follow ups as he is only working PT post heart attack and recovery. They reassigned me to see the CNP from now on (unless something comes up.....) They are just really on top of things over there!

    June did you have your visit this week? How did things go?